Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time.

Abstract:

OBJECTIVES:The well-being and physical function among patients with ALS and their next of kin was studied over time. MATERIALS AND METHODS:Thirty-five patients with ALS and their next of kin were studied with respect to physical, general and psychological well-being by the visual analogue scale (VAS) every 4-6 months. Physical function in patients was rated by the ALSFRS-R and the Norris scale. Patients and next of kin rated the well-being of themselves and their counterpart. RESULTS:The well-being was stable and there was a relation between the well-being of patients and next of kin throughout the time studied. Next of kin rated the well-being of the patients worse than patients rated themselves, while patients rated the well-being of their next of kin at the same level as their counterpart. CONCLUSIONS:The basic state of well-being as well as the interaction between patient and next of kin seem to be factors that influence the well-being of both patients and their next of kin.

journal_name

Acta Neurol Scand

authors

Olsson AG,Markhede I,Strang S,Persson LI

doi

10.1111/j.1600-0404.2009.01191.x

subject

Has Abstract

pub_date

2010-04-01 00:00:00

pages

244-50

issue

4

eissn

0001-6314

issn

1600-0404

pii

ANE1191

journal_volume

121

pub_type

杂志文章
  • Public stroke awareness and intent to call 112 in Sweden.

    abstract:BACKGROUND AND AIMS:Recognition of stroke symptoms and activation of emergency services are essential in minimizing delay for acute stroke treatments. In this study, we assessed public stroke awareness in Sweden. METHODS:One thousand and five hundred residents aged 18-79 years participated in a telephone survey. Open-...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.12293

    authors: Nordanstig A,Jood K,Rosengren L

    更新日期:2014-12-01 00:00:00

  • Voxel-based morphometry study on monozygotic twins discordant for Alzheimer's disease.

    abstract:OBJECTIVES:We set to investigate the possible role of genes and environment in developing Alzheimer's disease (AD) in monozygotic twin pairs discordant for AD. METHODS:Three pairs of twins discordant for AD, who were enrolled in the Finnish Twin Cohort, were used in the study and compared with 13 controls. Gray matter...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.12480

    authors: Rossi R,Pievani M,Järvenpää T,Testa C,Koskenvuo M,Räihä I,Kaprio J,Frisoni GB,Rinne JO,Laakso MP

    更新日期:2016-06-01 00:00:00

  • Efficacy and safety of rituximab in autoimmune encephalitis: A meta-analysis.

    abstract:BACKGROUND:Autoimmune encephalitis (AE) is a rare but debilitating neurological disease where the body develops antibodies against neuronal cell surface/synaptic proteins. Rituximab is an anti-CD20 chimeric monoclonal antibody which shows promise in AE treatment observational studies. To our knowledge, there has been n...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,meta分析,评审

    doi:10.1111/ane.13291

    authors: Nepal G,Shing YK,Yadav JK,Rehrig JH,Ojha R,Huang DY,Gajurel BP

    更新日期:2020-11-01 00:00:00

  • Capsular infarcts: location, size and etiology of pure motor hemiparesis, sensorimotor stroke and ataxic hemiparesis.

    abstract::We investigated the types of syndrome, location, size and presumed causes of 72 patients with acute capsular lacunar infarction. Clinical syndromes were classified into pure motor hemiparesis (PM), sensorimotor stroke (SM) and ataxic hemiparesis (AH). Lesion sizes of AH were significantly smaller than those of PM (p <...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1993.tb04233.x

    authors: Tei H,Uchiyama S,Maruyama S

    更新日期:1993-10-01 00:00:00

  • Outcome of resective surgery for intractable partial epilepsy guided by subdural electrode arrays.

    abstract::The aim of this paper was to evaluate the outcome and the factors predictive for a good prognosis of resective surgery for intractable partial epilepsy guided by subdural electrode arrays (SEA's) and operative electrocorticography. Sixty-four patients, aged 8-52 years, were evaluated with chronic SEAs in order to reco...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1993.tb04131.x

    authors: Jennum P,Dhuna A,Davies K,Fiol M,Maxwell R

    更新日期:1993-06-01 00:00:00

  • HTLV-1-associated myelopathy: first case reported in Taiwan.

    abstract::Taiwan is geographically, culturally, and socially close to southern Japan, which is an endemic area of human T-lymphotropic virus type 1-associated myelopathy (HAM). Taiwan, however, is not an endemic area of HAM. We report the first case of HAM in a native Taiwanese, a 61-year-old woman, without known HTLV-1 risk fa...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1991.tb04947.x

    authors: Wang SJ,Liu HC,Chi CW,Liu TY,Chen PM

    更新日期:1991-09-01 00:00:00

  • Decompressive craniectomy: technical note.

    abstract::Decompressive craniectomy is a neurosurgical technique in which a portion of the skull is removed to reduce intracranial pressure. The rationale for this procedure is based on the Monro-Kellie Doctrine; expanding the physical space confining edematous brain tissue after traumatic brain injury will reduce intracranial ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,评审

    doi:10.1111/j.1600-0404.2010.01397.x

    authors: Quinn TM,Taylor JJ,Magarik JA,Vought E,Kindy MS,Ellegala DB

    更新日期:2011-04-01 00:00:00

  • Epilepsia partialis continua of childhood involving bilateral brain hemispheres.

    abstract:OBJECTIVES:Epilepsia partialis continua (Kojewnikow's syndrome) can be classified into 2 groups. The 1st group had stable neurological deficit, and the 2nd group had slowly progressive neurological deficit. The latter usually manifests not tetraplegia, but hemiplegia. We describe 3 patients with epilepsia partialis con...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1997.tb00296.x

    authors: Takahashi Y,Kubota H,Fujiwara T,Yagi K,Seino M

    更新日期:1997-12-01 00:00:00

  • Risk factor burden predicts long-term mortality in young patients with arterial cerebral infarction.

    abstract:OBJECTIVE:The aim was to investigate risk factors separately and in sum in relation to long-term mortality after arterial cerebral infarction in young adults. MATERIALS AND METHODS:Mortality in relation to the number of risk factors (smoking, hypertension, hypercholesterolemia, diabetes mellitus, myocardial infarction...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2012.01681.x

    authors: Naess H,Waje-Andreassen U,Nyland H

    更新日期:2013-02-01 00:00:00

  • ECG changes in epilepsy patients.

    abstract:OBJECTIVES:To investigate the frequency of ECG abnormalities suggestive of myocardial ischaemia in patients with severe drug resistant epilepsy and without any indication of previous cardiac disease, assuming that these changes may be of significance for the group of epileptic patients with sudden unexpected death. MA...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1997.tb00242.x

    authors: Tigaran S,Rasmussen V,Dam M,Pedersen S,Høgenhaven H,Friberg B

    更新日期:1997-08-01 00:00:00

  • Accuracy of self-assessment of the minimal record of disability in patients with multiple sclerosis.

    abstract::We tested the validity of a self-administered version of the minimal record of disability (MRD) for multiple sclerosis (MS) by measuring the agreement level between patients' self-assessment and neurologists' independent ratings. 96 MS patients and 4 neurologists took part in the experiment; the agreement level was me...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1993.tb04073.x

    authors: Solari A,Amato MP,Bergamaschi R,Logroscino G,Citterio A,Bochicchio D,Filippini G

    更新日期:1993-01-01 00:00:00

  • Urinary noradrenaline and serotonin metabolites in drug-free Parkinson patients and the effect of L-dopa treatment.

    abstract::3-methoxy-4-hydroxyphenylglycol (MHPG) and 5-hydroxyindoleacetic acid (5-HIAA) as well as homovanillic acid (HVA) and cyclic AMP were estimated in the morning urine of 41 drug-free parkinsonian patients and 25 hospitalized controls. In 29 patients, the estimations were repeated after 2 weeks treatment with L-dopa plus...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1982.tb04524.x

    authors: Markianos M,Hadjikonstantinou M,Bistolaki E

    更新日期:1982-08-01 00:00:00

  • Analysis of F response in upper motoneurone lesions.

    abstract::The F response can provide a measure of motoneurone excitability (MNE) and so it may be used to investigate upper motoneurone disorders. This report studies the F-wave configuration in patients with stroke to evaluate the changes of the central excitability of the motoneurones at different times after an acute cerebra...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1990.tb03311.x

    authors: Fierro B,Raimondo D,Modica A

    更新日期:1990-11-01 00:00:00

  • Clinical characteristics of GAD 65-associated autoimmune encephalitis.

    abstract:OBJECTIVES:To examine the clinical characteristics of autoimmune encephalitis associated with the glutamate decarboxylase 65 (GAD 65) antibody. MATERIALS AND METHODS:Medical records of all patients that diagnosed with GAD 65 antibody-associated encephalitis were retrospectively analyzed. Data regarding demographics an...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.13281

    authors: Zhu F,Shan W,Lv R,Li Z,Wang Q

    更新日期:2020-09-01 00:00:00

  • Sarcoplasmic body myopathy--a rare hereditary myopathy with characteristic inclusions.

    abstract:OBJECTIVES:To characterise a Swedish family with a rare hereditary myopathy with unique sarcoplasmic inclusion bodies in the muscle biopsy. MATERIALS AND METHODS:Part of the pedigree was described in 1980. Nine new members of the included and the phenotype further characterised through clinical, neurophysiological and...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2005.00475.x

    authors: Engvall M,Ahlberg G,Hedberg B,Edström L,Ansved T

    更新日期:2005-10-01 00:00:00

  • Oligoclonal immunoglobulin G in cerebrospinal fluid of myasthenia gravis patients.

    abstract::Immunoglobulin G (IgG) band patterns were investigated in cerebrospinal fluid (CSF) from 19 patients with myasthenia gravis (MG) in a search for abnormalities indicating central nervous system (CNS) involvement in this disorder. Using the isoelectric focusing (IEF) technique and antiserum immunoblotting against IgG, w...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1990.tb00977.x

    authors: Mavra M,Apostolski S,Nikolic J,Thompson EJ

    更新日期:1990-03-01 00:00:00

  • A non-syndromic hearing loss caused by very low levels of the mtDNA A3243G mutation.

    abstract::We described a patient with progressive non-syndromic hearing loss (NSHL) harboring the A3243G mutation in the mitochondrial DNA (mtDNA). Muscle biopsy showed scattered ragged-red, cytochrome c oxidase negative fibers, whereas the biochemical analysis of the mitochondrial respiratory chain complexes was normal. Restri...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2004.00254.x

    authors: Mancuso M,Filosto M,Forli F,Rocchi A,Berrettini S,Siciliano G,Murri L

    更新日期:2004-07-01 00:00:00

  • Localized outbreak of enteroviral meningitis in adults.

    abstract::During a thorough surveillance of viral infections of the central nervous system an outbreak of aseptic meningitis was discovered in the western part of Finland in late 1985. The 21 diseased young adults were carefully studied by different virological methods. A presumed viral etiology, in all cases of enteroviral ori...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1987.tb05457.x

    authors: Kinnunen E,Hovi T,Stenvik M,Hellström O,Porras J,Kleemola M,Kantanen ML

    更新日期:1987-05-01 00:00:00

  • Gender differences in disability and health-related quality of life in patients with Parkinson's disease treated with stereotactic surgery.

    abstract:OBJECTIVES:To investigate eventual differences between women and men with Parkinson's disease (PD) before and after surgery, with respect to clinical status, disability and health-related quality of life (HRQoL). MATERIAL AND METHODS:Twenty-four men and 14 women with PD received a total of 46 surgical procedures (pall...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1034/j.1600-0404.2003.00092.x

    authors: Hariz GM,Lindberg M,Hariz MI,Bergenheim AT

    更新日期:2003-07-01 00:00:00

  • Neuronal antinuclear antibody (anti-Hu) in paraneoplastic encephalomyelitis simulating acute polyneuritis.

    abstract::A patient with paraneoplastic encephalomyelitis (PEM) and small cell lung cancer had a clinical presentation of acute polyneuritis. The patient had an antibody (anti-Hu) restricted to nuclei of neurons identical to that reported in patients with subacute sensory neuronopathy and lung cancer. This finding further suppo...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1987.tb07928.x

    authors: Graus F,Elkon KB,Lloberes P,Ribalta T,Torres A,Ussetti P,Valls J,Obach J,Agusti-Vidal A

    更新日期:1987-04-01 00:00:00

  • Neuropsychological deficits in asymptomatic carotid artery stenosis.

    abstract::A total of 20 subjects with asymptomatic carotid artery stenosis (ACAS) and a group of healthy controls were compared as to their cognitive performance. Subjects with ACAS showed substantial deficits on tasks of mental speed, learning, visuospatial abilities, verbal processing and deductive reasoning. The cognitive pr...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1991.tb03967.x

    authors: Benke T,Neussl D,Aichner F

    更新日期:1991-06-01 00:00:00

  • Patients with homocystinuria: high metal concentrations in hair, blood and urine.

    abstract::Patients with homocystinuria excrete a large amount of metal in their urine. Homocysteine similar to penicillamine, administration to methylmercury treated rats resulted in a large amount of urinary methylmercury excretion. These results suggested that the total metal amounts in the whole body of patients with homocys...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1992.tb05130.x

    authors: Yoshida Y,Nakano A,Hamada R,Kamitsuchibashi H,Yamamoto K,Akagi H,Kitazono M,Osame M

    更新日期:1992-11-01 00:00:00

  • In vivo microstructural white matter changes in early spinocerebellar ataxia 2.

    abstract:OBJECTIVE:White matter (WM) integrity of Spinocerebellar ataxia 2 (SCA2) is poorly understood, more so in the early stages of SCA2. In this study, we evaluated the microstructural integrity of the WM tracts with an emphasis on the nature of in vivo pathological involvement in early SCA2. MATERIALS AND METHODS:We evalu...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.13359

    authors: Stezin A,Bhardwaj S,Khokhar S,Hegde S,Jain S,Bharath RD,Saini J,Pal PK

    更新日期:2020-10-08 00:00:00

  • Anxiety in multiple sclerosis is related to depressive symptoms and cognitive complaints.

    abstract:OBJECTIVES:Multiple sclerosis (MS) patients suffer from high levels of anxiety. However, it is unclear which factors are related to anxiety, since study results are inconsistent, and the associated factors have not been examined comprehensively. In this study, we investigated the demographic, disease-related and psycho...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.13191

    authors: Wallis O,Bol Y,Köhler S,van Heugten C

    更新日期:2020-03-01 00:00:00

  • Prevalence and risk of thyroid diseases in myasthenia gravis.

    abstract:OBJECTIVES:To estimate the prevalence of thyroid diseases and the cumulative risk of thyroid diseases during a follow-up period after myasthenia gravis (MG) diagnosis compared with non-MG controls. MATERIALS AND METHODS:We used the Taiwan National Health Insurance Database linked to Registry of Catastrophic Illness da...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/ane.13254

    authors: Chou CC,Huang MH,Lan WC,Kong SS,Kuo CF,Chou IJ

    更新日期:2020-09-01 00:00:00

  • Six-month prospective study of quality of life in Guillain-Barre syndrome.

    abstract:OBJECTIVE:Guillain-Barre syndrome (GBS) is an acute disease of the peripheral nerves and their roots. Quality of life (QoL) in the first year after acute episode of GBS is still underresearched area. The aim of our study was to investigate QoL in GBS patients during a 6-month follow-up period. METHODS:Multicentric, pr...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,多中心研究

    doi:10.1111/ane.13195

    authors: Djordjevic G,Stojanov A,Bozovic I,Berisavac I,Arsenijevic M,Lukic Rajic S,Dominovic Kovacevic A,Jovanovic D,Basta I,Peric S

    更新日期:2020-03-01 00:00:00

  • Diagnosis of multiple sclerosis: comparison of the Poser criteria and the new McDonald criteria.

    abstract:OBJECTIVES:A confident and accurate diagnosis of multiple sclerosis (MS) is important, but a specific diagnostic test for the disease does not exist. The traditional diagnostic criteria of Poser et al. were published in 1983, and recently, McDonald et al. recommended new criteria for the diagnosis of MS. PATIENTS AND ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.2004.00246.x

    authors: Fangerau T,Schimrigk S,Haupts M,Kaeder M,Ahle G,Brune N,Klinkenberg K,Kotterba S,Möhring M,Sindern E,Multiple Sclerosis Study Group.

    更新日期:2004-06-01 00:00:00

  • Vitamin D and multiple sclerosis—from epidemiology to prevention.

    abstract::In the present review, we discuss observational and experimental data suggesting a protective effect from sun exposure and/or vitamin D in multiple sclerosis (MS). These data include geographic variations in MS occurrence, temporal trends, genetics, biobank, and questionnaire data. We look more closely at the differen...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,评审

    doi:10.1111/ane.12432

    authors: Sundström P,Salzer J

    更新日期:2015-01-01 00:00:00

  • Epidemiological characteristics of motor neuron disease in Chinese patients.

    abstract:BACKGROUND:The epidemiology, diagnosis, and treatment of motor neuron disease (MND) in Chinese patients are ill known. METHODS:A registered study of 461 MND patients was conducted across 10 facilities in 7 Chinese cities from February 2009 to March 2010. RESULTS:Patients were classified as amyotrophic lateral scleros...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章,多中心研究

    doi:10.1111/ane.12240

    authors: Cui F,Liu M,Chen Y,Huang X,Cui L,Fan D,Pu C,Lu J,Zhou D,Zhang C,Yan C,Li C,Ding X,Liu Y,Li X,Jiang Y,Zhang J,Shang H,Yao X,Ding Y,Niu Q,Wang L

    更新日期:2014-08-01 00:00:00

  • Type I familial amyloid polyneuropathy in a Chinese family.

    abstract::A Chinese family with at least 3 members having the typical clinical picture of type I familial amyloid polyneuropathy is presented. The pathological features, including the immunohistochemical typing of the amyloid deposits, are described and the literature is briefly reviewed. ...

    journal_title:Acta neurologica Scandinavica

    pub_type: 杂志文章

    doi:10.1111/j.1600-0404.1989.tb03806.x

    authors: Chang CM,Yu YL,Wong M,Ng TH,Woo E,Huang CY

    更新日期:1989-05-01 00:00:00