Abstract:
:Objective: Despite the growing evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), there has been a strong impetus to tackle the illness utilizing a biopsychosocial model. However, many sufferers of this disabling condition report distress and dissatisfaction following medical encounters. This review seeks to account for this discord.Methods: A narrative review methodology is employed to synthesize the evidence for potential iatrogenesis.Results: We identify seven potential modalities of iatrogenesis or harm reported by patients:difficulties in reaching an acceptable diagnosis;misdiagnosis, including of other medical and psychological conditions;difficulties in accessing the sick role, medical care and social support;high levels of patient dissatisfaction with the quality of medical care;negative responses to controversial therapies (cognitive behavioral therapy and graded exercise therapy);challenges to the patient narrative and experience;psychological harm (individual and collective distress).Conclusion: The biopsychosocial framework currently applied to ME/CFS is too narrow in focus and fails to adequately incorporate the patient narrative. Misdiagnosis, conflict, and harm are observable outcomes where doctors' and patients' perspectives remain incongruent. Biopsychosocial practices should be scrutinized for potential harms. Clinicians should consider adopting alternative patient-centred approaches.Implications for rehabilitationPatients with ME/CFS may report or experience one or more of the modalities of harms and distress identified in this review.It is important health and rehabilitation professionals seek to avoid and minimize harms when treating or assisting ME/CFS patients.There are conflicting models of ME/CFS; we highlight two divergent models, a biopsychosocial model and a biomedical model that is preferred by patients.The 'biopsychosocial framework' applied in clinical practice promotes treatments such as cognitive behavioral therapy and exercise therapy, however, the evidence for their success is contested and many patients reject the notion their illness is perpetuated by dysfunctional beliefs, personality traits, or behaviors.Health professionals may avoid conflict and harm causation in ME/CFS by adopting more concordant 'patient-centred' approaches that give greater prominence to the patient narrative and experience of illness.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Geraghty KJ,Blease Cdoi
10.1080/09638288.2018.1481149subject
Has Abstractpub_date
2019-12-01 00:00:00pages
3092-3102issue
25eissn
0963-8288issn
1464-5165journal_volume
41pub_type
杂志文章,评审abstract:PURPOSE:Understanding the experiences of fallers after stroke could inform falls-prevention interventions, which have not yet shown effectiveness in this population. The aim of this study was to explore the experience of recurrent fallers post-stroke in relation to recovery and living with falls. METHODS:Participants ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1381182
更新日期:2019-01-01 00:00:00
abstract::Cystic fibrosis is now an adult disease. The understanding of the basic pathophysiology of this disease has increased considerably over the past decade. This has resulted in effective management protocols and the development of innovative approaches to therapy. Management of young adults is complex and requires expert...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289809166732
更新日期:1998-06-01 00:00:00
abstract:PURPOSE:Understanding the hierarchy of higher-level physical functions to infer disability level (mild, moderate or severe) is essential for the precise targeting of preventive interventions and has been examined previously in a cross-sectional study. Based on longitudinal data, this study evaluated the hierarchy of hi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641657
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To determine whether functional ability at admission and demographics predict discharge placement after inpatient rehabilitation for older adults recovering from stroke. METHOD:In this retrospective study, we examined records of 31,910 adults 65 years of age and older who were admitted for inpatient rehabilita...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.717587
更新日期:2013-06-01 00:00:00
abstract::Alexithymia (Greek, a = lack, lexis = word, thymos = emotion) is a new concept which, whilst being based upon longstanding clinical observation, remains unproven clinically. The lack of definite criteria for inclusion, and the absence of reliable and valid assessment tools, ensures that past data collection has been f...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289609166302
更新日期:1996-04-01 00:00:00
abstract:PURPOSE:To describe activity level, operationalized as ADL capacity and performance of occupations, and occupational balance, operationalized as time use and satisfaction with occupations, in women with limited systemic sclerosis, and to investigate the relationship between these occupational factors and disease charac...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701190083
更新日期:2008-01-01 00:00:00
abstract::Purpose: Scholars agree that effective rehabilitation relies on a bedrock of reciprocity, relational trust, and authenticity. It is therefore essential for practitioners to develop insight into the complex dynamics within helping relationships. This study aims to provide an in-depth understanding of visually impaired ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1450454
更新日期:2019-08-01 00:00:00
abstract:PURPOSE:This study aimed to: (a) investigate whether, and if so which, sexual problems are present in people with a limb amputation; (b) analyze how they experience their sexuality; and (c) investigate whether sexuality was discussed with them during their rehabilitation process. METHOD:In total, 301 participants comp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1044029
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:Storybook reading provides a natural language learning context in which to support early symbolic communication. In this study, we explored the impact of (1) resting hand splints, (2) light tech augmentative communication systems such as voice-output devices and symbols, and (3) very basic parent training on th...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章
doi:10.1080/09638280150504225
更新日期:2001-02-15 00:00:00
abstract::Background: Everyday routines play a vital role in child functioning and development. This study explored health professionals' documentation of everyday life and health care during the first year following gastrostomy tube placement in children and the content of intervention goals.Methods: The medical records of 39 ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1573383
更新日期:2020-09-01 00:00:00
abstract:PURPOSE:The evidence supporting rehabilitation after joint replacement, while vast, is of variable quality making it difficult for clinicians to apply the best evidence to their practice. We aimed to map key issues for rehabilitation following joint replacement, highlighting potential avenues for new research. MATERIA...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638288.2017.1300947
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:This study has had two main aims, the first to investigate and gather knowledge of the major job functions of Swedish rehabilitation workers, the second to study the frequency of use of these functions in the VR process. METHOD:Structured questionnaires were sent to Swedish rehabilitation workers from public a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280902736353
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To adapt the American PEDI into a Dutch version, and to establish the content validity of this pediatric functional status instrument. METHODS:The adaptation process was based on current scientific guidelines in the field of cross-cultural research. Thirty-one allied health professionals completed a validity q...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110076036
更新日期:2002-03-20 00:00:00
abstract:PURPOSE:Kinesiophobia and catastrophizing are frequent among people with chronic fatigue syndrome (CFS). This study was aimed at examining (1) whether kinesiophobia, anticipated symptoms and fatigue catastrophizing are related to stair climbing performance in people with CFS; and (2) whether kinesiophobia and fatigue c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641661
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To review research that examined the participation in activities of children who have cerebral palsy, in order to understand their extent of participation and the factors that influenced participation. METHODS:A comprehensive search of seven databases retrieved 2,111 papers, 40 of which met criteria and were r...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701673542
更新日期:2008-01-01 00:00:00
abstract:BACKGROUND:Childhood mild traumatic brain injury (mTBI) has been associated with negative adult outcomes. Effective interventions require identification of the injury event. There is currently little information regarding the accuracy of adult recall of childhood mTBI. METHOD:Prospectively collected information from a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1193905
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:We aimed to investigate the ability of oxygen uptake kinetics to predict short-term outcomes after off-pump coronary artery bypass grafting. METHODS:Fifty-two patients aged 60.9 ± 7.8 years waiting for off-pump coronary artery bypass surgery were evaluated. The 6-min walk test distance was performed pre-operat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1401673
更新日期:2019-03-01 00:00:00
abstract:INTRODUCTION:This study aimed at exploring the perceived benefits and drawbacks of practicing tai chi, an alternative therapy that can be implemented in the community, as part of upper-limb rehabilitation following stroke. METHODOLOGY:Semistructured interviews were carried out with participants with chronic stroke (>6...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1194900
更新日期:2017-06-01 00:00:00
abstract::This study provides national estimates of the size of the US working age disabled populations in institutions and in the community, and describes these populations along a number of dimensions. By using data from the Institutional Population and Household Survey Components of the 1987 National Medical Expenditure Surv...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289509166640
更新日期:1995-07-01 00:00:00
abstract:PURPOSE:To explore the association between participation and social competence for preschool aged children with and without disabilities. METHODS:The sample was drawn from the Longitudinal Study of Australian Children (n = 4983) which included children aged 4-5 years reported to have hearing problems (n = 164), vision...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.949355
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:The study aimed at describing the language and communication abilities of a child diagnosed with Developmental Apraxia of Speech (DAS), who used a Macaw Digital voice output device. METHOD:This case study describes the training of a mother in the use of a Macaw digital voice output device to give her child wit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110036517
更新日期:2001-09-20 00:00:00
abstract:PURPOSE:Upper limb amputations cause severe functional disability and lower the patient's self body image, with severe psychological implications. Many parameters are involved in the successful rehabilitation of upper limb amputations. The aim of this study was to investigate whether there are any parameters that might...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001645094
更新日期:2004-01-07 00:00:00
abstract:PURPOSE:This qualitative study explored the perceptions of adults with Parkinson's disease (PD) about the positive and negative aspects and outcomes of a community-based progressive resistance strengthening programme (PRST), motivators to begin and continue with the PRST program, and factors that might facilitate or cr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701614546
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:The purpose of this paper is to assist those engaged in research dealing with attitudes towards persons with disabilities by presenting a catalogue of various attitude measurement methods. METHOD:A review of the methodological and psychological literatures on the measurement of attitudes towards persons with d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/096382800296782
更新日期:2000-03-20 00:00:00
abstract:PURPOSE:To study the impact on health status as measured by SF-36 in groups of subjects having chronic musculoskeletal pain with different degree of generalization: No chronic pain (NCP), chronic regional pain (CRP), chronic widespread pain (CWP), CWP with a stricter 'Manchester' definition (CWP-M), and clinically defi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400009030
更新日期:2005-06-17 00:00:00
abstract:PURPOSE:Appropriate wheelchairs for basic mobility needs are still not commonly available in low-income countries, although several organizations are working toward this goal. After basic mobility is secured it is important to provide more diverse assistive technology to allow people with disabilities to more completel...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701240714
更新日期:2007-06-15 00:00:00
abstract:PURPOSE:The purpose of this study was to develop an understanding the experience and meaning of mobility loss among older adults with multiple sclerosis (MS). This work is part of a larger study on the health concerns and service needs of older adults with MS. METHODS:Twenty-seven people with MS (mean age = 62 years, ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001596180
更新日期:2003-10-21 00:00:00
abstract:PURPOSE:The purpose of this study is to present a retrospective study on clients with Acquired Brain Injury (ABI) enrolled in a tele-motion-rehabilitation service program for two or more months. METHODS:Data from 82 clients (46 males; 74 with ABI), aged 22-85 years, are reported. The Kinect-based CogniMotion System (R...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1250827
更新日期:2017-07-01 00:00:00
abstract::Purpose To investigate shoulder function, pain and Health-Related Quality of life (HRQoL) among adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type (JHS/EDS-HT), compared with the general population (controls). Method In a cross-sectional study using postal survey, 110 patients diagnosed...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1102336
更新日期:2016-07-01 00:00:00
abstract:OBJECTIVE:To describe physiotherapists' perceptions of fall risk and appropriate fall prevention interventions in rehabilitating stroke patients. METHOD:A web-based survey addressed to physiotherapy units on a stroke unit, general neurology department or rehabilitation ward/centre in Flanders. RESULTS:Hospital respon...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802355015
更新日期:2009-01-01 00:00:00