Abstract：
:Raising a child with Down syndrome (DS) has been found to be associated with lowered health related quality of life (HRQoL) in the domains cognitive functioning, social functioning, daily activities and vitality. We aimed to explore which socio-demographics, child functioning and psychosocial variables were related to these HRQoL domains in parents of children with DS. Parents of 98 children with DS completed the TNO-AZL adult quality of life questionnaire (TAAQOL) and a questionnaire assessing socio-demographic, child functioning and psychosocial predictors. Using multiple linear regression analyses for each category of predictors, we selected relevant predictors for the final models. The final multiple linear regression models revealed that cognitive functioning was best predicted by the sleep of the child (β=.29, p<.01) and by the parent having given up a hobby (β=-.29, p<.01), social functioning by the quality of the partner relation (β=.34, p<.001), daily activities by the parent having to care for an ill friend or family member (β=-.31, p<.01), and vitality by the parent having enough personal time (β=.32, p<.01). Overall, psychosocial variables rather than socio-demographics or child functioning showed most consistent and powerful relations to the HRQoL domains of cognitive functioning, social functioning, daily activities and vitality. These psychosocial variables mainly related to social support and time pressure. Systematic screening of parents to detect problems timely, and interventions targeting the supportive network and the demands in time are recommended.
journal_name
Res Dev Disabiljournal_title
Research in developmental disabilitiesauthors
Marchal JP,Maurice-Stam H,Hatzmann J,van Trotsenburg AS,Grootenhuis MAdoi
10.1016/j.ridd.2013.09.011subject
Has Abstractpub_date
2013-11-01 00:00:00pages
4239-47issue
11eissn
0891-4222issn
1873-3379pii
S0891-4222(13)00405-8journal_volume
34pub_type
杂志文章abstract：:For individuals with visual impairments, auditory spatial localization is one of the most important features to navigate in the environment. Many works suggest that blind adults show similar or even enhanced performance for localization of auditory cues compared to sighted adults (Collignon, Voss, Lassonde, & Lepore, ...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2016.02.019
更新日期：2016-06-01 00:00:00
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journal_title：Research in developmental disabilities
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doi：10.1016/j.ridd.2015.07.011
更新日期：2015-10-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章,随机对照试验
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更新日期：2013-11-01 00:00:00
abstract：:The current study focuses on the characteristics of older people with intellectual disabilities with the lowest frailty levels. Frailty is an increased risk of adverse health outcomes and dependency. Older adults with intellectual disabilities (ID) show more signs of early frailty than the general population. Knowledg...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2013.10.016
更新日期：2014-01-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2013.06.018
更新日期：2013-10-01 00:00:00
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journal_title：Research in developmental disabilities
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2015.09.025
更新日期：2015-12-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2013.11.012
更新日期：2014-02-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2021.103861
更新日期：2021-01-19 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.11.014
更新日期：2015-03-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2018.05.002
更新日期：2018-07-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2016.08.018
更新日期：2016-12-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(88)90048-0
更新日期：1988-01-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.10.027
更新日期：2015-01-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2020.103735
更新日期：2020-10-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2015.07.021
更新日期：2015-10-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2012.08.011
更新日期：2013-01-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2019.103495
更新日期：2019-11-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2003.06.004
更新日期：2004-05-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.08.017
更新日期：2011-11-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(96)00015-7
更新日期：1996-07-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.05.026
更新日期：2014-10-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2020.103718
更新日期：2020-09-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.10.049
更新日期：2015-01-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 临床试验,杂志文章
doi：10.1016/j.ridd.2012.10.007
更新日期：2013-02-01 00:00:00
abstract：:Evidence on the association between somatic chronic diseases in ID-adolescents and the full range of pervasive developmental disorder behavior (PDD behavior) is scarce. The aim of the present study is to assess the association between somatic chronic diseases in ID-adolescents and mild PDD behavior. We obtained data o...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2009.10.018
更新日期：2010-03-01 00:00:00
abstract：:Single Case Experimental Design is a discipline grounded in applied behavior analysis where the needs of individual clients and the application of scientific inquiry are fundamental tenets. These two principles remain tantamount in the conduct of research using this methodology and the expansion of the method into evi...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,评审
doi：10.1016/j.ridd.2018.04.029
更新日期：2018-08-01 00:00:00
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journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2017.12.014
更新日期：2018-02-01 00:00:00
abstract：:There is an abundance of research investigating Autism Spectrum Disorders (ASD) in children; however, little emphasis has been placed on ASD in adults, especially in regards to comorbid psychopathology. Although scales are available that measure comorbidity in adults with ID, what is needed are scales that measure com...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2009.05.004
更新日期：2009-11-01 00:00:00
abstract：:Individuals with the neurodevelopmental disorder Williams syndrome (WS) often report difficulty processing and acting in depth, such as crossing roads or reaching for objects; however little research attention has been directed at understanding depth perception and action in depth in WS and whether deficits in depth p...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.04.013
更新日期：2014-08-01 00:00:00
