Abstract:
:Purpose: Scholars agree that effective rehabilitation relies on a bedrock of reciprocity, relational trust, and authenticity. It is therefore essential for practitioners to develop insight into the complex dynamics within helping relationships. This study aims to provide an in-depth understanding of visually impaired students' experience of informal helping relationships. Methods: Ten visually impaired students at a South African university participated in one of two semi-structured focus group interviews (six and four in each group, respectively) wherein we explored their experience of informal helping relationships. Interpretive phenomenological analysis was used to make sense of the data. Results: Help, according to the participants, can militate against visibility and complete acceptance, and has the potential to cause helpers to feel entrapped. By contrast, some students found that help offered benefits to relationships by boosting the helper's self-esteem and affording disabled students the opportunity to make friends. Conclusion: Decisions whether to accept help were mediated more by relationship factors than by the need for help. These findings are important for rehabilitation professionals, as deep relationship can come into being during the course of a rehabilitation process. Although this study was conducted in an informal setting, the relational dynamics that we explore are also applicable to clinical relationships between disabled persons and rehabilitation professionals. Implications for rehabilitation In this paper, we provide an overview of the intricacies involved in care and helping relationships; In order for rehabilitation to be successful, these relationships should ideally be real, trusting, and authentic; Yet, authenticity and spontaneity often get lost in helping relationships, as help-recipients may deny help when they need it, and accept help when perfectly able to cope without it. These decisions are mediated more by relationship factors than by the need for help; In their daily practice, it is essential for health professionals to be mindful of these relational intricacies within care relationships; We recommend that professionals remain motivated to continuously reflect on their own actions and on the emotional investment they might have in their role as a helper; Our last recommendation is for rehabilitation professionals to spend energy on exploring, through open and transparent discussions with their disabled patients, the relational dynamics in their relationship.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Lourens H,Watermeyer B,Swartz Ldoi
10.1080/09638288.2018.1450454subject
Has Abstractpub_date
2019-08-01 00:00:00pages
1890-1897issue
16eissn
0963-8288issn
1464-5165journal_volume
41pub_type
杂志文章abstract:PURPOSE:To describe functioning and disability in patients with multiple sclerosis (MS) according to the model endorsed by the International Classification of Functioning Disability and Health (ICF). METHODS:Adult patients with MS were consecutively enrolled. The Expanded Disability Status Scale (EDSS), the WHO Disabi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.511689
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Demonstrating the effectiveness of health care interventions requires valid measurement of the impact of those interventions. However, outlining precisely what constitutes a 'good outcome' in the field of rehabilitation is no easy task and tends to rely on models proposed by 'experts' rather than people with th...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110049919
更新日期:2001-11-10 00:00:00
abstract:PURPOSE:Psychometric validation of the authorized Polish version of the Neck Disability Index (NDI). METHODS:Ninety-five patients with neck pain were enrolled. Reliability was assessed through Cronbach's alpha, split-half reliability, intra-class correlation (ICC) and agreement between measures with limits of agreemen...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.771706
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:Participation throughout one's life plays a significant role for development and emotional well-being. For this reason, there is a need to identify ways to facilitate participation in family activities for children and adolescents with profound intellectual and multiple disabilities (PIMD). METHODS:The study d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.895058
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To explore how women experience living with long-term pregnancy-related pelvic girdle pain. MATERIALS AND METHODS:Nine women with persistent pregnancy-related pelvic girdle pain of 2-13 years were recruited by means of purposive sampling from long-term follow-up studies. The women were 28-42 years of age and h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1368724
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:We examined the significance of life dissatisfaction in pre-operative and early recovery phases with respect to functional ability, pain and coping on 2-year follow-up of patients with lumbar spinal stenosis (LSS). METHODS:Patients (n=90, mean age, 62 years, men 40%) with symptomatic LSS underwent decompressiv...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.503255
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To explore the use of International Classification of Functioning, Disability, and Health for Children and Youth (ICF-CY) based profiles of children's functional abilities in relation to their social competence. Subgroups based on shared profiles of functional ability were investigated as an alternative or comp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1363823
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:To test General Motor Function assessment scale (GMF) for concurrent validity, to analyse the distribution of scores and its clinical sensitivity in a setting of geriatric rehabilitation. METHOD:A descriptive and comparative study involving comparisons between GMF and Katz Index of ADL, analyses of GMF scores ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000093468
更新日期:2003-04-08 00:00:00
abstract:PURPOSE:A 4-week Pain Coping Strategies (PCS) programme has been developed for chronic pain patients who may still be undergoing medical interventions but who would benefit from learning pain management skills. The long-term negative behaviours associated with chronic pain may be prevented by introducing pain managemen...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600756117
更新日期:2007-02-15 00:00:00
abstract:PURPOSE:Tendon injuries (tendinopathy) are prevalent across the population, affecting active and inactive individuals and manual workers. The aetiology of tendinopathy is not known. However, extrinsic factors such as load are known to affect the prevalence. More recently, intrinsic factors have been shown to also affec...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701786864
更新日期:2008-01-01 00:00:00
abstract::Purpose: To describe physical activity (PA) levels and motivators and barriers to PA amongst haemodialysis (HD) patients and to identify an appropriate approach to increasing their PA. Methods: A cross-sectional mixed methods study conducted in a tertiary and satellite HD unit. One hundred and one participants aged 18...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1672214
更新日期:2019-10-24 00:00:00
abstract:PURPOSE:The purpose of this paper is to assist those engaged in research dealing with attitudes towards persons with disabilities by presenting a catalogue of various attitude measurement methods. METHOD:A review of the methodological and psychological literatures on the measurement of attitudes towards persons with d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/096382800296782
更新日期:2000-03-20 00:00:00
abstract::In this paper I want to tread a careful path between spirituality as something to be examined and spirituality as something to be experienced. While we need knowledge, the relationship between spirituality and disability exists in the experiences of those concerned, and should not be reduced to purely analytical categ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289709166564
更新日期:1997-10-01 00:00:00
abstract:PURPOSE:To investigate whether 12 week inspiratory muscle training (IMT) has any impact on pulmonary function, maximum respiratory pressures and diaphragmatic mobility (DM) in morbidly obese subjects. METHOD:Thirty-one morbidly obese individuals were assessed. Volunteers were randomised into two groups. The IMT group ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2013.769635
更新日期:2013-01-01 00:00:00
abstract:BACKGROUND:Few functional outcomes scales have used Item Response Theory (IRT) for validation. IRT allows individual line item validations and offers substantial advantages over classic methods of scale validation or the simplest from of IRT known as Rasch. Rasch analysis reduces data to dichotomous variables thus decr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500404263
更新日期:2006-08-15 00:00:00
abstract::Developing a programme of research is important in advancing the science and practice of a discipline. This paper addresses in general the steps taken in developing a programme of research on pain in children. It reports the results of studies undertaken to develop and test a Pain Assessment Tool for Children and give...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289409166436
更新日期:1994-01-01 00:00:00
abstract:PURPOSE:To determine whether English proficiency and/or the frequency of interpreter use impacts on health outcomes for inpatient stroke rehabilitation. METHOD: STUDY DESIGN:Retrospective case-control study. PARTICIPANTS:People admitted for inpatient stroke rehabilitation. A high English proficiency group comprised ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1092173
更新日期:2016-07-01 00:00:00
abstract:PURPOSE:To assess functional activities of the upper extremity of young adults with cerebral palsy (CP) and to determine their relations with participant characteristics and participation. METHOD:Assessment of functional activities of the upper extremity was performed on 103 participants (aged 16-20 years) with the Me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701355504
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:The aim of this paper is to describe and analyse the current situation of the physiotherapy component of the Rehabilitation of Afghans with Disability (RAD) programme, in order to identify the needs and challenges for further development. METHOD:The study was conducted as a field study with an anthropological ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701257205
更新日期:2008-01-01 00:00:00
abstract:BACKGROUND:Community ambulation is an important element of a rehabilitation training programme and its achievement is a goal shared by rehabilitation professionals and clients. The factors that influence a physiotherapist's or health professionals decision making around the preparation of a client for community ambulat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701623158
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:It has been argued, by many, that mathematical formulae for estimating sample size are unnecessarily complex, so much so that researchers may be reluctant to seek statistical advice. METHOD:This paper reviews methods of sample size estimation arguing that two formulae (one based on comparison of proportion of ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289809166102
更新日期:1998-11-01 00:00:00
abstract:PURPOSE:The provision of informal care plays a crucial role in supporting those with long term illness such as MS to stay in the community, but there is no recent United Kingdom (UK) research into the nature of this care provision and how it interacts with professional community care. The aim of this study was to inves...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400007802
更新日期:2004-12-16 00:00:00
abstract:PURPOSE:Tertiary rehabilitation, particularly in Australia, still costs a significant amount of money each year. Turnover in the rehabilitation industry is extremely high and rehabilitation professionals report being dissatisfied in their work. These ironic findings can be attributed to the state of tension in which re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280500531784
更新日期:2006-09-15 00:00:00
abstract:PURPOSE:Upper limb amputations cause severe functional disability and lower the patient's self body image, with severe psychological implications. Many parameters are involved in the successful rehabilitation of upper limb amputations. The aim of this study was to investigate whether there are any parameters that might...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001645094
更新日期:2004-01-07 00:00:00
abstract:PURPOSE:Currently, dominant web accessibility standards do not respect disability as a complex and culturally contingent interaction; recognizing that disability is a variable, contrary and political power relation, rather than a biological limit. Against this background there is clear scope to broaden the ways in whic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2014.938178
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:Because of the limited number of Spanish validated questionnaires available to assess auditory functionality in daily life situations in adults, the purpose of this study was to investigate the validity and the reliability of the Spanish version of the Speech, Spatial and Qualities of Hearing 12 items scale (sp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1795279
更新日期:2020-07-28 00:00:00
abstract:BACKGROUND:Childhood mild traumatic brain injury (mTBI) has been associated with negative adult outcomes. Effective interventions require identification of the injury event. There is currently little information regarding the accuracy of adult recall of childhood mTBI. METHOD:Prospectively collected information from a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1193905
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:The incidence of stroke is of global concern, and the rates of recurrence are high. Many risk factors are related to lifestyle behaviours and, as such, are amenable to change. Implementation of effective secondary prevention interventions is essential; however, little is known about influences on participation ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.3109/09638288.2015.1031831
更新日期:2016-01-01 00:00:00
abstract::Purpose. HIV/AIDS has grown to become the biggest epidemic in modern history. Southern Africa is at the epicentre of the global epidemic, with just of a third of the world's HIV-positive population living here. It is known that HIV/AIDS affect vulnerable population groups. It is surprising then, that persons with disa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802280585
更新日期:2009-01-01 00:00:00
abstract::Purpose To examine the measurement properties of measures of psychological constructs in people with knee osteoarthritis. Method Participants with osteoarthritis of the knee completed the beck depression inventory (BDI-II), state-trait anxiety inventory (STAI), arthritis helplessness index (AHI), fatigue severity scal...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1146356
更新日期:2017-02-01 00:00:00