Acceptability of Family-Centered Advanced Care Planning for Adolescents With HIV.

Abstract:

BACKGROUND AND OBJECTIVE:Small pilot studies support the appropriateness of engaging adolescents with chronic or life-limiting illnesses in pediatric advance care planning (pACP). We do not yet know if pACP is acceptable, feasible, and worthwhile, even if emotionally intense, in a fully powered randomized controlled trial. METHODS:We conducted a prospective 2-arm randomized controlled trial at 6 US urban hospitals. Adolescent/family member dyads were randomized to receive the 1-session-a-week 3-session FAmily-CEntered Advance Care Planning (FACE) pACP intervention (1, ACP Survey; 2, Goals of Care Conversation/Treatment Preferences; 3, Completion of Advance Directive) or active comparator (1, Developmental History; 2, Safety Tips; 3, Nutrition/Exercise). The Satisfaction Questionnaire was administered to participants independently after each session by a blinded research assistant. RESULTS:We enrolled 53% of eligible participants and intervened with 97 adolescent/family dyads. Adolescents ranged in age from 14 to 21 years; 54% were male individuals; 93% African American; and 73% perinatally infected. Attendance was 99% for all 3 sessions in each arm. At session 3, FACE adolescents and family dyad members, respectively, found the session useful (98%, 98%) and helpful (98%, 100%), despite feelings of sadness (25%, 17%). FACE adolescents' improvement in the total subscale A score (useful, helpful, like a load off my mind, satisfied, something I needed to do, courageous, worthwhile) was better than control adolescents at session 3 (β = 1.16, P = .02). There were no adverse events. CONCLUSIONS:FACE enabled worthwhile conversations, while simultaneously eliciting intense emotions. No participants withdrew, 99% of those enrolled completed each session, and there were no adverse events, evidence of pACP's feasibility, acceptability, and safety.

journal_name

Pediatrics

journal_title

Pediatrics

authors

Dallas RH,Kimmel A,Wilkins ML,Rana S,Garcia A,Cheng YI,Wang J,Lyon ME,Adolescent Palliative Care Consortium.

doi

10.1542/peds.2016-1854

subject

Has Abstract

pub_date

2016-12-01 00:00:00

issue

6

eissn

0031-4005

issn

1098-4275

pii

peds.2016-1854

journal_volume

138

pub_type

杂志文章,多中心研究,随机对照试验
  • Respiratory syncytial virus immune globulin treatment of RSV lower respiratory tract infection in previously healthy children.

    abstract:OBJECTIVE:To evaluate the efficacy of high titer respiratory syncytial virus (RSV) immune globulin (RSVIG) in the treatment of previously healthy children hospitalized with proven RSV lower tract infection (LRI). METHOD:Infants and young children

    journal_title:Pediatrics

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1542/peds.100.6.937

    authors: Rodriguez WJ,Gruber WC,Groothuis JR,Simoes EA,Rosas AJ,Lepow M,Kramer A,Hemming V

    更新日期:1997-12-01 00:00:00

  • Psychosocial functioning of children with cystic fibrosis.

    abstract::The adjustment of children with cystic fibrosis as rated by parents and teachers was compared to that of physically healthy siblings, normal children, and other chronically ill children. The findings indicated that children with cystic fibrosis achieved an age-adequate level of adjustment at home and school. Adjustmen...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Drotar D,Doershuk CF,Stern RC,Boat TF,Boyer W,Matthews L

    更新日期:1981-03-01 00:00:00

  • National trends in the management of cardiovascular disease risk factors in children: second NHLBI survey of primary care physicians.

    abstract:BACKGROUND:The evidence that atherosclerosis begins during adolescence has led to the belief that primary prevention of cardiovascular disease (CHD) should commence in childhood. Although several national guidelines have been issued for the detection and treatment of CHD risk factors in children, concerns continue to b...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.102.5.e50

    authors: Kimm SY,Payne GH,Stylianou MP,Waclawiw MA,Lichtenstein C

    更新日期:1998-11-01 00:00:00

  • Legal, ethical, and financial dilemmas in electronic health record adoption and use.

    abstract::Electronic health records (EHRs) facilitate several innovations capable of reforming health care. Despite their promise, many currently unanswered legal, ethical, and financial questions threaten the widespread adoption and use of EHRs. Key legal dilemmas that must be addressed in the near-term pertain to the extent o...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2010-2184

    authors: Sittig DF,Singh H

    更新日期:2011-04-01 00:00:00

  • Pediatric clinical faculty structure and teaching hospital function.

    abstract::An organization of clinical faculty has been formed at Rainbow Babies and Childrens Hospital, Cleveland, Ohio, to help coordinate the mutual goals but sometimes conflicting needs of practicing pediatricians and a teaching hospital. The organization has been active in developing and conducting educational experiences f...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Leslie HJ Jr,Reeb KG,Rome LP,Strassman SS

    更新日期:1975-08-01 00:00:00

  • A proactive, data-based determination of the standard of medical care in pediatrics.

    abstract::A 3-week-old infant awoke with a fever. He was taken to the doctor who noted that the child was irritable. The doctor took him to the hospital where a resident performed a spinal tap, started an intravenous (IV) line, and ordered antibiotics. The entire drama, from entering the doctor's office to infusion of ampicilli...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.101.4.e6

    authors: Meadow W,Lantos J

    更新日期:1998-04-01 00:00:00

  • High-density lipoprotein-cholesterol subfractions in adolescent twins.

    abstract::Data on the levels of high-density lipoprotein-cholesterol (HDL-C) and subfractions in 102 adolescent twin pairs and their parents are presented. Children with a family history of premature cardiovascular death had lower levels of HDL2-C than did those without such a history. White girls reporting a high level of phys...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Bodurtha JN,Schieken R,Segrest J,Nance WE

    更新日期:1987-02-01 00:00:00

  • Congenital heart surgery outcomes in Down syndrome: analysis of a national clinical database.

    abstract:OBJECTIVE:We describe patient characteristics and postoperative morbidity and mortality rates for patients with Down syndrome undergoing congenital heart disease surgery. METHODS:This retrospective cohort study used the Society of Thoracic Surgeons Congenital Heart Surgery Database to compare patient characteristics a...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2009-3245

    authors: Fudge JC Jr,Li S,Jaggers J,O'Brien SM,Peterson ED,Jacobs JP,Welke KF,Jacobs ML,Li JS,Pasquali SK

    更新日期:2010-08-01 00:00:00

  • Use of CT for Head Trauma: 2007-2015.

    abstract:BACKGROUND AND OBJECTIVES:International efforts have been focused on identifying children at low risk of clinically important traumatic brain injury in whom computed tomography (CT) neuroimaging can be avoided. We sought to determine if CT use for pediatric head trauma has decreased among US emergency departments (EDs)...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2018-0814

    authors: Burstein B,Upton JEM,Terra HF,Neuman MI

    更新日期:2018-10-01 00:00:00

  • Safety of vaccines used for routine immunization of U.S. children: a systematic review.

    abstract:BACKGROUND:Concerns about vaccine safety have led some parents to decline recommended vaccination of their children, leading to the resurgence of diseases. Reassurance of vaccine safety remains critical for population health. This study systematically reviewed the literature on the safety of routine vaccines recommende...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:10.1542/peds.2014-1079

    authors: Maglione MA,Das L,Raaen L,Smith A,Chari R,Newberry S,Shanman R,Perry T,Goetz MB,Gidengil C

    更新日期:2014-08-01 00:00:00

  • Thyroid-Stimulating Hormone Reference Ranges for Preterm Infants.

    abstract:BACKGROUND AND OBJECTIVES:Many newborn screening (NBS) programs now perform repeat or serial NBS to detect congenital hypothyroidism. There is wide variation in thyroid-stimulating hormone (TSH) cutoffs used by NBS programs. Data on TSH reference ranges in preterm infants at increasing postnatal age are limited. Our st...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2019-0290

    authors: Kaluarachchi DC,Allen DB,Eickhoff JC,Dawe SJ,Baker MW

    更新日期:2019-08-01 00:00:00

  • Tobacco counseling at well-child and tobacco-influenced illness visits: opportunities for improvement.

    abstract:OBJECTIVE:To assess the frequency of clinician-reported delivery of counseling for avoidance of child environmental tobacco smoke (ETS) exposure and tobacco use at periodic well-child visits and at illness visits for asthma and otitis media (OM). METHODS:Combined data from the National Ambulatory Medical Care Survey a...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.111.2.e162

    authors: Tanski SE,Klein JD,Winickoff JP,Auinger P,Weitzman M

    更新日期:2003-02-01 00:00:00

  • Wernicke Encephalopathy in Adolescents After Bariatric Surgery: Case Report and Review.

    abstract::Roughly 1% of all weight loss surgery is performed in adolescents. There is strong evidence demonstrating significant postsurgical weight loss, improvement in quality of life, and reduction in comorbidities such as hypertension and diabetes. Reports of postoperative complications in adolescents are few because of the ...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:10.1542/peds.2016-1039

    authors: Armstrong-Javors A,Pratt J,Kharasch S

    更新日期:2016-12-01 00:00:00

  • Early administration of intratracheal surfactant (calfactant) after hydrocarbon aspiration.

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    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2010-3229

    authors: Mastropietro CW,Valentine K

    更新日期:2011-06-01 00:00:00

  • Longstanding obliterative panarteritis in Kawasaki disease: lack of cyclosporin A effect.

    abstract::Kawasaki disease is a childhood vasculitis of medium-sized vessels, affecting the coronary arteries in particular. We have treated a therapy-resistant child who met all diagnostic criteria for Kawasaki disease. After the boy was given intravenous immunoglobulins and salicylates, as well as several courses of pulsed me...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:10.1542/peds.112.4.986

    authors: Kuijpers TW,Biezeveld M,Achterhuis A,Kuipers I,Lam J,Hack CE,Becker AE,van der Wal AC

    更新日期:2003-10-01 00:00:00

  • Symptomatic congenital cytomegalovirus infection in infants born to mothers with preexisting immunity to cytomegalovirus.

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    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.104.1.55

    authors: Boppana SB,Fowler KB,Britt WJ,Stagno S,Pass RF

    更新日期:1999-07-01 00:00:00

  • Idiopathic disseminated bacillus Calmette-Guérin infection: a French national retrospective study.

    abstract:OBJECTIVE:Disseminated bacillus Calmette-Guérin (BCG) infection after inoculation of live vaccine is considered to result from impaired immunity of the child. However, in half of the cases, regarded as idiopathic, no well-defined immunodeficiency condition can account for the infection. The objective of the present stu...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Casanova JL,Blanche S,Emile JF,Jouanguy E,Lamhamedi S,Altare F,Stéphan JL,Bernaudin F,Bordigoni P,Turck D,Lachaux A,Albertini M,Bourrillon A,Dommergues JP,Pocidalo MA,Le Deist F,Gaillard JL,Griscelli C,Fischer A

    更新日期:1996-10-01 00:00:00

  • Detection of Kingella kingae osteoarticular infections in children by oropharyngeal swab PCR.

    abstract:OBJECTIVE:The purpose of this study was to investigate if oropharyngeal swab polymerase chain reaction (PCR) could predict osteoarticular infection (OAI) due to Kingella kingae in young children. METHODS:One hundred twenty-three consecutive children aged 6 to 48 months presenting with atraumatic osteoarticular complai...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2012-0810

    authors: Ceroni D,Dubois-Ferriere V,Cherkaoui A,Gesuele R,Combescure C,Lamah L,Manzano S,Hibbs J,Schrenzel J

    更新日期:2013-01-01 00:00:00

  • Preschool child care participation and obesity at the start of kindergarten.

    abstract:OBJECTIVE:We examined the association between type of child care, participation in different types of child care in the year before kindergarten and the likelihood of obesity at the start of kindergarten. METHODS:Using a nationally representative sample of 15 691 first-time kindergartners from the Early Childhood Long...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2007-2233

    authors: Maher EJ,Li G,Carter L,Johnson DB

    更新日期:2008-08-01 00:00:00

  • Neurodevelopment: The Impact of Nutrition and Inflammation During Adolescence in Low-Resource Settings.

    abstract::Approximately 1 out of 5 children worldwide suffers from childhood malnutrition or stunting and associated health conditions, including an increased susceptibility to infections and inflammation. Due to improved early interventions, most children even in low-resource settings now survive early childhood malnutrition, ...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:10.1542/peds.2016-2828I

    authors: Galler JR,Koethe JR,Yolken RH

    更新日期:2017-04-01 00:00:00

  • The associations of suicide attempts in adolescents.

    abstract:OBJECTIVE:Suicide completion has increased in the United States among 15- to 24-year-olds from 4.5 per 100 000 (1950) to 13.2 per 100 000 (1990). Suicide attempts have been found to be associated with depression, substance use, overall number of life stressors, gender, and impulsive behaviors. We hypothesized that suic...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.99.6.791

    authors: Woods ER,Lin YG,Middleman A,Beckford P,Chase L,DuRant RH

    更新日期:1997-06-01 00:00:00

  • Gabapentin successfully manages chronic unexplained irritability in children with severe neurologic impairment.

    abstract::Neurologically impaired children have an increased frequency of recurrent pain and irritability that persist in some despite comprehensive evaluation and management of possible pain sources. We hypothesized that visceral hyperalgesia was a source of chronic unexplained irritability and report the outcome of gabapentin...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2006-1609

    authors: Hauer JM,Wical BS,Charnas L

    更新日期:2007-02-01 00:00:00

  • Patterns of work and retirement among pediatricians aged >or=50 years.

    abstract:OBJECTIVE:This study examined patterns of work and retirement among older pediatricians, including the determinants of part-time work and retirement, as well as extended participation in the pediatrician workforce. METHODS:A mail survey regarding recent and expected workforce participation was distributed to American ...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2008-3090

    authors: Merline AC,Cull WL,Mulvey HJ,Katcher AL

    更新日期:2010-01-01 00:00:00

  • Improvement of short- and long-term outcomes for very low birth weight infants: Edmonton NIDCAP trial.

    abstract:OBJECTIVE:Our objective was to determine the impact of Newborn Individualized Developmental Care and Assessment Program (NIDCAP)-based care on length of stay of very low birth weight (VLBW) infants. Secondary outcome measures were days of ventilation, incidence of chronic lung disease, and 18-month neurodevelopmental o...

    journal_title:Pediatrics

    pub_type: 杂志文章,随机对照试验

    doi:10.1542/peds.2008-3808

    authors: Peters KL,Rosychuk RJ,Hendson L,Coté JJ,McPherson C,Tyebkhan JM

    更新日期:2009-10-01 00:00:00

  • The effectiveness of baby books for providing pediatric anticipatory guidance to new mothers.

    abstract:OBJECTIVE:To assess whether embedding pediatric anticipatory guidance into books read to infants is an effective way to educate low-income, first-time mothers about injury-prevention and health-promotion practices. PATIENTS AND METHODS:Primiparous women (N = 168) were randomly assigned to 1 of 3 groups: an educational...

    journal_title:Pediatrics

    pub_type: 杂志文章,随机对照试验

    doi:10.1542/peds.2009-2728

    authors: Reich SM,Bickman L,Saville BR,Alvarez J

    更新日期:2010-05-01 00:00:00

  • Interpreters: telephonic, in-person interpretation and bilingual providers.

    abstract:CONTEXT:Language barriers affect health care interactions. Large, randomized studies of the relative efficacy of interpreter modalities have not been conducted. OBJECTIVE:To compare the efficacy of telephonic and in-person medical interpretation to visits with verified bilingual physicians. METHODS:This was a prospec...

    journal_title:Pediatrics

    pub_type: 杂志文章,随机对照试验

    doi:10.1542/peds.2009-0769

    authors: Crossman KL,Wiener E,Roosevelt G,Bajaj L,Hampers LC

    更新日期:2010-03-01 00:00:00

  • Pharmacokinetic comparison of intravenous and oral chloramphenicol in patients with Haemophilus influenzae meningitis.

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    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Yogev R,Kolling WM,Williams T

    更新日期:1981-05-01 00:00:00

  • A Quality Improvement Initiative To Improve Postdischarge Antimicrobial Adherence.

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    pub_type: 杂志文章

    doi:10.1542/peds.2019-2413

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    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Woodward GA,Bolte RG

    更新日期:1990-11-01 00:00:00

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    pub_type: 杂志文章,多中心研究,随机对照试验

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