Quality-of-life perception by Parkinson's disease patients and caregivers.

Abstract:

BACKGROUND:The quality-of-life (QoL) perception by Parkinson's disease (PD) patients and their caregivers (CG) has not been studied in depth. OBJECTIVE:To examine patient/proxy agreements on the PD QoL Questionnaire (PDQ-39), the Scale of Quality of Life of Care-Givers (SQLC) and the Multidimensional Caregiver Strain Index (MCSI). METHODS:Patients with PD and their CG completed the above-mentioned questionnaires about themselves and each other. The intraclass correlations between their scores (paired t test) were compared. RESULTS:Twelve patient-CG pairs were studied. Agreements for QoL items were strong and comparable for the total scores of the PDQ-39, SQLC and MCSI questionnaires (75.4% ± 14%; 78.1% ± 14.1% and 78.2% ± 14.3%, respectively). Agreements ranged from moderate to strong (0.57-0.88, P≤.05) for the patients' physical condition (PDQ-39 items 3, 5, 6, 8, 12-15, 23, 24, 35), mental concentration (item 31) and depression (item 17). Disagreements were apparent in 20%-25% of the pairs and were particularly significant for PDQ-39 items #33 and #25 (embarrassment of patients in public and distressing dreams or hallucinations), in which the CG gave higher scores than the patients. CONCLUSIONS:Agreements between patients with PD and CG were generally good for most, but not all, of the PDQ-39, SQLC and MCSI domains.

journal_name

Acta Neurol Scand

authors

Balash Y,Korczyn AD,Knaani J,Migirov AA,Gurevich T

doi

10.1111/ane.12726

subject

Has Abstract

pub_date

2017-08-01 00:00:00

pages

151-154

issue

2

eissn

0001-6314

issn

1600-0404

journal_volume

136

pub_type

杂志文章
  • Cognitive deterioration in adult epilepsy: clinical characteristics of "Accelerated Cognitive Ageing".

    abstract:OBJECTIVES:"Epileptic dementia" is reported in adults with childhood-onset refractory epilepsy. Cognitive deterioration can also occur in a "second-hit model". MATERIALS AND METHODS:We studied the clinical and neuropsychological characteristics of patients with cognitive deterioration (≥1 SD discrepancy between curren...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.12700

    authors: Breuer LEM,Grevers E,Boon P,Bernas A,Bergmans JWM,Besseling RMH,Klooster DCW,de Louw A,Mestrom RMC,Vonck K,Zinger S,Aldenkamp AP

    更新日期:2017-07-01 00:00:00

  • Febrile seizures in patients with complex partial seizures.

    abstract::Febrile seizures occurred in 14 of 155 (9%) out-patients with complex partial seizures. Twelve patients had prolonged or recurrent febrile seizures, convulsive status epilepticus or a transient postictal neurological deficit. Febrile seizures were associated with perinatal abnormalities, an earlier onset of epilepsy a...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1985.tb01550.x

    authors: Schmidt D,Tsai JJ,Janz D

    更新日期:1985-07-01 00:00:00

  • Accumulation of mercury in brainstem nuclei of mice after retrograde axonal transport.

    abstract::Adult mice were injected intramuscularly in the region of the vibrissae muscles on the left side of the nose with a small volume of mercuric chloride dissolved in distilled water. The animals were killed after 1-6 weeks and fixed by whole-body perfusion. Frozen sections were taken from different levels of the brain st...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1990.tb01612.x

    authors: Arvidson B

    更新日期:1990-10-01 00:00:00

  • A follow-up study of neuropsychological function in asymptomatic HIV-infected patients.

    abstract::A group of asymptomatic HIV-infected patients (CDC II and III) was followed-up over a two year period with semi-annual neuropsychological testing. Of the total sample of 36 subjects, all were retested at test two (T2), 19 at test three (T3) and 13 at test four (T4). A subgroup of subjects was further tested on a simpl...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1993.tb04082.x

    authors: Karlsen NR,Reinvang I,Frøland SS

    更新日期:1993-02-01 00:00:00

  • European neuroborreliosis: quality of life 30 months after treatment.

    abstract:OBJECTIVES:The prognosis after Lyme neuroborreliosis (LNB) is debated. The aim of this study was to assess health-related Quality of Life (QoL) and neurological symptoms 30 months after treatment in European patients with LNB. MATERIALS AND METHODS:In a prospective case-control designed study, we investigated 50 well-...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2010.01482.x

    authors: Eikeland R,Mygland A,Herlofson K,Ljøstad U

    更新日期:2011-11-01 00:00:00

  • Biochemical evidence for osteomalacia with carbamazepine therapy.

    abstract::Many anticonvulsants are known to cause osteomalacia, however, carbamazepine has not previously been studied in this regard. We studied 31 patients on carbamazepine (mean dose 758 mg +/- s.d. 468 mg per day), as a single drug for epilepsy for a duration of 20.5 +/- 10 months. Three patients (10%) had hypocalcaemia, an...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1980.tb03037.x

    authors: O'Hare JA,Duggan B,O'Driscoll D,Callaghan N

    更新日期:1980-11-01 00:00:00

  • Urinary excretion of taurine in epilepsy.

    abstract::The level of urinary taurine and 17-hydroxycorticosteroids were estimated in 19 cases of epilepsy. These levels were then compared with those of normal healthy subjects. The urinary taurine levels were significantly higher in epilepsy and have diagnostic as well as prognostic significance. ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1983.tb04853.x

    authors: Rao A,Baliga L,Raja A,Rao SN

    更新日期:1983-12-01 00:00:00

  • Altered vasopressin response to metoclopramide in multiple system atrophy: evidence of a cholinergic defect in the hypothalamus.

    abstract::Multiple system atrophy (MSA) is a heterogeneous group of central neurological degenerations often associated with diffuse deterioration of the hypothalamic cholinergic neurons. In the hypothesis of an altered cholinergic regulation of vasopressin release, we evaluated vasopressin response to metoclopramide (20 mg i.v...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1992.tb04047.x

    authors: Norbiato G,Bevilacqua M,Righini V,Chebat E,Vago T,Bertora P,Castelli L,Mangoni A

    更新日期:1992-04-01 00:00:00

  • Efficacy of a soft hand brace and a wrist splint for carpal tunnel syndrome: a randomized controlled study.

    abstract:OBJECTIVE:To examine, in a randomized, controlled, single blinded trial, the efficacy of a soft hand brace and a wrist splint for carpal tunnel syndrome (CTS). METHODS:We randomized 120 patients with CTS into a group wearing the soft hand brace MANU and into another group wearing the wrist splint CAMP TIELLE at night ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/j.1600-0404.2008.01072.x

    authors: De Angelis MV,Pierfelice F,Di Giovanni P,Staniscia T,Uncini A

    更新日期:2009-01-01 00:00:00

  • Steroid treatment for relapses in multiple sclerosis - the evidence urges shared decision-making.

    abstract:OBJECTIVES:Therapy of acute relapses in multiple sclerosis with corticosteroids (CC) remains uncertain with respect to route, dosage and effectiveness. This makes the treatment of relapses a clinical field where 'shared decision-making (SDM)' could be of advantage for the patients. A prerequisite for SDM is the provisi...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,评审

    doi:10.1111/j.1600-0404.2004.00284.x

    authors: Köpke S,Heesen C,Kasper J,Mühlhauser I

    更新日期:2004-07-01 00:00:00

  • Cerebrospinal fluid markers in MS patients and their healthy siblings.

    abstract::In a previous study we found that nine of 47 siblings to multiple sclerosis (MS) patients with a normal neurological examination carry an intrathecal oligoclonal immunopathy with limited specificity, a condition we termed MS immunopathic trait. The purpose of this study is to further characterize the MS immunopathic t...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1034/j.1600-0404.2003.00197.x

    authors: Haghighi S,Andersen O,Odén A,Rosengren L

    更新日期:2004-02-01 00:00:00

  • Paraneoplastic neurological syndrome due to burned-out testicular tumor showing hot cross-bun sign.

    abstract:BACKGROUND:Paraneoplastic neurological syndromes (PNS) are rare remote effect of cancer. The antibodies and tumors associated with PNS have been well described, but there are still many clinically suspected cases in which no tumor or antibody can be identified. This is the first report of PNS showing hot cross-bun sign...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.12469

    authors: Ishikawa H,Kawada N,Taniguchi A,Odachi K,Mizutani A,Asahi M,Tomimoto H

    更新日期:2016-05-01 00:00:00

  • Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time.

    abstract:OBJECTIVES:The well-being and physical function among patients with ALS and their next of kin was studied over time. MATERIALS AND METHODS:Thirty-five patients with ALS and their next of kin were studied with respect to physical, general and psychological well-being by the visual analogue scale (VAS) every 4-6 months....

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2009.01191.x

    authors: Olsson AG,Markhede I,Strang S,Persson LI

    更新日期:2010-04-01 00:00:00

  • Burden and cost of neurological diseases: a European North-South comparison.

    abstract:OBJECTIVES:To address the relationship between years lived with a disability (YLDs), prevalence and cost of neurological diseases, and to test whether there is a European North-South gradient for national health expenditure, disability, costs and prevalence of neurological diseases. MATERIALS AND METHODS:Information o...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.12339

    authors: Raggi A,Leonardi M

    更新日期:2015-07-01 00:00:00

  • Mood and neural correlates of excessive daytime sleepiness in Parkinson's disease.

    abstract::For patients with Parkinson's disease (PD), excessive daytime sleepiness (PD-EDS) is a debilitating non-motor symptom and may be affected by mood symptoms, especially depression and anxiety. Few neuroimaging works have attempted to identify the neural features of PD-EDS, but various findings were reported. The purpose...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,评审

    doi:10.1111/ane.12704

    authors: Wen MC,Chan LL,Tan LCS,Tan EK

    更新日期:2017-08-01 00:00:00

  • Effects of high-dose methylprednisolone on Na(+)-K+ ATPase and lipid peroxidation after experimental subarachnoid hemorrhage.

    abstract::The production of oxygen-free radicals and their subsequent peroxidative action on membrane unsaturated fatty acids could be enhanced after subarachnoid hemorrhage. High-dose methylprednisolone (30 mg/Kg i.v.) treatment can antagonize acute SAH-induced brain hypoperfusion and protect the ultrastructural integrity of e...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1990.tb01617.x

    authors: Marzatico F,Gaetani P,Buratti E,Messina AL,Ferlenga P,Rodriguez y Baena R

    更新日期:1990-10-01 00:00:00

  • Dystrophin or a "related protein" in Duchenne muscular dystrophy?

    abstract::Previously we have shown low levels of dystrophin immunoreactivity in muscle from patients with DMD. According to the "frame-shift hypothesis" DMD muscle should not synthesize any dystrophin through to the C-terminus and it has been suggested that the protein detected is not dystrophin, but a related autosomal homolog...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1992.tb08046.x

    authors: Nicholson LV,Johnson MA,Davison K,O'Donnell E,Falkous G,Barron M,Harris JB

    更新日期:1992-07-01 00:00:00

  • HTLV-1-associated myelopathy: first case reported in Taiwan.

    abstract::Taiwan is geographically, culturally, and socially close to southern Japan, which is an endemic area of human T-lymphotropic virus type 1-associated myelopathy (HAM). Taiwan, however, is not an endemic area of HAM. We report the first case of HAM in a native Taiwanese, a 61-year-old woman, without known HTLV-1 risk fa...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1991.tb04947.x

    authors: Wang SJ,Liu HC,Chi CW,Liu TY,Chen PM

    更新日期:1991-09-01 00:00:00

  • The frequency of alcohol consumption is associated with the stroke mortality.

    abstract:OBJECTIVES:The purpose of this study was to examine the association between the frequency of alcohol consumption and stroke mortality among eastern Finnish men. MATERIAL AND METHODS:This study is a population-based sample of men with an average follow-up of 20.2 years. A total of 2609 men with no history of stroke at ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.12243

    authors: Rantakömi SH,Kurl S,Sivenius J,Kauhanen J,Laukkanen JA

    更新日期:2014-08-01 00:00:00

  • Cerebral blood flow, cerebrovascular resistance and cerebral metabolic rate of oxygen in severe arterial hypoxia in dogs.

    abstract::Cerebral blood flow and cerebral oxygen uptake were studied during severe arterial hypoxia in anesthetized dogs. It was shown that the hypoxic vasodilatation in the brain reaches a limit at an arterial oxygen saturation at about 25% and that this vasodilatation is less than that which may be induced by hypercapnia. A ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1979.tb02948.x

    authors: Ekström-Jodal B,Elfverson J,von Essen C

    更新日期:1979-07-01 00:00:00

  • Neuropsychological assessment in MS: clinical, neurophysiological and neuroradiological relationships.

    abstract::We assessed cognitive performance and its relationship with clinical and anatomic disease severity in MS with mild to moderate handicap; 34 definite MS and 18 healthy subjects matched for age and education were submitted to a neuropsychological test battery. Both groups were examined for anxiety. MS patients underwent...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1992.tb05052.x

    authors: Maurelli M,Marchioni E,Cerretano R,Bosone D,Bergamaschi R,Citterio A,Martelli A,Sibilla L,Savoldi F

    更新日期:1992-08-01 00:00:00

  • Long-term neuropsychological effects and MRI findings in patients with CS2 poisoning.

    abstract:OBJECTIVES:To evaluate the long-term neuropsychological effects and magnetic resonance imaging (MRI) findings among retired patients with a history of exposure to carbon disulfide (CS2). MATERIAL AND METHODS:Seventy-four patients with a history of exposure to CS2 were divided into two equal groups according to their l...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1034/j.1600-0404.2002.01245.x

    authors: Cho SK,Kim RH,Yim SH,Tak SW,Lee YK,Son MA

    更新日期:2002-11-01 00:00:00

  • The associations between fatigue, apathy, and depression in Parkinson's disease.

    abstract:OBJECTIVES:Fatigue and apathy are two of the most common and most disabling non-motor symptoms of Parkinson's disease (PD). They have a high coincidence and can often be confused; moreover, their relationship is not fully understood. The aim of our study was to describe the coincidence of apathy with different fatigue ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.12282

    authors: Skorvanek M,Gdovinova Z,Rosenberger J,Saeedian RG,Nagyova I,Groothoff JW,van Dijk JP

    更新日期:2015-02-01 00:00:00

  • Oligoclonal immunoglobulin G in cerebrospinal fluid of myasthenia gravis patients.

    abstract::Immunoglobulin G (IgG) band patterns were investigated in cerebrospinal fluid (CSF) from 19 patients with myasthenia gravis (MG) in a search for abnormalities indicating central nervous system (CNS) involvement in this disorder. Using the isoelectric focusing (IEF) technique and antiserum immunoblotting against IgG, w...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1990.tb00977.x

    authors: Mavra M,Apostolski S,Nikolic J,Thompson EJ

    更新日期:1990-03-01 00:00:00

  • Is the modulatory effect of pregnancy in multiple sclerosis associated with changes in blood apoptotic molecules?

    abstract:OBJECTIVE:We examined whether the modulatory effect of pregnancy on multiple sclerosis (MS) is associated with changes in the apoptotic molecules in sera. SUBJECTS AND METHODS:The serum levels of tumor necrosis factor-related apoptosis-inducing ligand (sTRAIL), sFas, Fas ligand (sFasL) and macrophage migration inhibit...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2009.01301.x

    authors: Rinta S,Airas L,Elovaara I

    更新日期:2010-09-01 00:00:00

  • Alteration of amino acids in cerebrospinal fluid from patients with Parkinson's disease and spinocerebellar degeneration.

    abstract::The alteration of amino acids in cerebrospinal fluids (CSF) from 14 cases of Parkinson's disease, five cases of cerebellar degeneration and five cases of headache (control) was studied using high performance liquid chromatography. In patients with Parkinson's disease, it was found that the CSF level of GABA showed a s...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1986.tb03249.x

    authors: Araki K,Takino T,Ida S,Kuriyama K

    更新日期:1986-02-01 00:00:00

  • Occipital intracerebral hemorrhage-clinical characteristics, outcome, and post-ICH epilepsy.

    abstract:OBJECTIVES:Posterior location affects the clinical presentation and outcome of ischemic stroke, but little is known about occipital intracerebral hemorrhage (ICH). We studied non-traumatic occipital ICH phenotype, outcome, and post-ICH epilepsy. MATERIALS AND METHODS:Occipital ICH patients were retrospectively identif...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.13303

    authors: Räty S,Sallinen H,Virtanen P,Haapaniemi E,Wu TY,Putaala J,Meretoja A,Tatlisumak T,Strbian D

    更新日期:2020-06-30 00:00:00

  • The epidemiology of post-stroke epilepsy according to stroke subtypes.

    abstract:OBJECTIVES:Strokes represent the most common etiology of epilepsy in patients over the age of 60 years, with an incidence of 2-4% occurring in different studies. MATERIALS AND METHODS:In this observational study, 1,428 patients were included who had stroke and were admitted to our Stroke Unit between the years 1996 an...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2006.00642.x

    authors: Benbir G,Ince B,Bozluolcay M

    更新日期:2006-07-01 00:00:00

  • Increased leukocyte adhesiveness/aggregation in patients with recurrent TIA.

    abstract:OBJECTIVE:White blood cells might have a pathogenetic role in ischemic vascular conditions. Several studies have suggested that increased adhesiveness of these cells could contribute to such a damage. The present study was undertaken in order to examine the adhesive properties of leukocytes in the peripheral blood of p...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:

    authors: Meiner Z,Arber N,Liberman E,Leibovitz E,Seltzer D,Berliner S

    更新日期:1997-08-01 00:00:00

  • FPL 57787 and migraine prophylaxis. A double-blind cross-over study.

    abstract::In a double-blind cross-over trial with placebo, FPL 57787, a chromone derivate, was tested on 15 patients as a prophylactic against migraine. There was found to be no effect. ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 临床试验,杂志文章

    doi:10.1111/j.1600-0404.1979.tb02923.x

    authors: Koch-Henriksen N,Sehested P

    更新日期:1979-03-01 00:00:00