Abstract:
PURPOSE:Rural Australians comprise a third of the population. However, there are relatively few research studies that have focused on issues for children with developmental disabilities in rural regions. In particular, there is very limited research that gives voice to parents regarding challenges faced by them due to their location in rural regions. METHODS:This article is based on the qualitative component of a mixed-methods study undertaken in rural settings. In-depth, face-to-face interviews were conducted with 17 parents yielding 30 h of information rich taped data. Thematic analysis techniques were used to identify major issues. RESULTS:Three core themes emerged from analysis of the qualitative data regarding information and support needs: an ongoing lack of timely and relevant information about disabilities and support services; inadequacies in interactions with service providers particularly doctors and allied health staff; and considerable challenges and barriers to access and use of health services. CONCLUSIONS:Within the constraints of limited rural service provision, there are still opportunities for considerable improvements, through focussed in-service training to narrow the information gap, improve provider-client interaction around attitudinal issues and uptake of tele-health to minimise the long waiting times and the need to regularly travel long distances to access services and setting up online support groups. IMPLICATIONS FOR REHABILITATION:There is limited information on challenges faced by parents of children with developmental disabilities in rural Australia. The challenges around lack of information about support systems available add to parental stress as does limited experience, frequent staff turnover and poor attitude of many service providers. There is a need to improve rural service provision. Feasible options within resource constraints include focussed in-service training to narrow the information gap, improve provider-client interaction around attitudinal issues, and uptake of tele-health services. Setting up of parent-professional support groups as well peer support groups using digital technologies will help reduce the sense of isolation for rural carers and minimise impediments related to travelling long distances.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Hussain R,Tait Kdoi
10.3109/09638288.2014.972586subject
Has Abstractpub_date
2015-01-01 00:00:00pages
1609-16issue
18eissn
0963-8288issn
1464-5165journal_volume
37pub_type
杂志文章abstract:PURPOSE:To compare the characteristics of elderly patients hospitalized for rehabilitation following stroke with those following hip fracture (HF). METHODS:A prospective study in a geriatrics department of a general university hospital in southern Israel. Five hundred and sixteen hospitalized elderly patients were inc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382899297198
更新日期:1999-12-01 00:00:00
abstract::Purpose To examine the measurement properties of measures of psychological constructs in people with knee osteoarthritis. Method Participants with osteoarthritis of the knee completed the beck depression inventory (BDI-II), state-trait anxiety inventory (STAI), arthritis helplessness index (AHI), fatigue severity scal...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1146356
更新日期:2017-02-01 00:00:00
abstract::Purpose: Fugl-Meyer Assessment (FMA) is the most widely used and recommended clinical scale for evaluation of sensorimotor impairment post stroke, but an official Spanish version is not available today. This study aimed to establish methodological structure for translation and cultural adaptation process and perform a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1464604
更新日期:2019-09-01 00:00:00
abstract:PURPOSE:To develop a better understanding of the experiences of volunteer work among youth with disabilities. METHOD:A scoping review was undertaken to assess the benefits and challenges of volunteering among youth with disabilities. Comprehensive searches using six international databases were conducted. Eligible art...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2015.1107634
更新日期:2016-08-01 00:00:00
abstract:BACKGROUND:Aged-related loss of ankle dorsiflexion range of motion (ROM) and toe plantarflexor strength play an important role in gait performance. Further, conventional strength, balance and gait training can significantly improve the lower extremity muscle power and functional abilities of older individuals. It remai...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638280902927010
更新日期:2009-01-01 00:00:00
abstract:OBJECTIVE:To adapt and to combine the self-report Upper Extremity Functional Index and Lower Extremity Function Scale, for the assessment of disability severity in patients with a neuromuscular disease and to examine its psychometric properties in order to make it suitable for indicating disease severity in neuromuscul...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1300690
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:The purpose was to examine the relationships between traumatic events in childhood, such as sexual and physical abuse, alcoholism, and drug addiction, and three types of chronic pain: facial pain, myofascial pain, and fibromyalgia. A fourth group, a heterogeneous group of other pain, was used as a comparison gr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382899298061
更新日期:1999-01-01 00:00:00
abstract:PURPOSE:To evaluate the quality of life of mothers with children suffering from cerebral palsy compared with those who have children with minor health problems. METHOD:Forty mothers with a child suffering from cerebral palsy and 44 mothers with a child suffering from minor health problems participated in a comparative...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400000187
更新日期:2004-12-02 00:00:00
abstract:PURPOSE:This systematic review evaluated and compared the effectiveness of non-surgical and surgical interventions for managing shoulder pain in patients with diabetes. METHODS:PubMed, Scopus, CINAHL, EMBASE, Sport Discus, and Cochrane library were searched for studies published in the last 20 years. Randomized clinic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2020-09-15 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802105881
更新日期:2009-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.952450
更新日期:2015-01-01 00:00:00
abstract::Purpose: To find modifiable factors that are related to subjective well-being would be valuable for improving interventions in fibromyalgia. Physical activity, sedentary behaviour, and physical fitness may represent potential areas to optimize treatment regimens. In fibromyalgia, there is a discordance between clinica...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1671503
更新日期:2019-10-22 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701623158
更新日期:2008-01-01 00:00:00
abstract:BACKGROUND:Non-invasive brain stimulation (NIBS) is promising as an adjuvant to rehabilitation of motor function after stroke. Despite numerous studies and reviews for the upper limb, NIBS targeting the lower limb and gait recovery after stroke is a newly emerging field of research. PURPOSE:To summarize findings from ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2016.1161835
更新日期:2017-04-01 00:00:00
abstract:PURPOSE:The aims were to evaluate (a) the feasibility of face-to-face cognitive behavioural therapy (CBT) in people with MS (PwMS) with depressive symptoms; (b) the feasibility of methods and measurements used; and (c) the outcome of the intervention before the conducting of an equivalence study of comparative methods ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1130179
更新日期:2016-12-01 00:00:00
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journal_title:Disability and rehabilitation
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doi:10.3109/09638288.2013.798362
更新日期:2014-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1219924
更新日期:2017-10-01 00:00:00
abstract::Community-Based Rehabilitation (CBR) has been recommended by the World Health Organization as an antidote to the poor coverage of rehabilitation facilities in the developing countries. This attempt is to make it possible for disabled people to receive the help they need to be able to go about their daily activities ai...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289809166056
更新日期:1998-02-01 00:00:00
abstract::Purpose: Psychological factors and pain intensity are associated with wrist function. However, the mediating role of psychological factors in the relationship between pain intensity and wrist function in distal radius fractures remains unclear. We performed mediation analysis to investigate how psychological factors m...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1676318
更新日期:2019-10-10 00:00:00
abstract:PURPOSE:To review prevailing models of disability management and prevention with respect to communication, and to suggest alternative approaches. METHOD:Review of selected articles. RESULTS:Effective disability management and return to work strategies have been the focus of an increasing number of intervention progra...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280410001672517
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abstract:PURPOSE:To evaluate the measurement properties of the StepWatch(™) Activity Monitor (SAM) and ActivPAL in COPD. METHOD:Whilst wearing both monitors, participants performed walking tasks at two self-selected speeds, with and without a rollator. Steps obtained using the monitors were compared with that measured by direc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641666
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:While lower limb prosthetic prescription is reliant on many physical indicators, it is clear that psychosocial factors need to be emphasised to a greater extent within this field if the needs of users are to be appropriately addressed. The aim of this study is to explore and identify the outcomes of prosthetic ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.529234
更新日期:2011-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1180548
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:To present the preliminary results of training courses on the International Classification of Functioning, Disability and Health (ICF) prepared by Italian WHO FIC CC and to report on strategies for ICF dissemination among primary health care (PHC) workers in Mavalane Health Area, Maputo, Mozambique. METHODS:A ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903317930
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To examine the third version of the Spinal Cord Independence Measure (SCIM III) for reliability and validity in a multi-center cohort study. METHOD:Four hundred and twenty-five patients with spinal cord lesions from 13 spinal cord units in six countries from three continents were assessed with SCIM III and the...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1080/09638280601046302
更新日期:2007-12-30 00:00:00
abstract:PURPOSE:Hearing impairment may affect the body posture maintenance. The aim of the study was to evaluate the effect of modified Pilates exercise program on the body posture maintenance in hearing impaired people. METHODS:Eighty students (aged 13-24) were enrolled and randomly allocated into two groups: test group (n =...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1370731
更新日期:2018-12-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600925860
更新日期:2007-05-15 00:00:00
abstract::The burden of chronic disease worldwide is substantial. Unfortunately, risk factor control for most chronic diseases remains poor even after diagnoses. This is a major concern because poor risk factor control often leads to secondary consequences of the disease and the development of co-existing diseases. Stroke is a ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2014-01-01 00:00:00
abstract:PURPOSE:The aim of the present study was to investigate sense of coherence (SOC) in adults with cerebral palsy (CP) compared to the general population. METHOD:A questionnaire was sent to a representative sample of adults with CP, including the 3-item version of SOC and items on their life situation and follow-up progr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110108805
更新日期:2002-07-10 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2010-01-01 00:00:00