Abstract：
OBJECTIVE:We assessed information provision and information needs about illness course, treatments, palliative care and euthanasia in cancer patients. METHODS:Cancer patients consulting a university hospital (N=620) filled out a questionnaire. Their cancer related data were collected through the treating oncologist. This study is performed in Belgium, where "palliative care for all" is a patient's right embedded in the law and euthanasia is possible under certain conditions. RESULTS:Around 80% received information about their illness course and treatments. Ten percent received information about palliative care and euthanasia. Most information about palliative care and euthanasia was given when the patient had a life expectancy of less than six months. However, a quarter of those in earlier phases in their illness trajectory, particularly those who experienced high pain, fatigue or nausea requested more information on these topics. CONCLUSION:Many patients want more information about palliative care and euthanasia than what is currently provided, also those in an earlier than terminal phase of their disease. PRACTICE IMPLICATIONS:Healthcare professionals should be more responsive, already from diagnosis, to the information needs about palliative care and possible end-of-life decisions. This should be patient-tailored, as some patients want more and some patients want less information.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Beernaert K,Haverbeke C,Van Belle S,Deliens L,Cohen Jdoi
10.1016/j.pec.2017.06.034subject
Has Abstractpub_date
2018-01-01 00:00:00pages
132-138issue
1eissn
0738-3991issn
1873-5134pii
S0738-3991(17)30382-8journal_volume
101pub_type
杂志文章abstract：:The main goals of this study were to examine aspects of the delivery and reception of advice and questions in interaction between nurses and patients and to describe linguistic features that constructed nurse-centered and empowermental health counseling. The research data, 38 health counseling sessions, were videotape...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(01)00140-9
更新日期：2001-10-01 00:00:00
abstract：OBJECTIVE:To explore general practitioners (GPs') beliefs about the causes and solutions to obesity, to compare them to those held by a lay sample and to assess the role of beliefs about causes in explaining beliefs about solutions. METHODS:Questionnaires regarding the causes and solutions to obesity were completed by...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.11.022
更新日期：2008-04-01 00:00:00
abstract：OBJECTIVE:The main aim of this study was to establish the contents of the lay illness models on depression, cancer, hypertension, schizophrenia and influenza in healthy and ill people suffering from these diseases who have/have not coexisted with people with these health alterations. METHODS:Dimensions of lay illness ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.03.016
更新日期：2007-07-01 00:00:00
abstract：OBJECTIVES:Current cardiovascular disease (CVD) nutrition guidelines do not take into account Chinese medicine (CM) principles. We created a heart healthy integrative nutritional counseling (H2INC) curriculum consistent with CM principles and current nutrition guidelines. METHODS:We conducted three phases of semi-stru...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.08.011
更新日期：2018-12-01 00:00:00
abstract：OBJECTIVE:Experimental studies have found that clinician-expressed empathy improves patients' information recall in (advanced) cancer consultations. It remains unclear, however, whether these results are generalizable to clinical care and, if so, what the underlying mechanism is. We aimed to i) determine the relationsh...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.10.025
更新日期：2020-10-22 00:00:00
abstract：:A randomised controlled trial was conducted to determine if physicians' advice to promote physical activity to patients was more effective if the advice was tailored to the management of hypertension, compared with more general health promotion advice. Participants included inactive 40- to 70-year-old patients visitin...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/j.pec.2004.03.002
更新日期：2005-03-01 00:00:00
abstract：OBJECTIVE:To review and synthesise definitions of the teach-back method in the literature. The second aim is to synthesise the barriers, facilitators and perceptions of teach-back use in healthcare consultations with patients. METHODS:A systematic review and thematic synthesis following Braun and Clarke's method. RES...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.07.026
更新日期：2021-01-01 00:00:00
abstract：OBJECTIVE:Basic research and careful observation of clinical practice have yielded a vast amount of empirical data on communication in health care. This research has been guided by the assumption that good communication will be better understood and easier to teach when its single constituents are identified. This pape...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2007.04.009
更新日期：2007-08-01 00:00:00
abstract：:How can health professional teams provide patient-centred care in the treatment of chronic disease? What education and training is needed to achieve this? Patient-centred care means helping people living with a condition make informed choices to maximise their quality of life. The health professional's role is to faci...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/0738-3991(95)00727-h
更新日期：1995-09-01 00:00:00
abstract：:A 10-session, self-management training program was designed specifically for persons over 60 years of age having Type II diabetes. It targeted social learning variables, especially problem-solving skills and self-efficacy, found to be related to diabetes self-care in earlier correlational research. One hundred two adu...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/0738-3991(92)90102-o
更新日期：1992-02-01 00:00:00
abstract：OBJECTIVE:This study attempts to identify a structure among patient-related factors that could predict treatment adherence in statin patients, especially with regards to the necessity-concern framework. METHODS:414 Swedish patients using statins completed a questionnaire about their health, treatment, locus of control...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.11.001
更新日期：2013-04-01 00:00:00
abstract：OBJECTIVE:Physicians often overlook important contextual clues that patients give during an encounter. The objective of our study was to increase medical students' knowledge and skills in identifying contextual issues. METHODS:Six consecutive learning experiences, including a standardized patient (SP) encounter and ac...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.06.035
更新日期：2010-09-01 00:00:00
abstract：OBJECTIVE:To ascertain whether physicians have favorite patients, their experiences with such patients, and how such relationships may influence patients and physicians. METHODS:Semi-structured key informant interviews with 25 primary care internists practicing in several clinic settings at a large academic medical ce...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.06.023
更新日期：2016-11-01 00:00:00
abstract：OBJECTIVE:Next generation sequencing (NGS) may aid in tumor classification and treatment. Barriers to shared decision-making may influence use of NGS. We examined, from oncologists' perspectives, whether barriers to involving patients/families in decision-making were associated with NGS use. METHODS:Using data from th...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.03.001
更新日期：2021-01-01 00:00:00
abstract：:We conducted a 4-year randomized study in a community health center that serves primarily low income Blacks in Durham, North Carolina. Patients (1318 at baseline) were assigned randomly to one of three study groups: provider prompting intervention alone, provider prompting and tailored print materials or the previous ...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/s0738-3991(98)00122-0
更新日期：1999-06-01 00:00:00
abstract：OBJECTIVE:First degree relatives (FDRs) of someone with colorectal cancer (CRC) are at increased risk of the disease. In this study we examine the factors associated with discussing family history of CRC with a health professional. METHODS:People with CRC, recruited through the population-based Victorian Cancer Regist...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.11.014
更新日期：2014-03-01 00:00:00
abstract：OBJECTIVE:This study examines (a) providers' and interpreters' perception of their competition in controlling the content and process of provider-patient interactions, and (b) the challenges to providers' and interpreters' collaboration in bilingual health care. METHODS:I recruited 26 professional medical interpreters...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.02.017
更新日期：2010-02-01 00:00:00
abstract：OBJECTIVE:The purpose of this project was to gather preliminary data on preferred content for text reminders sent to low-income parents. METHODS:A brief, IRB-approved survey was administered to 200 consecutive English-speaking parents of children under 6 years old at a Pediatric Residency clinic. Because text messages...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.08.007
更新日期：2011-10-01 00:00:00
abstract：OBJECTIVES:To assess the supportive care needs and interest in related services among brain tumour patients and their carers and to compare the level of unmet needs to other cancer populations. METHODS:A cross-sectional survey was posted to 363 households who were subscribed to the Queensland Cancer Fund Brain Tumour ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.01.020
更新日期：2008-05-01 00:00:00
abstract：:The substantial health-enhancing potential of physical activity can be realised on population level best if people can incorporate physical activity into their daily life routines. Physically active commuting to and from work provides a promising mode for such activity. In a series of three studies we explored more sp...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(98)00013-5
更新日期：1998-04-01 00:00:00
abstract：OBJECTIVE:Self-disclosure is recognized as an important aspect of peer support, but little is known about its use by peers. This study aimed to qualitatively understand peer self-disclosure in the context of depression care delivery to older adults. METHODS:69 audio-recordings of peer-client meetings were coded for se...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.02.006
更新日期：2019-07-01 00:00:00
abstract：:American practitioners were surveyed about the role of self-care materials in the management of cardiology patients. Respondents indicated their patients commonly use self-care materials and seek recommendation of appropriate readings. Over half those responding had reviewed 'some' popular works, but few had been able...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(94)90029-9
更新日期：1994-08-01 00:00:00
abstract：OBJECTIVE:to evaluate the impact of a communication skills course for nurses on how to handle difficult communication situations in their daily work. METHODS:a 7-h course was developed using a construct of "Awareness, Feelings, Listen, Solve" (AFLS). A pedagogy of experiential, learner-centered learning was adopted. T...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2010.02.013
更新日期：2011-01-01 00:00:00
abstract：:We evaluated the family-oriented care and counseling provided by the BC Children's Hospital Transport Team paramedies. One hundred families were asked to rate: (1) how they would like paramedies to communicate with them under ideal conditions; and (2) what they actually experienced during their child's transport. Ther...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(98)00090-1
更新日期：1999-03-01 00:00:00
abstract：OBJECTIVE:Shared decision making (SDM) is recommended when offering lung cancer screening (LCS)-which presents challenges with tobacco-related cancer survivors because they were excluded from clinical trials. Our objective was to characterize head and neck cancer (HNC) survivors' knowledge, attitudes, and beliefs towar...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.04.012
更新日期：2018-10-01 00:00:00
abstract：OBJECTIVE:To describe ways family members assist adult patients with prescription medications at home, during medical visits and at the pharmacy. METHODS:Online survey of 400 adults (caregivers) who help another adult (care recipient) with prescription medication use. Regression modeled the contribution of caregiver c...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.12.018
更新日期：2018-05-01 00:00:00
abstract：:The purpose of this study was to evaluate the effectiveness of a diabetes specialty centre in assisting clients with noninsulin-dependent diabetes mellitus to improve their metabolic control and quality of life. A single-subject repeated measures design was used where data was collected on entry to the program, immedi...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(94)00677-e
更新日期：1995-02-01 00:00:00
abstract：OBJECTIVE:The implementation of patient-centered care (PCC) innovations continues to be poorly understood. We used the implementation effectiveness framework to pilot a method for measuring the impact of a PCC innovation in primary care practices. METHODS:We analyzed data from a prior study that assessed the implement...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.09.009
更新日期：2014-12-01 00:00:00
abstract：:Clients seek genetic counseling in order to become informed, to make better decisions, and, if possible, to be reassured. Genetic knowledge, however, is fragmentary and incomplete and therefore it may involve more uncertainty than is desirable. In a cohort of 30 counseling sessions we studied the genetic information t...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(97)00052-9
更新日期：1997-09-01 00:00:00
abstract：OBJECTIVES:Translate, adapt and validate the Patient-Practitioner Orientation Scale (PPOS) for use in Brazil. METHODS:The PPOS was translated to Portuguese using a modified Delphi technique. The final version was applied to 360 participants. Reliability (test-retest and internal consistency) and construct validity (ex...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.11.014
更新日期：2013-04-01 00:00:00
