Development of a participatory process to address fragmented application of outcome measurement for rehabilitation in community settings.

Abstract:

PURPOSE:Outcome measurement is an integral part of delivering rehabilitation services in community settings. However, measurement is of little value if instruments are chosen ad hoc and are not administered consistently. The purpose of this study was to develop and test a participatory process of outcome measure selection which would engender consistent use of robust and appropriate instruments. METHOD:The ICF provided the conceptual framework for a systematic review of the literature for relevant outcome measures. A summary of the critical appraisal of the clinimetric properties of the identified instruments was created. The summaries were reviewed and vetted by stakeholders including clinicians, researchers, and managers/policy makers. RESULTS:From the 300 identified and appraised measures, 28 were chosen and made available in a Compendium of Clinical Measures for Community Rehabilitation. The Compendium contains three core measures to be used routinely with all rehabilitation clients and a further 25 that cover particular discipline and client needs. This resource is now available to all clinicians working in the participating rehabilitation services. CONCLUSION:A participatory process combining rigorous review of the literature, expert opinion, and clinician feedback is recommended in the selection and implementation of outcome measures in rehabilitation settings in the community.

journal_name

Disabil Rehabil

authors

Hillier S,Comans T,Sutton M,Amsters D,Kendall M

doi

10.3109/09638280903171519

subject

Has Abstract

pub_date

2010-01-01 00:00:00

pages

511-20

issue

6

eissn

0963-8288

issn

1464-5165

pii

10.3109/09638280903171519

journal_volume

32

pub_type

杂志文章
  • A scoping review of 10 years of published literature on community-based rehabilitation.

    abstract:PURPOSE:To identify the characteristics of peer-reviewed literature on community-based rehabilitation (CBR) in low- and middle-income countries published in English from 2003 to 2012. METHODS:This scoping review involved a systematic search of electronic databases using specific keyword/subject heading combinations. J...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2013.845257

    authors: Cleaver S,Nixon S

    更新日期:2014-01-01 00:00:00

  • Survey of the use of transport by recipients of a regional Electric Indoor/Outdoor Powered (EPIOC) wheelchair service.

    abstract:PURPOSE:To determine the extent to which Electric Indoor/Outdoor Powered wheelchair (EPIOC) users travel in vehicles, their concerns about safety, any accidents occurring during transportation and difficulties with their equipment. METHOD:All 268 EPIOC users on the departmental database were sent a purpose-designed po...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280410001684055

    authors: Belcher MJ,Frank AO

    更新日期:2004-05-20 00:00:00

  • Results on health-related quality of life and functionality of a patient-centered self-management program in hospitalized COPD: a randomized control trial.

    abstract::Objective: The main objective of this study was to evaluate the results of an in-hospital Self-Management program in addition to physiotherapy in severe patients with Chronic Obstructive Pulmonary Disease (COPD) compared to a physiotherapy program.Methods: In this randomized clinical trial, 66 acute exacerbation COPD ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1609099

    authors: Lopez-Lopez L,Valenza MC,Rodriguez-Torres J,Torres-Sanchez I,Granados-Santiago M,Valenza-Demet G

    更新日期:2020-12-01 00:00:00

  • Energy consumption and cost during walking with different modalities of assistance after stroke: a systematic review and meta-analysis.

    abstract::Purpose: To estimate pooled rates of gross and net energy consumption (ml/kg/min and J/kg/min) and energy cost (ml/kg/m and J/kg/m) during level surface walking with different assistance modalities post-stroke.Materials and Methods: Four databases were searched using keywords related to stroke, walking, and energy req...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,meta分析

    doi:10.1080/09638288.2018.1531943

    authors: Lefeber N,De Buyzer S,Dassen N,De Keersmaecker E,Kerckhofs E,Swinnen E

    更新日期:2020-06-01 00:00:00

  • A glimpse of community-based rehabilitation in China.

    abstract::As in other developing countries, community-based rehabilitation (CBR) in China is very important. However, because of differences in the social system, economy, and cultural level, it is impossible to implement a uniform model of CBR. This paper introduces material to show how CBR in China tends to be spontaneous. Ex...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638289209167080

    authors: Ran C,Wen S,Yonghe W,Honglu M

    更新日期:1992-04-01 00:00:00

  • Health, quality of life, social network and use of health care: a comparison between those granted and those not granted disability pensions.

    abstract:PURPOSE:The aim was to compare self-rated health, health-related quality of life (HRQoL), social networks and health care utilisation of those granted disability pension (DP) and those not granted disability pension (nDP). METHOD:Demographic data and medical diagnoses were obtained from the records of the social insur...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280500165179

    authors: Ydreborg B,Ekberg K,Nordlund A

    更新日期:2006-01-15 00:00:00

  • Effect of age and gender on energy expenditure in common activities of daily living in a Chinese population.

    abstract:PURPOSE:It is important to quantify the amount of energy expended in various common household tasks to provide objective information regarding physical activity recommendations in health promotion, weight management, or rehabilitation programs for older people with chronic diseases. These activities may be age/gender s...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280600662232

    authors: Yue AS,Woo J,Ip KW,Sum CM,Kwok T,Hui SS

    更新日期:2007-01-30 00:00:00

  • Polyneuropathy, with and without neurogenic pain, and its impact on daily life activities--a descriptive study.

    abstract:PURPOSE:Few studies on disabilities relate to neurogenic chronic pain conditions and how pain influences the patient's ability to maintain life roles. Polyneuropathy is a condition with muscle weakness, sensory impairment and sometimes additional pain of neurogenic origin. The aim was to investigate disability reported...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280802621382

    authors: Liedberg GM,Vrethem M

    更新日期:2009-01-01 00:00:00

  • Views and experiences of visually impaired older people and exercise instructors about the Falls Management Exercise programme: a qualitative study.

    abstract::Purpose: To gain insight into visually impaired older people's views regarding acceptability of an adapted Falls Management Exercise programme, and to explore Postural Stability Instructors's perspectives on provision of the programme.Materials and methods: Data from this qualitative study comprised interviews with ni...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1704894

    authors: de Jong LD,Coe D,Bailey C,Adams N,Skelton DA

    更新日期:2019-12-25 00:00:00

  • Parallel short forms for the assessment of activities of daily living in cardiovascular rehabilitation patients (PADL-cardio): development and validation.

    abstract:PURPOSE:To develop and validate parallel short forms for the assessment of activities of daily living in cardiac rehabilitation patients (PADL-cardio I & II). METHOD:PADL-cardio I & II were developed based on a sample of 106 patients [mean age  =  57.6; standard deviation (SD) = 11.1; 72.6% males] using Rasch analysis...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1407967

    authors: Schmucker A,Abberger B,Boecker M,Baumeister H

    更新日期:2019-04-01 00:00:00

  • Daily stressors in patients with acute whiplash associated disorders.

    abstract:PURPOSE:Stressors in acute whiplash associated disorders (WAD), as reported on a daily basis, have hitherto been neglected in research. The primary aim of this study was to describe the most stressful daily situation or event reported by individuals with acute WAD within a month of a whiplash trauma. Another aim was to...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2012.662571

    authors: Bring A,Soderlund A,Wasteson E,Asenlöf P

    更新日期:2012-01-01 00:00:00

  • The development of intimate relationships in adolescent girls and women with traumatic brain injury: a framework to guide gender specific rehabilitation and enhance positive social outcomes.

    abstract::Background: Traumatic brain injury is a neurological disorder of biopsychosocial nature influenced by sex and gender interactions across the lifespan. Traumatic brain injury sustained during adolescence can result in cognitive and social communication impairments that compromise the development and maintenance of inti...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1597180

    authors: Wiseman-Hakes C,Saleem M,Poulin V,Nalder E,Balachandran P,Gan C,Colantonio A

    更新日期:2020-12-01 00:00:00

  • Using a dyadic approach to explore parental support for physical activity among young cancer survivors.

    abstract::Background: Physical activity confers many physical and psychosocial benefits for adolescent and young adult cancer survivors, yet most are not active enough to accrue benefits. Parental support for physical activity may be important to consider when exploring factors that influence physical activity in this populatio...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1712621

    authors: Price J,Wurz A,Ramphal R,Wilson K,Brunet J

    更新日期:2020-01-19 00:00:00

  • Education and training of aged-care providers.

    abstract::Population ageing has become a global concern. As persons age they are likely to experience multiple changes, declines, and losses, resulting in multifaceted needs. Psychosocial needs are varied and diverse, reflecting the extreme heterogeneity of the older population and the frequent co-morbidity of physical and ment...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638289409166293

    authors: Myers JE

    更新日期:1994-07-01 00:00:00

  • Myalgic encephalomyelitis/chronic fatigue syndrome and the biopsychosocial model: a review of patient harm and distress in the medical encounter.

    abstract::Objective: Despite the growing evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), there has been a strong impetus to tackle the illness utilizing a biopsychosocial model. However, many sufferers of this disabling condition report distress and dissatis...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638288.2018.1481149

    authors: Geraghty KJ,Blease C

    更新日期:2019-12-01 00:00:00

  • Construct validity of the pediatric evaluation of disability inventory computer adaptive test (PEDI-CAT) in children with medical complexity.

    abstract:PURPOSE:To assess construct (convergent and divergent) validity of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in a sample of children with complex medical conditions. METHOD:Demographics, clinical information, PEDI-CAT normative score, and the Post-Acute Acuity Rating for Childr...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1226406

    authors: Dumas HM,Fragala-Pinkham MA,Rosen EL,O'Brien JE

    更新日期:2017-11-01 00:00:00

  • The role of patient demographics and clinical presentation in predicting discharge placement after inpatient stroke rehabilitation: analysis of a large, US data base.

    abstract:PURPOSE:To determine whether functional ability at admission and demographics predict discharge placement after inpatient rehabilitation for older adults recovering from stroke. METHOD:In this retrospective study, we examined records of 31,910 adults 65 years of age and older who were admitted for inpatient rehabilita...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2012.717587

    authors: Pohl PS,Billinger SA,Lentz A,Gajewski B

    更新日期:2013-06-01 00:00:00

  • Balance outcome measures in cerebellar ataxia: a Delphi survey.

    abstract:PURPOSE:Choosing an appropriate outcome measure for the assessment of balance among people with cerebellar ataxia is currently challenging as no guidelines are available. There is a need for further investigation with clinical experts in order to derive a set of standardized outcome measures with high clinical utility....

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.913709

    authors: Winser SJ,Smith C,Hale LA,Claydon LS,Whitney SL

    更新日期:2015-01-01 00:00:00

  • USA paralympic team archer with McCune Albright Syndrome: a retrospective case report.

    abstract:PURPOSE:This retrospective case report describes a 22-year-old woman with McCune Albright Syndrome who was an archery Bronze Medalist at the 2008 USA Paralympic Games. METHODS:The subject completed the Medical Outcome Survey Short Form-36 (SF-36) and the Hip Dysfunction and Osteoarthritis Score (HOOS). RESULTS:SF-36 ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638280903186319

    authors: Larsen N,Nyland J,Roberts CS

    更新日期:2010-01-01 00:00:00

  • Informal carers of stroke survivors--factors influencing carers: a systematic review of quantitative studies.

    abstract:PURPOSE:Despite increasing evidence of adverse effects on informal carers of caring for stroke survivors, little is known about the characteristics of carers and survivors that influence carer outcomes. The purpose of this review is to summarize factors influencing outcomes in carers of stroke survivors. METHODS:A sys...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701602178

    authors: Greenwood N,Mackenzie A,Cloud GC,Wilson N

    更新日期:2008-01-01 00:00:00

  • Dose effects in behavioural treatment of post-stroke aphasia: a systematic review and meta-analysis.

    abstract:PURPOSE:Aphasia is a debilitating chronic acquired language disorder that impacts heavily on a person's life. Behavioural treatments aim to remediate language processing skills or to enhance communication between the person with aphasia and others, and a number of different treatments are efficacious. However, it is un...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1843079

    authors: Harvey S,Carragher M,Dickey MW,Pierce JE,Rose ML

    更新日期:2020-11-09 00:00:00

  • Subjective weighting of disability: an approach to quality of life assessment in rehabilitation.

    abstract::The impact of various disabilities may differ greatly from individual to individual. Therefore, for a full assessment of a rehabilitee, objective aspects of disability should be supplemented with disability perception. The purpose of this study was to construct a self-administered questionnaire of 39 abilities/activit...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638289409166613

    authors: Laman H,Lankhorst GJ

    更新日期:1994-10-01 00:00:00

  • Eccentric calf muscle training in athletic patients with Achilles tendinopathy.

    abstract:PURPOSE:To evaluate the effects of eccentric strengthening exercises (ESE) in athletic patients with Achilles tendinopathy. METHODS:Forty-five athletic patients (29 men, average age 26 years +/- 12.8, range 18 - 42; 16 women, average age 28 years +/- 13.1, range 20 - 46; average height: 173 +/- 16.8, range 158 - 191; ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280701786427

    authors: Maffulli N,Walley G,Sayana MK,Longo UG,Denaro V

    更新日期:2008-01-01 00:00:00

  • Development of an integrated care pathway for the management of hemiplegic shoulder pain.

    abstract:PURPOSE:To improve clinical management of patients with hemiplegic shoulder pain through development of an evidence-based multidisciplinary integrated care pathway (ICP), and to use this to audit quality of care against predefined standards. METHODS:The ICP was developed by a team of medical, paramedical and nursing s...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280110101569

    authors: Jackson D,Turner-Stokes L,Khatoon A,Stern H,Knight L,O'Connell A

    更新日期:2002-05-10 00:00:00

  • LEARN2MOVE 0-2 years, a randomized early intervention trial for infants at very high risk of cerebral palsy: family outcome and infant's functional outcome.

    abstract::Purpose: To compare family and functional outcome in infants at very high risk of cerebral palsy, after receiving the family centred programme "Coping with and Caring for infants with special needs (COPCA)" or typical infant physiotherapy.Materials and methods: Forty-three infants at very high risk were included befor...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1610509

    authors: Hielkema T,Boxum AG,Hamer EG,La Bastide-Van Gemert S,Dirks T,Reinders-Messelink HA,Maathuis CGB,Verheijden J,Geertzen JHB,Hadders-Algra M

    更新日期:2020-12-01 00:00:00

  • Return-to-work experiences: prior to receiving vocational services.

    abstract:PURPOSE:Injured workers can experience a myriad of difficulties while attempting workplace reintegration and, in some cases, problems encountered result in workers being unable to take up employment opportunities and/or maintain employment gains. This project aimed to discover what injured workers report as being the r...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638280902887412

    authors: Young AE

    更新日期:2009-01-01 00:00:00

  • Measurement properties of the Personal Care Participation Assessment and Resource Tool: a systematic review.

    abstract:PURPOSE:To systematically review research investigating measurement properties of the Personal Care Participation Assessment and Resource Tool (PC-PART), formerly the Handicap Assessment and Resource Tool (HART). DATA SOURCES:Seven databases were searched using (i) HART or PC-PART terms and (ii) known authors. Referen...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2012.690819

    authors: Darzins S,Imms C,Di Stefano M

    更新日期:2013-02-01 00:00:00

  • Accuracy and responsiveness of the stepwatch activity monitor and ActivPAL in patients with COPD when walking with and without a rollator.

    abstract:PURPOSE:To evaluate the measurement properties of the StepWatch(™) Activity Monitor (SAM) and ActivPAL in COPD. METHOD:Whilst wearing both monitors, participants performed walking tasks at two self-selected speeds, with and without a rollator. Steps obtained using the monitors were compared with that measured by direc...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.641666

    authors: Cindy Ng LW,Jenkins S,Hill K

    更新日期:2012-01-01 00:00:00

  • Self-reported mental health in youth with cerebral palsy and associations to recurrent musculoskeletal pain.

    abstract:PURPOSE:To explore self-reports on emotional, conduct, hyperactivity and peer problems and on prosocial behaviour in youth with cerebral palsy (CP), compare the reports to normative data and to mothers' reports and to analyse if recurrent CP-related musculoskeletal pain (RMP) influence the self-reports. METHODS:Eighty...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.913703

    authors: Ramstad K,Loge JH,Jahnsen R,Diseth TH

    更新日期:2015-01-01 00:00:00

  • Cognitive complaints, neuropsychological performance and affective disorders in elderly community residents.

    abstract:BACKGROUND:Previous studies have assessed the relationship between subjective cognitive complaints and objective impairment. While some of them found that cognitive complaints were explained by affective disorders, other researches found a relationship between cognitive complaints and neuropsychological performance. Mo...

    journal_title:Disability and rehabilitation

    pub_type: 临床试验,杂志文章

    doi:10.1080/09638280701667825

    authors: Rouch I,Anterion CT,Dauphinot V,Kerleroux J,Roche F,Barthelemy JC,Laurent B

    更新日期:2008-01-01 00:00:00