Abstract:
PURPOSE:Although an effective face-to-face fatigue program is available, people with transportation, time or geographic restrictions cannot access this intervention. Therefore, the aim of this study was to develop and to evaluate effectiveness of an online fatigue self-management program (online FSMP). METHODS:Key features of the face-to-face program were captured and transferred to an online FSMP prototype. Subsequently, three pilot tests were conducted for formative evaluation of the program and necessary changes were made to improve the program. During the third pilot test, the effectiveness of the online FSMP was also tested using a pre-test post-test design on a sample of individuals with multiple sclerosis, Parkinson's disease or post-polio syndrome. RESULTS:The study resulted in a standardised 7-week online FSMP mimicking its face-to-face version. Participants were offered fatigue self-management skills through structured activities, sharing information and experiences, expressing their ideas or feelings and offering advice and support to one another. The participants in the third pilot study improved significantly on the Fatigue Impact Scale (p <0.05) and a trend toward significance was shown on the Personal Wellbeing index (p = 0.08). CONCLUSIONS:The online FSMP is a viable treatment for people with neurological conditions and warrants further study.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Ghahari S,Packer TL,Passmore AEdoi
10.1080/09638280902751956subject
Has Abstractpub_date
2009-01-01 00:00:00pages
1762-72issue
21eissn
0963-8288issn
1464-5165pii
911803455journal_volume
31pub_type
杂志文章abstract::Purpose: Cognitive impairment is highly prevalent (61%) in chronic obstructive pulmonary disease (COPD). International guidelines recommend providing self-management education through resource-intensive, pulmonary rehabilitation programs, yet screening for deficits likely to interfere with learning have received insuf...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1519046
更新日期:2020-05-01 00:00:00
abstract::The aim of the study was to investigate the effect of perceptual assessment and treatment provided on a stroke unit by comparison with that provided on health care of the elderly and general medical wards. Stroke patients admitted to hospital were randomly allocated to a stroke unit or conventional wards. Perceptual i...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.3109/09638289709166532
更新日期:1997-06-01 00:00:00
abstract:PURPOSE:To understand why individuals with Parkinson's disease (PD) participate in a community-based therapeutic dance program and to explore its influence on perceived physical, social and emotional well-being of participants. METHODS:A qualitative descriptive design was employed using one-on-one semi-structured inte...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1175037
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:To present an evidence-based overview of the current utilization and the effectiveness of therapeutic Electromyographic Biofeedback (EMG-BF) in rehabilitation after orthopedic knee surgeries. MATERIALS AND METHODS:This systematic review was conducted according to the PRISMA statement. MEDLINE (PubMed), PEDro, ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1867904
更新日期:2021-01-08 00:00:00
abstract:PURPOSE:To explore how women experience living with long-term pregnancy-related pelvic girdle pain. MATERIALS AND METHODS:Nine women with persistent pregnancy-related pelvic girdle pain of 2-13 years were recruited by means of purposive sampling from long-term follow-up studies. The women were 28-42 years of age and h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1368724
更新日期:2018-12-01 00:00:00
abstract:AIMS:It is a generally shared opinion that rehabilitation is not (yet) 'fully person-centred' and that it should be more. For a certain number of authors, this deficit in person-centredness has originated from the important weight of a 'medical framework' within rehabilitation. In this paper, we will discuss this criti...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701618620
更新日期:2007-10-30 00:00:00
abstract:PURPOSE:Healthcare decision making in motor neurone disease (MND) focuses on symptom management and quality of life. Decision making may be affected by personal approach to receiving information, decision making style, and disease symptoms. This study explored decision making from the perspectives of people living with...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1855261
更新日期:2020-12-09 00:00:00
abstract::Purpose: To ascertain stakeholders' agreement and disagreement about inter-professional collaboration (IPC) when supporting the child with a developmental language disorder (DLD) in school.Materials and methods: Two rounds of an online Delphi survey were undertaken with a purposive sample of 26 participants (researche...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1725154
更新日期:2020-02-17 00:00:00
abstract::Despite an increasing interest by researchers and clinicians, the pusher behaviour (PB) is still a poorly understood disorder, exhibited by some stroke patients, who push with their non-affected limbs towards the contralesional side and resist attempts at correction of their tilted posture. This review is aimed at cri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280801928002
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abstract:PURPOSE:The aim of this study is to do a cost-benefit analysis with monetary and non-monetary benefits for sheltered employment service programs and try to provide more evidence-based information for policy makers and practitioners to understand the outcomes of sheltered employment services. METHOD:This study analyzed...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To develop a prognostic score for predicting work disability (WD) in patients with ankylosing spondylitis (AS) as strong indicator for poor vocational rehabilitation. METHOD:A cross-sectional study was performed in a group of 170 patients with AS, 120 work disabled and 50 still employed. The variables strongly...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.932442
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To describe shared meanings of success, happiness, and health of adults with cerebral palsy and physiotherapists. MATERIALS AND METHODS:Ethnography employed open ended/semi-structured interviews and structured questionnaires (Satisfaction with Life Scale, Beck Depression Inventory-II®, Oxford Happiness Questio...
journal_title:Disability and rehabilitation
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更新日期:2019-06-01 00:00:00
abstract:PURPOSE:To examine the relevance of physical disabilities for self-worth and perceived competence in children with cerebral palsy (CP), and to examine associations between behaviour problems and self-worth and perceived competence. METHODS:The Harter scales for self-worth and perceived competence and a new scale for p...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600554652
更新日期:2006-10-30 00:00:00
abstract:PURPOSE:The purpose of this study was to develop an understanding the experience and meaning of mobility loss among older adults with multiple sclerosis (MS). This work is part of a larger study on the health concerns and service needs of older adults with MS. METHODS:Twenty-seven people with MS (mean age = 62 years, ...
journal_title:Disability and rehabilitation
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doi:10.1080/09638280310001596180
更新日期:2003-10-21 00:00:00
abstract::Purpose: To describe the characteristics and effectiveness of pediatric telerehabilitation interventions offered to children 0-12 years old or to their families.Methods: A systematic review was conducted on randomized control trials published between 2007 and 2018 involving at least one rehabilitation professional who...
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更新日期:2020-12-01 00:00:00
abstract:PURPOSE:The present review aimed to summarize and critique existing qualitative studies that have examined typically-developing students' views of inclusive education (i.e. the policy of teaching students with special educational needs in mainstream settings). METHODS:Guidelines from the Centre for Reviews and Dissemi...
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pub_type: 杂志文章,评审
doi:10.3109/09638288.2014.993433
更新日期:2015-01-01 00:00:00
abstract::The prevalence and economic cost of the low-back pain problem hardly needs to be mentioned in this journal. Disability ensuing from bouts of low-back pain claims a significant proportion of payments by Worker's Compensation Boards and national treasuries. Any attempt which may enhance our understanding of any aspect o...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289609166325
更新日期:1996-12-01 00:00:00
abstract:PURPOSE:To present a minimally invasive technique for the management of chronic Achilles tendinopathy (AT). METHODS:Four longitudinal skin incisions each 0.5 cm long are made. Two incisions are made just medial and lateral to the origin of the tendon; the other two incisions are made just medial and lateral to the dis...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701786922
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To assess construct (convergent and divergent) validity of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in a sample of children with complex medical conditions. METHOD:Demographics, clinical information, PEDI-CAT normative score, and the Post-Acute Acuity Rating for Childr...
journal_title:Disability and rehabilitation
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abstract:PURPOSE:Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition characterized by a number of symptoms which typically worsen following minimal exertion. Various strategies to manage the limited energy levels have been proposed. Of these, pacing has been consistently rated as one of the m...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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abstract:PURPOSE:Stroke rehabilitation has received increased attention in the past decade. Recent trials with new alternatives such as home-based rehabilitation services are being conducted. The purpose of the study was to explore differences between a therapy session with a stroke patient in two different contexts, i.e. in th...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章
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更新日期:1998-10-01 00:00:00
abstract::Purpose: This study explored the impact of a 12-week stroke self-management program on occupational performance, the role of self-efficacy on improving occupational performance and the potential barriers and facilitators to self-efficacy as reported by clients and careers. Materials and methods: Participants (n = 40) ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1666431
更新日期:2019-09-27 00:00:00
abstract:PURPOSE:The diagnosis of a life-threatening illness can be an extremely stressful, traumatic experience. However, many survivors report also various positive changes, referred in empirical literature as post-traumatic growth (PTG). Empirical studies that documented stress disorders and PTG in patients and survivors of ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280902738441
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To explore the development of a speech interface to a virtual world and to consider its relevance for disabled users. METHOD:The system was developed using mainly software that is available at minimal cost. How well the system functioned was assessed by measuring the number of times a group of users with a ran...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280110111379
更新日期:2002-07-20 00:00:00
abstract:PURPOSE:The purpose of this literature review was to examine factors relating to the perioperative experience of older persons undergoing total hip and knee replacement surgery resulting from osteoarthritis. METHOD:A literature search was undertaken using databases CINAHL, PubMed, Scopus and Web of Science to provide ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2014.906663
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To investigate the safety and efficacy of early mobilisation (EM) compared to usual care by meta-analysing individual participant data (IPD). MATERIALS AND METHODS:IPD were sought from randomised controlled trials comparing out-of-bed mobilisation starting within 48 h from stroke onset to usual care for acute ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1789229
更新日期:2020-07-16 00:00:00
abstract:PURPOSE:Outcome measurement is an integral part of delivering rehabilitation services in community settings. However, measurement is of little value if instruments are chosen ad hoc and are not administered consistently. The purpose of this study was to develop and test a participatory process of outcome measure select...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903171519
更新日期:2010-01-01 00:00:00
abstract::Purpose: To find modifiable factors that are related to subjective well-being would be valuable for improving interventions in fibromyalgia. Physical activity, sedentary behaviour, and physical fitness may represent potential areas to optimize treatment regimens. In fibromyalgia, there is a discordance between clinica...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2019-10-22 00:00:00
abstract:PURPOSE:This article outlines the development of an Assistive Technology (AT) service delivery model and suggests that a client-focused social and participatory service delivery model in AT can achieve the best results for people with disabilities and their carers. METHOD:It draws on case studies, which are part of th...
journal_title:Disability and rehabilitation
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更新日期:2002-01-10 00:00:00
abstract:PURPOSE:This paper discusses how vocational rehabilitation (VR) in Australia has been captured by economic concerns, leading to its failure to deliver promised outcomes. Both public and private sector VR in Australia have undergone significant changes over the last two decades. The demise of non-profit and socially-bas...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280600919731
更新日期:2007-05-30 00:00:00