Abstract:
PURPOSE:Quality of Life (QoL) is an important outcome measure in health care and pharmacological trials. The trend towards multinational clinical trials may be problematic because it is unclear as to whether, or to what extent, QoL-measures are comparable across cultures. This study compared QoL between English and German adolescents with Cystic Fibrosis (CF) and their healthy peers. METHOD:The study comprised a cross-sectional design. The English subjects formed two groups; 58 adolescents with CF and 49 healthy controls. The German subjects consisted of 26 adolescents with CF and 75 healthy controls. Quality of life was measured using the English and German versions of the SF-36. Demographic (age and gender) and clinical data (FEV1% predicted and BMI) were also recorded. RESULTS:The English and German CF groups had similar age-adjusted lung function and body mass index. Both the English CF and control groups reported a poorer quality of life than their respective German counterparts across several domains of the SF-36. These were limitations in activities due to physical health problems and emotional difficulties, social functioning, energy and vitality and pain. CONCLUSIONS:The differences in quality of life between English and German adolescents with CF appear to be either culturally determined or due to idiosyncrasies in the translations of the SF-36. rather than a consequence of their disease or its management.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Abbott J,Baumann U,Conway S,Etherington C,Gee L,Von Der Schulenburg JM,Webb Kdoi
10.1080/09638280110072913subject
Has Abstractpub_date
2001-12-15 00:00:00pages
837-44issue
18eissn
0963-8288issn
1464-5165journal_volume
23pub_type
杂志文章abstract:PURPOSE:Little information exists about the long-term outcome of amyoplasia. In this article, a case report of a 93-year old woman is presented including both the development of the physical limitations and coping strategies. METHOD:The medical records, physical examinations and personal interviews during the last 10 ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.717577
更新日期:2013-06-01 00:00:00
abstract:PURPOSE:The Motor Assessment Scale (MAS) has shown to be a reliable and valid instrument for measuring motor functioning for stroke patients. The purpose of this paper was to study dimensionality and scalability of the instrument. METHOD:A total number of 137 patients were evaluated at admission and on discharge. To s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500476188
更新日期:2006-08-30 00:00:00
abstract:PURPOSE:There has been a recent development of the work physical therapy area in Brazil. The relationship between work physical therapy and rehabilitation ergonomics needs to be highlighted to avoid segregation and fragmentation of these complementary fields. For these reasons, the purpose of this article was to review...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600638182
更新日期:2006-12-30 00:00:00
abstract:PURPOSE:The aims were to evaluate (a) the feasibility of face-to-face cognitive behavioural therapy (CBT) in people with MS (PwMS) with depressive symptoms; (b) the feasibility of methods and measurements used; and (c) the outcome of the intervention before the conducting of an equivalence study of comparative methods ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1130179
更新日期:2016-12-01 00:00:00
abstract:PURPOSE:To explore the use of International Classification of Functioning, Disability, and Health for Children and Youth (ICF-CY) based profiles of children's functional abilities in relation to their social competence. Subgroups based on shared profiles of functional ability were investigated as an alternative or comp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1363823
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:To describe aspects of process and outcome during early inpatient rehabilitation of younger adults after single incident brain injury. METHOD:Analysis of a database of 290 patients discharged from an inner-city hospital based inpatient unit for younger adults after single incident neurological events, over a 5...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000062642
更新日期:2003-04-22 00:00:00
abstract:PURPOSE:The aim is to examine two aspects of outcome after traumatic brain injury (TBI). Functional outcome was assessed by the Glasgow Outcome Scale - Extended (GOSE) and by clinician ratings, while health-related quality of life (HRQoL) was assessed by the Quality of Life after Brain Injury (QOLIBRI). METHOD:The GOS...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.574776
更新日期:2011-01-01 00:00:00
abstract::Background: Physical activity confers many physical and psychosocial benefits for adolescent and young adult cancer survivors, yet most are not active enough to accrue benefits. Parental support for physical activity may be important to consider when exploring factors that influence physical activity in this populatio...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1712621
更新日期:2020-01-19 00:00:00
abstract:PURPOSE:To develop screening protocols to detect depression and anxiety after stroke in a community setting and train therapists to administer them. METHOD:Psychologists and a community therapist met to design a system suitable for screening for anxiety and depression in all those with stroke, including people with co...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.636137
更新日期:2012-01-01 00:00:00
abstract:OBJECTIVE:To determine the reliability, responsiveness, and convergent validity of the Four-Meter Walk Test (4mWT) compared to the Six-Minute Walk Test (6MWT) surrounding total knee arthroplasty (TKA). DESIGN:Secondary analysis of a randomized controlled trial. SETTING:Research laboratory. PARTICIPANTS:One hundred s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1852446
更新日期:2020-12-05 00:00:00
abstract:PURPOSE:To examine the relevance of the International Classification of Functioning, Disability and Health (ICF) to CBR monitoring and evaluation by investigating the relationship between the ICF and information in published CBR monitoring and evaluation reports. METHOD:A three-stage literature search and analysis met...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2013.821182
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To describe access to and engagement with cervical and breast screening services for women who are Deaf or live with a physical or sensory disability in Aotearoa New Zealand (NZ). METHOD:We carried out an online survey on a convenience sample of 84 women. Tests of association were undertaken between socio-demo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1817158
更新日期:2020-09-15 00:00:00
abstract:PURPOSE:To assess whether life-circumstances and factors other than those described in the EuroQol EQ-5D instrument have a systematic influence on how the same EuroQol health-state is valued. METHOD:A simulation exercise whereby health professionals were asked to rate the health-state of 16 case-scenarios. Each case-s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382801750143607
更新日期:2001-05-10 00:00:00
abstract:PURPOSE:The aim of this consensus process was to decide on a first version of the ICF Core Set for patients with musculoskeletal conditions in the acute hospital. METHODS:The ICF Core Set development involved a formal decision-making and consensus process integrating evidence gathered from preliminary studies includin...
journal_title:Disability and rehabilitation
pub_type: 共识发展会议,杂志文章,评审
doi:10.1080/09638280400013990
更新日期:2005-04-08 00:00:00
abstract::Objective: The aim of this study was to clarify the association of scoliosis and windswept hips with immobility, lying position, and time in lying, in adults with cerebral palsy (CP).Methods: This cross-sectional study included 830 adults (469 males and 361 females) with a diagnosis of CP, 16-73 years, and classified ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1492032
更新日期:2019-12-01 00:00:00
abstract:PURPOSE:The purpose of this study was to describe the factors influencing healthy aging from the perspective of the older person with multiple sclerosis (MS) in order to build curricula for MS self-management programs. METHOD:We sourced participants, older than 55 years with MS for more than 20 years, from a database ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.585212
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To describe cost-effectiveness of the Physical Activity in Rheumatoid Arthritis (PARA) study intervention. METHOD:Costs were collected and estimated retrospectively. Cost-effectiveness was calculated based on the intervention cost per patient with respect to change in health status (EuroQol global visual analo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.3109/09638288.2014.940429
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:Kinesiophobia and catastrophizing are frequent among people with chronic fatigue syndrome (CFS). This study was aimed at examining (1) whether kinesiophobia, anticipated symptoms and fatigue catastrophizing are related to stair climbing performance in people with CFS; and (2) whether kinesiophobia and fatigue c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641661
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To explore how women experience living with long-term pregnancy-related pelvic girdle pain. MATERIALS AND METHODS:Nine women with persistent pregnancy-related pelvic girdle pain of 2-13 years were recruited by means of purposive sampling from long-term follow-up studies. The women were 28-42 years of age and h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1368724
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:Community-based rehabilitation (CBR) has been practiced in mainland China for over three decades. This study reviews the development of CBR and describes its practice in Chinese communities in order to discuss current controversies within CBR practice internationally and in the Chinese context. METHOD:Review o...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2010.506240
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Supportive interventions to enhance return to work (RTW) in cancer survivors hardly showed positive effects so far. Behavioral determinants might have to be considered in the development of interventions to achieve sustained employability. This study aimed to explore cancer survivors' perspectives and experienc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1219924
更新日期:2017-10-01 00:00:00
abstract:AIM:Do the clinical findings explain the complaints of longstanding demonstrated widespread pain (DWP) in a group of immigrant patients, or not? SUBJECTS:Consecutive immigrant patients, on long-term sick leave, aged 18 - 45, at a primary healthcare centre in Stockholm, Sweden. METHODS:Interpreters were available. Two...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600835325
更新日期:2007-03-15 00:00:00
abstract:PURPOSE:This study explored health professionals' views about the influence of Muslim religious beliefs on Kuwaiti patients' self-efficacy within stroke rehabilitation. It also explored their confidence in discussing religious issues with patients during rehabilitation. METHOD:Qualitative semi-structured interviews we...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.892641
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To identify environmental factors associated with participation and gain an in-depth understanding of relationships between environmental factors and participation among people with spinal cord injury. METHOD:Six focus groups (n= 30) with individuals with spinal cord injury were conducted. Two independent code...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1327991
更新日期:2018-09-01 00:00:00
abstract::Purpose: To explore what aspects of and how the child's functioning are discussed during a multi-professional team meeting when planning goals and interventions for rehabilitation.Materials and methods: Multiprofessional rehabilitation meetings were videotaped, the discussions transcribed and all content related to th...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1692080
更新日期:2019-11-22 00:00:00
abstract:PURPOSE: To expand understanding of informal stroke care-giving, validated tools previously used in Hong Kong and in the U.K. were used with Australian stroke carers to assess their stroke-related knowledge, perceived needs, satisfaction with services received and sense of burden after stroke patients' discharge home f...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.553702
更新日期:2011-01-01 00:00:00
abstract::Purpose: To examine whether Obstructive Sleep Apnoea severity, sleep-related problems, and anxiety are associated with work functioning in Obstructive Sleep Apnoea patients, when controlled for age, gender and type of occupation. To investigate whether anxiety moderates the associations between sleep-related problems ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1460626
更新日期:2019-09-01 00:00:00
abstract::The consequences of asthma are described in accordance with the definitions of the three levels of the International Classification of Impairments, Disabilities and Handicaps (ICIDH). Because asthma is a chronic disease, health care should emphasize how to cope with it. The goal of physical activities for persons with...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289509166726
更新日期:1995-10-01 00:00:00
abstract:BACKGROUND:At a political and academic level, South Africa propagates a rights-based approach to disability. The aim of this paper is to explore how disability is conceptualized by persons with disabilities living in a rural area of South Africa. METHODS:In keeping with explorative studies, the study utilized a qualit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1313909
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:In 1981, eight countries and the World Health Organization (WHO) reached consensus about applying a similar disability questionnaire in their health surveys that was related to the ICIDH. In 1992 a revised version, the WHO-disability questionnaire, was recommended. In this paper the concurrent validity of 10 it...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382899297981
更新日期:1999-02-01 00:00:00