Health problems of persons with spinal cord injury living in the Netherlands.


PURPOSE:To investigate the prevalence of health problems among persons with spinal cord injury (SCI) living in the Netherlands, to identify the problems experienced as most important, and to analyse the experienced impact of these most important problems on daily activities and social life. METHOD:Postal survey among all members of the Dutch Association of Patients with SCI. The questionnaire focused on 26 health problems: 13 secondary impairments, 8 problems of daily living and 5 psychosocial problems. RESULTS:The respondents (response rate 45.5%, 454 persons) experienced an average of 8 health problems. The most frequently occurring problems regarded bladder and bowel regulation, spasms, pain, oedema and sexuality. Except for oedema, these problems were also most often cited as the most important. The most disabling condition for both daily and social activities was pain. Few significant relationships were found between the prevalence of health problems and the level, completeness and duration of the injury or gender. CONCLUSION:Persons with SCI living in the community experience many health problems and limitations in daily activities and social life due to these problems. The occurrence of these problems does not diminish with increasing time after injury. This strongly emphasises the need for follow-up care.


Disabil Rehabil


Bloemen-Vrencken JH,Post MW,Hendriks JM,De Reus EC,De Witte LP




Has Abstract


2005-11-30 00:00:00














  • Developing and validating equations to predict [Formula: see text]O2 peak from the 6MWT in Childhood ALL Survivors.

    abstract::Introduction: The 6-Minute Walking Test (6MWT) is a safe, standardized and well utilized method to assess the functional capacity. Recently, it was reported that the published prediction equations cannot accurately predict a valid maximal oxygen consumption ([Formula: see text]O2 peak) value in cancer survivors. Thus,...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Labonté J,Caru M,Lemay V,Alos N,Drouin S,Bertout L,Andelfinger G,Krajinovic M,Laverdière C,Sinnett D,Curnier D

    更新日期:2020-02-11 00:00:00

  • A community-based exercise program to increase participation in physical activities among youth with disability: a feasibility study.

    abstract:PURPOSE:To evaluate the feasibility of a student-mentored community-based exercise program for youth with disability. METHOD:Nineteen youth (nine female; mean age 18 years) with disability (seven cerebral palsy, six Down syndrome, three spina bifida, two autism spectrum disorder, one spinal cord injury) were recruited...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Shields N,van den Bos R,Buhlert-Smith K,Prendergast L,Taylor N

    更新日期:2019-05-01 00:00:00

  • Participation restrictions among adolescents and adults with neonatal brachial plexus palsy: the patient perspective.

    abstract:PURPOSE:To examine the impact of neonatal brachial plexus palsy (NBPP) on societal participation of adolescents and adults. METHODS:This cross-sectional study was conducted among patients with NBPP, aged ≥16 years, who had visited our NBPP clinic. Patients completed questions on the influence of NBPP on their choices ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: van der Holst M,Groot J,Steenbeek D,Pondaag W,Nelissen RG,Vliet Vlieland TP

    更新日期:2018-12-01 00:00:00

  • Child and family factors that predict participation attendance in daily activities of toddlers with global developmental delay.

    abstract::Purposes: Enhancing children's daily participation is the optimal goal of early childhood intervention. This study aimed to identify child and family predictors of participation for toddlers with global developmental delay. Methods: Fifty-nine toddlers with global developmental delay (aged 24-43 months) and their moth...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Wang PJ,Liao HF,Kang LJ,Chen LC,Hwang AW,Lu L,Tu YK,Morgan GA

    更新日期:2019-10-24 00:00:00

  • Reliability, responsiveness, and validity of handheld dynamometry for assessing quadriceps strength in total knee arthroplasty.

    abstract::Purpose: To determine the reliability, responsiveness, validity, and agreement of handheld dynamometry, relative to electromechanical dynamometry, for assessing quadriceps strength surrounding total knee arthroplasty.Methods: Fifty-six patients (48% female) undergoing total knee arthroplasty were assessed prior to sur...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Kittelson AJ,Christensen JC,Loyd BJ,Burrows KL,Iannitto J,Stevens-Lapsley JE

    更新日期:2020-03-06 00:00:00

  • The use of a digital voice output device to facilitate language development in a child with developmental apraxia of speech: a case study.

    abstract:PURPOSE:The study aimed at describing the language and communication abilities of a child diagnosed with Developmental Apraxia of Speech (DAS), who used a Macaw Digital voice output device. METHOD:This case study describes the training of a mother in the use of a Macaw digital voice output device to give her child wit...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Bornman J,Alant E,Meiring E

    更新日期:2001-09-20 00:00:00

  • The development of intimate relationships in adolescent girls and women with traumatic brain injury: a framework to guide gender specific rehabilitation and enhance positive social outcomes.

    abstract::Background: Traumatic brain injury is a neurological disorder of biopsychosocial nature influenced by sex and gender interactions across the lifespan. Traumatic brain injury sustained during adolescence can result in cognitive and social communication impairments that compromise the development and maintenance of inti...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Wiseman-Hakes C,Saleem M,Poulin V,Nalder E,Balachandran P,Gan C,Colantonio A

    更新日期:2020-12-01 00:00:00

  • The management of young adults with cystic fibrosis: 'genes, jeans and genies'.

    abstract::Cystic fibrosis is now an adult disease. The understanding of the basic pathophysiology of this disease has increased considerably over the past decade. This has resulted in effective management protocols and the development of innovative approaches to therapy. Management of young adults is complex and requires expert...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审


    authors: Elborn S

    更新日期:1998-06-01 00:00:00

  • Effectiveness of therapeutic electromyographic biofeedback after orthopedic knee surgeries: a systematic review.

    abstract:PURPOSE:To present an evidence-based overview of the current utilization and the effectiveness of therapeutic Electromyographic Biofeedback (EMG-BF) in rehabilitation after orthopedic knee surgeries. MATERIALS AND METHODS:This systematic review was conducted according to the PRISMA statement. MEDLINE (PubMed), PEDro, ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Karaborklu Argut S,Celik D,Yasacı Z

    更新日期:2021-01-08 00:00:00

  • Establishing premises for inter-professional collaborative practice in school: inclusion, difference and influence.

    abstract::Purpose: To ascertain stakeholders' agreement and disagreement about inter-professional collaboration (IPC) when supporting the child with a developmental language disorder (DLD) in school.Materials and methods: Two rounds of an online Delphi survey were undertaken with a purposive sample of 26 participants (researche...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Gallagher AL,Murphy CA,Conway PF,Perry A

    更新日期:2020-02-17 00:00:00

  • The immigrant patient having widespread pain. Clinical findings by physicians in Swedish primary care.

    abstract:AIM:Do the clinical findings explain the complaints of longstanding demonstrated widespread pain (DWP) in a group of immigrant patients, or not? SUBJECTS:Consecutive immigrant patients, on long-term sick leave, aged 18 - 45, at a primary healthcare centre in Stockholm, Sweden. METHODS:Interpreters were available. Two...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Löfvander MB,Engström AW

    更新日期:2007-03-15 00:00:00

  • USA paralympic team archer with McCune Albright Syndrome: a retrospective case report.

    abstract:PURPOSE:This retrospective case report describes a 22-year-old woman with McCune Albright Syndrome who was an archery Bronze Medalist at the 2008 USA Paralympic Games. METHODS:The subject completed the Medical Outcome Survey Short Form-36 (SF-36) and the Hip Dysfunction and Osteoarthritis Score (HOOS). RESULTS:SF-36 ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Larsen N,Nyland J,Roberts CS

    更新日期:2010-01-01 00:00:00

  • The genesis of handicap: definition, models of disablement, and role of external factors.

    abstract::Handicap has proved to be the most contentious and arguably most misunderstood concept of the International Classification of Impairments, Disabilities, and Handicaps (ICIDH). This paper reviews the definition and characteristics of handicap as presented in the original introduction to the ICIDH, and presents some of ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审


    authors: Badley EM

    更新日期:1995-02-01 00:00:00

  • Match and mismatch between objective and subjective improvements in upper limb function after stroke.

    abstract:PURPOSE:To identify stroke patients showing a match between an objectively meaningful improvement in upper-limb motor capacity and subjectively meaningful improvement in upper-limb performance after stroke, as well as determinants of matching and non-matching. METHODS:Changes in upper-limb capacity in 39 stroke patien...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,随机对照试验


    authors: van Delden AL,Peper CL,Beek PJ,Kwakkel G

    更新日期:2013-01-01 00:00:00

  • DVD-based stories of people with developmental disabilities as resources for inter-professional education.

    abstract:PURPOSE:The use of DVD stories about people with developmental disabilities within inter-professional education (IPE) across healthcare disciplines was evaluated. METHODS:First year healthcare students (n = 241) from an IPE unit responded to an attitude scale before and after viewing and discussing a DVD portraying th...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Iacono T,Lewis B,Tracy J,Hicks S,Morgan P,Récoché K,McDonald R

    更新日期:2011-01-01 00:00:00

  • Assessment of physical function and secondary complications after complete spinal cord injury.

    abstract:PURPOSE:Two physical function questions on the widely used SF-12 Health Related Quality of Life questionnaire appear less than optimal for people with complete spinal cord injury (SCI). Physical function questions typically receive the lowest score unless the individual is ambulatory. Additionally, the influence of sec...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Dudley-Javoroski S,Shields RK

    更新日期:2006-01-30 00:00:00

  • Assessment of texture discrimination ability at the sole of the foot in subjects with chronic stroke compared with young and elderly subjects with no neurological deficits: a reliability and validity study.

    abstract:PURPOSE:To examine validity and test-retest reliability of a sensory test developed to evaluate ability of elderly subjects with/out a stroke to discriminate between textures with the sole of their foot. METHODS:Subjects poststroke, old adults and young subjects were tested twice. Twelve materials relevant to foot fun...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Ofek H,Alperin M,Knoll T,Livne D,Laufer Y

    更新日期:2018-08-01 00:00:00

  • Development and reliability of the Motivation for Change Questionnaire.

    abstract:PURPOSE:The purpose of this study was to describe the development of the Motivation for Change Questionnaire (MCQ) and to test its intra-patient reliability on musculoskeletal pain patients in interdisciplinary rehabilitation as a basis for use in rehabilitation planning. METHOD:The MCQ questionnaire was developed fro...

    journal_title:Disability and rehabilitation

    pub_type: 临床试验,杂志文章


    authors: Gard G,Rivano M,Grahn B

    更新日期:2005-09-02 00:00:00

  • Rehabilitation Complexity Scale: Italian translation and transcultural validation.

    abstract:PURPOSE:The aim of the present study was translation, cultural adaption and validation of the extended version 12 of the Rehabilitation Complexity Scale (RCS-E) in a sample of patients with stroke and total hip replacement. METHOD:The cross-cultural validation required RCS-E forward-backward translation, revision by a...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Galletti L,Benedetti MG,Maselli S,Zanoli G,Pignotti E,Iovine R

    更新日期:2016-01-01 00:00:00

  • Eccentric exercises for the management of tendinopathy of the main body of the Achilles tendon with or without an AirHeel Brace. A randomized controlled trial. B: Effects of compliance.

    abstract:PURPOSE:To evaluate microcirculatory variables in and around the Achilles tendon (AT) in patients undergoing a programme of daily eccentric training for the management of tendinopathy of the main body of the AT in non-compliant in contrast to compliant patients. METHODS:A total of 116 patients with tendinopathy of the...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,随机对照试验


    authors: Knobloch K,Schreibmueller L,Longo UG,Vogt PM

    更新日期:2008-01-01 00:00:00

  • Intimate partner violence in women with disabilities: perception of healthcare and attitudes of health professionals.

    abstract:PURPOSE:Intimate partner violence (IPV) is a major social problem and public health issue, but we still have a relatively small amount of data about partner violence in women with disabilities. The main objective of this study was to understand the experiences of women with disabilities who are or have been abused by t...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Ruiz-Pérez I,Pastor-Moreno G,Escribà-Agüir V,Maroto-Navarro G

    更新日期:2018-05-01 00:00:00

  • Work physical therapy and rehabilitation ergonomics: a review and discussion of the scope of the areas.

    abstract:PURPOSE:There has been a recent development of the work physical therapy area in Brazil. The relationship between work physical therapy and rehabilitation ergonomics needs to be highlighted to avoid segregation and fragmentation of these complementary fields. For these reasons, the purpose of this article was to review...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Vieira ER

    更新日期:2006-12-30 00:00:00

  • Questionnaires and scales for assessment of ankle function: a systematic review of instruments translated and validated for Brazilian Portuguese.

    abstract::Purpose: Several questionnaires have been used for functional evaluation. They must be translated and adapted transculturally, these instruments need to be valid, reliable, and sensitive according to the population. This review identified the questionnaires which were adapted transculturally in Brazilian Portuguese, t...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Prudêncio DA,Serafim TT,Marinho Mateus Lopes APSR,Maffulli N,Okubo R

    更新日期:2019-06-11 00:00:00

  • Trajectories of health-related quality of life after stroke: results from a one-year prospective cohort study.

    abstract:PURPOSE:To identify trajectories of physical and psychosocial health-related quality of life (HRQoL) from two months to one-year post stroke and to determine the factors that are associated with trajectory membership. METHOD:Multicenter prospective cohort study in which 351 stroke patients were followed up at 2, 6, an...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: van Mierlo M,van Heugten C,Post MWM,Hoekstra T,Visser-Meily A

    更新日期:2018-05-01 00:00:00

  • Adiposity and tendinopathy.

    abstract:PURPOSE:Tendon injuries (tendinopathy) are prevalent across the population, affecting active and inactive individuals and manual workers. The aetiology of tendinopathy is not known. However, extrinsic factors such as load are known to affect the prevalence. More recently, intrinsic factors have been shown to also affec...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审


    authors: Gaida JE,Cook JL,Bass SL

    更新日期:2008-01-01 00:00:00

  • Hierarchy of higher-level physical functions: a longitudinal investigation on a nationally representative population of community-dwelling middle-aged and elderly persons.

    abstract:PURPOSE:Understanding the hierarchy of higher-level physical functions to infer disability level (mild, moderate or severe) is essential for the precise targeting of preventive interventions and has been examined previously in a cross-sectional study. Based on longitudinal data, this study evaluated the hierarchy of hi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Yeh CJ,Wang CY,Tang PF,Lee MC,Lin HS,Chen HY

    更新日期:2012-01-01 00:00:00

  • Refinements of the ICF Linking Rules to strengthen their potential for establishing comparability of health information.

    abstract::Purpose The content of and methods for collecting health information often vary across settings and challenge the comparability of health information across time, individuals or populations. The International Classification of Functioning, Disability and Health (ICF) contains an exhaustive set of categories of informa...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Cieza A,Fayed N,Bickenbach J,Prodinger B

    更新日期:2019-03-01 00:00:00

  • Evaluation of prosthetic usage in upper limb amputees.

    abstract:PURPOSE:Upper limb amputations cause severe functional disability and lower the patient's self body image, with severe psychological implications. Many parameters are involved in the successful rehabilitation of upper limb amputations. The aim of this study was to investigate whether there are any parameters that might...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Dudkiewicz I,Gabrielov R,Seiv-Ner I,Zelig G,Heim M

    更新日期:2004-01-07 00:00:00

  • Why is rehabilitation not yet fully person-centred and should it be more person-centred?

    abstract:AIMS:It is a generally shared opinion that rehabilitation is not (yet) 'fully person-centred' and that it should be more. For a certain number of authors, this deficit in person-centredness has originated from the important weight of a 'medical framework' within rehabilitation. In this paper, we will discuss this criti...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章


    authors: Gzil F,Lefeve C,Cammelli M,Pachoud B,Ravaud JF,Leplege A

    更新日期:2007-10-30 00:00:00

  • Long-term functional outcomes of patients with very mild stroke: does a NIHSS score of 0 mean no disability? An interim analysis of the KOSCO study.

    abstract:PURPOSE:To explore the long-term functional outcomes of stroke patients with very mild severity at 6 months after stroke. METHODS:This study presents the interim results of the Korean Stroke Cohort for Functioning and Rehabilitation. On day 7, stroke evaluation was performed using the functional assessment battery inc...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,多中心研究


    authors: Chang WH,Sohn MK,Lee J,Kim DY,Lee SG,Shin YI,Oh GJ,Lee YS,Joo MC,Han EY,Kim MS,Jang SY,Kim JH,Kim YH

    更新日期:2017-05-01 00:00:00