Abstract:
PURPOSE:The worldwide COVID-19 pandemic has changed almost all aspects of our lives, and the field of childhood disability is no exception. METHODS:This article is based on an invited lecture by the first author at a conference-the eHealth Summit ("Pediatric Rehabilitation in a Digital Space")-organized by the other authors and their colleagues in May 2020. RESULTS:The first author offers his own experiences and perspectives, supplemented by comments and observations contributed by many of the 9000+ attendees at this talk, as curated by the second and third authors. The basic messages are that while life for families of children with developmental disabilities, and for service providers who work with them, is significantly altered, many important lessons are being learned. CONCLUSIONS:The comments from participants support the currency of the ideas that were presented, and encourage childhood disability professionals to reflect on what we are learning, so that we can seize the opportunities they afford to do things differently-and we believe better-moving forward. IMPLICATIONS FOR REHABILITATION Ideas generated by colleagues and parents suggest that there may be alternatives to "business as usual" in childhood disability services after the COVID pandemic is over. People are recognizing opportunities, and benefits, to offering services virtually, including being able to see children in their natural environments, saving parents time, money and hassles to attend clinics in person, and perhaps increasing the availability of services. Many issues remain to be investigated systematically, including, among others, what services (assessments and interventions) require hands-on connections, what payment structures can accommodate new models of services, how professionals can work together in a virtual world, and what families will want. Regardless of the final answers to these issues, we believe that we should not simply "go back to normal"; rather, we should expand the range, nature and locations of our services for children with developmental disabilities and their families.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Rosenbaum PL,Silva M,Camden Cdoi
10.1080/09638288.2020.1862925subject
Has Abstractpub_date
2020-12-23 00:00:00pages
1-7eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract:PURPOSE:The study aimed to establish whether the manual ability classification system (MACS), a valid classification system for manual ability in children with cerebral palsy (CP), is applicable in young adults with CP and normal intelligence. SUBJECTS:The participants (n = 83) were young adults with CP and normal int...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003611011
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:By using a combination of qualitative and quantitative methods, the focus of this study was to describe the changes associated with burns on the lives of Brazilian burn victims during the rehabilitation phase, and to investigate possible associations between the changes in work reported by the participants and ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280802532555
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Evidence regarding everyday life activities in people living with COPD is limited. Such evidence can improve our understanding when designing interventions for pulmonary rehabilitation that aim at increasing or maintaining participation in these activities. The aim of this study was to describe how people livin...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1862314
更新日期:2021-01-20 00:00:00
abstract::Purpose: People with multiple sclerosis (MS) rank walking among the most challenging aspects of their condition. A greater understanding of people's perspectives concerning their walking may help to prioritize walking outcomes and strategies for optimizing walking. The purpose was to explore perceptions of walking in ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1496154
更新日期:2020-01-01 00:00:00
abstract::Purpose: The mass media have been described as an important institution in educating society about persons with disabilities and in facilitating their acceptance. However, calls to project a positive public image of persons with disabilities and to develop an inclusive society have coincided with the neo-liberal appro...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1582718
更新日期:2020-10-01 00:00:00
abstract:PURPOSE:To examine the relevance of the International Classification of Functioning, Disability and Health (ICF) to CBR monitoring and evaluation by investigating the relationship between the ICF and information in published CBR monitoring and evaluation reports. METHOD:A three-stage literature search and analysis met...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2013.821182
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:With the aim of improving the measurement of child health and disability in survey research, this paper reviews the coverage of chronic health conditions and the domains of disability and related environmental factors as they are laid out in the ICD-10 and ICF, respectively, in national surveys of school-aged c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/0963828031000122249
更新日期:2003-08-19 00:00:00
abstract:PURPOSE:The aim of this study was to assess the clinical course of patients with acute low back pain (LBP) throughout 12 weeks and to identify the prognostic factors for non-recovery in the short term. METHOD:A total of 91 patients with acute LBP (<3 weeks) were included in this study. Baseline assessments including d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802355163
更新日期:2009-01-01 00:00:00
abstract:OBJECTIVE:To compare the effects of goal directed functional therapy (GDT) to activity focused therapy (AT) for preschool children with cerebral palsy (CP) on everyday activities and gross motor function. Another aim was to evaluate goal attainment in the GDT group. METHODS:A prospective intervention study comparing t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1080/09638280902822278
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To assess construct (convergent and divergent) validity of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in a sample of children with complex medical conditions. METHOD:Demographics, clinical information, PEDI-CAT normative score, and the Post-Acute Acuity Rating for Childr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226406
更新日期:2017-11-01 00:00:00
abstract:INTRODUCTION:This study aimed at exploring the perceived benefits and drawbacks of practicing tai chi, an alternative therapy that can be implemented in the community, as part of upper-limb rehabilitation following stroke. METHODOLOGY:Semistructured interviews were carried out with participants with chronic stroke (>6...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1194900
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition characterized by a number of symptoms which typically worsen following minimal exertion. Various strategies to manage the limited energy levels have been proposed. Of these, pacing has been consistently rated as one of the m...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2011.635746
更新日期:2012-01-01 00:00:00
abstract:BACKGROUND:At a political and academic level, South Africa propagates a rights-based approach to disability. The aim of this paper is to explore how disability is conceptualized by persons with disabilities living in a rural area of South Africa. METHODS:In keeping with explorative studies, the study utilized a qualit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1313909
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:Bladder dysfunction and disability may cause people with multiple sclerosis (pwMS) to limit fluid intake. However, hydration is rarely considered in the multiple sclerosis literature. We investigated the hydration status of people with pwMS and its association with independence in activities of daily living. M...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.549286
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:A path analytic model conceptualizing self efficacy as a mediator of disability was tested. This model could help explain the circumstances under which disability develops more in some chronic pain patients than in others. METHOD:Questionnaires from 479 chronic pain patients were collected prior to an initial ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280050200296
更新日期:2000-11-20 00:00:00
abstract::Purpose: This scoping review synthesizes research on the effects and processes of telehealth wheelchair and seating assessment and the perceptions of wheelchair users and healthcare providers of telehealth use for this purpose.Materials and Methods: A systematic search and scoping review of peer-reviewed publications ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1595180
更新日期:2020-12-01 00:00:00
abstract:PURPOSE/METHOD:The article discusses rehabilitation practices in Zimbabwe from both a local and international perspective. It considers the nature of formal and informal rehabilitation services in the country, and rehabilitation personnel training. RESULTS:Indigenous disability-related practices dominate the informal ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280010008889
更新日期:2001-07-20 00:00:00
abstract:PURPOSE:Aphasia is a debilitating chronic acquired language disorder that impacts heavily on a person's life. Behavioural treatments aim to remediate language processing skills or to enhance communication between the person with aphasia and others, and a number of different treatments are efficacious. However, it is un...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1843079
更新日期:2020-11-09 00:00:00
abstract::Purpose: To ascertain stakeholders' agreement and disagreement about inter-professional collaboration (IPC) when supporting the child with a developmental language disorder (DLD) in school.Materials and methods: Two rounds of an online Delphi survey were undertaken with a purposive sample of 26 participants (researche...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1725154
更新日期:2020-02-17 00:00:00
abstract::Background: People with post-stroke aphasia commonly experience mental health conditions, with depression having a high prevalence. An understanding of current practice may inform ways to improve psychological care for people with aphasia.Aim: To explore current practice for managing depression after post-stroke aphas...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1621394
更新日期:2021-01-01 00:00:00
abstract:PURPOSE:The aim of this study is to do a cost-benefit analysis with monetary and non-monetary benefits for sheltered employment service programs and try to provide more evidence-based information for policy makers and practitioners to understand the outcomes of sheltered employment services. METHOD:This study analyzed...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.656786
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To present an evidence-based overview of the current utilization and the effectiveness of therapeutic Electromyographic Biofeedback (EMG-BF) in rehabilitation after orthopedic knee surgeries. MATERIALS AND METHODS:This systematic review was conducted according to the PRISMA statement. MEDLINE (PubMed), PEDro, ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1867904
更新日期:2021-01-08 00:00:00
abstract:PURPOSE:To assess whether life-circumstances and factors other than those described in the EuroQol EQ-5D instrument have a systematic influence on how the same EuroQol health-state is valued. METHOD:A simulation exercise whereby health professionals were asked to rate the health-state of 16 case-scenarios. Each case-s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382801750143607
更新日期:2001-05-10 00:00:00
abstract:PURPOSE:This manuscript seeks to explain why applications of item response theory (IRT) and factor analytic methods provide evidence of validity, and why for the same reasons that they provide evidence of validity, they can advance substantive knowledge. METHODS:A narrative review of the psychometrics literature and d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.872201
更新日期:2014-01-01 00:00:00
abstract::Purpose: To determine the reliability, responsiveness, validity, and agreement of handheld dynamometry, relative to electromechanical dynamometry, for assessing quadriceps strength surrounding total knee arthroplasty.Methods: Fifty-six patients (48% female) undergoing total knee arthroplasty were assessed prior to sur...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1730454
更新日期:2020-03-06 00:00:00
abstract:PURPOSE:Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disorder affecting the peripheral nerves. The purpose of this study was to describe disability and health status in patients with CIDP in Sweden. METHODS:All 22 adult patients with CIDP at the Karolinska University Hospital, Huddinge were invited to...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802306497
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:The aim of this study is to describe the clinical features of powered wheelchair users with severely disabling multiple sclerosis (MS) and explore the problematic clinical features influencing prescription. METHOD:Retrospective review of electronic and case note records of recipients of electric-powered indoor...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.949356
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:The study aimed to explore the views of health professionals on (i) physical activity in people who have rheumatoid arthritis (RA) and (ii) the design of an intervention to promote physical activity in this population. METHOD:We used a qualitative methodology and conducted 14 interviews (rheumatologists n = 7,...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1180548
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:The aim of this consensus process was to decide on a first version of the ICF Core Set for patients with musculoskeletal conditions in the acute hospital. METHODS:The ICF Core Set development involved a formal decision-making and consensus process integrating evidence gathered from preliminary studies includin...
journal_title:Disability and rehabilitation
pub_type: 共识发展会议,杂志文章,评审
doi:10.1080/09638280400013990
更新日期:2005-04-08 00:00:00
abstract:PURPOSE:Pressure mapping systems provide useful information for pressure care assessment. Healthcare professionals tend to rely upon their colour-coded pressure maps to assist clinical decision-making, based on ranking these from best to worst pressure distribution. The current study investigated whether such ranking i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701400409
更新日期:2008-01-01 00:00:00