A telehealth approach to conducting clinical swallowing evaluations in children with cerebral palsy.

Abstract:

BACKGROUND:Accurate and timely evaluation of dysphagia in children with cerebral palsy (CP) is critical. For children with limited access to quality healthcare, telehealth is an option; however, its reliability needs to be investigated. AIM:To test the reliability of an asynchronous telehealth model for evaluating dysphagia in children with CP using a standardized clinical assessment. METHODS AND PROCEDURES:Nineteen children (age range 6.9-17.5) were assessed at three mealtimes via the Dysphagia Disorder Survey (DDS) by three clinicians (face-to-face evaluations). Mealtimes were video-recorded to allow asynchronous evaluations by a remote clinician who also completed approximately 1/3 of face-to-face evaluations. Agreement was tested on DDS variables and dysphagia severity. OUTCOMES AND RESULTS:Results revealed substantial to excellent agreement between face-to-face and remote assessments by the same rater (78-100%, KW=0.64-1) on all, but two variables (oral transport and oral pharyngeal swallow) and by different raters (69-89%, KW=0.6-0.86) on all but one variable (orienting). For dysphagia severity, intrarater agreement was excellent (100%, KW=1); interrater agreement was substantial (85%; KW=0.76). CONCLUSIONS AND IMPLICATIONS:Asynchronous clinical swallowing evaluations using standardized tools have acceptable levels of agreement with face-to-face evaluations, and can be an alternative for children with limited access to expert swallowing care.

journal_name

Res Dev Disabil

authors

Kantarcigil C,Sheppard JJ,Gordon AM,Friel KM,Malandraki GA

doi

10.1016/j.ridd.2016.04.008

subject

Has Abstract

pub_date

2016-08-01 00:00:00

pages

207-17

eissn

0891-4222

issn

1873-3379

pii

S0891-4222(16)30078-6

journal_volume

55

pub_type

杂志文章
  • High outpatient visits among people with intellectual disabilities caring in a disability institution in Taipei: a 4-year survey.

    abstract::Few studies reported in the literature have addressed the long-term trend of the use of medical care for people with intellectual disabilities (ID) in institutions. The subject cohort in this study was made of 168 individuals with ID in a public residential facility from 1999 to 2002 in Taipei, Taiwan. The average age...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2005.12.003

    authors: Lin JD,Loh CH,Choi IC,Yen CF,Hsu SW,Wu JL,Chu CM

    更新日期:2007-01-01 00:00:00

  • Comparison of computer based instruction to behavior skills training for teaching staff implementation of discrete-trial instruction with an adult with autism.

    abstract::In the current study, behavior skills training (BST) is compared to a computer based training package for teaching discrete trial instruction to staff, teaching an adult with autism. The computer based training package consisted of instructions, video modeling and feedback. BST consisted of instructions, modeling, reh...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2012.08.011

    authors: Nosik MR,Williams WL,Garrido N,Lee S

    更新日期:2013-01-01 00:00:00

  • Effects of thioridazine and visual screening on stereotypy and social behavior in individuals with mental retardation.

    abstract::Thioridazine and visual screening procedures are effective in reducing the stereotypic behaviors of individuals with mental retardation. A double-blind, placebo-controlled study, using alternating treatments within a multiple-baseline across subjects design, was conducted to assess the effects of two doses of thiorida...

    journal_title:Research in developmental disabilities

    pub_type: 临床试验,杂志文章

    doi:10.1016/0891-4222(93)90028-i

    authors: Singh NN,Landrum TJ,Ellis CR,Donatelli LS

    更新日期:1993-05-01 00:00:00

  • The impact of obesity on developmental coordination disorder in adolescence.

    abstract::Developmental coordination disorder (DCD) as well as overweight and obesity are of increasing importance in the study of human development. Data on the relation between DCD and obesity in adolescence are of particular interest because both phenomena are unlikely to disappear with age. The objective of this study was t...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2011.04.004

    authors: Wagner MO,Kastner J,Petermann F,Jekauc D,Worth A,Bös K

    更新日期:2011-09-01 00:00:00

  • Assessing placement tendency in families with children who have severe handicaps.

    abstract::Data are reported from a brief measure to assess placement tendency of parents who have young children with severe handicaps. Parents of 84 severely retarded children were interviewed in their own homes, three times, 18 to 24 months apart. Their thoughts and actions regarding out-of-home placement for their child were...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/0891-4222(90)90022-z

    authors: Blacher J

    更新日期:1990-01-01 00:00:00

  • Manipulating establishing operations to promote initiations toward peers in children with autism.

    abstract::This study examined the effects of manipulating establishing operations on the frequency of initiations of three children with autism toward peers with autism. The EO targeted was deprivation of preferred edibles, and the target initiation was a mand for the preferred snack. A reversal design was used to assess the ef...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2004.11.003

    authors: Taylor BA,Hoch H,Potter B,Rodriguez A,Spinnato D,Kalaigian M

    更新日期:2005-07-01 00:00:00

  • Trends in documented co-occurring conditions in children with autism spectrum disorder, 2002-2010.

    abstract:BACKGROUND:Autism spectrumdisorder (ASD) commonly presents with co-occurring medical conditions (CoCs). Little is known about patterns in CoCs in a time of rising ASD prevalence. AIMS:To describe trends in number and type of documented CoCs in 8-year-old children with ASD. METHODS:We used Autism and Developmental Dis...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2018.08.015

    authors: Rubenstein E,Schieve L,Wiggins L,Rice C,Van Naarden Braun K,Christensen D,Durkin M,Daniels J,Lee LC

    更新日期:2018-12-01 00:00:00

  • Impact of maladaptive behavior on school function in Down syndrome.

    abstract:BACKGROUND/AIMS:Individuals with Down syndrome (DS) are at an increased risk for certain maladaptive behaviors. This study characterized maladaptive behavior in school-aged children with DS and examined the extent to which maladaptive behaviors are associated with school function. METHODS AND PROCEDURES:Participants w...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2016.08.018

    authors: Will EA,Gerlach-McDonald B,Fidler DJ,Daunhauer LA

    更新日期:2016-12-01 00:00:00

  • Functional deficits in phonological working memory in children with intellectual disabilities.

    abstract::Recent studies indicate that children with intellectual disabilities have functional limitations primarily in the phonological loop of working memory (Baddeley, 1986). These findings are indicative of a specific structural deficit. Building on this research, the present study examines whether it is possible to identif...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2011.03.022

    authors: Schuchardt K,Maehler C,Hasselhorn M

    更新日期:2011-09-01 00:00:00

  • A screening on Specific Learning Disorders in an Italian speaking high genetic homogeneity area.

    abstract::The aim of the present research is to investigate the prevalence of Specific Learning Disorders (SLD) in Ogliastra, an area of the island of Sardinia, Italy. Having experienced centuries of isolation, Ogliastra has become a high genetic homogeneity area, and is considered particularly interesting for studies on differ...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2015.07.011

    authors: Cappa C,Giulivi S,Schilirò A,Bastiani L,Muzio C,Meloni F

    更新日期:2015-10-01 00:00:00

  • Single blind randomised controlled trial of GAME (Goals - Activity - Motor Enrichment) in infants at high risk of cerebral palsy.

    abstract:BACKGROUND:Cerebral palsy (CP) is caused by a lesion in the developing infant brain. Recent neuroplasticity literature suggests that intensive, task-specific intervention ought to commence early, during the critical period of neural development. AIMS:To determine whether "GAME" (Goals - Activity - Motor Enrichment), a...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.ridd.2016.04.005

    authors: Morgan C,Novak I,Dale RC,Guzzetta A,Badawi N

    更新日期:2016-08-01 00:00:00

  • Feasibility of an app-based mindfulness intervention among women with an FMR1 premutation experiencing maternal stress.

    abstract:BACKGROUND:Women who carry an FMR1 premutation (PM) allele and are mothers of children with fragile X syndrome (FXS) experience elevated maternal stress. In-person mindfulness sessions have been shown to be effective in alleviating maternal stress-related outcomes among mothers of children with intellectual and develop...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2019.03.008

    authors: Hunter JE,Jenkins CL,Grim V,Leung S,Charen KH,Hamilton DR,Allen EG,Sherman SL

    更新日期:2019-06-01 00:00:00

  • Peripheral arterial disease in older people with intellectual disability in The Netherlands using the ankle-brachial index: results of the HA-ID study.

    abstract::Older people with an intellectual disability (ID) have been shown to have similar to increased cardiovascular risks as compared to the general population. Peripheral arterial disease (PAD), atherosclerosis distal from the aortic bifurcation, is associated with increased cardiovascular morbidity and mortality. The prev...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2013.02.007

    authors: de Winter CF,Bastiaanse LP,Kranendonk SE,Hilgenkamp TI,Evenhuis HM,Echteld MA

    更新日期:2013-05-01 00:00:00

  • Reliability and responsiveness of the Bruininks-Oseretsky Test of Motor Proficiency-Second Edition in children with intellectual disability.

    abstract::We examined the internal consistency, test-retest reliability, and the responsiveness of the Bruininks-Oseretsky Test of Motor Proficiency-Second Edition (BOT-2) for children with intellectual disabilities (ID). One hundred children with ID aged 4-12 years tested on 3 separate occasions: two baseline measurements with...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2008.12.002

    authors: Wuang YP,Su CY

    更新日期:2009-09-01 00:00:00

  • Long term trend analysis of geographical disparity in aging and disability: Taiwanese population approach.

    abstract::Purposes of the present paper were to describe the overtime change of disability prevalence among the elderly (65 years and older), and to analyze the geographic disparity of the disability prevalence during the year 2000-2010 in Taiwan. Study data mainly come from two public web-access information: (1) The physically...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2011.10.014

    authors: Chen YC,Chou YC,Lin LP,Wu CL,Lin JD

    更新日期:2012-03-01 00:00:00

  • Pharmacological management of challenging behavior of individuals with intellectual disability.

    abstract::In many Westernized countries, including Australia, concerns about the use of psychotropic drugs to manage the challenging behavior of individuals with intellectual disability have resulted in the development of legislative and procedural controls. Although these constraints may limit indiscriminate use, employing med...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2004.03.001

    authors: McGillivray JA,McCabe MP

    更新日期:2004-11-01 00:00:00

  • Stigma associated with autism among college students in Japan and the United States: An online training study.

    abstract::Misconceptions and stigma associated with autism vary across cultures and may be influenced by various factors. Undergraduates in Japan (N = 212) and the United States (US) (N = 365) completed an online autism training, with pre- and posttest surveys assessing autism-related stigma (i.e., social distance) and knowledg...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2018.02.016

    authors: Someki F,Torii M,Brooks PJ,Koeda T,Gillespie-Lynch K

    更新日期:2018-05-01 00:00:00

  • Attribution of negative intention in Williams syndrome.

    abstract::People with Williams syndrome (WS) are said to have sociable and extremely trusting personalities, approaching strangers without hesitation. This study investigated whether people with WS are less likely than controls to attribute negative intent to others when interpreting a series of ambiguous pictures. This may, at...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2013.01.019

    authors: Godbee K,Porter MA

    更新日期:2013-05-01 00:00:00

  • Evaluation of speed-accuracy trade-off in a computer task to identify motor difficulties in individuals with Duchenne Muscular Dystrophy - A cross-sectional study.

    abstract:INTRODUCTION:Individuals with Duchenne Muscular Dystrophy (DMD) present with progressive loss of motor function which can impair both control of speed and accuracy of movement. AIM:to evaluate movement time during a task at various levels of difficulty and to verify whether the level of difficulty affects the speed an...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2019.103541

    authors: da Silva TD,Ribeiro-Papa DC,Coe S,Malheiros SRP,Massetti T,Meira Junior CM,Nicolai Ré AH,Collett J,Monteiro CBM,Dawes H

    更新日期:2020-01-01 00:00:00

  • The moderating effects of intellectual development on core symptoms of autism and PDD-NOS in toddlers and infants.

    abstract::Little research has been conducted on whether deficits in developmental functioning affect the range of core symptoms for autism spectrum disorders (ASD). This study represents a first attempt to determine whether developmental level has an effect on the expression of ASD symptoms in infants and toddlers. Eight hundre...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2012.03.031

    authors: Matson JL,Dempsey T,LoVullo SV,Fodstad JC,Knight C,Sevin JA,Sharp B

    更新日期:2013-01-01 00:00:00

  • ADHD and other associated developmental problems in children with mild mental retardation. The use of the "Five-To-Fifteen" questionnaire in a population-based sample.

    abstract::The aim was to examine the rates and types of parent reported neuropsychiatric problems in children and adolescents with mild mental retardation (MMR) (mild intellectual disability/UK) using the Five-To-Fifteen questionnaire (FTF). The target group comprised all pupils with clinically diagnosed MMR, aged between 7 and...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2011.05.026

    authors: Lindblad I,Gillberg C,Fernell E

    更新日期:2011-11-01 00:00:00

  • Measuring social skills of children and adolescents in a Chinese population: Preliminary evidence on the reliability and validity of the translated Chinese version of the Social Skills Improvement System-Rating Scales (SSIS-RS-C).

    abstract::The Social Skills Improvement System-Rating Scales (SSIS-RS; Gresham & Elliott, 2008) are designed to assist in the screening and classification of students (aged 5-18 years) who are suspected of presenting with social skills deficits and to offer guidelines in the development of interventions to remediate those types...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2016.11.019

    authors: Cheung PP,Siu AM,Brown T

    更新日期:2017-01-01 00:00:00

  • Sustained attention in sensory modulation disorder and attention deficit/hyperactivity disorder.

    abstract:BACKGROUND:There are high comorbidity rates between sensory modulation disorder (SMD) and attention deficit hyperactivity disorder (ADHD). Knowledge regarding the objective neuropsychological differentiation between them is scarce. AIM:This study examines the effects of SMD and ADHD on a sustained attention task with ...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2019.02.004

    authors: Mazor-Karsenty T,Parush S,Shalev L

    更新日期:2019-05-01 00:00:00

  • The development of word recognition, sentence comprehension, word spelling, and vocabulary in children with deafness: a longitudinal study.

    abstract:BACKGROUND:Only a small number of longitudinal studies have been conducted to assess the literacy skills of children with hearing impairment. The results of these studies are inconsistent with regard to the importance of phonology in reading acquisition as is the case in studies with hearing children. Colin, Magnan, Ec...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2013.02.001

    authors: Colin S,Leybaert J,Ecalle J,Magnan A

    更新日期:2013-05-01 00:00:00

  • Physiological characteristics, self-perceptions, and parental support of physical activity in children with, or at risk of, developmental coordination disorder.

    abstract::Children with low movement proficiency have been identified as having poorer physiological and psychosocial outcomes; however, the varied measurement approaches used to assess these outcomes have varied resulting in conflicting evidence regarding the presence and magnitude of differences compared to Typically Developi...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2018.05.013

    authors: Wright KE,Furzer BJ,Licari MK,Thornton AL,Dimmock JA,Naylor LH,Reid SL,Kwan SR,Jackson B

    更新日期:2019-01-01 00:00:00

  • A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability.

    abstract::This study compares the family financial and employment impacts of having a child with fragile X syndrome (FXS), autism spectrum disorder (ASD), or intellectual disabilities (ID). Data from a 2011 national survey of families of children with FXS were matched with data from the National Survey of Children with Special ...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2014.04.009

    authors: Ouyang L,Grosse SD,Riley C,Bolen J,Bishop E,Raspa M,Bailey DB Jr

    更新日期:2014-07-01 00:00:00

  • Sensory organization of balance control in children with developmental coordination disorder.

    abstract::This study aimed to (1) compare functional balance performance and sensory organization of postural control between children with and without developmental coordination disorder (DCD) and (2) determine the association between postural control and participation diversity among children with DCD. We recruited 81 childre...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2011.07.025

    authors: Fong SS,Lee VY,Pang MY

    更新日期:2011-11-01 00:00:00

  • The latent classes of subclinical ADHD symptoms: convergences of multiple informant reports.

    abstract::The purpose of the present study was to conduct latent class analysis on the Hyperactivity scale of the Strengths and Difficulties Questionnaire in order to identify distinct subgroups of subclinical ADHD in a multi-informant framework. We hypothesized a similar structure between teachers and parents, and differences ...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2012.04.008

    authors: Kóbor A,Takács Á,Urbán R,Csépe V

    更新日期:2012-09-01 00:00:00

  • Reduction in primary genu recurvatum gait after aponeurotic calf muscle lengthening during multilevel surgery.

    abstract::Knee hyperextension (genu recurvatum, GR) is often seen in children with bilateral spastic cerebral palsy (CP). Primary GR appears essential without previous treatment. As equinus deformity is suspected to be one of the main factors evoking primary GR, the purpose of this study was to determine whether lengthening the...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/j.ridd.2013.08.019

    authors: Klotz MC,Wolf SI,Heitzmann D,Krautwurst B,Braatz F,Dreher T

    更新日期:2013-11-01 00:00:00

  • Suicidal behavior in children and adolescents with mental retardation.

    abstract::Despite increasing attention to psychiatric disorders in the mentally retarded, suicidal behavior remains an underreported phenomenon in this population, particularly in children and adolescents. This study was aimed at documenting the existence of suicidal behavior among 90 consecutive admissions to a specialty unit ...

    journal_title:Research in developmental disabilities

    pub_type: 杂志文章

    doi:10.1016/0891-4222(94)00029-8

    authors: Walters AS,Barrett RP,Knapp LG,Borden MC

    更新日期:1995-03-01 00:00:00