Abstract：
BACKGROUND:While pain is reportedly more prevalent in more functionally impaired children with cerebral palsy, information is scant in those with poor communication skills. METHODS:Young people (4-27 years) with severe forms of cerebral palsy were recruited from a population-based register. The Child Health Questionnaire (CHQ) provided information on general health and bodily pain; the Paediatric Pain Profile (PPP) was used for participants with limited communication; and the Spinal Alignment and Range of Motion Measure (SAROMM) described musculoskeletal impairment. RESULTS:123 young people (GMFCS IV=55 and V=68) and their families/carers participated. Fourteen percent of CHQ responses (n=123) reported severe/very severe pain in recent weeks, whilst 7% reported pain every/almost every day. CHQ pain report was significantly higher for young people in GMFCS level V and correlated significantly with both global health and musculoskeletal impairment. High levels of pain were recorded on the PPP for non-communicating children but only a weak correlation between PPP and CHQ scores was detected. CONCLUSION:Managing pain in young people with severe musculoskeletal and cognitive impairment presents a huge challenge to carers and professionals. The PPP may represent a useful adjunct in those young people with severe communication difficulties.
journal_name
Res Dev Disabiljournal_title
Research in developmental disabilitiesauthors
McDowell BC,Duffy C,Lundy Cdoi
10.1016/j.ridd.2016.10.006subject
Has Abstractpub_date
2017-01-01 00:00:00pages
277-284eissn
0891-4222issn
1873-3379pii
S0891-4222(16)30226-8journal_volume
60pub_type
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
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