Abstract:
PURPOSE:Bladder dysfunction affects 75% of people with multiple sclerosis (MS). People with MS are reluctant to seek treatment for this distressing symptom. This is the first-known study to explore in depth how bladder dysfunction interferes with quality of life for people with MS. METHODS:Nineteen individual semi-structured interviews were conducted (M = 8, F = 11). Participants had a definite diagnosis of MS, aged between 37 and 64 years and had at least one bladder dysfunction symptom. The audio-recorded interviews lasted up to 90 min and were transcribed verbatim. RESULTS:Thematic analysis within NVivo10 yielded two key themes: (1) Disruptions and loss and (2) ways of knowing. "Disruptions and Loss" explores how bladder dysfunction interrupted daily living activities and how this contributed to experiencing loss. "Ways of knowing" portrays the types of knowledge that existed around bladder dysfunction. Participants described using their experiential knowledge to self-manage bladder symptoms without advice from healthcare providers. CONCLUSIONS:Bladder dysfunction imposes major disruptions on daily life. People with MS attempt to self-manage their bladder symptoms, despite current barriers to navigating existing healthcare infrastructure. Understanding these barriers and the individual strategies employed by people with MS are the first steps in facilitating independent management of bladder dysfunction. Implications for Rehabilitation Each individual's experience of bladder dysfunction is unique. Healthcare professionals must be prepared to discuss all disruptions and losses associated with bladder dysfunction for people with MS. People with MS have a vast range of knowledge in relation to their own bladder symptoms and healthcare professionals need to explore their existing self-management strategies during assessment. People with MS and healthcare professionals need to be educated on the wider health implications relating to bladder dysfunction.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Browne C,Salmon N,Kehoe Mdoi
10.3109/09638288.2015.1027007subject
Has Abstractpub_date
2015-01-01 00:00:00pages
2350-8issue
25eissn
0963-8288issn
1464-5165journal_volume
37pub_type
杂志文章abstract:PURPOSE:The incidence of stroke is of global concern, and the rates of recurrence are high. Many risk factors are related to lifestyle behaviours and, as such, are amenable to change. Implementation of effective secondary prevention interventions is essential; however, little is known about influences on participation ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.3109/09638288.2015.1031831
更新日期:2016-01-01 00:00:00
abstract:OBJECTIVE:To study the effects of spasticity, sensory impairment, and type of walking aid on falls in community dwellers with chronic stroke. METHODS:Functional Independence Measure (FIM) Instrument, Joint Position Sense Evaluation (JPS), the Rivermead motor assessment scale (RMA), Ashworth Scale, Tinetti Assessment T...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600925860
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1179350
更新日期:2017-05-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1080/09638280600641509
更新日期:2006-11-15 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400009345
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.520802
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pub_type: 杂志文章
doi:10.1080/09638288.2020.1760363
更新日期:2020-05-14 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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更新日期:2003-02-04 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1180548
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:Carers and health professionals who work with people with the human immunodeficiency virus (HIV) are reported to think that the communication skills of people with HIV are "odd" and a range of difficulties with communication have been identified. However, little research has examined the "pragmatic" skills of p...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600963069
更新日期:2007-08-30 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1817984
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pub_type: 杂志文章
doi:10.1080/09638288.2016.1226406
更新日期:2017-11-01 00:00:00
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pub_type: 杂志文章
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pub_type: 杂志文章,多中心研究
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更新日期:2011-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1152609
更新日期:2017-03-01 00:00:00
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pub_type: 杂志文章
doi:10.1080/09638288.2018.1460626
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pub_type: 杂志文章,评审
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pub_type: 杂志文章
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更新日期:2014-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2015-01-01 00:00:00
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pub_type: 杂志文章
doi:10.3109/09638288.2015.1044030
更新日期:2016-01-01 00:00:00
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pub_type: 杂志文章,随机对照试验
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更新日期:2010-01-01 00:00:00
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pub_type: 杂志文章
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更新日期:2011-01-01 00:00:00
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更新日期:2014-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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