Abstract:
:Purpose: The aim was to explore personal experiences of pain in people with motor neuron disease.Materials and methods: Sixteen participants were individually interviewed on one occasion concerning their experiences of presentation, consequences, and management of pain. Qualitative content analysis with researcher triangulation was used to synthesize and interpret data.Results: Four themes emerged as the result of the analysis: (1) The multiple faces of pain, (2) The thin line between experience of pain and no pain, (3) The negative effects of pain on role functioning (4) Successful coping with pain requiring personal effort and competent engagement. The important findings were the experiences of unpredictability of pain breakthroughs, the efforts required to manage pain, consequences for activity and quality of life, and the suffering induced by diminishment and neglect of pain from both patients and staff.Conclusions: Pain in motor neuron disease seems to have certain and multiple characteristics, which is why there is a need to develop and implement pain assessment methods adapted to this population. Such methods may help make pain more predictable, and increase the possibilities to provide effective and individually tailored pain treatment.IMPLICATIONS FOR REHABILITATIONPain is a common, but often neglected, ailment in motor neuro disease, which deserves more attention from health care.Staff should provide information about the pain being possible to treat successfully with medication, by contrast to the possibility of curing the disease itself.Pain assessments should be implemented during the entire course of the disease, covering a time frame long enough to cover characteristic fluctuations of pain.Whenever possible, facilitate the performance of painful activities of daily living as much as possible to make room for engagement in other personally valued activities of importance for individual quality of life.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Åkerblom Y,Jakobsson Larsson B,Zetterberg L,Åsenlöf Pdoi
10.1080/09638288.2018.1555615subject
Has Abstractpub_date
2020-07-01 00:00:00pages
2123-2132issue
15eissn
0963-8288issn
1464-5165journal_volume
42pub_type
杂志文章abstract::Purpose: The purpose of this review was to synthesize the literature about spinal cord injury and employment, focusing on sample demographics, indicators of employment outcome, and the methods used. The review included literature from the previous decade; 2006-2017. Methods: A systematic quantitative literature review...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1467968
更新日期:2019-10-01 00:00:00
abstract::Purpose: The mass media have been described as an important institution in educating society about persons with disabilities and in facilitating their acceptance. However, calls to project a positive public image of persons with disabilities and to develop an inclusive society have coincided with the neo-liberal appro...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1582718
更新日期:2020-10-01 00:00:00
abstract::Background: Lower-limb amputations can lead to depression, performance anxiety, altered body image, relationships and sexual well-being. However, there is little published literature investigating how people experience changes to body image and their sexuality post-amputation and minimal literature exploring sexuality...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1622797
更新日期:2021-01-01 00:00:00
abstract::Surface electromyography (EMG) and torque were measured from knee flexors and extensors in 12 control subjects (CS) aged 25-59 years (10 female) and bilaterally in 12 stroke subjects (SS) aged 27-75 years (four female) with hemiparesis and mild clinical spasticity. They performed isometric and isokinetic maximal volun...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289609166022
更新日期:1996-02-01 00:00:00
abstract:PURPOSE:The aim of this study was to describe prevalence of fatigue and its relationship with demographic and clinical variables during the first 2 weeks (acute phase) following a stroke. METHOD:Data were collected in a cross-sectional correlational study from face-to-face interviews using structured questionnaires an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.490867
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Message generating is a complex process involving a number of processes, including the selection of modes to use. When expressing a message, human communicators typically use a combination of modes. This phenomenon is often termed multimodality. This article explores the use of models that explain multimodality...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280500384168
更新日期:2006-02-15 00:00:00
abstract:PURPOSE:To examine the meaningfulness, usefulness and acceptability of a new self-report instrument: "your ideas about participation and environment" (YIPE). METHOD:Cognitive interviewing was employed with 10 adults with disabilities to explore YIPE questions and formatting. Thematic content procedures were used in da...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.767385
更新日期:2013-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110063869
更新日期:2002-01-10 00:00:00
abstract:PURPOSE:This article comments on the paper by Rene Jahiel and Marcia Joslyn Scherer elsewhere in this issue. METHODS:This article adds theoretical constructs. RESULTS:In commenting on their paper, this article makes four broad points. First, the sub-components identified by Drs. Jahiel and Scherer comprise critical f...
journal_title:Disability and rehabilitation
pub_type: 评论,杂志文章
doi:10.3109/09638280903428328
更新日期:2010-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1626917
更新日期:2019-06-11 00:00:00
abstract:PURPOSE:To compare self-reported function and disability between women with urgency urinary incontinence (UUI) and healthy controls. METHOD:Self-reported function and disability were evaluated using the Late Life Function and Disability Instrument (LLFDI) in 66 women with UUI (mean age 61.9 ± 5.6) and 66 age-matched c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.660597
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:This study has had two main aims, the first to investigate and gather knowledge of the major job functions of Swedish rehabilitation workers, the second to study the frequency of use of these functions in the VR process. METHOD:Structured questionnaires were sent to Swedish rehabilitation workers from public a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280902736353
更新日期:2009-01-01 00:00:00
abstract::Purpose: This study explored the impact of a 12-week stroke self-management program on occupational performance, the role of self-efficacy on improving occupational performance and the potential barriers and facilitators to self-efficacy as reported by clients and careers. Materials and methods: Participants (n = 40) ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1666431
更新日期:2019-09-27 00:00:00
abstract:PURPOSE:To raise professional awareness of factors that may influence the support offered by clinicians to people with acquired brain injury (ABI), and to consider the potential implications of these factors in terms of post-injury rehabilitation and living. METHOD:A review of the literature was conducted to identify ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.766270
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:To validate a shortened version of the Participation Scale (P-scale) that will be quicker to use and to describe the factor structure found in the P-scale data in various study samples. METHODS:A large multi-country and multi-cultural database was compiled consisting of 5125 respondents. Item analysis, explana...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.656793
更新日期:2012-01-01 00:00:00
abstract::Aims: The aim of this study was to examine whether and how intended processes of behavioural change were reflected in participants' experiences after an inpatient occupational rehabilitation programme. The programme was transdiagnostic, lasted 3½ weeks and was based on the acceptance and commitment therapy model.Metho...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1080/09638288.2018.1490824
更新日期:2019-12-01 00:00:00
abstract::Background: People with post-stroke aphasia commonly experience mental health conditions, with depression having a high prevalence. An understanding of current practice may inform ways to improve psychological care for people with aphasia.Aim: To explore current practice for managing depression after post-stroke aphas...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1621394
更新日期:2021-01-01 00:00:00
abstract:PURPOSE:Tertiary rehabilitation, particularly in Australia, still costs a significant amount of money each year. Turnover in the rehabilitation industry is extremely high and rehabilitation professionals report being dissatisfied in their work. These ironic findings can be attributed to the state of tension in which re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280500531784
更新日期:2006-09-15 00:00:00
abstract:PURPOSE:To understand the journey of care in the prevention and management of secondary health conditions (SHCs) following spinal cord injury (SCI). METHOD:This was a case study design with 'Ontario' as the case. The Network Episode Model was used as the conceptual framework. Data sources included in depth interviews ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.721048
更新日期:2013-06-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003611011
更新日期:2010-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.998782
更新日期:2015-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.972586
更新日期:2015-01-01 00:00:00
abstract::Introduction: Restless legs syndrome (RLS) is a sensorimotor disorder characterised by an uncomfortable urge to move the legs. Management is primarily pharmacological. Effects for non-pharmacological, non-surgical options are published but lack systematic examination. Objectives: To synthesise results of non-pharmacol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析
doi:10.1080/09638288.2018.1453875
更新日期:2019-08-01 00:00:00
abstract:UNLABELLED:The purpose of this study was to understand how neighbourhoods - as physical and social environments - influence community mobility. Seeking an insider's perspective, the study employed an ethnographic research design. Immersed within the daily lives of 6 older adults over an 8-month period, auditory, textua...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.837970
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To ascertain how well health services in Lusaka, Zambia currently meet the safe motherhood and reproductive health care needs of women who have physical impairment leading to disability. METHODS:A qualitative study was conducted in Lusaka, Zambia. In-depth tape-recorded interviews were conducted with 24 purpos...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001629651
更新日期:2004-01-21 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1609099
更新日期:2020-12-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1130179
更新日期:2016-12-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701257205
更新日期:2008-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1527952
更新日期:2020-05-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1236296
更新日期:2017-12-01 00:00:00