Disability and health status in patients with chronic inflammatory demyelinating polyneuropathy.

Abstract:

PURPOSE:Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disorder affecting the peripheral nerves. The purpose of this study was to describe disability and health status in patients with CIDP in Sweden. METHODS:All 22 adult patients with CIDP at the Karolinska University Hospital, Huddinge were invited to participate. Twenty-one patients performed all measures. Their mean age was 54 years. The following measures were used: vibration perception threshold (VPT); the Fatigue Severity Scale (FSS); the Berg Balance Scale; finger dexterity using the Nine-Hole Peg Test (NHPT); functional mobility using the Timed 'Up and Go' Test; health status with the SF-36 questionnaire. RESULTS:Fifty-seven per cent of the patients had a higher thumb and ankle VPT than published normative data. The FSS showed that 38% scored over 5, indicating severe fatigue. The majority of the patients had reduced functional balance. Sixty-two per cent had a subnormal result on the NHPT. Results of the SF-36 showed lower scores than the Swedish norm on the sub-scales describing physical health. CONCLUSIONS:The majority of the patients with CIDP had disabilities and decreased physical health status. The presence of fatigue may be taken into consideration in immunomodulatory treatments and during physical rehabilitation.

journal_name

Disabil Rehabil

authors

Westblad ME,Forsberg A,Press R

doi

10.1080/09638280802306497

subject

Has Abstract

pub_date

2009-01-01 00:00:00

pages

720-5

issue

9

eissn

0963-8288

issn

1464-5165

pii

906002586

journal_volume

31

pub_type

杂志文章
  • A preliminary study describing body position in daily life in children with severe cerebral palsy using a wearable device.

    abstract:PURPOSE:The effects of gravity and immobilisation are regarded as factors in the development of spinal deformity in cerebral palsy (CP). This study was to assess the body positions in daily life of children with CP using a wearable device. METHOD:Four institutionalised children with severe quadriplegic CP participated...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.579221

    authors: Sato H,Hirai T

    更新日期:2011-01-01 00:00:00

  • Reporting on psychological well-being of older adults with chronic aphasia in the context of unaffected peers.

    abstract:PURPOSE:It is important for professionals working with individuals with acquired neurogenic communication disorders to consider their clients' psychological well-being. Much is known about the significant emotional, social and psychological consequences of aphasia after stroke; however, little is known about the indivi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.503835

    authors: Cruice M,Worrall L,Hickson L

    更新日期:2011-01-01 00:00:00

  • A qualitative analysis of a progressive resistance exercise programme for people with Parkinson's disease.

    abstract:PURPOSE:This qualitative study explored the perceptions of adults with Parkinson's disease (PD) about the positive and negative aspects and outcomes of a community-based progressive resistance strengthening programme (PRST), motivators to begin and continue with the PRST program, and factors that might facilitate or cr...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701614546

    authors: O'Brien M,Dodd KJ,Bilney B

    更新日期:2008-01-01 00:00:00

  • A bio-psycho-social approach for treating sub-acute low back pain.

    abstract:PURPOSE:This article examines the distinctive opportunities and challenges involved in treating sub-acute low back pain (LBP). Several risk factors have been identified. Thus, a multi-disciplinary design and a comprehensive bio-psycho-social approach seem to be the best modality of intervention to improve outcome. MET...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638281003797349

    authors: Giaquinto S,Bruti L,Dall'Armi V,Gison A,Palma E

    更新日期:2010-01-01 00:00:00

  • The potential for utilizing inter-limb coupling in the rehabilitation of upper limb motor disability due to unilateral brain injury.

    abstract:PURPOSE:Symmetry tendencies in human movement have generally been regarded as a constraint to upper limb motor performance. However, several recent studies have suggested that this phenomenon might be utilized in the rehabilitation of individuals with motor disability due to unilateral brain injury. In this paper the e...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280500526537

    authors: Goble DJ

    更新日期:2006-09-30 00:00:00

  • The clinical challenge of chronic neuropathic pain.

    abstract:BACKGROUND:The clinician often faces the problem that certain types of chronic pains remain refractory to the commonly used analgesic treatment options. Neuropathic pain, which is defined as pain caused by direct nerve lesions, may have different causes and a variety of clinical presentations. A correct management of c...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280500287270

    authors: Vissers KC

    更新日期:2006-03-30 00:00:00

  • Physical strain of comfortable walking in children with mild cerebral palsy.

    abstract:PURPOSE:To evaluate the physical strain of comfortable walking in children with mild cerebral palsy (CP) in comparison to typically developing (TD) children. Physical strain was defined as the oxygen uptake during walking (VO(2walk)) expressed as a percentage of their maximal aerobic capacity (VO(2peak)). METHOD:Eight...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.531374

    authors: Dallmeijer AJ,Brehm MA

    更新日期:2011-01-01 00:00:00

  • An investigation of family carers' needs following stroke survivors' discharge from acute hospital care in Australia.

    abstract:PURPOSE: To expand understanding of informal stroke care-giving, validated tools previously used in Hong Kong and in the U.K. were used with Australian stroke carers to assess their stroke-related knowledge, perceived needs, satisfaction with services received and sense of burden after stroke patients' discharge home f...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.553702

    authors: Perry L,Middleton S

    更新日期:2011-01-01 00:00:00

  • From recovery to regaining control of life - the perspectives of people with stroke, their carers and health professionals.

    abstract::Aim: To understand how people with stroke and carers adapt over time, and how health professionals support transition to home.Method: A multi-perspective, prospective, qualitative, longitudinal study was conducted using in-depth semi-structured interviews one and six months after inpatient discharge. Twenty-four parti...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1722263

    authors: Pereira CM,Greenwood N,Jones F

    更新日期:2020-02-08 00:00:00

  • Vision needs of people with intellectual disability in residential facilities and community-based homes for independent living.

    abstract:PURPOSE:The purpose of this study is to assess the visual problems of people with intellectual disability in residential and community-based facilities. METHOD:A purposive sample of 146 male and female adults, aged 21 and older, living in residential facilities and community-based homes in the southern region of Israe...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280500052898

    authors: Isralowitz R,Madar M,Reznik A

    更新日期:2005-12-15 00:00:00

  • Predicting length of stay in specialist neurological rehabilitation.

    abstract:AIMS:A retrospective case series was performed to determine which measures of complexity, dependency and function most accurately predict inpatient neurorehabilitation length of stay for individuals with post-acute neurological disorders. METHODS:Sociodemographic, medical and functional variables were extracted from d...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1261419

    authors: Taiwo W,Wressle A,Bradley L

    更新日期:2018-03-01 00:00:00

  • Development of a tool to guide referral of patients with neuromuscular disorders to allied health services. Part one.

    abstract:PURPOSE:Reasons for referral of patients with chronic, slowly progressive neuromuscular disorders (NMD) to occupational therapy (OT), physical therapy (PT) and speech therapy (ST) are often unclear. One-off consultations by OT, PT and ST can help patients and physicians to decide if therapy is needed. We present a cons...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701403437

    authors: Pieterse AJ,Cup EH,Knuijt S,Hendricks HT,van Engelen BG,van der Wilt GJ,Oostendorp RA

    更新日期:2008-01-01 00:00:00

  • Determination of the minimal clinically important difference on the Australian therapy outcome measures for occupational therapy (AusTOMs-OT).

    abstract:PURPOSE:Outcome measures must be responsive to change (able to show statistically significant change) and must also produce information on the degree of change that is clinically significant, or the minimal clinically important difference (MCID). This research sought to establish the MCID for four domains of the Austra...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.952450

    authors: Unsworth CA,Coulson M,Swinton L,Cole H,Sarigiannis M

    更新日期:2015-01-01 00:00:00

  • Reliability, responsiveness, and validity of handheld dynamometry for assessing quadriceps strength in total knee arthroplasty.

    abstract::Purpose: To determine the reliability, responsiveness, validity, and agreement of handheld dynamometry, relative to electromechanical dynamometry, for assessing quadriceps strength surrounding total knee arthroplasty.Methods: Fifty-six patients (48% female) undergoing total knee arthroplasty were assessed prior to sur...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1730454

    authors: Kittelson AJ,Christensen JC,Loyd BJ,Burrows KL,Iannitto J,Stevens-Lapsley JE

    更新日期:2020-03-06 00:00:00

  • Reference values for the 6-Min Walking Test in obese subjects.

    abstract:PURPOSE:The 6-Min Walking Test (6MWT) is widely used to measure the performance in various chronic conditions, such as in obese subjects. Reference equations for predicting distance walked during 6MWT specifically in adult obese subjects are not available. The aim of the paper is to establish reference values for 6MWT ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2012.726313

    authors: Capodaglio P,De Souza SA,Parisio C,Precilios H,Vismara L,Cimolin V,Brunani A

    更新日期:2013-07-01 00:00:00

  • Interface pressure measurements: visual interpretation of pressure maps with MS clients.

    abstract:PURPOSE:Pressure mapping systems provide useful information for pressure care assessment. Healthcare professionals tend to rely upon their colour-coded pressure maps to assist clinical decision-making, based on ranking these from best to worst pressure distribution. The current study investigated whether such ranking i...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701400409

    authors: Stinson MD,Crawford SA,Porter-Armstrong AP

    更新日期:2008-01-01 00:00:00

  • Community ambulation: influences on therapists and clients reasoning and decision making.

    abstract:BACKGROUND:Community ambulation is an important element of a rehabilitation training programme and its achievement is a goal shared by rehabilitation professionals and clients. The factors that influence a physiotherapist's or health professionals decision making around the preparation of a client for community ambulat...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701623158

    authors: Corrigan R,McBurney H

    更新日期:2008-01-01 00:00:00

  • Inclusion of disability within national strategic responses to HIV and AIDS in Eastern and Southern Africa.

    abstract:PURPOSE:National strategic plans (NSPs) provide a framework for a comprehensive response to human immunodeficiency virus (HIV) including strategies such as prevention, treatment, care and support for all affected. Research indicates limited recognition of the interrelationship between disability and HIV in the Eastern ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.573055

    authors: Hanass-Hancock J,Strode A,Grant C

    更新日期:2011-01-01 00:00:00

  • Disability prevention and communication among workers, physicians, employers, and insurers--current models and opportunities for improvement.

    abstract:PURPOSE:To review prevailing models of disability management and prevention with respect to communication, and to suggest alternative approaches. METHOD:Review of selected articles. RESULTS:Effective disability management and return to work strategies have been the focus of an increasing number of intervention progra...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280410001672517

    authors: Pransky G,Shaw W,Franche RL,Clarke A

    更新日期:2004-06-03 00:00:00

  • Myalgic encephalomyelitis/chronic fatigue syndrome and the biopsychosocial model: a review of patient harm and distress in the medical encounter.

    abstract::Objective: Despite the growing evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), there has been a strong impetus to tackle the illness utilizing a biopsychosocial model. However, many sufferers of this disabling condition report distress and dissatis...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638288.2018.1481149

    authors: Geraghty KJ,Blease C

    更新日期:2019-12-01 00:00:00

  • Parallel reliability of the functional independence measure and the Barthel ADL index.

    abstract:PURPOSE:The aim of this study was to evaluate the concordance between the assessments of ADL according to the Functional Independence Measure (FIM) and the Barthel ADL index (BI) by means of a rank-invariant statistical method. METHOD:The construct validity, also called parallel reliability, of FIM and BI was assessed...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280050191972

    authors: Gosman-Hedström G,Svensson E

    更新日期:2000-11-10 00:00:00

  • DVD-based stories of people with developmental disabilities as resources for inter-professional education.

    abstract:PURPOSE:The use of DVD stories about people with developmental disabilities within inter-professional education (IPE) across healthcare disciplines was evaluated. METHODS:First year healthcare students (n = 241) from an IPE unit responded to an attitude scale before and after viewing and discussing a DVD portraying th...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.520802

    authors: Iacono T,Lewis B,Tracy J,Hicks S,Morgan P,Récoché K,McDonald R

    更新日期:2011-01-01 00:00:00

  • 'They get the opportunity to say what is important for them': exploring staff's early perceptions of the implementation of a new communicative approach to patients with aphasia.

    abstract:PURPOSE:This study explored the perceptions of staff members regarding the implementation of a new communicative approach at a multidisciplinary neurorehabilitation centre in Denmark. Communication partner training according to Supported Conversation for Adults with Aphasia (SCATM) was combined with augmentative strate...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1853829

    authors: Hansen D,Kristensen LF,Christensen ME,Eriksson K,Thunberg G

    更新日期:2020-12-05 00:00:00

  • Effects of lateralized light flash and color on unilateral neglect.

    abstract:PURPOSE:Bottom-up-based sensory stimulation has been useful in promoting recovery from post-stroke neglect. Light and color are salient stimuli for guiding our orienting behaviors and influence the degree of spatial bias. This study evaluated the effects of lateralized light flash and color on spatial bias in unilatera...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2015.1031284

    authors: Fan YT,Wu CY,Tsai WC,Lin KC

    更新日期:2015-12-01 00:00:00

  • Balance outcome measures in cerebellar ataxia: a Delphi survey.

    abstract:PURPOSE:Choosing an appropriate outcome measure for the assessment of balance among people with cerebellar ataxia is currently challenging as no guidelines are available. There is a need for further investigation with clinical experts in order to derive a set of standardized outcome measures with high clinical utility....

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.913709

    authors: Winser SJ,Smith C,Hale LA,Claydon LS,Whitney SL

    更新日期:2015-01-01 00:00:00

  • Longitudinal changes in activity participation in the first year post-stroke and association with depressive symptoms.

    abstract::Research question: 1. Does activity participation improve over time in the first year after stroke? 2. What is the association of depressive symptoms on retained activity participation 12-months post-stroke adjusting for neurological stroke severity and age? 3. Is an improvement in activity participation associated wi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2018.1471742

    authors: Tse T,Linden T,Churilov L,Davis S,Donnan G,Carey LM

    更新日期:2019-10-01 00:00:00

  • Club foot treatment in Malawi - a public health approach.

    abstract:UNLABELLED:PURPOSE. Malawi is a very poor country with a current population of 12 million people and very few orthopaedic surgeons or physiotherapists. An estimated 1125 babies are born per year with club foot. If these feet are not corrected early, then severe deformity can develop, requiring complex surgery. A task f...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701240169

    authors: Lavy CB,Mannion SJ,Mkandawire NC,Tindall A,Steinlechner C,Chimangeni S,Chipofya E

    更新日期:2007-06-15 00:00:00

  • Cost-benefit analysis for sheltered employment service programs for people with disabilities in Taiwan - a preliminary study.

    abstract:PURPOSE:The aim of this study is to do a cost-benefit analysis with monetary and non-monetary benefits for sheltered employment service programs and try to provide more evidence-based information for policy makers and practitioners to understand the outcomes of sheltered employment services. METHOD:This study analyzed...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2012.656786

    authors: Wang YT,Lin YJ,Shu CH

    更新日期:2012-01-01 00:00:00

  • Medical and psychosocial problems in middle-aged spina bifida patients: survey among members of the Dutch patients' association.

    abstract:PURPOSE:To identify physical, emotional and psychosocial issues in the older person with spina bifida (SB). METHOD:Members of the Dutch patients' association aged >25 years (n = 184) were asked to complete a questionnaire. This survey contained questions on physical and psychosocial complaints, as well as problems reg...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.801522

    authors: Veenboer PW,Procee AI,Verheijden JM,Bosch JL,van Asbeck FW,de Kort LM

    更新日期:2014-01-01 00:00:00

  • Accessibility, usability and universal design--positioning and definition of concepts describing person-environment relationships.

    abstract:PURPOSE:The aim of this paper is to position, define and discuss three concepts crucial for research and practice concerning person-environment relationships, viz. accessibility, usability and universal design. METHODS:Literature review, synthesized with the authors' research and practice experiences. RESULTS:The aut...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/dre.25.2.57.66

    authors: Iwarsson S,Ståhl A

    更新日期:2003-01-21 00:00:00