Abstract:
PURPOSE:To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). METHODS:Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I-V for children born 2000-2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test-retest reliability (n = 64), and Cronbach's alpha was calculated as an indicator of internal consistency. RESULTS:The questionnaire showed construct validity and the ability to discriminate between levels of gross motor function for the total score and all domain scores (p < 0.05). Test-retest reliability was high with intraclass correlation coefficient of 0.92 for the total score and of 0.72-0.92 for the domain scores. Cronbach's alpha was 0.96 for the total score and 0.83-0.96 for the domain scores. CONCLUSIONS:The Scandinavian version of the CPCHILD for children with CP seems to be a valid and reliable proxy measure for health related quality of life. Implications for rehabilitation Valid and reliable outcome measures are needed to evaluate whether follow-up programs enhance health related quality of life in different countries. The Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) was evaluated for known-groups validity and test-retest reliability. The Scandinavian version of the CPCHILD is a sound and valid measurement for evaluation and comparison of health related quality of life of children with cerebral palsy in different countries.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Pettersson K,Bjerke KM,Jahnsen R,Öhrvik J,Rodby-Bousquet Edoi
10.1080/09638288.2017.1378930subject
Has Abstractpub_date
2019-01-01 00:00:00pages
212-218issue
2eissn
0963-8288issn
1464-5165journal_volume
41pub_type
杂志文章abstract:PURPOSE:To identify the characteristics of peer-reviewed literature on community-based rehabilitation (CBR) in low- and middle-income countries published in English from 2003 to 2012. METHODS:This scoping review involved a systematic search of electronic databases using specific keyword/subject heading combinations. J...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2013.845257
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:This study was planned to investigate the effects of individual and group approaches to sensory-perceptual-motor (SPM) training on children with cerebral palsy. METHOD:This study was carried out at the School of Physical Therapy and Rehabilitation of Hacettepe University, Occupational Therapy Unit. Forty-one c...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1080/09638280010008843
更新日期:2001-06-15 00:00:00
abstract::Purpose: Caregiver-mediated exercises are a novel way of delivering augmented exercise therapy for patients with stroke, in which patients do additional therapeutic exercises together with a caregiver. This explorative qualitative study is part of the CARE4STROKE trial and focused on how participants manage these exer...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1507048
更新日期:2020-03-01 00:00:00
abstract:PURPOSE:This paper focuses on what takes place during the rehabilitation of spinal cord injured (SCI) adults. It analyses the cardinal rehabilitation task of transforming the compromised, limited and injured corporeal style of newly injured adults (best described phenomenologically as an 'I cannot do' or 'I no longer c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701336306
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To review the literature on cognitive functioning in persons with lower limb amputations. METHOD:A search of the MEDLINE, PsycINFO and Web of Science databases was carried out. RESULTS:Thirty papers were found that met the inclusion criteria. The studies were characterised by heterogeneity of design, methodol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.667190
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To determine whether English proficiency and/or the frequency of interpreter use impacts on health outcomes for inpatient stroke rehabilitation. METHOD: STUDY DESIGN:Retrospective case-control study. PARTICIPANTS:People admitted for inpatient stroke rehabilitation. A high English proficiency group comprised ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1092173
更新日期:2016-07-01 00:00:00
abstract:PURPOSE:To evaluate outcome measures and the factors affecting them in patients treated between 1962 and 2000 at Loewenstein Rehabilitation Hospital, Israel. METHOD:This retrospective cohort study included 262 patients with spinal neurological lesions (spinal cord or cauda equina lesions) following degenerative spinal...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500030886
更新日期:2005-08-05 00:00:00
abstract::Purpose: Youths with disabilities have lower employment rates than youths without disabilities, which are often a result of inaccessible environments, employer's lack of knowledge about people with disabilities and discriminatory attitudes. Exploring youths' career aspirations is important because it can prompt or hin...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1671505
更新日期:2019-10-07 00:00:00
abstract:PURPOSE:The aim of this study was to examine the validity of the assessment of living skills and resources (ALSAR) and the extent it contributes to and reflects the risk and accomplishment in instrumental activities of daily life for older people. METHOD:The assessment was examined for evidence of construct validity, ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802105881
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To study dependence in daily activities in adults with congenital disorders living in the community by interviewing them with an interval of 5 years. SUBJECTS AND METHODS:Thirty-one subjects (20 men, 11 women) aged 24-43 years at the second assessment. Twenty-two subjects had cerebral palsy, and nine had spina...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001672490
更新日期:2004-05-06 00:00:00
abstract::Aim: Primary aims of this systematic review were to: (1) identify the range of subjective memory measures used in the stroke and stroke-related aphasia literature and (2) critically appraise their psychometric properties as well as (3) the methodological qualities of studies that included them, (4) investigate whether...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1668485
更新日期:2019-09-27 00:00:00
abstract:BACKGROUND:Community ambulation is an important element of a rehabilitation training programme and its achievement is a goal shared by rehabilitation professionals and clients. The factors that influence a physiotherapist's or health professionals decision making around the preparation of a client for community ambulat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701623158
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:As there is no evidence for a specific treatment for post-stroke-induced hand oedema, rehabilitation centre Blixembosch formalized a best practice protocol. We investigated whether the Blixembosch hand oedema protocol is usable in daily practice and leads to lower incidence (prevention) and shorter duration (tr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.824031
更新日期:2014-01-01 00:00:00
abstract::The Rehabilitation Activities Profile (RAP) is an ICIDH-based assessment method that covers the domains of communication, mobility, personal care, occupation, and relationships. Disabilities and handicaps in these domains are assessed on four-point Likert scales for severity. Problems perceived by the patient associat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289509166712
更新日期:1995-04-01 00:00:00
abstract:BACKGROUND:Persons with multiple sclerosis (MS) often experience a decrease in walking performance while simultaneously performing a cognitive task. This decrease in walking performance is termed dual task cost (DTC). OBJECTIVE:To examine if mobility and cognitive function are correlates of DTC in persons with MS. ME...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.782361
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:Two physical function questions on the widely used SF-12 Health Related Quality of Life questionnaire appear less than optimal for people with complete spinal cord injury (SCI). Physical function questions typically receive the lowest score unless the individual is ambulatory. Additionally, the influence of sec...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500163828
更新日期:2006-01-30 00:00:00
abstract:PURPOSE:Stressors in acute whiplash associated disorders (WAD), as reported on a daily basis, have hitherto been neglected in research. The primary aim of this study was to describe the most stressful daily situation or event reported by individuals with acute WAD within a month of a whiplash trauma. Another aim was to...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.662571
更新日期:2012-01-01 00:00:00
abstract::Introduction: Restless legs syndrome (RLS) is a sensorimotor disorder characterised by an uncomfortable urge to move the legs. Management is primarily pharmacological. Effects for non-pharmacological, non-surgical options are published but lack systematic examination. Objectives: To synthesise results of non-pharmacol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析
doi:10.1080/09638288.2018.1453875
更新日期:2019-08-01 00:00:00
abstract:PURPOSE:To investigate the construct-concurrent validity and reliability of the Turkish version of the European Child Environment Questionnaire (ECEQ-T) in children with cerebral palsy (CP). METHODS:Mean age 9.53 ± 4.45 years 306 children with CP and their parents participated in the study. While construct validity wa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1822930
更新日期:2020-09-29 00:00:00
abstract:PURPOSE:To evaluate the psychometric and administrative properties of outcome measures assigned to the ICF Body Functions category, and commonly used in stroke rehabilitation research. METHOD:Critical review and synthesis of measurement properties for five commonly reported instruments in the stroke rehabilitation lit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400008537
更新日期:2005-02-18 00:00:00
abstract:PURPOSE:Using a Social Judgment Theory approach, mathematical models of clinical decisions can be developed to predict new decisions. However, since these models are often developed under 'laboratory conditions' using hypothetical cases rather than real world client samples, questions may be raised concerning the exter...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001600003
更新日期:2003-11-04 00:00:00
abstract:OBJECTIVE:This research examined the long-term outcomes of rehabilitation patients with moderate to severe traumatic brain injury (TBI). DESIGN:Retrospective cohort study. SETTING AND SUBJECTS:We examined consecutive records of persons with moderate to severe traumatic brain injury who were discharged from a large re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001639722
更新日期:2004-03-04 00:00:00
abstract:PURPOSE:Upper limb amputations cause severe functional disability and lower the patient's self body image, with severe psychological implications. Many parameters are involved in the successful rehabilitation of upper limb amputations. The aim of this study was to investigate whether there are any parameters that might...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001645094
更新日期:2004-01-07 00:00:00
abstract:PURPOSE:Little information exists about the long-term outcome of amyoplasia. In this article, a case report of a 93-year old woman is presented including both the development of the physical limitations and coping strategies. METHOD:The medical records, physical examinations and personal interviews during the last 10 ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.717577
更新日期:2013-06-01 00:00:00
abstract::Purpose: This study aimed to evaluate the implementation of a physical activity counseling program in rehabilitation and to study heterogeneity in received counseling and investigate its association with changes in patients' physical activity outcomes. Methods: This prospective cohort study was conducted in 18 rehabil...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1675188
更新日期:2019-10-17 00:00:00
abstract::Population ageing has become a global concern. As persons age they are likely to experience multiple changes, declines, and losses, resulting in multifaceted needs. Psychosocial needs are varied and diverse, reflecting the extreme heterogeneity of the older population and the frequent co-morbidity of physical and ment...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289409166293
更新日期:1994-07-01 00:00:00
abstract::Disabled Persons Assembly (New Zealand) Inc. is the umbrella group and voice of people with disabilities in New Zealand. Formed from three groups in the early 1980s, it is unique in that the organization includes both individual and corporate members. The former are largely people with disabilities or their relatives,...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289309166006
更新日期:1993-07-01 00:00:00
abstract::Purpose: Several questionnaires have been used for functional evaluation. They must be translated and adapted transculturally, these instruments need to be valid, reliable, and sensitive according to the population. This review identified the questionnaires which were adapted transculturally in Brazilian Portuguese, t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1626917
更新日期:2019-06-11 00:00:00
abstract:PURPOSE:To obtain information about the wishes and experiences of patients with a lower limb amputation with regard to prosthetic prescription and their exchange of information with the healthcare providers. METHOD: DESIGN:Cross-sectional questionnaire. SETTING:Outpatient clinic of a Rehabilitation Centre. STUDY PA...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600948375
更新日期:2007-07-15 00:00:00
abstract:PURPOSE:To assess the prevalence and variation of post-concussion symptoms within the first year after mild traumatic brain injury (TBI), and explore the association between injury severity, demographic factors and symptoms. METHODS:Prospective study of patients with mild TBI followed up at 3, 6 and 12 months (N= 96 i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2009-01-01 00:00:00