Abstract：
OBJECTIVE:The objective of this study was to investigate factors related to family functioning and adaptation in caregivers of individuals with Rett syndrome (RS). METHODS:A cross-sectional quantitative survey explored the relationships between demographics, parental self-efficacy, coping methods, family functioning and adaptation. A forward-backward, step-wise model selection procedure was used to evaluate variables associated with both family functioning and adaptation. Analyses also explored family functioning as a mediator of the relationship between other variables and adaptation. RESULTS:Bivariate analyses (N=400) revealed that greater parental self-efficacy, a greater proportion of problem-focused coping, and a lesser proportion of emotion-focused coping were associated with more effective family functioning. In addition, these key variables were significantly associated with greater adaptation, as was family functioning, while controlling for confounders. Finally, regression analyses suggest family functioning as a mediator of the relationships between three variables (parental self-efficacy, problem-focused coping, and emotion-focused coping) with adaptation. CONCLUSION:This study demonstrates the potentially predictive roles of expectations and coping methods and the mediator role of family functioning in adaptation among caregivers of individuals with RS, a chronic developmental disorder. PRACTICE IMPLICATIONS:A potential target for intervention is strengthening of caregiver competence in the parenting role to enhance caregiver adaptation.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Lamb AE,Biesecker BB,Umstead KL,Muratori M,Biesecker LG,Erby LHdoi
10.1016/j.pec.2016.06.018subject
Has Abstractpub_date
2016-11-01 00:00:00pages
1873-1879issue
11eissn
0738-3991issn
1873-5134pii
S0738-3991(16)30283-Xjournal_volume
99pub_type
杂志文章abstract：OBJECTIVE:To analyze large-scale data obtained from telephone cancer consultations and clarify sex differences in the information sought by callers to guide future cancer survivor support. METHODS:We qualitatively analyzed 10,534 cases of telephone consultations with cancer patients. The relationships between callers'...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.05.012
更新日期：2020-05-16 00:00:00
abstract：OBJECTIVE:(1) To investigate the impact of education on patients' knowledge; (2) to determine if educational interventions are related to health behavior change in cardiac patients; and (3) to describe the nature of educational interventions. METHODS:A literature search of several electronic databases was conducted fo...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2014.01.012
更新日期：2014-05-01 00:00:00
abstract：:Using ethnoscience methods, interviews with 50 South Asian women living in Western Canada were conducted and analyzed to explore explanations and images of breast cancer. Embedded in the women's stories of breast cancer were distinctive, often vivid and fear-provoking images of abnormal growth. Explanations about the ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(98)00118-9
更新日期：1999-07-01 00:00:00
abstract：OBJECTIVE:To profile and compare the content and presentation of written communications related to informed decision-making about mammography. METHODS:Materials from 16 screening programs organized at the national or regional level were analyzed according to five major information domains suggested by the internationa...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2005.09.012
更新日期：2006-10-01 00:00:00
abstract：:There are several instruments to assess how patients evaluate their medical treatment choice. These are used to evaluate decision aids. Our objective is to investigate which psychological factors play a role when patients evaluate their medical treatment choices. A pool of 36 items was constructed, covering concepts s...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.07.010
更新日期：2005-06-01 00:00:00
abstract：OBJECTIVE:To assess patients' preferences and trade-offs for mode of delivery in case of breech presentation at term. METHODS:Eighty women (40 with a foetus in breech presentation and 40 with a foetus in cephalic presentation) with a gestational age from 36 weeks onwards were offered scenarios of vaginal and caesarean...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.04.008
更新日期：2008-08-01 00:00:00
abstract：OBJECTIVE:First-degree relatives (FDRs) of people diagnosed with colorectal cancer (CRC) have a two- to threefold increased risk of developing the same disease. Tailored print interventions based on behavior change theories have demonstrated considerable promise in facilitating health-promoting behaviors. This study co...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2008.01.013
更新日期：2008-05-01 00:00:00
abstract：OBJECTIVE:The objectives of this study were to identify nutrition communication styles of Dutch GPs, their strategies regarding nutrition communication and nutrition information seeking behaviours. Another aim is to provide a hypothetical model for nutrition communication style, including psycho-social and socio-demogr...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2005.09.001
更新日期：2006-10-01 00:00:00
abstract：:Self-instruction is one means of providing patient education, allowing the health professional to teach a larger number of persons than with one-to-one or group instruction and at a lower cost. The purpose of this study was to examine the effects of self-instruction on learning, satisfaction with the teaching approach...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/0738-3991(86)90003-0
更新日期：1986-09-01 00:00:00
abstract：OBJECTIVE:This study attempts to identify a structure among patient-related factors that could predict treatment adherence in statin patients, especially with regards to the necessity-concern framework. METHODS:414 Swedish patients using statins completed a questionnaire about their health, treatment, locus of control...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.11.001
更新日期：2013-04-01 00:00:00
abstract：OBJECTIVE:The research findings reported here describe the importance and various functions of physician listening according to patients. METHODS:Fifty-eight patients of the McGill University Health Centre were interviewed using a qualitative, interpretive design approach. RESULTS:Patients explained why listening was...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2011.01.028
更新日期：2011-12-01 00:00:00
abstract：OBJECTIVE:To explore patient observations of teamwork-related behaviors such as inter-team communication through a newly designed survey. METHODS:In this cross-sectional study, 101 patients (N=86) and caregivers (N=15) recruited from the emergency department (ED) of an urban, academic medical center (>85,000 visits/ye...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.06.002
更新日期：2014-09-01 00:00:00
abstract：OBJECTIVE:The aim of this study is to examine the extent to which functional, interactive and critical health literacy are associated with patients' perceived control over care and frequency of GP visits. METHODS:Data from the Dutch 'National Panel of People with Chronic Illness or Disability' was used (N=2508). Healt...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.04.006
更新日期：2015-08-01 00:00:00
abstract：:Previous studies reported inconsistent relationship between the preference for information and that for decisional autonomy in medical encounters. We hypothesized that the relationship may be dependent on people's attribution beliefs on health. To test the hypothesis, demographically representative sample of Japanese ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2003.09.010
更新日期：2004-11-01 00:00:00
abstract：:Between 1987 and 1989, 177 cancer patients who were to receive intensive chemotherapy with curative intention, participated in a comprehensive care project with the aim of improving their total situation, and that of their relatives (n = 120). A number of steps were taken to improve, among other things, the informatio...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章
doi：10.1016/0738-3991(94)00655-6
更新日期：1995-05-01 00:00:00
abstract：OBJECTIVE:Lower health literacy is associated with poorer health outcomes. Few interventions poised to mitigate the impact of health literacy in hypertensive patients have been published. We tested if a multi-level quality improvement intervention could differentially improve Systolic Blood Pressure (SBP) more so in pa...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.10.015
更新日期：2017-03-01 00:00:00
abstract：OBJECTIVE:To examine when and why women disbelieve tailored information about their risk of developing breast cancer. METHODS:690 women participated in an online program to learn about medications that can reduce the risk of breast cancer. The program presented tailored information about each woman's personal breast c...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.03.016
更新日期：2013-08-01 00:00:00
abstract：:The effect of message source on message recall and perceived credibility was examined in a randomized study comparing two different computer-tailored bulletins promoting fruit and vegetable consumption among rural African American church members. An expert oriented (EXP) bulletin was compared with a spiritual and past...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/s0738-3991(98)00132-3
更新日期：1999-02-01 00:00:00
abstract：OBJECTIVE:To conduct a scoping literature review to understand the conceptualization and nature of the research on patient-provider language concordance (LC) in health care. METHODS:We searched PubMed, EMBASE, CINAHL, PsycINFO, and Scopus to identify peer-reviewed articles between January 1961 and August 2018. We extr...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2020.05.025
更新日期：2020-10-01 00:00:00
abstract：OBJECTIVE:To validate the Norwegian version of MAPPIN'SDM observer scales with regard to reliability, accuracy and the extent to which the scales include the essentials of the shared decision-making concept. METHODS:Three MAPPIN'SDM scales, focusing on the skills of doctor, patient and dyad, were applied to audiovisua...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.10.023
更新日期：2017-03-01 00:00:00
abstract：OBJECTIVE:To examine knowledge displays (KDs), a practice by which Therapeutic Community (TC) professionals exhibit previous knowledge about their clients' circumstances and experiences. METHODS:Conversation analysis is used to examine 12 staff-led meetings recorded in Italy (8 in a drug addiction TC; 4 in a mental he...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.10.006
更新日期：2016-06-01 00:00:00
abstract：OBJECTIVE:Determine treatment adherence in patients with multiple chronic conditions (MCC). METHODS:A random patient sample ≥ 15 years, discharged from hospital with ≥1 chronic conditions (CC) was interviewed after 6-12 months. Analysis included variables in 5 dimensions (WHO): socio-demographics, disease, treatment, ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.12.012
更新日期：2010-11-01 00:00:00
abstract：OBJECTIVE:to evaluate the impact of a communication skills course for nurses on how to handle difficult communication situations in their daily work. METHODS:a 7-h course was developed using a construct of "Awareness, Feelings, Listen, Solve" (AFLS). A pedagogy of experiential, learner-centered learning was adopted. T...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2010.02.013
更新日期：2011-01-01 00:00:00
abstract：:The purpose of this study was to evaluate the effectiveness of a diabetes specialty centre in assisting clients with noninsulin-dependent diabetes mellitus to improve their metabolic control and quality of life. A single-subject repeated measures design was used where data was collected on entry to the program, immedi...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(94)00677-e
更新日期：1995-02-01 00:00:00
abstract：OBJECTIVE:This study examines (a) providers' and interpreters' perception of their competition in controlling the content and process of provider-patient interactions, and (b) the challenges to providers' and interpreters' collaboration in bilingual health care. METHODS:I recruited 26 professional medical interpreters...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.02.017
更新日期：2010-02-01 00:00:00
abstract：OBJECTIVE:The aim of this study was to offer a comparative analysis of informal interpreters during medical consultations with both good and poor mutual understanding between general practitioners (GPs) and patients. METHODS:Sixteen video-registered medical interviews of Turkish immigrant patients were analysed. Stret...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.10.005
更新日期：2010-11-01 00:00:00
abstract：:Developments in predictive testing for inherited cancers have focused attention on the accurate and sensitive communication of risk information. Although sharing risk information is often equated with genetic testing, it is important to acknowledge that the need for risk information related to familial cancer is also ...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/s0738-3991(97)00047-5
更新日期：1998-01-01 00:00:00
abstract：OBJECTIVES:Translate, adapt and validate the Patient-Practitioner Orientation Scale (PPOS) for use in Brazil. METHODS:The PPOS was translated to Portuguese using a modified Delphi technique. The final version was applied to 360 participants. Reliability (test-retest and internal consistency) and construct validity (ex...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.11.014
更新日期：2013-04-01 00:00:00
abstract：OBJECTIVE:Pilot-testing of the adapted Study on Lifestyle intervention and Impaired glucose tolerance Maastricht (SLIM) and to determine its feasibility and likelihood of achieving desired impact. METHODS:Pilot intervention study (a 10-month combined lifestyle intervention) using a one group pre-test post-test design ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.05.024
更新日期：2014-10-01 00:00:00
abstract：OBJECTIVE:Children living with parental cancer are vulnerable to distress and developmental disruption. This review aims to identify current interventions to support cancer patients' children and summarise how effective these are based on children's reports. METHODS:Between 25 May 2015 and 6 August 2018, a broad searc...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.05.001
更新日期：2019-10-01 00:00:00
