"The complaining women": health professionals' perceptions on patients with fibromyalgia in Spain.

Abstract:

PURPOSE:The aim of this study is twofold: (1) to explore health service providers' perceptions regarding fibromyalgia patients in Spain and (2) to analyze possible consequences of these perceptions in terms of how health service providers construct the disease and treat their patients. DESIGN:Qualitative study. SUBJECTS/PATIENTS:Twelve health service providers (eight men, four women) involved in the care of fibromyalgia patients. Providers were from different disciplines and included general practitioners, rheumatologists, occupational doctors, psychologists, psychiatrists, physiotherapists and behavioral specialists from Spain. METHOD:We performed individual semistructured interviews, which were recorded and transcribed to conduct a qualitative content analysis supported by Atlas.ti-7. RESULTS:We identified three categories from the interviews: (1) the fibromyalgia patient prototype: the complaining woman, (2) fibromyalgia is considered a women's health issue, but male patients are a privileged minority, and (3) health professionals' attitudes toward fibromyalgia patients: are they really suffering or pretending? CONCLUSION:The uncertainty surrounding fibromyalgia together with the fact that those affected are primarily women, seem to influence professional practice in terms of lack of recognition of Fibromyalgia as a severe disease. Increased training of all health professionals is essential to improving the support and attention given to patients suffering from fibromyalgia. Implications for rehabilitation   Fibromyalgia   • In order to improve fibromyalgia patients´ attention, health providers should learn how to assist patients without prejudices.   • Training programs for health providers should include sensitization about the severity of fibromyalgia.   • Health providers should be aware of the existence of stereotypes about women suffering from fibromyalgia.   • Fibromyalgia protocols should give skills to health providers to avoid offering a gender-biased attention to patients.

journal_name

Disabil Rehabil

authors

Briones-Vozmediano E,Öhman A,Goicolea I,Vives-Cases C

doi

10.1080/09638288.2017.1306759

subject

Has Abstract

pub_date

2018-07-01 00:00:00

pages

1679-1685

issue

14

eissn

0963-8288

issn

1464-5165

journal_volume

40

pub_type

杂志文章
  • Monitoring of body position and motion in children with severe cerebral palsy for 24 hours.

    abstract:PURPOSE:To investigate differences in position and body movements between children with severe cerebral palsy (CP) and children with typical development (TD) during the daytime and while asleep at night. METHOD:Fifteen children with severe quadriplegic CP living at home (GMFCS level V, 7 males, 8 females; mean age 8 y...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.833308

    authors: Sato H,Iwasaki T,Yokoyama M,Inoue T

    更新日期:2014-01-01 00:00:00

  • Social environment and quality of life among older people with diabetes and multiple chronic illnesses in New Zealand: Intermediary effects of psychosocial support and constraints.

    abstract::Purpose: In older people with diabetes, multimorbidity is highly prevalent and it can lead to poor quality of life. The overall purpose of this study was to examine the association between the social environment, psychosocial support and constraints, and overall quality of life among older people with and without with...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1783375

    authors: Yeung P,Severinsen C,Good G,O'Donoghue K

    更新日期:2020-07-06 00:00:00

  • Living Labs: overview of ecological approaches for health promotion and rehabilitation.

    abstract:PURPOSE:The term "Living Lab" was coined to reflect the use of sensors to monitor human behavior in real life environments. Until recently such measurements had been feasible only within experimental laboratory settings. The objective of this paper is to highlight research on health care sensing and monitoring devices ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2015.1059494

    authors: Korman M,Weiss PL,Kizony R

    更新日期:2016-01-01 00:00:00

  • Characterization of elderly patients in rehabilitation: stroke versus hip fracture.

    abstract:PURPOSE:To compare the characteristics of elderly patients hospitalized for rehabilitation following stroke with those following hip fracture (HF). METHODS:A prospective study in a geriatrics department of a general university hospital in southern Israel. Five hundred and sixteen hospitalized elderly patients were inc...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/096382899297198

    authors: Lieberman D,Friger M,Fried V,Grinshpun Y,Mytlis N,Tylis R,Galinsky D,Lieberman D

    更新日期:1999-12-01 00:00:00

  • Barriers to accessing safe motherhood and reproductive health services: the situation of women with disabilities in Lusaka, Zambia.

    abstract:PURPOSE:To ascertain how well health services in Lusaka, Zambia currently meet the safe motherhood and reproductive health care needs of women who have physical impairment leading to disability. METHODS:A qualitative study was conducted in Lusaka, Zambia. In-depth tape-recorded interviews were conducted with 24 purpos...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280310001629651

    authors: Smith E,Murray SF,Yousafzai AK,Kasonka L

    更新日期:2004-01-21 00:00:00

  • Psychosocial outcomes of an inclusive adapted sport and adventurous training course for military personnel.

    abstract:PURPOSE:To explore the psychosocial outcomes of an inclusive adapted sport and adventurous training course that aims to support the rehabilitation and personal development of military personnel who have sustained physical and/or psychological disability. METHOD:Narrative life story interviews were conducted with 11 me...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.802376

    authors: Carless D,Peacock S,McKenna J,Cooke C

    更新日期:2013-01-01 00:00:00

  • Reporting on psychological well-being of older adults with chronic aphasia in the context of unaffected peers.

    abstract:PURPOSE:It is important for professionals working with individuals with acquired neurogenic communication disorders to consider their clients' psychological well-being. Much is known about the significant emotional, social and psychological consequences of aphasia after stroke; however, little is known about the indivi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.503835

    authors: Cruice M,Worrall L,Hickson L

    更新日期:2011-01-01 00:00:00

  • When East meets Wests: community-based rehabilitation in Chinese communities.

    abstract:PURPOSE:Community-based rehabilitation (CBR) has been practiced in mainland China for over three decades. This study reviews the development of CBR and describes its practice in Chinese communities in order to discuss current controversies within CBR practice internationally and in the Chinese context. METHOD:Review o...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2010.506240

    authors: Chung EY,Packer T,Yau M

    更新日期:2011-01-01 00:00:00

  • Measuring substantial reductions in functioning in patients with chronic fatigue syndrome.

    abstract:PURPOSE:All the major current case definitions for chronic fatigue syndrome (CFS) specify substantial reductions in previous levels of occupational, educational, social, or personal activities to meet criteria. Difficulties have been encountered in operationalizing 'substantial reductions.' For example, the Medical Out...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.503256

    authors: Jason L,Brown M,Evans M,Anderson V,Lerch A,Brown A,Hunnell J,Porter N

    更新日期:2011-01-01 00:00:00

  • Perceptions of disability among south Asian immigrant mothers of children with disabilities in Canada: implications for rehabilitation service delivery.

    abstract:PURPOSE:The objectives of this study were to describe perceptions of disability among South Asian immigrant mothers of children with disabilities in a large multicultural urban centre in Ontario, Canada, and to explore how these perceptions influence rehabilitation services. The study was built on our previous work con...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.498549

    authors: Daudji A,Eby S,Foo T,Ladak F,Sinclair C,Landry MD,Moody K,Gibson BE

    更新日期:2011-01-01 00:00:00

  • Post-concussion symptoms after mild traumatic brain injury: influence of demographic factors and injury severity in a 1-year cohort study.

    abstract:PURPOSE:To assess the prevalence and variation of post-concussion symptoms within the first year after mild traumatic brain injury (TBI), and explore the association between injury severity, demographic factors and symptoms. METHODS:Prospective study of patients with mild TBI followed up at 3, 6 and 12 months (N= 96 i...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280802532720

    authors: Røe C,Sveen U,Alvsåker K,Bautz-Holter E

    更新日期:2009-01-01 00:00:00

  • A power balance model for handcycling.

    abstract:PURPOSE:To demonstrate the applicability of the power balance model to elite handcycling and to obtain values for gross efficiency (GE). METHODS:Four members of the Dutch Paralympic team performed trials on a 250-m indoor track. Velocity (v) and power output (PO) were measured in conjunction with physiological measure...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.505677

    authors: Groen WG,van der Woude LH,De Koning JJ

    更新日期:2010-01-01 00:00:00

  • Within-session responses to high-intensity interval training in spinal cord injury.

    abstract:AIM:Completion of high-intensity interval training (HIIT) increases maximal oxygen uptake and health status, yet its feasibility in persons with spinal cord injury is unknown. PURPOSE:To compare changes in cardiorespiratory and metabolic variables between two interval training regimes and moderate intensity exercise. ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1260648

    authors: Astorino TA,Thum JS

    更新日期:2018-02-01 00:00:00

  • Relationships among classifications of impairment and measures of ambulatory function for children with spina bifida.

    abstract::Purpose: To examine associations between neurosegmental and functional level classifications in children with Spina Bifida, and determine which classification best reflects daily walking activity.Materials and methods: A prospective correlational study was conducted. Children with Spina Bifida were given ratings for l...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1746845

    authors: Rethlefsen SA,Bent MA,Mueske NM,Wren TAL

    更新日期:2020-04-07 00:00:00

  • The Norwegian versions of the Chronic Pain Acceptance Questionnaire CPAQ-20 and CPAQ-8 - validation and reliability studies.

    abstract:PURPOSE:The aim of this study was to test the validity and reliability of the translated Norwegian version of the Chronic Pain Acceptance Questionnaire (CPAQ-20) and the shorter version CPAQ-8 based on the same data. METHOD:The sample consisted of 120 women with chronic widespread musculoskeletal pain (CWP). The respo...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1198427

    authors: Eide H,Leren L,Sørebø Ø

    更新日期:2017-07-01 00:00:00

  • Developing an ICF core set for post-stroke disability assessment and verification in Taiwan: a preliminary study.

    abstract:PURPOSE:The purpose of this study was to develop an ICF core set for post-stroke disability assessment and verification of bio-psycho-social problems. METHOD:Using the Delphi method, a consensus process was conducted. In total, 24 multidisciplinary experts from different institutions completed the consensus process. T...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.638033

    authors: Chang KH,Chen HC,Lin Y,Chen SC,Chiou HY,Liou TH,Taiwan ICF Team.

    更新日期:2012-01-01 00:00:00

  • Child and family factors that predict participation attendance in daily activities of toddlers with global developmental delay.

    abstract::Purposes: Enhancing children's daily participation is the optimal goal of early childhood intervention. This study aimed to identify child and family predictors of participation for toddlers with global developmental delay. Methods: Fifty-nine toddlers with global developmental delay (aged 24-43 months) and their moth...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1678685

    authors: Wang PJ,Liao HF,Kang LJ,Chen LC,Hwang AW,Lu L,Tu YK,Morgan GA

    更新日期:2019-10-24 00:00:00

  • "There is nothing wrong with me": disability invisibility in a rural South African town.

    abstract:BACKGROUND:At a political and academic level, South Africa propagates a rights-based approach to disability. The aim of this paper is to explore how disability is conceptualized by persons with disabilities living in a rural area of South Africa. METHODS:In keeping with explorative studies, the study utilized a qualit...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1313909

    authors: Visagie S,Swartz L

    更新日期:2018-07-01 00:00:00

  • Community integration and life satisfaction among individuals with spinal cord injury living in the community after receiving institutional care in Bangladesh.

    abstract:PURPOSE:This study reports level of community integration and life satisfaction among individuals who sustained traumatic spinal cord injuries, received institutional rehabilitation care services, and went back to live in the community in Bangladesh. It examines the impact of type of injury, demographic characteristics...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1283713

    authors: Ahmed N,Quadir MM,Rahman MA,Alamgir H

    更新日期:2018-05-01 00:00:00

  • Responsiveness and validity of the Motor Activity Log in patients during the subacute phase after stroke.

    abstract:PURPOSE:To investigate the responsiveness and cross-sectional and longitudinal validity of the Motor Activity Log (MAL) in the subacute phase after stroke. METHOD:Data were collected pre-intervention, post-intervention, and at 3-month follow-up evaluations from 30 patients with stroke participating in a randomized tri...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638280903437253

    authors: Hammer AM,Lindmark B

    更新日期:2010-01-01 00:00:00

  • Accuracy and responsiveness of the stepwatch activity monitor and ActivPAL in patients with COPD when walking with and without a rollator.

    abstract:PURPOSE:To evaluate the measurement properties of the StepWatch(™) Activity Monitor (SAM) and ActivPAL in COPD. METHOD:Whilst wearing both monitors, participants performed walking tasks at two self-selected speeds, with and without a rollator. Steps obtained using the monitors were compared with that measured by direc...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.641666

    authors: Cindy Ng LW,Jenkins S,Hill K

    更新日期:2012-01-01 00:00:00

  • The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults.

    abstract:PURPOSE:This study aimed to explore the perspectives of working-aged adults with post-stroke aphasia (PWA) towards what has or would help them in living well with aphasia (LWA). This paper reports the findings in relation to stroke care and its relevance for LWA. MATERIALS AND METHODS:This qualitative study was design...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1863483

    authors: Manning M,MacFarlane A,Hickey A,Galvin R,Franklin S

    更新日期:2020-12-28 00:00:00

  • The ICF and labour policies project: the first Italian nation-wide experience of ICF implementation in the Labour Sector.

    abstract:PURPOSE:To describe the first Italian experience of ICF implementation in the Labour Sector by a Ministerial body, and the development of the International Classification of Functioning, Disability and Health (ICF)-based worker checklist. METHODS:Nation-wide training was provided. ICF-based worker checklist was develo...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638280903317823

    authors: Conclave M,Fusaro G,Sala M,Martinuzzi A,Russo E,Frare M,Gorini G,Leonardi M,Raggi A

    更新日期:2009-01-01 00:00:00

  • The Nordic Musculoskeletal Questionnaire: cross-cultural adaptation into Turkish assessing its psychometric properties.

    abstract:PURPOSE:The purpose of this study was to linguistically and culturally adapt the Nordic Musculoskeletal Questionnaire (NMQ) for use in Turkey, and to examine the psychometric properties of this adapted version. METHOD:The cross-cultural adaptation was achieved by translating the items from the original version, with b...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2015.1114034

    authors: Kahraman T,Genç A,Göz E

    更新日期:2016-10-01 00:00:00

  • Participation restrictions among adolescents and adults with neonatal brachial plexus palsy: the patient perspective.

    abstract:PURPOSE:To examine the impact of neonatal brachial plexus palsy (NBPP) on societal participation of adolescents and adults. METHODS:This cross-sectional study was conducted among patients with NBPP, aged ≥16 years, who had visited our NBPP clinic. Patients completed questions on the influence of NBPP on their choices ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1380717

    authors: van der Holst M,Groot J,Steenbeek D,Pondaag W,Nelissen RG,Vliet Vlieland TP

    更新日期:2018-12-01 00:00:00

  • From core belief challenge to posttraumatic growth in para sport athletes: moderated mediation by needs satisfaction and deliberate rumination.

    abstract::Purpose: To examine how deliberate rumination and psychological need satisfaction interact to facilitate posttraumatic growth for para sport athletes with acquired disability. Methods: Utilizing a sample of 70 para sport athletes, the hypothesized mediating role of deliberate rumination was examined via a simple media...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2018.1466203

    authors: Hammer C,Podlog L,Wadey R,Galli N,Forber-Pratt AJ,Newton M

    更新日期:2019-10-01 00:00:00

  • Dutch adaptation and content validity of the 'Pediatric Evaluation Of Disability Inventory (PEDI)'.

    abstract:PURPOSE:To adapt the American PEDI into a Dutch version, and to establish the content validity of this pediatric functional status instrument. METHODS:The adaptation process was based on current scientific guidelines in the field of cross-cultural research. Thirty-one allied health professionals completed a validity q...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280110076036

    authors: Custers JW,Wassenberg-Severijnen JE,Van der Net J,Vermeer A,Hart HT,Helders PJ

    更新日期:2002-03-20 00:00:00

  • Time out based discipline strategy for children's non-compliance with cystic fibrosis treatment.

    abstract:PURPOSE:To evaluate a time out based discipline strategy designed to decrease treatment avoidance in children with cystic fibrosis (CF) who displayed non-compliant behaviour to their parents' treatment requests. METHOD:A single-subject reversal design was used to compare baseline compliance when a time out based disci...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280802051713

    authors: McClellan CB,Cohen LL,Moffett K

    更新日期:2009-01-01 00:00:00

  • The performance quality rating scale (PQRS): reliability, convergent validity, and internal responsiveness for two scoring systems.

    abstract:PURPOSE:The performance quality rating scale (PQRS) is an observational measure of performance quality of client-selected, personally meaningful activities. It has been used inconsistently with different scoring systems, and there have been no formal publications on its psychometric properties. The purpose of this stud...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.913702

    authors: Martini R,Rios J,Polatajko H,Wolf T,McEwen S

    更新日期:2015-01-01 00:00:00

  • Rehabilitation after total joint replacement: a scoping study.

    abstract:PURPOSE:The evidence supporting rehabilitation after joint replacement, while vast, is of variable quality making it difficult for clinicians to apply the best evidence to their practice. We aimed to map key issues for rehabilitation following joint replacement, highlighting potential avenues for new research. MATERIA...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638288.2017.1300947

    authors: L Snell D,Hipango J,Sinnott KA,Dunn JA,Rothwell A,Hsieh CJ,DeJong G,Hooper G

    更新日期:2018-07-01 00:00:00