A study to evaluate the met and unmet needs of members belonging to Young Stroke groups affiliated with the Stroke Association.

Abstract:

PURPOSE:To examine the met and unmet needs of young people with stroke who accessed services run by the Stroke Association. METHODS:One hundred and thirty-five out of 200 members of 14 participating Young Stroke groups completed and returned the postal version of the Southampton Needs Assessment Questionnaire for Stroke questionnaire. RESULTS:Young Stroke group members had a median of five unmet needs. An analysis of these needs showed that information about the person's stroke, help with finances, assistance with non-care activities (e.g. help with social activities) and help with maintaining intellectual fulfilment were the four most frequently reported ones. There was no association between the number of unmet needs reported and factors such as age, time since stroke and social class. CONCLUSIONS:Young Stroke group members may be more aware of what their unmet needs are and have better knowledge in accessing existing health and social service resources. Nevertheless, these findings show that people with stroke considered the provision of information geared to their own needs as important. Statutory services should personalize information to individual's specific situation and should also tackle other problems, not only physical ones, experienced by young people with strokes.

journal_name

Disabil Rehabil

authors

Low JT,Kersten P,Ashburn A,George S,McLellan DL

doi

10.1080/0963828031000069753

subject

Has Abstract

pub_date

2003-09-16 00:00:00

pages

1052-6

issue

18

eissn

0963-8288

issn

1464-5165

pii

PGE6LWDRX1DQX4NA

journal_volume

25

pub_type

杂志文章
  • Effects of chronic shoulder pain on quality of life and occupational engagement in the population with chronic spinal cord injury: preparing for the best outcomes with occupational therapy.

    abstract::Purpose To examine the implications of chronic shoulder pain on quality of life and occupational engagement in spinal cord injury (SCI). The Ecology of Human Performance Model and Self-Efficacy Theory will be used to further examine the interplay of shoulder pain, quality of life and engagement in this population. Met...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2016.1140829

    authors: Silvestri J

    更新日期:2017-01-01 00:00:00

  • Assessing the neurophysiological effects of botulinum toxin treatment for adults with focal limb spasticity: a systematic review.

    abstract:UNLABELLED:To examine effectiveness of botulinum toxin therapy (BoNT), accurate quantification of the neurological component of underlying spasticity is needed. PURPOSE:Systematically identify and summarize literature on neurophysiological methods to test the effectiveness of BoNT, discuss methodological aspects, and ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2011.591882

    authors: Phadke CP,Ismail F,Boulias C

    更新日期:2012-01-01 00:00:00

  • DeafSpace and the principles of universal design.

    abstract:PURPOSE:Recent debates about the epistemological origins of Universal Design (UD) have questioned how far universalist design approaches can address the particularities and diversities of the human form through a series of standardised, technical responses. This article contributes to these debates by discussing an eme...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.913710

    authors: Edwards C,Harold G

    更新日期:2014-01-01 00:00:00

  • Falls among stroke survivors: an online survey on perceptions and approaches among physiotherapists in Flanders.

    abstract:OBJECTIVE:To describe physiotherapists' perceptions of fall risk and appropriate fall prevention interventions in rehabilitating stroke patients. METHOD:A web-based survey addressed to physiotherapy units on a stroke unit, general neurology department or rehabilitation ward/centre in Flanders. RESULTS:Hospital respon...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280802355015

    authors: Baetens T,Peersman W,Cambier D

    更新日期:2009-01-01 00:00:00

  • How is right hemisphere communication disorder disabling? Evidence from response mobilizing actions in conversation.

    abstract::Aim: Assessment and intervention strategies for communication disorders caused by right hemisphere stroke are at an early stage of development. There is also little evidence on how right hemisphere communication disorder is disabling for everyday life. This study explores how a woman with conversational problems follo...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1766123

    authors: Barnes S,Beeke S,Bloch S

    更新日期:2020-05-23 00:00:00

  • Reference to ICIDH in French surveys on disability.

    abstract::This article deals with the development of a basis for data collection and statistics on disability in France. After having recalled the first attempts to establish statistics on disability, highlighting the lack of a reliable conceptual basis, its shows how ICIDH spread out from the geriatrics research field to the d...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/0963828031000137153

    authors: Roussel P,Barral C

    更新日期:2003-06-03 00:00:00

  • Evaluation of rehabilitated bilateral lower limb amputees - an Indian study.

    abstract:OBJECTIVE:This study assessed activities of daily living (ADL) and ambulation of rehabilitated bilateral lower limb amputees with relation to their level of amputation in an Indian setting. SUBJECTS AND METHODS:This retrospective study of 25 subjects comprised 12 bilateral Trans-femoral (TF) amputees, 8 bilateral Tran...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.629713

    authors: Paul R,Masilamani S,Dwyer AJ

    更新日期:2012-01-01 00:00:00

  • Cognitive functioning in persons with lower limb amputations: a review.

    abstract:PURPOSE:To review the literature on cognitive functioning in persons with lower limb amputations. METHOD:A search of the MEDLINE, PsycINFO and Web of Science databases was carried out. RESULTS:Thirty papers were found that met the inclusion criteria. The studies were characterised by heterogeneity of design, methodol...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2012.667190

    authors: Coffey L,O'Keeffe F,Gallagher P,Desmond D,Lombard-Vance R

    更新日期:2012-01-01 00:00:00

  • Experiences of communication changes following spinal cord injury: a qualitative analysis.

    abstract::Purpose: Voice and communication changes can occur following cervical spinal cord injury due to dysfunction of the respiratory and phonatory subsystems. Few studies have explored the "lived experience" of communication changes post cervical spinal cord injury. Furthermore, the impacts of these changes on community act...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2018.1557264

    authors: Wall LR,Nund RL,Ward EC,Cornwell PL,Amsters DI

    更新日期:2020-08-01 00:00:00

  • Family-professional collaboration in pediatric rehabilitation: a practice model.

    abstract:PURPOSE:Family--professional collaboration is essential to optimize outcomes of children with disabilities and the families. METHOD:The authors incorporated current knowledge to formulate principles of collaborative service delivery in pediatric rehabilitation, develop a 4-step process of implementation, and recommend...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.797510

    authors: An M,Palisano RJ

    更新日期:2014-01-01 00:00:00

  • Involvement in volunteering: an exploration of the personal experience of people with aphasia.

    abstract::This article reports results from a qualitative study in the U.K. of people with aphasia who have been involved in volunteering. The study describes their experiences; explores, from their perspective, the effects of involvement; and identifies key facilitators and barriers to the successful participation of people wi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.549285

    authors: Pearl G,Sage K,Young A

    更新日期:2011-01-01 00:00:00

  • Hydration and independence in activities of daily living in people with multiple sclerosis: a pilot investigation.

    abstract:PURPOSE:Bladder dysfunction and disability may cause people with multiple sclerosis (pwMS) to limit fluid intake. However, hydration is rarely considered in the multiple sclerosis literature. We investigated the hydration status of people with pwMS and its association with independence in activities of daily living. M...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.549286

    authors: Collett J,Dawes H,Cavey A,Meaney A,Sackley C,Wade D,Howells K

    更新日期:2011-01-01 00:00:00

  • Clinical psychology and disability studies: bridging the disciplinary divide on mental health and disability.

    abstract:PURPOSE:Clinical psychology and disability studies have traditionally occupied very different academic, philosophical and political spaces. However, this paper aims to illustrate the positive consequences and implications of attempts to understand and bridge this disciplinary divide. METHOD:A narrative review format w...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2014.961656

    authors: Simpson J,Thomas C

    更新日期:2015-01-01 00:00:00

  • Phantom pain: a sensitivity analysis.

    abstract:PURPOSE:To analyse how decisions to dichotomise the frequency and impediment of phantom pain into absent and present influence the outcome of studies by performing a sensitivity analysis on an existing database. METHOD:Five hundred and thirty-six subjects were recruited from the database of an orthopaedic workshop and...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280410001708922

    authors: Borsje S,Bosmans JC,van der Schans CP,Geertzen JH,Dijkstra PU

    更新日期:2004-07-22 00:00:00

  • Clinical relevance of the modified physical performance test versus the short physical performance battery for detecting mobility impairments in older men with peripheral arterial disease.

    abstract:PURPOSE:The study is to compare the Modified Physical Performance Test (MPPT) and Short Physical Performance Battery (SPPB) as metrics of mobility and function in older men with peripheral arterial disease (PAD). MATERIALS AND METHODS:A total of 51 men (55-87 years) with PAD underwent functional testing including the ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1367966

    authors: Addison O,Kundi R,Ryan AS,Goldberg AP,Patel R,Lal BK,Prior SJ

    更新日期:2018-12-01 00:00:00

  • Living with arthritis--what is important?

    abstract:PURPOSE:Demonstrating the effectiveness of health care interventions requires valid measurement of the impact of those interventions. However, outlining precisely what constitutes a 'good outcome' in the field of rehabilitation is no easy task and tends to rely on models proposed by 'experts' rather than people with th...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280110049919

    authors: McPherson KM,Brander P,Taylor WJ,McNaughton HK

    更新日期:2001-11-10 00:00:00

  • Activity limitation, coping efficacy and self-perceived physical independence in people with disability.

    abstract:OBJECTIVE:This study examines whether the relationships between activity limitations and independence are mediated by coping efficacy. METHOD:Data come from a cross-sectional survey of 286 adults, aged 55 or older, with osteoarthritis (OA) and/or osteoporosis (OP). Physical independence was assessed by asking to what ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280410001684578

    authors: Wang PP,Badley EM,Gignac M

    更新日期:2004-07-08 00:00:00

  • Assessments of disability in women with rheumatoid arthritis in relation to grip force and pain.

    abstract::The aim of this study was to assess disability with the Health Assessment Questionnaire (HAQ) and to evaluate the relationships between grip force, pain and difficulty in daily activities. Twenty women with rheumatoid arthritis were assessed with measurements of grip force and pain before and after grip test. Both the...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638289709166440

    authors: Nordenskiöld U,Grimby G

    更新日期:1997-01-01 00:00:00

  • Monitoring of body position and motion in children with severe cerebral palsy for 24 hours.

    abstract:PURPOSE:To investigate differences in position and body movements between children with severe cerebral palsy (CP) and children with typical development (TD) during the daytime and while asleep at night. METHOD:Fifteen children with severe quadriplegic CP living at home (GMFCS level V, 7 males, 8 females; mean age 8 y...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.833308

    authors: Sato H,Iwasaki T,Yokoyama M,Inoue T

    更新日期:2014-01-01 00:00:00

  • The multiple faces of pain in motor neuron disease: a qualitative study to inform pain assessment and pain management.

    abstract::Purpose: The aim was to explore personal experiences of pain in people with motor neuron disease.Materials and methods: Sixteen participants were individually interviewed on one occasion concerning their experiences of presentation, consequences, and management of pain. Qualitative content analysis with researcher tri...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2018.1555615

    authors: Åkerblom Y,Jakobsson Larsson B,Zetterberg L,Åsenlöf P

    更新日期:2020-07-01 00:00:00

  • Reference values for the 6-Min Walking Test in obese subjects.

    abstract:PURPOSE:The 6-Min Walking Test (6MWT) is widely used to measure the performance in various chronic conditions, such as in obese subjects. Reference equations for predicting distance walked during 6MWT specifically in adult obese subjects are not available. The aim of the paper is to establish reference values for 6MWT ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2012.726313

    authors: Capodaglio P,De Souza SA,Parisio C,Precilios H,Vismara L,Cimolin V,Brunani A

    更新日期:2013-07-01 00:00:00

  • Constructive Functional Diversity: a new paradigm beyond disability and impairment.

    abstract:AIMS OF THE PAPER:This article presents a more dynamic and constructive paradigm than the current dominant ones (for example medical or social models), to describe and change the impact of impairment and disability. The reflections contained are inspired by personal and professional frustration with the existing polari...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701618778

    authors: Patston P

    更新日期:2007-10-30 00:00:00

  • Patients' expectations of recovery following stroke: a qualitative study.

    abstract:PURPOSE:Patients and carers frequently express disappointment with the extent of recovery achieved at the point of discharge from physiotherapy. Research has suggested that high expectations of recovery may be encouraged by physiotherapists. This study examined the information exchanged between physiotherapists and pat...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280210142158

    authors: Wiles R,Ashburn A,Payne S,Murphy C

    更新日期:2002-11-10 00:00:00

  • AAC and literacy.

    abstract:PURPOSE:To review current research on the use of augmentative and alternative communication (AAC) for prompting literacy in children with special educational needs. METHOD:Research studies relevant to emergent literacy and AAC use are reviewed. Studies focused on acquisition of literacy across various populations of c...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280412331280334

    authors: Hetzroni OE

    更新日期:2004-11-04 00:00:00

  • Introducing an innovative method in team conferences.

    abstract::An innovative method to structure multidisciplinary team conferences in rehabilitation medicine was developed: Rehabilitation Activities Profile report system (RAP-TEAM). Experiences with introduction of RAP-TEAM and the study of its effects on the satisfaction of professionals are described. RAP-TEAM was introduced i...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638289609165898

    authors: Jelles F,Van Bennekom CA,Lankhorst GJ,Bouter LM,Kuik DJ

    更新日期:1996-07-01 00:00:00

  • Family matters: compensable injury and the effect on family.

    abstract:PURPOSE:It is well acknowledged that involvement in injury compensation processes can have a substantial impact on the recovery of the injured person. However, little attention has been given to the social or family consequences of compensable injury. The aims of this study were to better understand both the impact of ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1283450

    authors: Kosny A,Newnam S,Collie A

    更新日期:2018-04-01 00:00:00

  • Questionnaire assessment of usual practice in mood and cognitive assessment in Scottish stroke units.

    abstract:PURPOSE:National and International guidelines recommend cognition and mood assessment for all stroke survivors. However, there is no consensus on preferred screening tool or method of assessment. We aimed to describe clinical practice in cognitive and mood assessment across Scottish stroke services. METHOD:We used a q...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.791728

    authors: Lees RA,Broomfield NM,Quinn TJ

    更新日期:2014-01-01 00:00:00

  • Exploring the experience of facilitating self-management with minority ethnic stroke survivors: a qualitative study of therapists' perceptions.

    abstract:PURPOSE:The utility of self-management with people from minority ethnic backgrounds has been questioned, resulting in the development of culturally specific tools. Yet, the use of stroke specific self-management programmes is underexplored in these high risk groups. This article presents the experience of stroke therap...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.904936

    authors: Norris M,Jones F,Kilbride C,Victor C

    更新日期:2014-01-01 00:00:00

  • Profiles of functioning of children with cerebral palsy in Finland: analysis of multi-professional family meetings.

    abstract::Purpose: To explore what aspects of and how the child's functioning are discussed during a multi-professional team meeting when planning goals and interventions for rehabilitation.Materials and methods: Multiprofessional rehabilitation meetings were videotaped, the discussions transcribed and all content related to th...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1692080

    authors: Jeglinsky I,Kaakkuriniemi E,Veijola A,Kiviranta T

    更新日期:2019-11-22 00:00:00

  • Sexual functioning and sexual well-being in people with a limb amputation: a cross-sectional study in the Netherlands.

    abstract:PURPOSE:This study aimed to: (a) investigate whether, and if so which, sexual problems are present in people with a limb amputation; (b) analyze how they experience their sexuality; and (c) investigate whether sexuality was discussed with them during their rehabilitation process. METHOD:In total, 301 participants comp...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2015.1044029

    authors: Verschuren JE,Geertzen JH,Enzlin P,Dijkstra PU,Dekker R

    更新日期:2016-01-01 00:00:00