Abstract:
:Purpose: People with multiple sclerosis (MS) rank walking among the most challenging aspects of their condition. A greater understanding of people's perspectives concerning their walking may help to prioritize walking outcomes and strategies for optimizing walking. The purpose was to explore perceptions of walking in people with MS and to describe their reactions after observing themselves walk on video.Materials and methods: An interpretive thematic analysis study using face-to-face, semi-structured interviews was conducted with 14 people who self-identified a change in their walking due to MS. Participants were video-recorded walking and watched their video during the interview.Results: Four themes were identified: "awareness," "acceptance," "constant change," and "increased effort." People with MS develop awareness of how their walking performance looks and awareness of constantly-changing internal factors and external factors which impact their walking. Awareness of change in fatigue, temperature, terrain, and the use of aids in particular are perceived relevant to walking and to impact the effort required to walk. People with MS also describe differences in their acceptance of how others view their walking and the changes related to walking. An analogy with a marionette performing describes how people perceive walking as no longer automatic; instead walking requires the person to consciously pull the strings to walk. An increase in both the physical and cognitive effort is required to walk and an awareness and acceptance of a variety of changes in oneself and the lived world may help or hinder walking. People with MS are willing to watch themselves walk on video and are not surprised by what they observe.Conclusions: People with MS develop a learned self-awareness with variable levels of acceptance about their walking function and what it looks like. The perceptions on walking from persons with MS suggest that focusing on reducing the effort to walk and minimizing the constantly-changing variables may help to optimize walking.Implications for rehabilitationPeople with multiple sclerosis are challenged by the increased effort and constant change required to walk in their day-to-day lives.A focus on minimizing both the effort to walk and the changing variables (i.e., fluctuating symptoms and environmental factors) is warranted.People with multiple sclerosis develop a learned awareness of how they walk and how their walking looks.Acceptance of loss of walking function is variable.Video self-observation is a feasible tool which warrants further exploration for enhancing acceptance of walking function and accommodating strategies.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Knox KB,Clay L,Stuart-Kobitz K,Nickel Ddoi
10.1080/09638288.2018.1496154subject
Has Abstractpub_date
2020-01-01 00:00:00pages
211-218issue
2eissn
0963-8288issn
1464-5165journal_volume
42pub_type
杂志文章abstract:PURPOSE:To assess construct (convergent and divergent) validity of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in a sample of children with complex medical conditions. METHOD:Demographics, clinical information, PEDI-CAT normative score, and the Post-Acute Acuity Rating for Childr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226406
更新日期:2017-11-01 00:00:00
abstract:BACKGROUND:There are relatively few reports describing gait patterns in multiple sclerosis (MS) and most are confined to the analysis of temporal distance parameters with some assessment of joint range of motion. The aim of this study was to perform a biomechanical characterisation of gait patterns among people with MS...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903464497
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To pilot-test and evaluate an innovative program providing information technology (IT) access to people with disabilities transitioning out of nursing homes into the community using a participatory approach. METHODS:Pre- and post-training data was collected on the 61 program participants to reflect three broad...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600551633
更新日期:2006-10-15 00:00:00
abstract:PURPOSE:In this paper we examine how the intersection of various social and political influences shapes discharge planning and rehabilitation practices in ways that may not meet the espoused aims of rehabilitation programs or the preferences of older adults and their families. METHODS:Taking a critical bioethics persp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1193232
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:To examine the psychometric properties of the Driving Awareness Questionnaire (DriveAware) and to compare this rating of awareness of driving ability with the rating made in the context of an on-road assessment. METHOD:A prospective design was employed to examine the psychometric properties of DriveAware using...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802509553
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:Accelerated degradation models are emerging as ways to characterize the interaction between disability and the functional decline of aging and to provide insights about the processes of aging with disability. Typically the models employ sophisticated mathematical treatments that are beyond the scope of many cli...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903168515
更新日期:2010-01-01 00:00:00
abstract::Purpose: Scholars agree that effective rehabilitation relies on a bedrock of reciprocity, relational trust, and authenticity. It is therefore essential for practitioners to develop insight into the complex dynamics within helping relationships. This study aims to provide an in-depth understanding of visually impaired ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1450454
更新日期:2019-08-01 00:00:00
abstract:PURPOSE:Walking ability in general and specifically for lower limb amputees is of major importance for social mobility and ADL independence. Walking determines prosthesis prescription. The aim of this study was to mathematically analyse factors influencing claimed walking distance of lower limb amputees of 500 m or mor...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400009345
更新日期:2005-02-04 00:00:00
abstract:OBJECTIVE:To examine the correlation between an impairment-level and a functional-level assessment scale of aphasia. DESIGN:Prospective, longitudinal study. SETTING:A stroke rehabilitation unit. SUBJECTS:Sixty-seven aphasic acute stroke patients who were undergoing a multi-disciplinary rehabilitation programme, incl...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400009006
更新日期:2005-03-18 00:00:00
abstract:PURPOSE:Quality of Life (QoL) is an important outcome measure in health care and pharmacological trials. The trend towards multinational clinical trials may be problematic because it is unclear as to whether, or to what extent, QoL-measures are comparable across cultures. This study compared QoL between English and Ger...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110072913
更新日期:2001-12-15 00:00:00
abstract:PURPOSE:The aim was to compare self-rated health, health-related quality of life (HRQoL), social networks and health care utilisation of those granted disability pension (DP) and those not granted disability pension (nDP). METHOD:Demographic data and medical diagnoses were obtained from the records of the social insur...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500165179
更新日期:2006-01-15 00:00:00
abstract:PURPOSE:This study explored health professionals' views about the influence of Muslim religious beliefs on Kuwaiti patients' self-efficacy within stroke rehabilitation. It also explored their confidence in discussing religious issues with patients during rehabilitation. METHOD:Qualitative semi-structured interviews we...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.892641
更新日期:2014-01-01 00:00:00
abstract:OBJECTIVE:To compare the effects of goal directed functional therapy (GDT) to activity focused therapy (AT) for preschool children with cerebral palsy (CP) on everyday activities and gross motor function. Another aim was to evaluate goal attainment in the GDT group. METHODS:A prospective intervention study comparing t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1080/09638280902822278
更新日期:2009-01-01 00:00:00
abstract::Purpose: Caregiver-mediated exercises are a novel way of delivering augmented exercise therapy for patients with stroke, in which patients do additional therapeutic exercises together with a caregiver. This explorative qualitative study is part of the CARE4STROKE trial and focused on how participants manage these exer...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1507048
更新日期:2020-03-01 00:00:00
abstract::Purpose: Peer support can be helpful in rehabilitation from breast cancer, but participation in peer support groups is low. Groups that provide support opportunities in physical activity contexts are an attractive alternative for some survivors. This study examined survivors' reasons for joining and maintaining partic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1449259
更新日期:2019-07-01 00:00:00
abstract:PURPOSE:This study investigates (i) the potential discriminative role of a clinical measure of peripheral neuropathy (PN) in assessing postural performance and fall risk and (ii) whether the integration of a simple screening vibration perception threshold (VPT) for PN in any physical (fall risk) assessment among elderl...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.751136
更新日期:2013-09-01 00:00:00
abstract::The consequences of asthma are described in accordance with the definitions of the three levels of the International Classification of Impairments, Disabilities and Handicaps (ICIDH). Because asthma is a chronic disease, health care should emphasize how to cope with it. The goal of physical activities for persons with...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289509166726
更新日期:1995-10-01 00:00:00
abstract:PURPOSE:To describe aspects of process and outcome during early inpatient rehabilitation of younger adults after single incident brain injury. METHOD:Analysis of a database of 290 patients discharged from an inner-city hospital based inpatient unit for younger adults after single incident neurological events, over a 5...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000062642
更新日期:2003-04-22 00:00:00
abstract:PURPOSE:This survey was carried out to study the views of multidisciplinary health professionals about discussing sexual issues with patients. METHODS:A questionnaire was sent to professionals (nurses, doctors, physiotherapists and occupational therapists) to return by post. A duplicate questionnaire was sent 4 weeks ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000031188
更新日期:2003-03-18 00:00:00
abstract:PURPOSE:To investigate the sensitivity and responsiveness of the Health-Related Quality of Life in Stroke Patients-40 (HRQOLISP-40) scale in evaluating stroke patients from onset to 12 months. METHODS:Fifty-five patients with first-incidence stroke were followed-up for 12 months. The HRQOLISP-40 scale was used to asse...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.825652
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To explore factors influencing physical activity (PA) reported by people living in rural/semi-rural communities in the south of England post-stroke, and to understand relationships between personal, interpersonal and environmental barriers and self-reported levels of PA. METHOD:A survey was mailed to patients ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1258437
更新日期:2018-02-01 00:00:00
abstract:PURPOSE:Post-stroke hemiparesis may manifest as asymmetric gait, poor balance, and inefficient movement patterns. We investigated improvements in lower-limb muscle activation and function during Wii-based Movement Therapy (WMT), a rehabilitation program specifically targeting upper-limb motor-function. METHODS:Electro...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1213892
更新日期:2017-09-01 00:00:00
abstract:PURPOSE:Understanding the hierarchy of higher-level physical functions to infer disability level (mild, moderate or severe) is essential for the precise targeting of preventive interventions and has been examined previously in a cross-sectional study. Based on longitudinal data, this study evaluated the hierarchy of hi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641657
更新日期:2012-01-01 00:00:00
abstract::Purpose: The purpose of this scoping review was to explore the literature on experiences and perspectives of patients with hip fractures and their caregivers during transitions in care.Methods: Seven databases were searched for studies published between 1 January 2000 and 3 July 2018. Grey literature was also searched...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1595181
更新日期:2020-12-01 00:00:00
abstract:PURPOSE:Recent debates about the epistemological origins of Universal Design (UD) have questioned how far universalist design approaches can address the particularities and diversities of the human form through a series of standardised, technical responses. This article contributes to these debates by discussing an eme...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.913710
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). METHODS:Families were recruited in Sweden and Norway and stratified according to the ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1378930
更新日期:2019-01-01 00:00:00
abstract:PURPOSE:To enhance the employment outcomes of individuals who experience a stroke, it is essential to understand the factors that determine successful return to work. The aim of this systematic review was to examine barriers to and facilitators of return to work after stroke from the perspective of people with stroke t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析
doi:10.3109/09638288.2016.1141242
更新日期:2017-02-01 00:00:00
abstract:PURPOSE:Exercise therapy is effective in a wide range of chronic diseases. Comorbid disease necessitates adaptations to exercise therapy. Guidance on how to develop such adaptations is currently not available. We present an innovative strategy for the development of comorbidity-related adaptations to exercise therapy i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1066451
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:The aim of this consensus process was to decide on a first version of the ICF Core Set for patients with musculoskeletal conditions in the acute hospital. METHODS:The ICF Core Set development involved a formal decision-making and consensus process integrating evidence gathered from preliminary studies includin...
journal_title:Disability and rehabilitation
pub_type: 共识发展会议,杂志文章,评审
doi:10.1080/09638280400013990
更新日期:2005-04-08 00:00:00
abstract::Purpose Using a network meta-analysis approach, our study aims to develop a ranking of the six surgical procedures, that is, Plate, titanium elastic nail (TEN), tension band wire (TBW), hook plate (HP), reconstruction plate (RP) and Knowles pin, by comparing the post-surgery constant shoulder scores in patients with c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.3109/09638288.2016.1140827
更新日期:2017-01-01 00:00:00