Abstract:
PURPOSE:Little information exists about the long-term outcome of amyoplasia. In this article, a case report of a 93-year old woman is presented including both the development of the physical limitations and coping strategies. METHOD:The medical records, physical examinations and personal interviews during the last 10 years, autobiographical essays and personal photographs were included. RESULTS:Eleven surgical procedures were performed during childhood and ten during adulthood. Ambulation without aids was possible up to the age of 37 years. Thereafter, the muscular force declined gradually, first in the legs and later in the arms. Musculoskeletal pain decreased during ageing. There was an increasing demand to use technical aids. Seniority brought about several diseases, which complicated the quality of life. The woman stayed 32 years of her life in work. CONCLUSIONS:A high age can be achieved with amyoplasia although the disability increases due to a gradual deterioration of muscular force. The personal experiences of the woman suggest that her active and creative attitude towards her disability may have contributed to the quality of her life. This may encourage people with amyoplasia and their care givers. IMPLICATIONS FOR REHABILITATION:• There are no data about ageing and life-long prognosis of amyoplasia. • Severe physical limitations in amyoplasia are compatible with a long and meaningful life. • Muscular force decreases during adult life. Therefore, a potential risk of overtraining should be considered.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Riemer G,Steen Udoi
10.3109/09638288.2012.717577subject
Has Abstractpub_date
2013-06-01 00:00:00pages
950-8issue
11eissn
0963-8288issn
1464-5165journal_volume
35pub_type
杂志文章abstract:PURPOSE:To argue for and propose bipartite concepts of functioning and disability, to tally with the structure of the ICF classification list, concepts of social models and clinical needs. METHOD:The ICF concepts are discussed in relation to the history of ideas regarding disability concepts and the needs for such con...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.978506
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To cross-culturally translate the Multiple Sclerosis Spasticity Scale into Italian and to evaluate its psychometric properties in patients with multiple sclerosis. METHODS:The Italian version of Multiple Sclerosis Spasticity Scale was developed in accordance with international standards and subsequently admini...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1393699
更新日期:2019-02-01 00:00:00
abstract::The subacute phase of low back pain has been termed as the "golden hour" to intervene to prevent work disability. This notion is based on the literature up to 2001 and is limited to back pain. In this narrative review, we examined whether the current literature indicate an optimal time for return to work (RTW) interve...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1503735
更新日期:2020-02-01 00:00:00
abstract:PURPOSE:Hearing impairment may affect the body posture maintenance. The aim of the study was to evaluate the effect of modified Pilates exercise program on the body posture maintenance in hearing impaired people. METHODS:Eighty students (aged 13-24) were enrolled and randomly allocated into two groups: test group (n =...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1370731
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:Prolonged grief, a severe and chronic form of grieving most commonly studied in the context of bereavement, may have relevance to losses associated with chronic illness (e.g. grief related to loss of functioning or loss of a planned future). The purpose of the present study is to examine the unique associations...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1031830
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To find out how much physical activity in the form of walking can be tolerated by adults admitted for inpatient rehabilitation after hip fracture. METHOD:Using a phase I dose-response design, in addition to usual scheduled rehabilitation care participants without cognitive impairment were supervised to walk fo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1107776
更新日期:2016-09-01 00:00:00
abstract:OBJECTIVE:To investigate a new style of resistance exercise using elastic bands and explore its therapeutic effect on the lower-extremity function of female patients with osteoarthritis (OA) of the knee. DESIGN:A randomized, controlled clinical trial. SETTING:University-affiliated medical center. PARTICIPANTS:Forty-...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2012.660598
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To review the literature on cognitive functioning in persons with lower limb amputations. METHOD:A search of the MEDLINE, PsycINFO and Web of Science databases was carried out. RESULTS:Thirty papers were found that met the inclusion criteria. The studies were characterised by heterogeneity of design, methodol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.667190
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To capture patients' relearning processes from regained function to improvements in daily life after grip reconstructive surgery in tetraplegia. SUBJECTS:Eleven people with tetraplegia who underwent grip reconstructive surgery during February 2009 to March 2011. METHODS:Qualitative interviews were conducted 7...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.808276
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:There is much heterogeneity and disconnect in the approaches used by service providers to conduct needs assessments, set goals and evaluate outcomes for clients receiving pediatric rehabilitation services. The purpose of this article is to describe how the International Classification of Functioning, Disability...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802572973
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:A common disorder encountered by healthcare specialists is carpal tunnel syndrome (CTS). CTS is a neuropathy disorder caused by compression on the median nerve. METHOD:Currently, there are several treatment methods for CTS such as: (1) non-steroidal anti-inflammatory drugs (NSAIDs); (2) injection of medication...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/0963828021000007978
更新日期:2003-02-04 00:00:00
abstract:PURPOSE:The objective of this study was to generate expert consensus on best evaluative practices for community-based rehabilitation (CBR). This consensus includes key features of the evaluation process and methods, and discussion of whether a shared framework should be used to report findings and, if so, which framewo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1044030
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To describe the extended Rehabilitation Complexity Scale (RCS-E) and its factor structure, and to determine whether it provides added value over the RCS-version 2 to identify patients with highly complex rehabilitation needs. METHOD:A cohort analysis of prospectively-collected routine clinical data from 331 pa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.615880
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:This study systematically review and meta-analyse the effectiveness of inspiratory muscle training (IMT) to reduce postoperative pulmonary complications (PPC) and length of hospital stay (LOS), both in the preoperative and/or postoperative periods of cardiac, pulmonary, and abdominal surgical patients. Sensitiv...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.1080/09638288.2016.1277396
更新日期:2018-04-01 00:00:00
abstract:OBJECTIVE:The National Service Framework (NSF) for Long-Term Neurological Conditions (LTNC) highlights the need for vocational rehabilitation (VR) services in quality requirement 6. As a part of a review of this requirement, an extensive literature review was undertaken to identify, review and report on all relevant re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.669019
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To investigate the responsiveness and cross-sectional and longitudinal validity of the Motor Activity Log (MAL) in the subacute phase after stroke. METHOD:Data were collected pre-intervention, post-intervention, and at 3-month follow-up evaluations from 30 patients with stroke participating in a randomized tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903437253
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To summarize the potential origins of fatigue poststroke from a neuromuscular perspective, including stroke-induced alterations at the cortical, spinal and muscle levels. METHOD:Perspective based on narrative literature review. RESULTS:Fatigue is a highly prevalent, but poorly understood symptom poststroke. N...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.683233
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:This article examines the distinctive opportunities and challenges involved in treating sub-acute low back pain (LBP). Several risk factors have been identified. Thus, a multi-disciplinary design and a comprehensive bio-psycho-social approach seem to be the best modality of intervention to improve outcome. MET...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003797349
更新日期:2010-01-01 00:00:00
abstract::Purpose: People with multiple sclerosis (MS) rank walking among the most challenging aspects of their condition. A greater understanding of people's perspectives concerning their walking may help to prioritize walking outcomes and strategies for optimizing walking. The purpose was to explore perceptions of walking in ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1496154
更新日期:2020-01-01 00:00:00
abstract:UNLABELLED:Abstract Purpose: Group singing could be a promising component of neurorehabilitative care. This article aims to conceptualize how group singing may enable people with Parkinson's disease (PD) to synchronize their movement patterns to musical rhythm and enhance quality of life. METHOD:Spanning the medical a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.793749
更新日期:2014-01-01 00:00:00
abstract::Purpose: The aim was to explore personal experiences of pain in people with motor neuron disease.Materials and methods: Sixteen participants were individually interviewed on one occasion concerning their experiences of presentation, consequences, and management of pain. Qualitative content analysis with researcher tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1555615
更新日期:2020-07-01 00:00:00
abstract:PURPOSE:Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition characterized by a number of symptoms which typically worsen following minimal exertion. Various strategies to manage the limited energy levels have been proposed. Of these, pacing has been consistently rated as one of the m...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2011.635746
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:The aim is to examine two aspects of outcome after traumatic brain injury (TBI). Functional outcome was assessed by the Glasgow Outcome Scale - Extended (GOSE) and by clinician ratings, while health-related quality of life (HRQoL) was assessed by the Quality of Life after Brain Injury (QOLIBRI). METHOD:The GOS...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.574776
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:The objective of this study was to examine disablement as experienced by young adult African American men and women with permanent mobility impairment. METHOD:This study included a sample of 5 male and 5 female participants ranging in age from 22 to 39. An exploratory descriptive design and qualitative methods...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.798362
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:This study was designed to explore the cultural meaning and dimensions of quality of life from the perspective of Brazilian burn patients. METHOD:A qualitative research approach was used. Nineteen burn patients and their close relatives participated in this ethnographic study. Data were collected by means of d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802306257
更新日期:2009-01-01 00:00:00
abstract::Aim: Few studies have addressed impact of participation in exercise programs on caregivers or family members of individuals with disabilities.Purpose: To evaluate the impact of interaction rich wellness program on family members or caregivers of participants.Methods: Nine family members or caregivers were selected for...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1522549
更新日期:2020-05-01 00:00:00
abstract:PURPOSE:While most studies of Duchenne muscular dystrophy (DMD) have focused on physical impairment, there is a need to explore how impairment impacts real-life experiences in order to provide intervention strategies focused on participation. Objectives were: (1) to investigate the domains of participation in a sample ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.883444
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:The aim of this study is twofold: (1) to explore health service providers' perceptions regarding fibromyalgia patients in Spain and (2) to analyze possible consequences of these perceptions in terms of how health service providers construct the disease and treat their patients. DESIGN:Qualitative study. SUBJE...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1306759
更新日期:2018-07-01 00:00:00
abstract::Purpose: This study aims to explore the physical, psychological and social wellbeing of veterans who have experienced limb-loss and to ascertain the factors that contribute to the ability of veterans to maintain their independence at various stages in their lives.Methods: Sixty two life-story interviews were conducted...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1734875
更新日期:2020-03-03 00:00:00
abstract:PURPOSE:To evaluate the physical strain of comfortable walking in children with mild cerebral palsy (CP) in comparison to typically developing (TD) children. Physical strain was defined as the oxygen uptake during walking (VO(2walk)) expressed as a percentage of their maximal aerobic capacity (VO(2peak)). METHOD:Eight...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.531374
更新日期:2011-01-01 00:00:00