[The surrogate: Partner in the shared decision-making].

Abstract:

UNLABELLED:The legislative process of the surrogate appears to be unclear to health professionals and to patients and next of kin. To better adapt this process to the clinical practice our objective was here to document how the persons designated as surrogate perceived their role and how they described the difficulties encountered in oncology. METHODS:Qualitative survey with an ethnographic approach carried out in 2014-2015, fieldwork, face-to-face interviews (n=26 including 20 surrogates and 6 patients) in a mobile palliative care unit located at a Regional Comprehensive Cancer Centre. RESULTS:Close relationship, psychological and cognitive competences were the main attribute to designate a surrogate. Perceived roles included the fact to be involved in decisions, to protect the patient, to be present, and to be a messenger. This process gives the next of kin the feeling to be part of the patient management. In the context of divorced families, it sometimes allows to rehabilitate and to reinforce the affective links. Our data highlight the confusion between the designation of the 'person to call' and 'the surrogate'. DISCUSSION:Our results highlight the 'surrogate' protective role of the patient, and the positive sides of the process, in particular in the context of divorced/rebuilt families. We recommend splitting the process to designate the 'person to call' and the 'surrogate', as administrative and medical duties, respectively.

journal_name

Bull Cancer

journal_title

Bulletin du cancer

authors

Sarradon-Eck A,Capodano G,Bureau E,Julian-Reynier C

doi

10.1016/j.bulcan.2016.03.003

subject

Has Abstract

pub_date

2016-07-01 00:00:00

pages

632-42

issue

7-8

eissn

0007-4551

issn

1769-6917

pii

S0007-4551(16)30010-8

journal_volume

103

pub_type

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