Abstract:
PURPOSE:The purpose of this study was to describe the factors influencing healthy aging from the perspective of the older person with multiple sclerosis (MS) in order to build curricula for MS self-management programs. METHOD:We sourced participants, older than 55 years with MS for more than 20 years, from a database of MS clinic and outpatient rehabilitation visits. Recruitment continued until data saturation was reached (n = 18). Semi-structured interviews explored perspectives on aging and health and lifestyle habits. Demographic, lifestyle and perceived health status information was also gathered. We analyzed the transcribed text for themes and theme relationships. RESULTS:Work and social engagement, effective and accessible health care, healthy lifestyle habits, and maintaining independence at home were found to be critical proximal factors for healthy aging. The presence of financial flexibility, social support, cognitive and mental health, and resilience provided a supporting foundation to these critical proximal factors. These factors comprised a two-tiered model of healthy aging with MS. CONCLUSIONS:This two-tiered conceptual model of health aging, based on the perspectives of older persons with MS, provides a potential framework for the development of MS self-management program curricula aimed at optimizing quality of life. Further empirical testing may validate its utility in predicting healthy aging with MS.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Ploughman M,Austin MW,Murdoch M,Kearney A,Fisk JD,Godwin M,Stefanelli Mdoi
10.3109/09638288.2011.585212subject
Has Abstractpub_date
2012-01-01 00:00:00pages
26-33issue
1eissn
0963-8288issn
1464-5165journal_volume
34pub_type
杂志文章abstract:PURPOSE:To explore how women experience living with long-term pregnancy-related pelvic girdle pain. MATERIALS AND METHODS:Nine women with persistent pregnancy-related pelvic girdle pain of 2-13 years were recruited by means of purposive sampling from long-term follow-up studies. The women were 28-42 years of age and h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1368724
更新日期:2018-12-01 00:00:00
abstract::Purpose: To investigate test-retest and inter-rater reliability of maximum isometric arm muscle strength measurements using the hand-held dynamometer (HDD) and maximum isometric grip and pinch strength measurements using the Biometrics E-Link Evaluation System in children aged 7-12 years with unilateral spastic cerebr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1524522
更新日期:2020-05-01 00:00:00
abstract:PURPOSE:To perform the Manchester-Oxford Foot Questionnaire Chinese Version (MOXFQ-Ch) through a cross-cultural adaptation and validation of the original questionnaire. MATERIAL AND METHODS:Three hundred and sixty nine patients (241 women/128 men, 48.75 ± 8.17 years old) with a diagnosis of hallux valgus foot (237 bot...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1616834
更新日期:2021-01-01 00:00:00
abstract:PURPOSE:To review prevailing models of disability management and prevention with respect to communication, and to suggest alternative approaches. METHOD:Review of selected articles. RESULTS:Effective disability management and return to work strategies have been the focus of an increasing number of intervention progra...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280410001672517
更新日期:2004-06-03 00:00:00
abstract:PURPOSE:The aim of this study was to describe prevalence of fatigue and its relationship with demographic and clinical variables during the first 2 weeks (acute phase) following a stroke. METHOD:Data were collected in a cross-sectional correlational study from face-to-face interviews using structured questionnaires an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.490867
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Evidence regarding everyday life activities in people living with COPD is limited. Such evidence can improve our understanding when designing interventions for pulmonary rehabilitation that aim at increasing or maintaining participation in these activities. The aim of this study was to describe how people livin...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1862314
更新日期:2021-01-20 00:00:00
abstract:PURPOSE:Rehabilitation research information can be obtained from various bibliographic sources. Nevertheless, search strategies and terminologies differ from one database to another making it challenging for the novice user or users of multiple databases. This paper discusses a novel approach of using the International...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701800285
更新日期:2008-01-01 00:00:00
abstract::Purpose: Caregiver-mediated exercises are a novel way of delivering augmented exercise therapy for patients with stroke, in which patients do additional therapeutic exercises together with a caregiver. This explorative qualitative study is part of the CARE4STROKE trial and focused on how participants manage these exer...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1507048
更新日期:2020-03-01 00:00:00
abstract:PURPOSE:Aphasia is a debilitating chronic acquired language disorder that impacts heavily on a person's life. Behavioural treatments aim to remediate language processing skills or to enhance communication between the person with aphasia and others, and a number of different treatments are efficacious. However, it is un...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1843079
更新日期:2020-11-09 00:00:00
abstract::Aim: The aim of this meta-synthesis is to find out what it means for patients with age-related macular degeneration to live with visual impairment, how they cope with the illness and how they experience their medical care, including vascular endothelial growth factor inhibitor therapy.Method: Inclusion criteria: quali...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1775901
更新日期:2020-06-23 00:00:00
abstract:PURPOSE:Explore the potential benefits of using priming methods prior to an active hand task in the acute phase post-stroke in persons with severe upper extremity hemiparesis. METHODS:Five individuals were trained using priming techniques including virtual reality (VR) based visual mirror feedback and contralaterally ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226419
更新日期:2017-07-01 00:00:00
abstract:PURPOSE:To evaluate the effects of eccentric strengthening exercises (ESE) in athletic patients with Achilles tendinopathy. METHODS:Forty-five athletic patients (29 men, average age 26 years +/- 12.8, range 18 - 42; 16 women, average age 28 years +/- 13.1, range 20 - 46; average height: 173 +/- 16.8, range 158 - 191; ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701786427
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To explore the development of a speech interface to a virtual world and to consider its relevance for disabled users. METHOD:The system was developed using mainly software that is available at minimal cost. How well the system functioned was assessed by measuring the number of times a group of users with a ran...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280110111379
更新日期:2002-07-20 00:00:00
abstract:PURPOSE:Research has suggested that people with Parkinson's disease (PD) can experience apathy. This study explored the lived experiences of apathy in people with PD. METHOD:Seven participants with Parkinson's disease who were also described as having apathy were interviewed and the data analysed using interpretative ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.939771
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:Parental involvement in the rehabilitation process of deaf and hard of hearing (DHH) children is considered vital to children's progress. Today, fathers are more likely to be involved in their children's care. Nevertheless, father involvement has been understudied and relatively little is known about their invo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1297491
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:Evidence-based assessments for children with cerebral palsy are not widely used by healthcare professionals in day-to-day practice. This study aimed to examine allied health practitioner experiences, perceptions, and use of assessments for children with cerebral palsy. METHOD:A mixed methods study was conducte...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1373376
更新日期:2019-01-01 00:00:00
abstract::Purpose: Medically underserved adults with spinal cord injury (SCI) remain at high risk of incurring medically serious pressure injuries even after receiving education in prevention techniques. The purpose of this research is to identify circumstances leading to medically serious pressure injury development in medical...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1552328
更新日期:2020-07-01 00:00:00
abstract:METHODS:Six electronic databases were searched for relevant studies from 2000 to 2019. Forty-one eligible studies were identified. RESULTS:Findings suggest that the people with disabilities' choice to seek healthcare services or not, as well as the quality of intervention provided by primary healthcare providers, are ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1817984
更新日期:2020-09-21 00:00:00
abstract:PURPOSE:The purpose of this article is to describe the changing nature, process and structure of an international non-governmental organisation (NGO) in response to internal and external factors. METHOD:This article is based on the interview data collected for the study which focussed on the experiences and perception...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802260322
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To investigate the sensitivity and responsiveness of the Health-Related Quality of Life in Stroke Patients-40 (HRQOLISP-40) scale in evaluating stroke patients from onset to 12 months. METHODS:Fifty-five patients with first-incidence stroke were followed-up for 12 months. The HRQOLISP-40 scale was used to asse...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.825652
更新日期:2014-01-01 00:00:00
abstract::Purpose: A mental model is the collection of an individual's perceptions, values, and expectations about a particular aspect of their life, which strongly influences behaviors. This study explored orthopedic outpatients mental models of adherence to prescribed home exercise programs and how they related to mental mode...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1466923
更新日期:2019-10-01 00:00:00
abstract::Most nations are undergoing two fundamental demographic changes: concentration of their population in cities and accelerated pace of population ageing. The fastest-growing population is that 85 years and over. Morbidity increases with advancing age, functional capacities decrease; this results in decreased performance...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289709166518
更新日期:1997-04-01 00:00:00
abstract:PURPOSE:To measure the frequency of participation in life situations. METHODS:A sample of 83 persons with systemic sclerosis (SSc) completed questionnaires regarding the presence and severity of disease symptoms, disability [the Health Assessment Questionnaire (HAQ)], depression [the Center for Epidemiologic Studies D...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.944624
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To evaluate the two year outcome of multidisciplinary rehabilitation for patients with prolonged musculoskeletal disorders (MSDs), in terms of health-related quality of life (HRQL) and working ability. In addition, predictors of outcome were examined. METHODS:The rehabilitation group and the matched control gr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382800445443
更新日期:2000-10-15 00:00:00
abstract:PURPOSE:The aim of this study is to describe the clinical features of powered wheelchair users with severely disabling multiple sclerosis (MS) and explore the problematic clinical features influencing prescription. METHOD:Retrospective review of electronic and case note records of recipients of electric-powered indoor...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.949356
更新日期:2015-01-01 00:00:00
abstract::The prevalence and economic cost of the low-back pain problem hardly needs to be mentioned in this journal. Disability ensuing from bouts of low-back pain claims a significant proportion of payments by Worker's Compensation Boards and national treasuries. Any attempt which may enhance our understanding of any aspect o...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289609166325
更新日期:1996-12-01 00:00:00
abstract:OBJECTIVE:The purpose of the study was to evaluate the consequences of severe malnutrition in patients with severe head injury during rehabilitation. PATIENTS AND METHODS:The data were collected from medical records of patients admitted to the neurorehabilitation unit over the last 5 years. Twenty of 1850 patients had...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280412331270380
更新日期:2004-10-07 00:00:00
abstract::Developing a programme of research is important in advancing the science and practice of a discipline. This paper addresses in general the steps taken in developing a programme of research on pain in children. It reports the results of studies undertaken to develop and test a Pain Assessment Tool for Children and give...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289409166436
更新日期:1994-01-01 00:00:00
abstract:BACKGROUND:At a political and academic level, South Africa propagates a rights-based approach to disability. The aim of this paper is to explore how disability is conceptualized by persons with disabilities living in a rural area of South Africa. METHODS:In keeping with explorative studies, the study utilized a qualit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1313909
更新日期:2018-07-01 00:00:00
abstract::Purpose: This study aims to explore the physical, psychological and social wellbeing of veterans who have experienced limb-loss and to ascertain the factors that contribute to the ability of veterans to maintain their independence at various stages in their lives.Methods: Sixty two life-story interviews were conducted...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1734875
更新日期:2020-03-03 00:00:00