Disability and health: exploring the disablement experience of young adult African Americans.

Abstract:

PURPOSE:The objective of this study was to examine disablement as experienced by young adult African American men and women with permanent mobility impairment. METHOD:This study included a sample of 5 male and 5 female participants ranging in age from 22 to 39. An exploratory descriptive design and qualitative methods, including interviews and fieldnotes, were used. Interview data was analyzed using the process of inductive qualitative content analysis. RESULTS:Basic desires for independence, shared intimacy, and psychological and physical health were not diminished by physical limitations. The disablement experience of this group is reflected in the themes of "Cumulative Losses" and "Sustained Desires". The findings of this study describe the high level of motivation that young adult African American men and women with disabilities have to improve levels of health and well-being within the context of their impairments. CONCLUSION:This study provides a better understanding of the contextual factors and experiences that may contribute to the development of further disability and subsequent health-related problems over time. Increased knowledge of the disablement experience of these young men and women may assist health care entities and social service providers in improving health care and rehabilitation efforts targeting this group. Implications for Rehabilitation Disablement among African American Young Adults This study's findings describe the high level of motivation that young adult African American men and women with disabilities have to improve levels of health and well-being. The two primary themes, "Cumulative Losses" and "Sustained Desires", suggest that despite a number of significant losses, several innate desires remained intact in the context of impairment. Understanding the disablement experience of young African Americans may assist health care entities and social service providers in improving health care targeting this group.

journal_name

Disabil Rehabil

authors

Ricks TN,Harrison T

doi

10.3109/09638288.2013.798362

subject

Has Abstract

pub_date

2014-01-01 00:00:00

pages

479-86

issue

6

eissn

0963-8288

issn

1464-5165

journal_volume

36

pub_type

杂志文章
  • Service use and family-centred care in young people with severe cerebral palsy: a population-based, cross-sectional clinical survey.

    abstract:PURPOSE:To assess healthcare use and family perception of family-centred care in children and young adults with severe cerebral palsy (CP) within a geographical region of the UK. METHOD:Young people (4-27years) with severe forms of CP; Gross Motor Function Classification System levels IV and V, were recruited via an e...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2015.1019649

    authors: McDowell BC,Duffy C,Parkes J

    更新日期:2015-01-01 00:00:00

  • Effects of four-month handbike training under free-living conditions on physical fitness and health in wheelchair users.

    abstract:PURPOSE:Recognizing the encouraging effect of challenging events, the HandbikeBattle (HBB) was created to promote exercise among wheelchair users. The purpose of this study was to reveal the effects on physical fitness and health outcomes of four-month handbike training under free-living conditions in preparation for t...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1200677

    authors: Hoekstra S,Valent L,Gobets D,van der Woude L,de Groot S

    更新日期:2017-08-01 00:00:00

  • Experiences among children and adolescents of living with spina bifida and their visions of the future.

    abstract::Purpose Transitioning to independence may be problematic for persons with spina bifida (SB). Experiences of young persons with SB may provide insights into this group's needs for support. Therefore, the aim of this study was to investigate children's and adolescents' experiences of living with SB, their social and emo...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2016.1146355

    authors: Strömfors L,Wilhelmsson S,Falk L,Höst GE

    更新日期:2017-02-01 00:00:00

  • Trans-tibial amputee gait adaptations as a result of prosthetic inertial manipulation.

    abstract:PURPOSE:To establish through gait analysis how changing the mass at the distal end of an in-house, custom-made trans-tibial dynamic elastic response prosthetic limb altered selected gait variables. Including; walking velocity, cadence, single support and hip power for a single amputee. METHOD:A before-after single-sub...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/096382800296647

    authors: Hillery SC,Wallace ES

    更新日期:2000-05-20 00:00:00

  • A power balance model for handcycling.

    abstract:PURPOSE:To demonstrate the applicability of the power balance model to elite handcycling and to obtain values for gross efficiency (GE). METHODS:Four members of the Dutch Paralympic team performed trials on a 250-m indoor track. Velocity (v) and power output (PO) were measured in conjunction with physiological measure...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.505677

    authors: Groen WG,van der Woude LH,De Koning JJ

    更新日期:2010-01-01 00:00:00

  • Factors influencing healthy aging with multiple sclerosis: a qualitative study.

    abstract:PURPOSE:The purpose of this study was to describe the factors influencing healthy aging from the perspective of the older person with multiple sclerosis (MS) in order to build curricula for MS self-management programs. METHOD:We sourced participants, older than 55 years with MS for more than 20 years, from a database ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.585212

    authors: Ploughman M,Austin MW,Murdoch M,Kearney A,Fisk JD,Godwin M,Stefanelli M

    更新日期:2012-01-01 00:00:00

  • Development of a participatory process to address fragmented application of outcome measurement for rehabilitation in community settings.

    abstract:PURPOSE:Outcome measurement is an integral part of delivering rehabilitation services in community settings. However, measurement is of little value if instruments are chosen ad hoc and are not administered consistently. The purpose of this study was to develop and test a participatory process of outcome measure select...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638280903171519

    authors: Hillier S,Comans T,Sutton M,Amsters D,Kendall M

    更新日期:2010-01-01 00:00:00

  • Self-reported mental health in youth with cerebral palsy and associations to recurrent musculoskeletal pain.

    abstract:PURPOSE:To explore self-reports on emotional, conduct, hyperactivity and peer problems and on prosocial behaviour in youth with cerebral palsy (CP), compare the reports to normative data and to mothers' reports and to analyse if recurrent CP-related musculoskeletal pain (RMP) influence the self-reports. METHODS:Eighty...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.913703

    authors: Ramstad K,Loge JH,Jahnsen R,Diseth TH

    更新日期:2015-01-01 00:00:00

  • Exploring the impact of visual and movement based priming on a motor intervention in the acute phase post-stroke in persons with severe hemiparesis of the upper extremity.

    abstract:PURPOSE:Explore the potential benefits of using priming methods prior to an active hand task in the acute phase post-stroke in persons with severe upper extremity hemiparesis. METHODS:Five individuals were trained using priming techniques including virtual reality (VR) based visual mirror feedback and contralaterally ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1226419

    authors: Patel J,Qiu Q,Yarossi M,Merians A,Massood S,Tunik E,Adamovich S,Fluet G

    更新日期:2017-07-01 00:00:00

  • Is walking endurance associated with activity and participation late after stroke?

    abstract:PURPOSE:After stroke, impaired walking ability may affect activity and participation. The aim was to investigate whether self-reported activity and participation were associated with walking endurance late after stroke. METHOD:A non-randomised sample of 31 persons with a mean age of 59.7 years and time since stroke of...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.560329

    authors: Danielsson A,Willén C,Sunnerhagen KS

    更新日期:2011-01-01 00:00:00

  • Disability prevention and communication among workers, physicians, employers, and insurers--current models and opportunities for improvement.

    abstract:PURPOSE:To review prevailing models of disability management and prevention with respect to communication, and to suggest alternative approaches. METHOD:Review of selected articles. RESULTS:Effective disability management and return to work strategies have been the focus of an increasing number of intervention progra...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280410001672517

    authors: Pransky G,Shaw W,Franche RL,Clarke A

    更新日期:2004-06-03 00:00:00

  • Questionnaire assessment of usual practice in mood and cognitive assessment in Scottish stroke units.

    abstract:PURPOSE:National and International guidelines recommend cognition and mood assessment for all stroke survivors. However, there is no consensus on preferred screening tool or method of assessment. We aimed to describe clinical practice in cognitive and mood assessment across Scottish stroke services. METHOD:We used a q...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.791728

    authors: Lees RA,Broomfield NM,Quinn TJ

    更新日期:2014-01-01 00:00:00

  • Checking an integrated model of web accessibility and usability evaluation for disabled people.

    abstract::A combined objective-oriented and subjective-oriented method for evaluating accessibility and usability of web pages for students with disability was tested. The objective-oriented approach is devoted to verifying the conformity of interfaces to standard rules stated by national and international organizations respons...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280400014766

    authors: Federici S,Micangeli A,Ruspantini I,Borgianni S,Corradi F,Pasqualotto E,Olivetti Belardinelli M

    更新日期:2005-07-08 00:00:00

  • An assessment of gait analysis in the rehabilitation of children with walking difficulties.

    abstract:PURPOSE:To assess the current status of computerized gait analysis techniques in the management of children with cerebral palsy or spina bifida who have significant walking disorders. METHOD:Synthesis of available data from a review of the literature, drawing on MEDLINE, EMBASE, PRE-MEDLINE, HealthStar and PsychInfo. ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/096382800296737

    authors: Hailey D,Tomie J

    更新日期:2000-04-15 00:00:00

  • Falls prevention and balance rehabilitation in multiple sclerosis: a bi-centre randomised controlled trial.

    abstract:PURPOSE:People with Multiple Sclerosis (PwMS) have a high incidence of accidental falls that have a potentially detrimental effect on their daily life participation. The effect of balance specific rehabilitation on clinical balance measures and frequency of falls in PwMS was studied. METHOD:A bi-centre randomised rate...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1080/09638288.2016.1258089

    authors: Cattaneo D,Rasova K,Gervasoni E,Dobrovodská G,Montesano A,Jonsdottir J

    更新日期:2018-03-01 00:00:00

  • Post-traumatic growth in people living with a serious medical condition and its relations to physical and mental health: a systematic review.

    abstract:PURPOSE:The diagnosis of a life-threatening illness can be an extremely stressful, traumatic experience. However, many survivors report also various positive changes, referred in empirical literature as post-traumatic growth (PTG). Empirical studies that documented stress disorders and PTG in patients and survivors of ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280902738441

    authors: Barskova T,Oesterreich R

    更新日期:2009-01-01 00:00:00

  • Effectiveness of manual therapy in patients with tension-type headache. A systematic review and meta-analysis.

    abstract:PURPOSE:To systematically review the evidence about the effectiveness of manual therapy (MT) on pain intensity, frequency and impact of headache in individuals with tension-type headache (TTH). METHODS:Medline, Embase, Scopus, Web of Science, CENTRAL, and PEDro were searched in June 2020. Randomized controlled trials ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1813817

    authors: Kamonseki DH,Lopes EP,van der Meer HA,Calixtre LB

    更新日期:2020-09-12 00:00:00

  • Time burden of caring and depression among parents of individuals with cerebral palsy.

    abstract:PURPOSE:The presence of an individual with disability in a family affects the whole family. Families of individuals with cerebral palsy (CP) experience increased psychological anxiety and financial problems; specifically, parents tend to feel time pressure and struggle to maintain their social and cultural activities. ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2018.1432705

    authors: Park EY,Nam SJ

    更新日期:2019-06-01 00:00:00

  • Involvement in volunteering: an exploration of the personal experience of people with aphasia.

    abstract::This article reports results from a qualitative study in the U.K. of people with aphasia who have been involved in volunteering. The study describes their experiences; explores, from their perspective, the effects of involvement; and identifies key facilitators and barriers to the successful participation of people wi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.549285

    authors: Pearl G,Sage K,Young A

    更新日期:2011-01-01 00:00:00

  • The relevance of the International Classification of Functioning, Disability and Health (ICF) in monitoring and evaluating Community-based Rehabilitation (CBR).

    abstract:PURPOSE:To examine the relevance of the International Classification of Functioning, Disability and Health (ICF) to CBR monitoring and evaluation by investigating the relationship between the ICF and information in published CBR monitoring and evaluation reports. METHOD:A three-stage literature search and analysis met...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2013.821182

    authors: Madden RH,Dune T,Lukersmith S,Hartley S,Kuipers P,Gargett A,Llewellyn G

    更新日期:2014-01-01 00:00:00

  • Assessment of physical function and secondary complications after complete spinal cord injury.

    abstract:PURPOSE:Two physical function questions on the widely used SF-12 Health Related Quality of Life questionnaire appear less than optimal for people with complete spinal cord injury (SCI). Physical function questions typically receive the lowest score unless the individual is ambulatory. Additionally, the influence of sec...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280500163828

    authors: Dudley-Javoroski S,Shields RK

    更新日期:2006-01-30 00:00:00

  • Disability disparities: a beginning model.

    abstract::This paper presents a model of disability disparities. Though the concept of health disparities is discussed in the health care literature, there is no such model that explicitly addresses disparities in the disability literature. Therefore, this model begins to fill a void in the disability literature. Part of the va...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280902773737

    authors: Lewis A

    更新日期:2009-01-01 00:00:00

  • Does English proficiency impact on health outcomes for inpatients undergoing stroke rehabilitation?

    abstract:PURPOSE:To determine whether English proficiency and/or the frequency of interpreter use impacts on health outcomes for inpatient stroke rehabilitation. METHOD: STUDY DESIGN:Retrospective case-control study. PARTICIPANTS:People admitted for inpatient stroke rehabilitation. A high English proficiency group comprised ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2015.1092173

    authors: Davies SE,Dodd KJ,Tu A,Zucchi E,Zen S,Hill KD

    更新日期:2016-07-01 00:00:00

  • The effects of multimodal rehabilitation on pain-related sickness absence - an observational study.

    abstract:PURPOSE:The aim of the current study was to examine the effects on sickness absence of multimodal rehabilitation delivered within the framework of a national implementation of evidence based rehabilitation, the rehabilitation guarantee for nonspecific musculoskeletal pain. METHOD:This was an observational matched cont...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1305456

    authors: Busch H,Björk Brämberg E,Hagberg J,Bodin L,Jensen I

    更新日期:2018-07-01 00:00:00

  • Eccentric calf muscle training in athletic patients with Achilles tendinopathy.

    abstract:PURPOSE:To evaluate the effects of eccentric strengthening exercises (ESE) in athletic patients with Achilles tendinopathy. METHODS:Forty-five athletic patients (29 men, average age 26 years +/- 12.8, range 18 - 42; 16 women, average age 28 years +/- 13.1, range 20 - 46; average height: 173 +/- 16.8, range 158 - 191; ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701786427

    authors: Maffulli N,Walley G,Sayana MK,Longo UG,Denaro V

    更新日期:2008-01-01 00:00:00

  • A pilot test of the GoWoman weight management intervention for women with mobility impairments in the online virtual world of Second Life®.

    abstract::Objective: Pilot test GoWoman, a small-group weight management intervention for mobility impaired women that was a disability- and gender-responsive adaptation of the Diabetes Prevention Program delivered in the online virtual world of Second Life®. Objectives were to (1) examine pre-/post-intervention differences in ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2018.1473511

    authors: Nosek MA,Robinson-Whelen S,Ledoux TA,Hughes RB,O'Connor DP,Lee RE,Goe R,Silveira SL,Markley R,Nosek TM,GoWoman Consortium.

    更新日期:2019-11-01 00:00:00

  • The performance quality rating scale (PQRS): reliability, convergent validity, and internal responsiveness for two scoring systems.

    abstract:PURPOSE:The performance quality rating scale (PQRS) is an observational measure of performance quality of client-selected, personally meaningful activities. It has been used inconsistently with different scoring systems, and there have been no formal publications on its psychometric properties. The purpose of this stud...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.913702

    authors: Martini R,Rios J,Polatajko H,Wolf T,McEwen S

    更新日期:2015-01-01 00:00:00

  • Use of a mental health guideline by occupational physicians and associations with return to work in workers sick-listed due to common mental disorders: a retrospective cohort study.

    abstract:PURPOSE:The aim of this study was to evaluate (1) whether adherence to the Dutch occupational mental health guideline by occupational physicians was associated with time to return to work in workers sick-listed due to common mental disorders; and (2) whether adherence to specific guideline items was associated with tim...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1347209

    authors: van Beurden KM,Joosen MCW,Terluin B,van Weeghel J,van der Klink JJL,Brouwers EPM

    更新日期:2018-11-01 00:00:00

  • Understanding informal carers' experiences of caring for older people with a hip fracture: a systematic review of qualitative studies.

    abstract:PURPOSE:This systematic review aimed to reconceptualize experiences from a variety of papers to provide direction for research, policy and practice. METHOD:Meta-ethnography was used to inform the review, and 21 studies were included. FINDINGS:The analysis identified a core theme of "engaging in care: struggling throu...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638288.2016.1262467

    authors: Saletti-Cuesta L,Tutton E,Langstaff D,Willett K

    更新日期:2018-04-01 00:00:00

  • If a joint is hot it's not the time: health professionals' views on developing an intervention to promote physical activity in rheumatoid arthritis.

    abstract:PURPOSE:The study aimed to explore the views of health professionals on (i) physical activity in people who have rheumatoid arthritis (RA) and (ii) the design of an intervention to promote physical activity in this population. METHOD:We used a qualitative methodology and conducted 14 interviews (rheumatologists n = 7,...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1180548

    authors: Larkin L,Gallagher S,Fraser A,Kennedy N

    更新日期:2017-06-01 00:00:00