Abstract:
PURPOSE:To understand the journey of care in the prevention and management of secondary health conditions (SHCs) following spinal cord injury (SCI). METHOD:This was a case study design with 'Ontario' as the case. The Network Episode Model was used as the conceptual framework. Data sources included in depth interviews with persons with SCI, care providers, and policy and decision makers. Document analysis was also conducted on relevant materials and policies. Key informants were selected by purposeful sampling as well as snowball sampling to provide maximum variation. Data analysis was an iterative process and involved descriptive and interpretive analyses. A coding structure was developed based on the conceptual framework which allowed for free nodes when emerging ideas or themes were identified. RESULTS:Twenty-eight individuals were interviewed (14 persons with SCI and 14 persons representing care providers, community advocacy organization representatives, system service delivery administrators and policy-makers). A major over-arching domain that emerged from the data was the concept of 'fighting'. Eleven themes were identified: at the micro-individual level: (i) social isolation and system abandonment, (ii) funding and equitable care, (iii) bounded freedom and self-management; at the meso care provider level: (iv) gender and caregiving strain, (v) help versus disempowerment, (vi) holistic care-thinking outside the box, (vii) poor communication and coordination of care; and at the macro health system level: (viii) fight for access and availability, (ix) models of care tensions, (x) private versus public tensions and (xi) rigid rules and policies. CONCLUSIONS:Findings suggest that the journey is challenging and a persistent uphill struggle for persons with SCI, care providers, and community-based advocates. If we are to make significant gains in minimizing the incidence and severity of SHCs, we need to tailor efforts at the health system level. IMPLICATIONS FOR REHABILITATION:• Secondary health conditions are problematic for individuals with a spinal cord injury (SCI). • This study aimed to understand the journey of care in the prevention and management of secondary health conditions (SHCs) following SCI. • Findings suggest that the journey is challenging and a persistent uphill struggle for persons with SCI, care providers, and community-based advocates. • All stakeholders involved recognized the disparities in access to care and resources that exist within the system. We recommend that if we are to make significant gains in minimizing the incidence and severity of SHCs, we need to tailor efforts at the health system level.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Guilcher SJ,Craven BC,Lemieux-Charles L,Casciaro T,McColl MA,Jaglal SBdoi
10.3109/09638288.2012.721048subject
Has Abstractpub_date
2013-06-01 00:00:00pages
894-906issue
11eissn
0963-8288issn
1464-5165journal_volume
35pub_type
杂志文章abstract:PURPOSE:To identify environmental factors associated with participation and gain an in-depth understanding of relationships between environmental factors and participation among people with spinal cord injury. METHOD:Six focus groups (n= 30) with individuals with spinal cord injury were conducted. Two independent code...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1327991
更新日期:2018-09-01 00:00:00
abstract:PURPOSE:To demonstrate the applicability of the power balance model to elite handcycling and to obtain values for gross efficiency (GE). METHODS:Four members of the Dutch Paralympic team performed trials on a 250-m indoor track. Velocity (v) and power output (PO) were measured in conjunction with physiological measure...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.505677
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Evidence regarding everyday life activities in people living with COPD is limited. Such evidence can improve our understanding when designing interventions for pulmonary rehabilitation that aim at increasing or maintaining participation in these activities. The aim of this study was to describe how people livin...
journal_title:Disability and rehabilitation
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更新日期:2021-01-20 00:00:00
abstract:PURPOSE:The purpose of the present study was to translate the Trinity Amputation and Prosthetics Experience Scale (TAPES) into Persian and to investigate its psychometric properties. METHOD:A sample of 182 Persian-speaker individuals with lower limb amputation completed the TAPES questionnaire, of whom 103 individuals...
journal_title:Disability and rehabilitation
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doi:10.3109/09638288.2010.544838
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Exercise therapy is effective in a wide range of chronic diseases. Comorbid disease necessitates adaptations to exercise therapy. Guidance on how to develop such adaptations is currently not available. We present an innovative strategy for the development of comorbidity-related adaptations to exercise therapy i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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abstract:PURPOSE:Accelerated degradation models are emerging as ways to characterize the interaction between disability and the functional decline of aging and to provide insights about the processes of aging with disability. Typically the models employ sophisticated mathematical treatments that are beyond the scope of many cli...
journal_title:Disability and rehabilitation
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abstract:PURPOSE:To assess construct (convergent and divergent) validity of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in a sample of children with complex medical conditions. METHOD:Demographics, clinical information, PEDI-CAT normative score, and the Post-Acute Acuity Rating for Childr...
journal_title:Disability and rehabilitation
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abstract:PURPOSE:The purpose was to explore, describe and compare the characteristics of physiotherapy sessions with patients after stroke from two perspectives: the patients' and the physiotherapists', in relation to observed behaviour. METHODS:A qualitative, descriptive, comparative approach was used. Nine patients and 10 ph...
journal_title:Disability and rehabilitation
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abstract:PURPOSE:The study is to compare the Modified Physical Performance Test (MPPT) and Short Physical Performance Battery (SPPB) as metrics of mobility and function in older men with peripheral arterial disease (PAD). MATERIALS AND METHODS:A total of 51 men (55-87 years) with PAD underwent functional testing including the ...
journal_title:Disability and rehabilitation
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abstract:PURPOSE:To investigate whether 12 week inspiratory muscle training (IMT) has any impact on pulmonary function, maximum respiratory pressures and diaphragmatic mobility (DM) in morbidly obese subjects. METHOD:Thirty-one morbidly obese individuals were assessed. Volunteers were randomised into two groups. The IMT group ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2013.769635
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:The purpose of this study was to investigate the determinants and correlates of return to productivity (RTP) defined here as return to paid employment and/or school four years following traumatic brain injury (TBI). METHOD:Participants included 46 people with TBI, part of a prospective, cohort study, and 14 fr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2007-02-28 00:00:00
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journal_title:Disability and rehabilitation
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abstract:PURPOSE:Intestinal stoma formation profoundly changes the relationship between a person and their social world. The aim of this study was to understand the experience of living with a new stoma; this paper explores the theme "disrupted social world," highlighting how stoma-forming surgery impacts on individuals' abilit...
journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.503835
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To analyse how decisions to dichotomise the frequency and impediment of phantom pain into absent and present influence the outcome of studies by performing a sensitivity analysis on an existing database. METHOD:Five hundred and thirty-six subjects were recruited from the database of an orthopaedic workshop and...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001708922
更新日期:2004-07-22 00:00:00
abstract:BACKGROUND:Persons with multiple sclerosis (MS) often experience a decrease in walking performance while simultaneously performing a cognitive task. This decrease in walking performance is termed dual task cost (DTC). OBJECTIVE:To examine if mobility and cognitive function are correlates of DTC in persons with MS. ME...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.782361
更新日期:2014-01-01 00:00:00
abstract::Purpose: To examine the perceived impacts of an adapted-dance group intervention when added to intensive functional rehabilitation post-stroke.Method: In this exploratory qualitative case study, semi-structured interviews were analyzed using a deliberative inductive logic and referring to the International Classificat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1581845
更新日期:2020-10-01 00:00:00
abstract:BACKGROUND:Cerebral palsy (CP) is the most common disability in childhood. The International Classification of Functioning, Disability and Health (ICF) provides a standard framework for classifying performance in people with disability, including children with CP. Linking measures actually reported with the ICF classif...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.637603
更新日期:2012-01-01 00:00:00
abstract::Purpose: Although measuring outcome of rehabilitation in children with Developmental Coordination Disorder is considered important no consensus exists on which instruments to use. An important attribute of a measurement instrument would be that it is sensitive to clinical changes. The aim of this prospective, observat...
journal_title:Disability and rehabilitation
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更新日期:2020-07-02 00:00:00
abstract::Purpose: The purpose of this review was to synthesize the literature about spinal cord injury and employment, focusing on sample demographics, indicators of employment outcome, and the methods used. The review included literature from the previous decade; 2006-2017. Methods: A systematic quantitative literature review...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280050191972
更新日期:2000-11-10 00:00:00
abstract:PURPOSE:To evaluate microcirculatory variables in and around the Achilles tendon (AT) in patients undergoing a programme of daily eccentric training for the management of tendinopathy of the main body of the AT in non-compliant in contrast to compliant patients. METHODS:A total of 116 patients with tendinopathy of the...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1080/09638280701785676
更新日期:2008-01-01 00:00:00
abstract:PURPOSE: Cycling is a popular international professional and recreational sport performed by both sexes and all age groups. Regular exercise is important for the elderly population and it has been shown that cycling is of great value for the osteoarthritis and knee arthroplasty patients. The purpose of this study was t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.552665
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:The prospect of adequate comparisons is essential to decide on the effectiveness of different treatments. As there is a lack of unity in choice of questionnaires and included measures concerning musculoskeletal disorders, further investigations based on international recommendations are of interest. The intenti...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2012-01-01 00:00:00
abstract:PURPOSE:This article discusses the complex interrelation of elements of the physical, psychological, social, and environmental life context of women with physical disabilities and the association of these elements with significant disparities in rates of depression and access to mental health care for this population. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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更新日期:2008-01-01 00:00:00
abstract::Community-Based Rehabilitation (CBR) has been recommended by the World Health Organization as an antidote to the poor coverage of rehabilitation facilities in the developing countries. This attempt is to make it possible for disabled people to receive the help they need to be able to go about their daily activities ai...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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更新日期:1998-02-01 00:00:00
abstract:OBJECTIVE:To investigate a new style of resistance exercise using elastic bands and explore its therapeutic effect on the lower-extremity function of female patients with osteoarthritis (OA) of the knee. DESIGN:A randomized, controlled clinical trial. SETTING:University-affiliated medical center. PARTICIPANTS:Forty-...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2012.660598
更新日期:2012-01-01 00:00:00
abstract::Purpose: The primary purpose of this study was to examine physical activity, nutritional intake, and psychological well-being differences between youth with visual impairments and their siblings residing in the same household. A secondary purpose was to examine the relationship between physical activity behavior and p...
journal_title:Disability and rehabilitation
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更新日期:2019-09-20 00:00:00
abstract:PURPOSE:To review the current international rehabilitation and healthcare climate and describe a new model of service delivery aimed at enhancing the continuity of care for people with spinal cord injury (SCI). METHOD:An extensive literature review was undertaken and a new model of service delivery conceptualized and ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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更新日期:2003-09-02 00:00:00
abstract:PURPOSE:This article examines the distinctive opportunities and challenges involved in treating sub-acute low back pain (LBP). Several risk factors have been identified. Thus, a multi-disciplinary design and a comprehensive bio-psycho-social approach seem to be the best modality of intervention to improve outcome. MET...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2010-01-01 00:00:00