Abstract:
PURPOSE:Evidence regarding everyday life activities in people living with COPD is limited. Such evidence can improve our understanding when designing interventions for pulmonary rehabilitation that aim at increasing or maintaining participation in these activities. The aim of this study was to describe how people living with COPD experience and manage everyday life activities. MATERIALS AND METHODS:The sample comprised four males and four females with an age ranging from 65-87 years. Participants were interviewed in their own homes regarding experiences of performing and managing everyday life activities. Data were transcribed verbatim and analysed using content analysis. RESULTS:Findings from this study comprised the theme "Juggling to manage everyday life activities with COPD" and three categories representing the elements of this theme: (1) consequences of COPD symptoms, (2) adjustment of activities, and (3) contextual aspects. CONCLUSION:This study found the participants with COPD juggling the management of everyday life activities. The juggle generated a manageable daily life, which came at the expense of making deliberate choices and prioritizing everyday life activities that were necessary for participation in valued and engaging activities in order to maintain health and well-being. Implications for Rehabilitation People living with COPD experience a complex juggling between the consequences of COPD symptoms and contextual aspects when managing everyday life activities. The participants had largely accepted their disease and adjusted to their situation. The disease was still described as frustrating and generated less focus on making deliberate choices and prioritizing everyday life activities that are necessary for participation in valued and engaging activities. Health professionals need to support people living with COPD in making deliberate choices in order to continue participating in valued and engaging everyday life activities as they affect health and well-being. Pulmonary rehabilitation should focus more on supporting participation in social relations and on using everyday technologies.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Kaptain RJ,Helle T,Kottorp A,Patomella AHdoi
10.1080/09638288.2020.1862314subject
Has Abstractpub_date
2021-01-20 00:00:00pages
1-12eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract:PURPOSE:Many patients suffer long term loss of mobility after hip fracture but there is no gold standard method for measuring mobility in this group. We aimed to validate a new mobility outcome measure, the de Morton Mobility Index (DEMMI) in a hip fracture population during inpatient rehabilitation. METHOD:The DEMMI ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.705220
更新日期:2013-02-01 00:00:00
abstract::Objective: Despite the growing evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), there has been a strong impetus to tackle the illness utilizing a biopsychosocial model. However, many sufferers of this disabling condition report distress and dissatis...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638288.2018.1481149
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1492032
更新日期:2019-12-01 00:00:00
abstract:PURPOSE:This paper explores the perception of quality of life (QOL) of four men following traumatic brain injury (TBI) and the effects of their injury on family, social and working life. METHOD:It also highlights their on-going difficulties 6, 8, 10 and 11 years post injury and that long term support is not available ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000058503
更新日期:2003-07-08 00:00:00
abstract:PURPOSE:To investigate the safety and efficacy of early mobilisation (EM) compared to usual care by meta-analysing individual participant data (IPD). MATERIALS AND METHODS:IPD were sought from randomised controlled trials comparing out-of-bed mobilisation starting within 48 h from stroke onset to usual care for acute ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1789229
更新日期:2020-07-16 00:00:00
abstract:PURPOSE:To identify trajectories of physical and psychosocial health-related quality of life (HRQoL) from two months to one-year post stroke and to determine the factors that are associated with trajectory membership. METHOD:Multicenter prospective cohort study in which 351 stroke patients were followed up at 2, 6, an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1292320
更新日期:2018-05-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000069753
更新日期:2003-09-16 00:00:00
abstract:PURPOSE:To obtain information about the wishes and experiences of patients with a lower limb amputation with regard to prosthetic prescription and their exchange of information with the healthcare providers. METHOD: DESIGN:Cross-sectional questionnaire. SETTING:Outpatient clinic of a Rehabilitation Centre. STUDY PA...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600948375
更新日期:2007-07-15 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701400409
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638288.2016.1201151
更新日期:2017-08-01 00:00:00
abstract:PURPOSE:Healthcare decision making in motor neurone disease (MND) focuses on symptom management and quality of life. Decision making may be affected by personal approach to receiving information, decision making style, and disease symptoms. This study explored decision making from the perspectives of people living with...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1855261
更新日期:2020-12-09 00:00:00
abstract::This article deals with the development of a basis for data collection and statistics on disability in France. After having recalled the first attempts to establish statistics on disability, highlighting the lack of a reliable conceptual basis, its shows how ICIDH spread out from the geriatrics research field to the d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000137153
更新日期:2003-06-03 00:00:00
abstract:UNLABELLED:PURPOSE. Malawi is a very poor country with a current population of 12 million people and very few orthopaedic surgeons or physiotherapists. An estimated 1125 babies are born per year with club foot. If these feet are not corrected early, then severe deformity can develop, requiring complex surgery. A task f...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701240169
更新日期:2007-06-15 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280050207884
更新日期:2000-12-15 00:00:00
abstract:PURPOSE:This qualitative study explored the perceptions of adults with Parkinson's disease (PD) about the positive and negative aspects and outcomes of a community-based progressive resistance strengthening programme (PRST), motivators to begin and continue with the PRST program, and factors that might facilitate or cr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701614546
更新日期:2008-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1300340
更新日期:2018-06-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1691666
更新日期:2019-11-19 00:00:00
abstract::Purpose: This study aimed to evaluate the implementation of a physical activity counseling program in rehabilitation and to study heterogeneity in received counseling and investigate its association with changes in patients' physical activity outcomes. Methods: This prospective cohort study was conducted in 18 rehabil...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1675188
更新日期:2019-10-17 00:00:00
abstract:PURPOSE:To understand the meaning of regular participation in multiple types of vigorous-intensity exercise for those with Parkinson's disease (PD). MATERIALS AND METHODS:Using a qualitative phenomenological approach, in-depth individual interviews were conducted with eight male participants who engaged in at least tw...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1836042
更新日期:2020-10-25 00:00:00
abstract:PURPOSE:To study social validity and perceived fairness of a new method for assessing general work ability in a sickness insurance context. Assessments are based on self-reports, combined with examinations by physicians, and, if needed, occupational therapists, physiotherapists and/or psychologists. MATERIALS AND METH...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1401675
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abstract::Purpose: This study was conducted in a home-based context where trained occupational therapists delivered progressive physical exercise training and home modification intervention for preventing falls, namely the FIT-at-Home intervention. We assessed the feasibility of the intervention's content and mode of delivery f...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1700564
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226419
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500476188
更新日期:2006-08-30 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280210125805
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abstract::The study evaluated the sensitivity of a newly devised scale for measurement of emotional reactions and depression, on a group of 25 stroke patients, with right or left hemisphere damage, and 15 age-matched controls. Four clusters were examined: communication, expression of emotions, sense of self and physical or psyc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289709166828
更新日期:1997-02-01 00:00:00
abstract:PURPOSE:Kinesiophobia and catastrophizing are frequent among people with chronic fatigue syndrome (CFS). This study was aimed at examining (1) whether kinesiophobia, anticipated symptoms and fatigue catastrophizing are related to stair climbing performance in people with CFS; and (2) whether kinesiophobia and fatigue c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641661
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:Impairment of language ability, aphasia, can cause barriers to communication and hence impact on participation in many life situations. This study aimed to describe and explore how persons with aphasia following stroke experience engaging in everyday occupations. METHOD:Six persons from Southwest Finland who h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.759628
更新日期:2013-10-01 00:00:00
abstract::Purpose: The purpose of this review was to synthesize the literature about spinal cord injury and employment, focusing on sample demographics, indicators of employment outcome, and the methods used. The review included literature from the previous decade; 2006-2017. Methods: A systematic quantitative literature review...
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pub_type: 杂志文章
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journal_title:Disability and rehabilitation
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更新日期:2019-03-01 00:00:00