Abstract:
:Background: Physical activity confers many physical and psychosocial benefits for adolescent and young adult cancer survivors, yet most are not active enough to accrue benefits. Parental support for physical activity may be important to consider when exploring factors that influence physical activity in this population.Purpose: Explore adolescent and young adult cancer survivors' experiences of parental support for physical activity received and their parents' experiences of support provided.Methods: Ten adolescent and young adult cancer survivors (Mage = 17.4 ± 3.2 years; 70% male) and one of their parents (50% fathers) were interviewed separately. Data were analyzed thematically.Results: Participants' experiences were summarized into three main themes: (1) the basics - instrumental, informational, and emotional support, (2) companionship support - doing it together, and (3) role modeling - a double-edged sword. In general, there was congruence between participants' perceptions of the types of support provided and received for physical activity. However, parents felt their role was to provide instrumental, informational, and emotional support, whereas adolescent and young adult cancer survivors emphasized the importance of companionship support.Conclusions: Findings underscore the complexity of parental support for physical activity among adolescent and young adult cancer survivors. Developing and testing resources to empower adolescent and young adult cancer survivors to ask for parental support and to enable parents to support their child's physical activity is imperative.Implications for RehabilitationMany adolescent and young adult cancer survivors do not participate in enough physical activity to acquire physical and psychosocial benefits.Parental support may represent a key factor that influences physical activity participation.Rehabilitation professionals should consider the influence parents may have on adolescent and young adult cancer survivors' physical well-being post-diagnosis.Promoting co-participation may be a viable strategy to enhance physical activity participation among adolescent and young adult cancer survivors.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Price J,Wurz A,Ramphal R,Wilson K,Brunet Jdoi
10.1080/09638288.2020.1712621subject
Has Abstractpub_date
2020-01-19 00:00:00pages
1-9eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract:PURPOSE:Incontinentia pigmenti (IP), or Bloch-Sulzberger syndrome, is a rare X-linked dominant genetic disorder with multisystem involvement. To our knowledge, there are no previous reports about rehabilitation in IP adult with intact cognitive development. We report a 20-year-old lady with IP managed and followed into...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.874504
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To compare self-reported function and disability between women with urgency urinary incontinence (UUI) and healthy controls. METHOD:Self-reported function and disability were evaluated using the Late Life Function and Disability Instrument (LLFDI) in 66 women with UUI (mean age 61.9 ± 5.6) and 66 age-matched c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.660597
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:The utility of self-management with people from minority ethnic backgrounds has been questioned, resulting in the development of culturally specific tools. Yet, the use of stroke specific self-management programmes is underexplored in these high risk groups. This article presents the experience of stroke therap...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.904936
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To describe and evaluate the establishment of the first VCT services for the Deaf in Africa. METHOD:Operational research methods were used to document programme establishment. The demographics of deaf VCT clients were compared with hearing clients at the same sites as well as where clients had learned of the s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802133115
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:The 6-Min Walking Test (6MWT) is widely used to measure the performance in various chronic conditions, such as in obese subjects. Reference equations for predicting distance walked during 6MWT specifically in adult obese subjects are not available. The aim of the paper is to establish reference values for 6MWT ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.726313
更新日期:2013-07-01 00:00:00
abstract:BACKGROUND:Non-invasive brain stimulation (NIBS) is promising as an adjuvant to rehabilitation of motor function after stroke. Despite numerous studies and reviews for the upper limb, NIBS targeting the lower limb and gait recovery after stroke is a newly emerging field of research. PURPOSE:To summarize findings from ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2016.1161835
更新日期:2017-04-01 00:00:00
abstract:PURPOSE:To assess functional activities of the upper extremity of young adults with cerebral palsy (CP) and to determine their relations with participant characteristics and participation. METHOD:Assessment of functional activities of the upper extremity was performed on 103 participants (aged 16-20 years) with the Me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701355504
更新日期:2008-01-01 00:00:00
abstract::Purpose: Much of the support required to live in the community post-traumatic brain injury (TBI) is provided by informal carers. Understanding the nature of caregiving work is important to better support informal carers. This study explored the work being performed by informal carers, and factors impacting on their ca...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1508511
更新日期:2020-03-01 00:00:00
abstract:PURPOSE:The presence of an individual with disability in a family affects the whole family. Families of individuals with cerebral palsy (CP) experience increased psychological anxiety and financial problems; specifically, parents tend to feel time pressure and struggle to maintain their social and cultural activities. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1432705
更新日期:2019-06-01 00:00:00
abstract:PURPOSE:To determine whether functional ability at admission and demographics predict discharge placement after inpatient rehabilitation for older adults recovering from stroke. METHOD:In this retrospective study, we examined records of 31,910 adults 65 years of age and older who were admitted for inpatient rehabilita...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.717587
更新日期:2013-06-01 00:00:00
abstract:PURPOSE:To describe the extended Rehabilitation Complexity Scale (RCS-E) and its factor structure, and to determine whether it provides added value over the RCS-version 2 to identify patients with highly complex rehabilitation needs. METHOD:A cohort analysis of prospectively-collected routine clinical data from 331 pa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.615880
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To summarize the potential origins of fatigue poststroke from a neuromuscular perspective, including stroke-induced alterations at the cortical, spinal and muscle levels. METHOD:Perspective based on narrative literature review. RESULTS:Fatigue is a highly prevalent, but poorly understood symptom poststroke. N...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.683233
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:A 4-week Pain Coping Strategies (PCS) programme has been developed for chronic pain patients who may still be undergoing medical interventions but who would benefit from learning pain management skills. The long-term negative behaviours associated with chronic pain may be prevented by introducing pain managemen...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600756117
更新日期:2007-02-15 00:00:00
abstract:PURPOSE:To systematically review research investigating measurement properties of the Personal Care Participation Assessment and Resource Tool (PC-PART), formerly the Handicap Assessment and Resource Tool (HART). DATA SOURCES:Seven databases were searched using (i) HART or PC-PART terms and (ii) known authors. Referen...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.690819
更新日期:2013-02-01 00:00:00
abstract:PURPOSE:To describe cost-effectiveness of the Physical Activity in Rheumatoid Arthritis (PARA) study intervention. METHOD:Costs were collected and estimated retrospectively. Cost-effectiveness was calculated based on the intervention cost per patient with respect to change in health status (EuroQol global visual analo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.3109/09638288.2014.940429
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To investigate; (i) the relationship between the 5STS-test and lower extremity muscle strength and balance, and (ii) the variability of the 5STS-test in multiple sclerosis (MS) patients. METHOD:22 MS patients were divided into two groups (Group A and Group B) who completed one 5STS familiarization test session...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.683479
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disorder affecting the peripheral nerves. The purpose of this study was to describe disability and health status in patients with CIDP in Sweden. METHODS:All 22 adult patients with CIDP at the Karolinska University Hospital, Huddinge were invited to...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802306497
更新日期:2009-01-01 00:00:00
abstract:BACKGROUND:At a political and academic level, South Africa propagates a rights-based approach to disability. The aim of this paper is to explore how disability is conceptualized by persons with disabilities living in a rural area of South Africa. METHODS:In keeping with explorative studies, the study utilized a qualit...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1313909
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:The aim was to compare self-rated health, health-related quality of life (HRQoL), social networks and health care utilisation of those granted disability pension (DP) and those not granted disability pension (nDP). METHOD:Demographic data and medical diagnoses were obtained from the records of the social insur...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500165179
更新日期:2006-01-15 00:00:00
abstract::Purpose: This study aimed to evaluate the implementation of a physical activity counseling program in rehabilitation and to study heterogeneity in received counseling and investigate its association with changes in patients' physical activity outcomes. Methods: This prospective cohort study was conducted in 18 rehabil...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1675188
更新日期:2019-10-17 00:00:00
abstract:PURPOSE:Stressors in acute whiplash associated disorders (WAD), as reported on a daily basis, have hitherto been neglected in research. The primary aim of this study was to describe the most stressful daily situation or event reported by individuals with acute WAD within a month of a whiplash trauma. Another aim was to...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.662571
更新日期:2012-01-01 00:00:00
abstract::Purpose: Patients with Parkinson's and Huntington's Disease (PD and HD) present impairments in cognitively challenging everyday activities. This study contrasts these two basal ganglia disorders on the ability to perform daily life- like tasks and their level of awareness regarding the disease impact on function.Metho...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1783001
更新日期:2020-07-03 00:00:00
abstract::The aim of the study was to investigate the effect of perceptual assessment and treatment provided on a stroke unit by comparison with that provided on health care of the elderly and general medical wards. Stroke patients admitted to hospital were randomly allocated to a stroke unit or conventional wards. Perceptual i...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.3109/09638289709166532
更新日期:1997-06-01 00:00:00
abstract:PURPOSE:To explore how the process of undergoing and recovering from knee replacement surgery alters patients' experiences and use of their support networks. METHODS:Ten patients having knee replacement surgery for osteoarthritis were invited to take part in in-depth interviews prior to surgery and 2-4 weeks, 6 and 12...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1138549
更新日期:2016-12-01 00:00:00
abstract:PURPOSE:Impairment of language ability, aphasia, can cause barriers to communication and hence impact on participation in many life situations. This study aimed to describe and explore how persons with aphasia following stroke experience engaging in everyday occupations. METHOD:Six persons from Southwest Finland who h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.759628
更新日期:2013-10-01 00:00:00
abstract:PURPOSE:To investigate the responsiveness and cross-sectional and longitudinal validity of the Motor Activity Log (MAL) in the subacute phase after stroke. METHOD:Data were collected pre-intervention, post-intervention, and at 3-month follow-up evaluations from 30 patients with stroke participating in a randomized tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903437253
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To investigate the prevalence of health problems among persons with spinal cord injury (SCI) living in the Netherlands, to identify the problems experienced as most important, and to analyse the experienced impact of these most important problems on daily activities and social life. METHOD:Postal survey among ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500164685
更新日期:2005-11-30 00:00:00
abstract:PURPOSE:To study social validity and perceived fairness of a new method for assessing general work ability in a sickness insurance context. Assessments are based on self-reports, combined with examinations by physicians, and, if needed, occupational therapists, physiotherapists and/or psychologists. MATERIALS AND METH...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1401675
更新日期:2019-03-01 00:00:00
abstract:OBJECTIVE:Action Observation Treatment is a novel rehabilitation approach exploiting a neurophysiological mechanism that allows one to recruit the neural structures sub-serving action execution during the mere observation of those same actions. Action Observation Treatment is effective in the rehabilitation of several ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1793009
更新日期:2020-08-17 00:00:00
abstract:OBJECTIVE:To investigate a new style of resistance exercise using elastic bands and explore its therapeutic effect on the lower-extremity function of female patients with osteoarthritis (OA) of the knee. DESIGN:A randomized, controlled clinical trial. SETTING:University-affiliated medical center. PARTICIPANTS:Forty-...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2012.660598
更新日期:2012-01-01 00:00:00