Abstract:
PURPOSE:This study aimed to explore the perspectives of working-aged adults with post-stroke aphasia (PWA) towards what has or would help them in living well with aphasia (LWA). This paper reports the findings in relation to stroke care and its relevance for LWA. MATERIALS AND METHODS:This qualitative study was designed with input from a Public and Patient Involvement advisory group. We conducted in-depth, semi-structured interviews with 14 PWA. Data were analysed following principles of reflexive thematic analysis. RESULTS:Support services and LWA spanned five themes: Inpatient care; Support in the community; Speech therapy; Mental health; and Aphasia education and training. Per the findings, all aspects of stroke care were affected and challenged by aphasia. Access to services and information was variable. PWA of working-age, their families and children need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery. Healthcare workers must be equipped with aphasia competency. CONCLUSIONS:The results highlight a need for equitable, transparent, responsive access to services, information and stroke liaison support. The findings extend knowledge of the importance of stroke care for supporting working-aged adults and their families to live well in the context of aphasia. Implications for rehabilitation There is a need for equitable, transparent access to a responsive integrated pathway of stroke care to support living well with aphasia. People with aphasia post-stroke and their families need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery. This includes flexible access to mental healthcare and speech and language therapy. In order to access relevant care, people with post-stroke aphasia need access to information and stroke liaison support. Training to improve aphasia competency is imperative for healthcare workers.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Manning M,MacFarlane A,Hickey A,Galvin R,Franklin Sdoi
10.1080/09638288.2020.1863483subject
Has Abstractpub_date
2020-12-28 00:00:00pages
1-13eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract:PURPOSE:Explore the potential benefits of using priming methods prior to an active hand task in the acute phase post-stroke in persons with severe upper extremity hemiparesis. METHODS:Five individuals were trained using priming techniques including virtual reality (VR) based visual mirror feedback and contralaterally ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226419
更新日期:2017-07-01 00:00:00
abstract:PURPOSE:To describe shared meanings of success, happiness, and health of adults with cerebral palsy and physiotherapists. MATERIALS AND METHODS:Ethnography employed open ended/semi-structured interviews and structured questionnaires (Satisfaction with Life Scale, Beck Depression Inventory-II®, Oxford Happiness Questio...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1425488
更新日期:2019-06-01 00:00:00
abstract:PURPOSE:Bladder dysfunction and disability may cause people with multiple sclerosis (pwMS) to limit fluid intake. However, hydration is rarely considered in the multiple sclerosis literature. We investigated the hydration status of people with pwMS and its association with independence in activities of daily living. M...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.549286
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Incontinentia pigmenti (IP), or Bloch-Sulzberger syndrome, is a rare X-linked dominant genetic disorder with multisystem involvement. To our knowledge, there are no previous reports about rehabilitation in IP adult with intact cognitive development. We report a 20-year-old lady with IP managed and followed into...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.874504
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:The aim of this study was to investigate the driving performance of drivers with autism spectrum disorders under complex driving conditions. METHOD:Seventeen drivers with autism spectrum disorders and 18 typically developed drivers participated in a driving simulator trial. Prior to the assessment, participant...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1370498
更新日期:2019-01-01 00:00:00
abstract:PURPOSE:To explore the conceptions of patients with persistent low back pain (LBP) of undergoing physiotherapy delivered in Finnish primary healthcare by physiotherapists who had participated in brief training in Cognitive Functional Therapy (CFT). METHODS:As part of a feasibility implementation study exploring CFT in...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1861116
更新日期:2020-12-22 00:00:00
abstract:PURPOSE:This meta-analysis was conducted to assess differences in a child's health-related quality of life (HRQOL) as reported by the child and their parents using the Pediatric Quality of Life InventoryTM, and the effects in both children with attention deficit hyperactivity disorder (ADHD) and those with typical deve...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1391338
更新日期:2019-02-01 00:00:00
abstract::The aim of this study was to assess disability with the Health Assessment Questionnaire (HAQ) and to evaluate the relationships between grip force, pain and difficulty in daily activities. Twenty women with rheumatoid arthritis were assessed with measurements of grip force and pain before and after grip test. Both the...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289709166440
更新日期:1997-01-01 00:00:00
abstract::Purpose: To understand preferences, barriers, and facilitators to participating in community-based exercise opportunities among adults living with chronic pain.Materials and Methods: An interpretive description methodology based on semi-structured interviews was conducted. Adults (age>18 years) living with chronic pai...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1742801
更新日期:2020-03-28 00:00:00
abstract:PURPOSE:To develop screening protocols to detect depression and anxiety after stroke in a community setting and train therapists to administer them. METHOD:Psychologists and a community therapist met to design a system suitable for screening for anxiety and depression in all those with stroke, including people with co...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.636137
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To evaluate the psychometric and administrative properties of outcome measures assigned to the ICF Body Functions category, and commonly used in stroke rehabilitation research. METHOD:Critical review and synthesis of measurement properties for five commonly reported instruments in the stroke rehabilitation lit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400008537
更新日期:2005-02-18 00:00:00
abstract::Purpose: This study had two purposes: to develop an instrument for assessing family members' caregiving needs before their older relative's knee joint-replacement surgery and to determine instrument psychometrics. Methods: In phase 1 of this validation study, we generated 34 items based on previous interviews with 138...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1643414
更新日期:2019-08-07 00:00:00
abstract:PURPOSE:To evaluate microcirculatory variables in and around the Achilles tendon (AT) in patients undergoing a programme of daily eccentric training for the management of tendinopathy of the main body of the AT in non-compliant in contrast to compliant patients. METHODS:A total of 116 patients with tendinopathy of the...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1080/09638280701785676
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To review research that examined the participation in activities of children who have cerebral palsy, in order to understand their extent of participation and the factors that influenced participation. METHODS:A comprehensive search of seven databases retrieved 2,111 papers, 40 of which met criteria and were r...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701673542
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:Accelerated degradation models are emerging as ways to characterize the interaction between disability and the functional decline of aging and to provide insights about the processes of aging with disability. Typically the models employ sophisticated mathematical treatments that are beyond the scope of many cli...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903168515
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To investigate the effects of dynamic ankle-foot orthoses (DAFOs) on functional ambulation activities, weight bearing and spatio-temporal characteristics of hemiparetic gait and to inquire whether wearing a DAFO for 3 months has a carryover effect. METHOD:Fourteen chronic hemiparetic patients who could walk in...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.582926
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To investigate the prevalence of health problems among persons with spinal cord injury (SCI) living in the Netherlands, to identify the problems experienced as most important, and to analyse the experienced impact of these most important problems on daily activities and social life. METHOD:Postal survey among ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500164685
更新日期:2005-11-30 00:00:00
abstract:PURPOSE:To describe activity level, operationalized as ADL capacity and performance of occupations, and occupational balance, operationalized as time use and satisfaction with occupations, in women with limited systemic sclerosis, and to investigate the relationship between these occupational factors and disease charac...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701190083
更新日期:2008-01-01 00:00:00
abstract::Purpose: Ethics education is a critical component of training rehabilitation practitioners. There is a need for capacity-building among ethics educators regarding facilitating ethical decision-making among students. The purpose of this study was to evaluate the utility of an on-line ethics education module for occupat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1473510
更新日期:2019-11-01 00:00:00
abstract:BACKGROUND:Community ambulation is an important element of a rehabilitation training programme and its achievement is a goal shared by rehabilitation professionals and clients. The factors that influence a physiotherapist's or health professionals decision making around the preparation of a client for community ambulat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701623158
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To determine the extent to which Electric Indoor/Outdoor Powered wheelchair (EPIOC) users travel in vehicles, their concerns about safety, any accidents occurring during transportation and difficulties with their equipment. METHOD:All 268 EPIOC users on the departmental database were sent a purpose-designed po...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001684055
更新日期:2004-05-20 00:00:00
abstract:AIM:The aim of this study was to describe experiences of pain and its relationship to daily activities in people with rheumatoid arthritis (RA). METHOD:Seven semi-structured focus group discussions were conducted with 33 men and women of different ages with RA. Data were analysed with content analysis. RESULTS:Pain a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.638034
更新日期:2012-01-01 00:00:00
abstract::Objectives: To investigate the: (i) inter-rater and test-retest reliability of the toe tap test for people with stroke, (ii) the convergent validity of toe tap test counts with stroke-specific impairments, (iii) minimum detectable change in toe tap test counts, (iv) toe tap test cutoff counts which best discriminating...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1479454
更新日期:2019-11-01 00:00:00
abstract:PURPOSE:Outcome measurement is an integral part of delivering rehabilitation services in community settings. However, measurement is of little value if instruments are chosen ad hoc and are not administered consistently. The purpose of this study was to develop and test a participatory process of outcome measure select...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903171519
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To cross-culturally translate the Multiple Sclerosis Spasticity Scale into Italian and to evaluate its psychometric properties in patients with multiple sclerosis. METHODS:The Italian version of Multiple Sclerosis Spasticity Scale was developed in accordance with international standards and subsequently admini...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1393699
更新日期:2019-02-01 00:00:00
abstract:PURPOSE:To identify approaches for developing workforce capacity to deliver the National Disability Insurance Scheme (NDIS) to Indigenous people with disability in Australian rural and remote communities. METHOD:A narrative review of peer-reviewed and gray literature was undertaken. Searches of electronic databases an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638288.2016.1201151
更新日期:2017-08-01 00:00:00
abstract::Purpose: This study compared Internet use post-stroke in people with aphasia (n = 25) and without aphasia (n = 17). The purpose was to understand how people with aphasia were using the Internet and to investigate the impact of aphasia on their use.Materials and methods: A face-to-face supported questionnaire explored ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1580320
更新日期:2020-10-01 00:00:00
abstract:PURPOSE:To evaluate the effect of multimodal exercises integrated with cognitive-behavioural therapy on disability, pain, and quality of life in patients suffering from failed back surgery syndrome (FBSS), and to appraise its extent in the long term. METHODS:By means of a parallel-group superiority-controlled trial, 1...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1863480
更新日期:2020-12-27 00:00:00
abstract:PURPOSE:The presence of an individual with disability in a family affects the whole family. Families of individuals with cerebral palsy (CP) experience increased psychological anxiety and financial problems; specifically, parents tend to feel time pressure and struggle to maintain their social and cultural activities. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1432705
更新日期:2019-06-01 00:00:00
abstract::Purpose: To describe physical activity (PA) levels and motivators and barriers to PA amongst haemodialysis (HD) patients and to identify an appropriate approach to increasing their PA. Methods: A cross-sectional mixed methods study conducted in a tertiary and satellite HD unit. One hundred and one participants aged 18...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1672214
更新日期:2019-10-24 00:00:00