Abstract:
PURPOSE:The aim of this study is twofold: (1) to explore health service providers' perceptions regarding fibromyalgia patients in Spain and (2) to analyze possible consequences of these perceptions in terms of how health service providers construct the disease and treat their patients. DESIGN:Qualitative study. SUBJECTS/PATIENTS:Twelve health service providers (eight men, four women) involved in the care of fibromyalgia patients. Providers were from different disciplines and included general practitioners, rheumatologists, occupational doctors, psychologists, psychiatrists, physiotherapists and behavioral specialists from Spain. METHOD:We performed individual semistructured interviews, which were recorded and transcribed to conduct a qualitative content analysis supported by Atlas.ti-7. RESULTS:We identified three categories from the interviews: (1) the fibromyalgia patient prototype: the complaining woman, (2) fibromyalgia is considered a women's health issue, but male patients are a privileged minority, and (3) health professionals' attitudes toward fibromyalgia patients: are they really suffering or pretending? CONCLUSION:The uncertainty surrounding fibromyalgia together with the fact that those affected are primarily women, seem to influence professional practice in terms of lack of recognition of Fibromyalgia as a severe disease. Increased training of all health professionals is essential to improving the support and attention given to patients suffering from fibromyalgia. Implications for rehabilitation Fibromyalgia • In order to improve fibromyalgia patients´ attention, health providers should learn how to assist patients without prejudices. • Training programs for health providers should include sensitization about the severity of fibromyalgia. • Health providers should be aware of the existence of stereotypes about women suffering from fibromyalgia. • Fibromyalgia protocols should give skills to health providers to avoid offering a gender-biased attention to patients.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Briones-Vozmediano E,Öhman A,Goicolea I,Vives-Cases Cdoi
10.1080/09638288.2017.1306759subject
Has Abstractpub_date
2018-07-01 00:00:00pages
1679-1685issue
14eissn
0963-8288issn
1464-5165journal_volume
40pub_type
杂志文章abstract:PURPOSE:To investigate differences in position and body movements between children with severe cerebral palsy (CP) and children with typical development (TD) during the daytime and while asleep at night. METHOD:Fifteen children with severe quadriplegic CP living at home (GMFCS level V, 7 males, 8 females; mean age 8 y...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.833308
更新日期:2014-01-01 00:00:00
abstract::Purpose: In older people with diabetes, multimorbidity is highly prevalent and it can lead to poor quality of life. The overall purpose of this study was to examine the association between the social environment, psychosocial support and constraints, and overall quality of life among older people with and without with...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1783375
更新日期:2020-07-06 00:00:00
abstract:PURPOSE:The term "Living Lab" was coined to reflect the use of sensors to monitor human behavior in real life environments. Until recently such measurements had been feasible only within experimental laboratory settings. The objective of this paper is to highlight research on health care sensing and monitoring devices ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2015.1059494
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To compare the characteristics of elderly patients hospitalized for rehabilitation following stroke with those following hip fracture (HF). METHODS:A prospective study in a geriatrics department of a general university hospital in southern Israel. Five hundred and sixteen hospitalized elderly patients were inc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382899297198
更新日期:1999-12-01 00:00:00
abstract:PURPOSE:To ascertain how well health services in Lusaka, Zambia currently meet the safe motherhood and reproductive health care needs of women who have physical impairment leading to disability. METHODS:A qualitative study was conducted in Lusaka, Zambia. In-depth tape-recorded interviews were conducted with 24 purpos...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001629651
更新日期:2004-01-21 00:00:00
abstract:PURPOSE:To explore the psychosocial outcomes of an inclusive adapted sport and adventurous training course that aims to support the rehabilitation and personal development of military personnel who have sustained physical and/or psychological disability. METHOD:Narrative life story interviews were conducted with 11 me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.802376
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:It is important for professionals working with individuals with acquired neurogenic communication disorders to consider their clients' psychological well-being. Much is known about the significant emotional, social and psychological consequences of aphasia after stroke; however, little is known about the indivi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.503835
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Community-based rehabilitation (CBR) has been practiced in mainland China for over three decades. This study reviews the development of CBR and describes its practice in Chinese communities in order to discuss current controversies within CBR practice internationally and in the Chinese context. METHOD:Review o...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2010.506240
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:All the major current case definitions for chronic fatigue syndrome (CFS) specify substantial reductions in previous levels of occupational, educational, social, or personal activities to meet criteria. Difficulties have been encountered in operationalizing 'substantial reductions.' For example, the Medical Out...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.503256
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:The objectives of this study were to describe perceptions of disability among South Asian immigrant mothers of children with disabilities in a large multicultural urban centre in Ontario, Canada, and to explore how these perceptions influence rehabilitation services. The study was built on our previous work con...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.498549
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To assess the prevalence and variation of post-concussion symptoms within the first year after mild traumatic brain injury (TBI), and explore the association between injury severity, demographic factors and symptoms. METHODS:Prospective study of patients with mild TBI followed up at 3, 6 and 12 months (N= 96 i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802532720
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To demonstrate the applicability of the power balance model to elite handcycling and to obtain values for gross efficiency (GE). METHODS:Four members of the Dutch Paralympic team performed trials on a 250-m indoor track. Velocity (v) and power output (PO) were measured in conjunction with physiological measure...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.505677
更新日期:2010-01-01 00:00:00
abstract:AIM:Completion of high-intensity interval training (HIIT) increases maximal oxygen uptake and health status, yet its feasibility in persons with spinal cord injury is unknown. PURPOSE:To compare changes in cardiorespiratory and metabolic variables between two interval training regimes and moderate intensity exercise. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1260648
更新日期:2018-02-01 00:00:00
abstract::Purpose: To examine associations between neurosegmental and functional level classifications in children with Spina Bifida, and determine which classification best reflects daily walking activity.Materials and methods: A prospective correlational study was conducted. Children with Spina Bifida were given ratings for l...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1746845
更新日期:2020-04-07 00:00:00
abstract:PURPOSE:The aim of this study was to test the validity and reliability of the translated Norwegian version of the Chronic Pain Acceptance Questionnaire (CPAQ-20) and the shorter version CPAQ-8 based on the same data. METHOD:The sample consisted of 120 women with chronic widespread musculoskeletal pain (CWP). The respo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1198427
更新日期:2017-07-01 00:00:00
abstract:PURPOSE:The purpose of this study was to develop an ICF core set for post-stroke disability assessment and verification of bio-psycho-social problems. METHOD:Using the Delphi method, a consensus process was conducted. In total, 24 multidisciplinary experts from different institutions completed the consensus process. T...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.638033
更新日期:2012-01-01 00:00:00
abstract::Purposes: Enhancing children's daily participation is the optimal goal of early childhood intervention. This study aimed to identify child and family predictors of participation for toddlers with global developmental delay. Methods: Fifty-nine toddlers with global developmental delay (aged 24-43 months) and their moth...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1678685
更新日期:2019-10-24 00:00:00
abstract:BACKGROUND:At a political and academic level, South Africa propagates a rights-based approach to disability. The aim of this paper is to explore how disability is conceptualized by persons with disabilities living in a rural area of South Africa. METHODS:In keeping with explorative studies, the study utilized a qualit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1313909
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:This study reports level of community integration and life satisfaction among individuals who sustained traumatic spinal cord injuries, received institutional rehabilitation care services, and went back to live in the community in Bangladesh. It examines the impact of type of injury, demographic characteristics...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1283713
更新日期:2018-05-01 00:00:00
abstract:PURPOSE:To investigate the responsiveness and cross-sectional and longitudinal validity of the Motor Activity Log (MAL) in the subacute phase after stroke. METHOD:Data were collected pre-intervention, post-intervention, and at 3-month follow-up evaluations from 30 patients with stroke participating in a randomized tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903437253
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To evaluate the measurement properties of the StepWatch(™) Activity Monitor (SAM) and ActivPAL in COPD. METHOD:Whilst wearing both monitors, participants performed walking tasks at two self-selected speeds, with and without a rollator. Steps obtained using the monitors were compared with that measured by direc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641666
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:This study aimed to explore the perspectives of working-aged adults with post-stroke aphasia (PWA) towards what has or would help them in living well with aphasia (LWA). This paper reports the findings in relation to stroke care and its relevance for LWA. MATERIALS AND METHODS:This qualitative study was design...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1863483
更新日期:2020-12-28 00:00:00
abstract:PURPOSE:To describe the first Italian experience of ICF implementation in the Labour Sector by a Ministerial body, and the development of the International Classification of Functioning, Disability and Health (ICF)-based worker checklist. METHODS:Nation-wide training was provided. ICF-based worker checklist was develo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903317823
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:The purpose of this study was to linguistically and culturally adapt the Nordic Musculoskeletal Questionnaire (NMQ) for use in Turkey, and to examine the psychometric properties of this adapted version. METHOD:The cross-cultural adaptation was achieved by translating the items from the original version, with b...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1114034
更新日期:2016-10-01 00:00:00
abstract:PURPOSE:To examine the impact of neonatal brachial plexus palsy (NBPP) on societal participation of adolescents and adults. METHODS:This cross-sectional study was conducted among patients with NBPP, aged ≥16 years, who had visited our NBPP clinic. Patients completed questions on the influence of NBPP on their choices ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1380717
更新日期:2018-12-01 00:00:00
abstract::Purpose: To examine how deliberate rumination and psychological need satisfaction interact to facilitate posttraumatic growth for para sport athletes with acquired disability. Methods: Utilizing a sample of 70 para sport athletes, the hypothesized mediating role of deliberate rumination was examined via a simple media...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1466203
更新日期:2019-10-01 00:00:00
abstract:PURPOSE:To adapt the American PEDI into a Dutch version, and to establish the content validity of this pediatric functional status instrument. METHODS:The adaptation process was based on current scientific guidelines in the field of cross-cultural research. Thirty-one allied health professionals completed a validity q...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110076036
更新日期:2002-03-20 00:00:00
abstract:PURPOSE:To evaluate a time out based discipline strategy designed to decrease treatment avoidance in children with cystic fibrosis (CF) who displayed non-compliant behaviour to their parents' treatment requests. METHOD:A single-subject reversal design was used to compare baseline compliance when a time out based disci...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802051713
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:The performance quality rating scale (PQRS) is an observational measure of performance quality of client-selected, personally meaningful activities. It has been used inconsistently with different scoring systems, and there have been no formal publications on its psychometric properties. The purpose of this stud...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.913702
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:The evidence supporting rehabilitation after joint replacement, while vast, is of variable quality making it difficult for clinicians to apply the best evidence to their practice. We aimed to map key issues for rehabilitation following joint replacement, highlighting potential avenues for new research. MATERIA...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638288.2017.1300947
更新日期:2018-07-01 00:00:00