Abstract:
PURPOSE:To evaluate the quality of life of mothers with children suffering from cerebral palsy compared with those who have children with minor health problems. METHOD:Forty mothers with a child suffering from cerebral palsy and 44 mothers with a child suffering from minor health problems participated in a comparative study. The Turkish version of the Medical Outcomes 36-Item Short Form Health Survey (SF-36) was used to assess a mother's quality of life. The severity of a child's motor disability was assessed using the Gross Motor Function Classification System (GMFCS). RESULTS:With the exception of the SF-36 physical functioning subscale, the mean scores on the SF-36 subscales were significantly lower in mothers of children with CP than those of the comparison group. The quality of life scores of mothers were significantly correlated with the severity of a child's motor disability (except physical functioning subscale). Significant correlations were found between GMFCS and the role physical; vitality; role emotional; and mental health subscales of the SF-36. CONCLUSIONS:The quality of life profile of mothers of children with cerebral palsy is different from those who have a child with minor health problems. Different coping strategies and psychosocial programmes must be designed and implemented to decrease the burden of care.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Eker L,Tüzün EHdoi
10.1080/09638280400000187subject
Has Abstractpub_date
2004-12-02 00:00:00pages
1354-9issue
23eissn
0963-8288issn
1464-5165journal_volume
26pub_type
杂志文章abstract::Purpose: Evidence for efficacy of early intervention in infants at high risk of cerebral palsy (CP) is limited. We compared outcome of infants at very high risk of CP after receiving the family centered program COPing with and CAring for infants with special needs (COPCA) or typical infant physiotherapy.Materials and ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1610508
更新日期:2020-12-01 00:00:00
abstract:PURPOSE:With the aim of improving the measurement of child health and disability in survey research, this paper reviews the coverage of chronic health conditions and the domains of disability and related environmental factors as they are laid out in the ICD-10 and ICF, respectively, in national surveys of school-aged c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/0963828031000122249
更新日期:2003-08-19 00:00:00
abstract:PURPOSE:Two physical function questions on the widely used SF-12 Health Related Quality of Life questionnaire appear less than optimal for people with complete spinal cord injury (SCI). Physical function questions typically receive the lowest score unless the individual is ambulatory. Additionally, the influence of sec...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500163828
更新日期:2006-01-30 00:00:00
abstract::Aim: Primary aims of this systematic review were to: (1) identify the range of subjective memory measures used in the stroke and stroke-related aphasia literature and (2) critically appraise their psychometric properties as well as (3) the methodological qualities of studies that included them, (4) investigate whether...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1668485
更新日期:2019-09-27 00:00:00
abstract:PURPOSE:The term "Living Lab" was coined to reflect the use of sensors to monitor human behavior in real life environments. Until recently such measurements had been feasible only within experimental laboratory settings. The objective of this paper is to highlight research on health care sensing and monitoring devices ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2015.1059494
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To transculturally adapt the Quebec Back Pain Disability Scale for Hindi-speaking population and examine its psychometric properties in patients with low back pain. MATERIALS AND METHODS:The Quebec Back Pain Disability Scale was translated and cross-culturally adapted into Hindi following international guideli...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1362596
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:To present a conceptual model of optimal participation in recreational and leisure activities for children with physical disabilities. METHODS:The conceptualization of the model was based on review of contemporary theories and frameworks, empirical research and the authors' practice knowledge. A case scenario ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.863392
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To identify environmental factors associated with participation and gain an in-depth understanding of relationships between environmental factors and participation among people with spinal cord injury. METHOD:Six focus groups (n= 30) with individuals with spinal cord injury were conducted. Two independent code...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1327991
更新日期:2018-09-01 00:00:00
abstract:PURPOSE:To compare falls event rates and risk factors for falls across three rehabilitation settings. METHODS:A multi-centre prospective longitudinal cohort study was conducted of 1682 participants referred for rehabilitation from 18 sites (across two Australian states) and receiving physiotherapy treatment. Falls ris...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.3109/09638288.2010.514019
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Bladder dysfunction affects 75% of people with multiple sclerosis (MS). People with MS are reluctant to seek treatment for this distressing symptom. This is the first-known study to explore in depth how bladder dysfunction interferes with quality of life for people with MS. METHODS:Nineteen individual semi-str...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1027007
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To explore the psychosocial outcomes of an inclusive adapted sport and adventurous training course that aims to support the rehabilitation and personal development of military personnel who have sustained physical and/or psychological disability. METHOD:Narrative life story interviews were conducted with 11 me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.802376
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:To cross-culturally translate the Multiple Sclerosis Spasticity Scale into Italian and to evaluate its psychometric properties in patients with multiple sclerosis. METHODS:The Italian version of Multiple Sclerosis Spasticity Scale was developed in accordance with international standards and subsequently admini...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1393699
更新日期:2019-02-01 00:00:00
abstract:PURPOSE:To examine the impact of neonatal brachial plexus palsy (NBPP) on societal participation of adolescents and adults. METHODS:This cross-sectional study was conducted among patients with NBPP, aged ≥16 years, who had visited our NBPP clinic. Patients completed questions on the influence of NBPP on their choices ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1380717
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:The purpose of this paper is to assist those engaged in research dealing with attitudes towards persons with disabilities by presenting a catalogue of various attitude measurement methods. METHOD:A review of the methodological and psychological literatures on the measurement of attitudes towards persons with d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/096382800296782
更新日期:2000-03-20 00:00:00
abstract::This study examined the stroke knowledge of 60 stroke rehabilitation patients, 46 spouses, 25 family members, and 103 people in the general community. Changes in stroke knowledge with time, and determinants of stroke knowledge, were also examined. Clinical participants were assessed on acute admission, admission to an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289809166061
更新日期:1998-03-01 00:00:00
abstract:PURPOSE:The aim of this study was to investigate the relations between the ICF components from a subjective perspective. METHOD:Data on health condition and perceived functioning were collected among 2941 individuals with at least one chronic disease or disorder. Path analysis was used with perceived level of particip...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.647233
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To investigate the sensitivity and responsiveness of the Health-Related Quality of Life in Stroke Patients-40 (HRQOLISP-40) scale in evaluating stroke patients from onset to 12 months. METHODS:Fifty-five patients with first-incidence stroke were followed-up for 12 months. The HRQOLISP-40 scale was used to asse...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.825652
更新日期:2014-01-01 00:00:00
abstract::Purpose: To gain insight into visually impaired older people's views regarding acceptability of an adapted Falls Management Exercise programme, and to explore Postural Stability Instructors's perspectives on provision of the programme.Materials and methods: Data from this qualitative study comprised interviews with ni...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1704894
更新日期:2019-12-25 00:00:00
abstract:PURPOSE:The purpose of this study is to assess the visual problems of people with intellectual disability in residential and community-based facilities. METHOD:A purposive sample of 146 male and female adults, aged 21 and older, living in residential facilities and community-based homes in the southern region of Israe...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500052898
更新日期:2005-12-15 00:00:00
abstract::Purpose: In older people with diabetes, multimorbidity is highly prevalent and it can lead to poor quality of life. The overall purpose of this study was to examine the association between the social environment, psychosocial support and constraints, and overall quality of life among older people with and without with...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1783375
更新日期:2020-07-06 00:00:00
abstract:PURPOSE:Many patients suffer long term loss of mobility after hip fracture but there is no gold standard method for measuring mobility in this group. We aimed to validate a new mobility outcome measure, the de Morton Mobility Index (DEMMI) in a hip fracture population during inpatient rehabilitation. METHOD:The DEMMI ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.705220
更新日期:2013-02-01 00:00:00
abstract:PURPOSE:Participation throughout one's life plays a significant role for development and emotional well-being. For this reason, there is a need to identify ways to facilitate participation in family activities for children and adolescents with profound intellectual and multiple disabilities (PIMD). METHODS:The study d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.895058
更新日期:2014-01-01 00:00:00
abstract::Purpose: To (A) develop a method for measuring compliance with standards, and (B) implementation of the method in 12 rehabilitation centers in six low and middle-income countries (LMICs). Methods: In part A, existing standards were compiled and operationalized into scores, organized into 5 'scorecards' and 15 'sub-sco...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1462409
更新日期:2019-09-01 00:00:00
abstract:PURPOSE:To argue for and propose bipartite concepts of functioning and disability, to tally with the structure of the ICF classification list, concepts of social models and clinical needs. METHOD:The ICF concepts are discussed in relation to the history of ideas regarding disability concepts and the needs for such con...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.978506
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To calculate the impact of stroke in Italy in 1998, expressed in terms of disability adjusted life years (DALYs) according to the WHO Global Burden of Disease (GBD) Study. METHOD:The data on first-ever stroke incidence (FES), remission rate and case fatality derived from the health information system and a res...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400006457
更新日期:2005-03-04 00:00:00
abstract:PURPOSE:To explore the conceptions of patients with persistent low back pain (LBP) of undergoing physiotherapy delivered in Finnish primary healthcare by physiotherapists who had participated in brief training in Cognitive Functional Therapy (CFT). METHODS:As part of a feasibility implementation study exploring CFT in...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1861116
更新日期:2020-12-22 00:00:00
abstract:PURPOSE:To determine the extent to which Electric Indoor/Outdoor Powered wheelchair (EPIOC) users travel in vehicles, their concerns about safety, any accidents occurring during transportation and difficulties with their equipment. METHOD:All 268 EPIOC users on the departmental database were sent a purpose-designed po...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001684055
更新日期:2004-05-20 00:00:00
abstract:PURPOSE:To describe cost-effectiveness of the Physical Activity in Rheumatoid Arthritis (PARA) study intervention. METHOD:Costs were collected and estimated retrospectively. Cost-effectiveness was calculated based on the intervention cost per patient with respect to change in health status (EuroQol global visual analo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.3109/09638288.2014.940429
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:Currently, dominant web accessibility standards do not respect disability as a complex and culturally contingent interaction; recognizing that disability is a variable, contrary and political power relation, rather than a biological limit. Against this background there is clear scope to broaden the ways in whic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2014.938178
更新日期:2014-01-01 00:00:00
abstract:BACKGROUND:Childhood mild traumatic brain injury (mTBI) has been associated with negative adult outcomes. Effective interventions require identification of the injury event. There is currently little information regarding the accuracy of adult recall of childhood mTBI. METHOD:Prospectively collected information from a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1193905
更新日期:2017-06-01 00:00:00