Abstract:
:Aim: The aim of this meta-synthesis is to find out what it means for patients with age-related macular degeneration to live with visual impairment, how they cope with the illness and how they experience their medical care, including vascular endothelial growth factor inhibitor therapy.Method: Inclusion criteria: qualitative studies exploring patients' experiences with age-related macular degeneration in their daily lives and with medical care, published in journals in English or German. The included studies were analysed following the rules and principles of grounded theory.Results: For the analysis, twenty-four articles matching the inclusion criteria were identified. Three main analytic themes emerged from the included studies: (i) a life shaped by losses; (ii) the burden of medical treatment; and (iii) coping with vision loss. For patients, visual impairment/vision loss means living with multiple losses in various domains of life. With the introduction of vascular endothelial growth factor inhibitor therapy, patients with neovascular age-related macular degeneration have a good chance of slowing down the disease progression; therapy does, however, also represent a major burden.Conclusion: New strategies need to be conceived to reduce the burden of medical treatment and to improve the dissemination of information about age-related macular degeneration.IMPLICATIONS FOR REHABILITATIONMost of the people with age- related macular degeneration seem to adapt to visual impairment.Medical treatment implies a great physical and psychological burden for patients with neovascular (wet) age- related macular degeneration.The physical and psychological burden needs to be recognized and addressed in the management of patients with neovascular (wet) AMD in medical facilities.More research is needed on how rehabilitation services may support the adaptation process of patients in the different stages of AMD.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Thier A,Holmberg Cdoi
10.1080/09638288.2020.1775901subject
Has Abstractpub_date
2020-06-23 00:00:00pages
1-11eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract:PURPOSE:To evaluate outcome measures and the factors affecting them in patients treated between 1962 and 2000 at Loewenstein Rehabilitation Hospital, Israel. METHOD:This retrospective cohort study included 262 patients with spinal neurological lesions (spinal cord or cauda equina lesions) following degenerative spinal...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500030886
更新日期:2005-08-05 00:00:00
abstract:PURPOSE:The aim of this study is to describe the clinical features of powered wheelchair users with severely disabling multiple sclerosis (MS) and explore the problematic clinical features influencing prescription. METHOD:Retrospective review of electronic and case note records of recipients of electric-powered indoor...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.949356
更新日期:2015-01-01 00:00:00
abstract::Purpose The content of and methods for collecting health information often vary across settings and challenge the comparability of health information across time, individuals or populations. The International Classification of Functioning, Disability and Health (ICF) contains an exhaustive set of categories of informa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1145258
更新日期:2019-03-01 00:00:00
abstract::Purpose: This study aimed to evaluate the implementation of a physical activity counseling program in rehabilitation and to study heterogeneity in received counseling and investigate its association with changes in patients' physical activity outcomes. Methods: This prospective cohort study was conducted in 18 rehabil...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1675188
更新日期:2019-10-17 00:00:00
abstract:PURPOSE:The aims were to evaluate (a) the feasibility of face-to-face cognitive behavioural therapy (CBT) in people with MS (PwMS) with depressive symptoms; (b) the feasibility of methods and measurements used; and (c) the outcome of the intervention before the conducting of an equivalence study of comparative methods ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1130179
更新日期:2016-12-01 00:00:00
abstract:PURPOSE:To demonstrate the applicability of the power balance model to elite handcycling and to obtain values for gross efficiency (GE). METHODS:Four members of the Dutch Paralympic team performed trials on a 250-m indoor track. Velocity (v) and power output (PO) were measured in conjunction with physiological measure...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.505677
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To assess functional activities of the upper extremity of young adults with cerebral palsy (CP) and to determine their relations with participant characteristics and participation. METHOD:Assessment of functional activities of the upper extremity was performed on 103 participants (aged 16-20 years) with the Me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701355504
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:Tendon injuries (tendinopathy) are prevalent across the population, affecting active and inactive individuals and manual workers. The aetiology of tendinopathy is not known. However, extrinsic factors such as load are known to affect the prevalence. More recently, intrinsic factors have been shown to also affec...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701786864
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To describe functioning and disability in patients with multiple sclerosis (MS) according to the model endorsed by the International Classification of Functioning Disability and Health (ICF). METHODS:Adult patients with MS were consecutively enrolled. The Expanded Disability Status Scale (EDSS), the WHO Disabi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.511689
更新日期:2010-01-01 00:00:00
abstract:BACKGROUND:Cerebral palsy (CP) is the most common disability in childhood. The International Classification of Functioning, Disability and Health (ICF) provides a standard framework for classifying performance in people with disability, including children with CP. Linking measures actually reported with the ICF classif...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.637603
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To assess healthcare use and family perception of family-centred care in children and young adults with severe cerebral palsy (CP) within a geographical region of the UK. METHOD:Young people (4-27years) with severe forms of CP; Gross Motor Function Classification System levels IV and V, were recruited via an e...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1019649
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:Pressure mapping systems provide useful information for pressure care assessment. Healthcare professionals tend to rely upon their colour-coded pressure maps to assist clinical decision-making, based on ranking these from best to worst pressure distribution. The current study investigated whether such ranking i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701400409
更新日期:2008-01-01 00:00:00
abstract::This article deals with the development of a basis for data collection and statistics on disability in France. After having recalled the first attempts to establish statistics on disability, highlighting the lack of a reliable conceptual basis, its shows how ICIDH spread out from the geriatrics research field to the d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000137153
更新日期:2003-06-03 00:00:00
abstract::Purpose: To determine the reliability, responsiveness, validity, and agreement of handheld dynamometry, relative to electromechanical dynamometry, for assessing quadriceps strength surrounding total knee arthroplasty.Methods: Fifty-six patients (48% female) undergoing total knee arthroplasty were assessed prior to sur...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1730454
更新日期:2020-03-06 00:00:00
abstract:INTRODUCTION:Stroke is the main cause of complex disability in the UK. Many stroke survivors feel abandoned when rehabilitation ends and more than half are left with long-term unmet needs. There is now emerging interest in whether group self-management programs (SMP) specifically for stroke survivors could help. Howeve...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1268653
更新日期:2018-03-01 00:00:00
abstract:PURPOSE:This article seeks to outline the design and implementation of cognitive behavioural pain management programmes (PMPs) for people with spinal cord injury (SCI), illustrated by the experiences in a recently evaluated programme (SpinalADAPT). It is hoped that this will provide an easily accessible account of the ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.524276
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:We examined the significance of life dissatisfaction in pre-operative and early recovery phases with respect to functional ability, pain and coping on 2-year follow-up of patients with lumbar spinal stenosis (LSS). METHODS:Patients (n=90, mean age, 62 years, men 40%) with symptomatic LSS underwent decompressiv...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.503255
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To present a minimally invasive technique for the management of chronic Achilles tendinopathy (AT). METHODS:Four longitudinal skin incisions each 0.5 cm long are made. Two incisions are made just medial and lateral to the origin of the tendon; the other two incisions are made just medial and lateral to the dis...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701786922
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:Many patients suffer long term loss of mobility after hip fracture but there is no gold standard method for measuring mobility in this group. We aimed to validate a new mobility outcome measure, the de Morton Mobility Index (DEMMI) in a hip fracture population during inpatient rehabilitation. METHOD:The DEMMI ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.705220
更新日期:2013-02-01 00:00:00
abstract:PURPOSE:The purpose of this study was to explore the experience of parents of children with cerebral palsy (CP) who participated in an intensive cognitive orientation to daily occupational performance (CO-OP) group program addressing child chosen goals. METHOD:Participants were six parents of children with CP who part...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1179350
更新日期:2017-05-01 00:00:00
abstract:PURPOSE:To determine whether English proficiency and/or the frequency of interpreter use impacts on health outcomes for inpatient stroke rehabilitation. METHOD: STUDY DESIGN:Retrospective case-control study. PARTICIPANTS:People admitted for inpatient stroke rehabilitation. A high English proficiency group comprised ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1092173
更新日期:2016-07-01 00:00:00
abstract:PURPOSE:This manuscript seeks to explain why applications of item response theory (IRT) and factor analytic methods provide evidence of validity, and why for the same reasons that they provide evidence of validity, they can advance substantive knowledge. METHODS:A narrative review of the psychometrics literature and d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.872201
更新日期:2014-01-01 00:00:00
abstract:BACKGROUND:The International Classification of Functioning, Disability and Health is the international standard for describing and monitoring functioning. While the categories, the units of the classification, were not designed with measurement in mind, the hierarchical structure of the classification lends itself to t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1381186
更新日期:2019-03-01 00:00:00
abstract:PURPOSE:To explore the long-term functional outcomes of stroke patients with very mild severity at 6 months after stroke. METHODS:This study presents the interim results of the Korean Stroke Cohort for Functioning and Rehabilitation. On day 7, stroke evaluation was performed using the functional assessment battery inc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.3109/09638288.2016.1170214
更新日期:2017-05-01 00:00:00
abstract:PURPOSE:The purpose of this study was to identify what acute care variables and/or perceived recovery factors could predict decreased participation in physical activities post-mild stroke. METHODS:Secondary analysis of persons with mild stroke. Participants were split into two groups based on the percentage of high-de...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.720635
更新日期:2013-07-01 00:00:00
abstract:PURPOSE:Hearing impairment may affect the body posture maintenance. The aim of the study was to evaluate the effect of modified Pilates exercise program on the body posture maintenance in hearing impaired people. METHODS:Eighty students (aged 13-24) were enrolled and randomly allocated into two groups: test group (n =...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1370731
更新日期:2018-12-01 00:00:00
abstract::The Extended Activities of Daily Living scale was validated as an overall assessment of functional independence in stroke patients discharged from hospital. Analysis of results from 49 patients discharged from a stroke unit and 299 from a trial of domiciliary rehabilitation supported previous work indicating that the ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289209166426
更新日期:1992-01-01 00:00:00
abstract::Purpose: To gain insight into visually impaired older people's views regarding acceptability of an adapted Falls Management Exercise programme, and to explore Postural Stability Instructors's perspectives on provision of the programme.Materials and methods: Data from this qualitative study comprised interviews with ni...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1704894
更新日期:2019-12-25 00:00:00
abstract::Purpose: Much of the support required to live in the community post-traumatic brain injury (TBI) is provided by informal carers. Understanding the nature of caregiving work is important to better support informal carers. This study explored the work being performed by informal carers, and factors impacting on their ca...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1508511
更新日期:2020-03-01 00:00:00
abstract:PURPOSE:The incidence of stroke is of global concern, and the rates of recurrence are high. Many risk factors are related to lifestyle behaviours and, as such, are amenable to change. Implementation of effective secondary prevention interventions is essential; however, little is known about influences on participation ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.3109/09638288.2015.1031831
更新日期:2016-01-01 00:00:00