Abstract:
OBJECTIVES:This study explored healthcare professionals' accounts of patient participation, focusing particularly on aspects related to patients' contributions to the planning and design of healthcare services and products. It aimed to determine (1) how healthcare professionals experience patient participation, (2) what factors, in their view, may inhibit or promote it; and (3) through what channels they think it can take place. METHODS:This study adopted a pragmatic epistemological approach. Data was collected through semi-structured interviews with healthcare professionals at four specialized centers for spinal cord injury in Switzerland. RESULTS:Healthcare professionals who participated in this study were generally open to patient participation in the healthcare innovation process, highlighting several factors that may influence this process. Participants referred to three types of patient contributions that would usually emerge from informal exchange: (1) bringing in information unknown to staff; (2) reporting problems; and (3) providing concrete suggestions for improvement. CONCLUSION & PRACTICE IMPLICATIONS:Healthcare professionals' positive view on and experiences with patient participation in the healthcare innovation process provide a fertile ground to further explore ways of fostering this new form of collaboration. Ultimately, it will be important to demonstrate its positive impact on both patients' as well as healthcare professionals' experiences.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Amann J,Brach M,Rubinelli Sdoi
10.1016/j.pec.2018.03.011subject
Has Abstractpub_date
2018-08-01 00:00:00pages
1452-1459issue
8eissn
0738-3991issn
1873-5134pii
S0738-3991(18)30115-0journal_volume
101pub_type
杂志文章abstract:OBJECTIVES:We characterized patients' comprehension, memory, and impressions of risk communication messages in a patient decision aid (PtDA), Mammopad, and clarified perceived importance of numeric risk information in medical decision making. METHODS:Participants were 75 women in their forties with average risk factor...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.02.013
更新日期:2016-07-01 00:00:00
abstract::We aimed to examine risk perceptions among patients at moderate to high cardiovascular risk. A questionnaire about perceived absolute risk of myocardial infarction and stroke was sent to 2424 patients with hypertension or diabetes. Response rate was 86.3% and 1557 patients without atherosclerotic disease were included...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00248-3
更新日期:2004-01-01 00:00:00
abstract:OBJECTIVE:To describe the importance of teaching clinicians when and how to overcome language barriers in clinical practice, provide an example of a curriculum for teaching on this topic, and outline the critical issues that must be addressed in this type of teaching. METHODS:We describe a 1.5h educational program for...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.12.001
更新日期:2010-02-01 00:00:00
abstract::Determinants of compliance with a 6-month diet and exercise program were studied among 118 healthy middle-aged men with risk factors for coronary heart disease (CHD). Data were gathered via medical examinations, interviews and questionnaires. Smoking, high levels of hostility, perception of barriers to diet change and...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(96)00917-2
更新日期:1996-12-01 00:00:00
abstract:OBJECTIVE:To examine when and why women disbelieve tailored information about their risk of developing breast cancer. METHODS:690 women participated in an online program to learn about medications that can reduce the risk of breast cancer. The program presented tailored information about each woman's personal breast c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.03.016
更新日期:2013-08-01 00:00:00
abstract::This paper describes a paper and pencil questionnaire that measures heart disease risk knowledge in people with diabetes. The Heart Disease Fact Questionnaire (HDFQ) is a 25-item questionnaire that was developed to tap into respondents' knowledge of major risk factors for the development of CHD. Approximately half of ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.07.004
更新日期:2005-07-01 00:00:00
abstract:OBJECTIVE:To examine patients' use of medication management strategies (e.g., reminders, pill boxes), and to determine how their use influences the relationship between patient characteristics and medication adherence. METHODS:Retrospective and cross-sectional study of 434 patients with coronary heart disease, examini...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.04.030
更新日期:2010-11-01 00:00:00
abstract::Shared decision-making is considered an important ideal for physician-patient interaction. The ideal states that health-related values should be discussed together. It raises two questions: (a) for which decisions is the ideal of shared decision-making relevant? (b) Which aspects of treatment should be discussed? The ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00093-2
更新日期:2000-01-01 00:00:00
abstract::Twelve physicians, 33 nurses, and 30 patients completed questionnaires to elicit similarities and differences in perceptions of educational needs of post-myocardial infarction (MI) patients. Results, using chi-square analysis, indicated that the three groups generally agreed upon which areas should be included in educ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(84)90038-7
更新日期:1984-01-01 00:00:00
abstract:OBJECTIVE:Because quality health care delivery requires effective clinician-patient communication, successful training of health professionals requires communication skill curricula of the highest quality. Two approaches for developing medical communication curricula are a consensus approach and a theory driven approac...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.06.012
更新日期:2013-10-01 00:00:00
abstract:OBJECTIVE:The purpose of this study was to gain a greater understanding of the potential mechanisms of life coaching in relation to young people with Type 1 diabetes (T1DM); including how it influences their motivation and their ability to see opportunities and overcome barriers. METHODS:Within the theoretical framewo...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.10.010
更新日期:2020-03-01 00:00:00
abstract:OBJECTIVE:General practitioner (GP) registrars often express the need for more expertise of non-pharmacological treatments for patients with mental health problems. Problem-solving treatment (PST) could be an attractive option. We aimed to explore GP registrars' views on PST-training during residency and on the actual ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.07.045
更新日期:2011-10-01 00:00:00
abstract:OBJECTIVE:Advances in health care require that individuals participate knowledgeably and actively in their health care to realize its full benefit. Implications of these changes for the behavior of individuals and for the practice of patient education are described. METHODS:An "engagement behavior framework" (EBF) was...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2010.02.002
更新日期:2010-03-01 00:00:00
abstract::Deregulation of emergency contraceptive pills (ECP) has led to pharmacy staff becoming a new provider group of ECP, together with nurse-midwives, who are already experienced in prescribing contraceptives. This postal questionnaire survey aimed to assess practices and attitudes towards ECP and the over-the-counter (OTC...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2003.08.008
更新日期:2004-10-01 00:00:00
abstract:OBJECTIVE:This article explores the effect of conflicting information, defined as contradictory information about medication topics from different sources, on medication adherence in a sample of chronically ill patients. We specifically investigate whether conflicting information and physician support directly affect m...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.11.006
更新日期:2010-11-01 00:00:00
abstract::Minority peoples like the Romanies have divergent cultures. Typical cultural aspects for medical personnel to consider would include greetings and other communication, family and social support, dressing and habits of cleanliness, marriage and sexuality, honor, and other issues of importance to any human being. Some m...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(97)00993-2
更新日期:1997-06-01 00:00:00
abstract:OBJECTIVE:To document primary health care (PHC) providers' tobacco use, and how this influences their smoking cessation practices and attitudes towards tobacco-control policies. METHODS:Anonymous questionnaires were distributed to PHC providers in 7 randomly selected PHC centers in Aleppo, Syria. RESULTS:All PHC prov...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.11.011
更新日期:2011-11-01 00:00:00
abstract:OBJECTIVE:We assess the efficacy and utility of automatically generated textual summaries of patients' medical histories at the point of care. METHOD:Twenty-one clinicians were presented with information about two cancer patients and asked to answer key questions. For each clinician, the information on one of the pati...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.04.019
更新日期:2013-08-01 00:00:00
abstract:OBJECTIVE:This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory. METHODS:Grice's Cooperative Principle and associated maxims, which enable effective communication, are examined in relation to communication deficiencie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.10.025
更新日期:2016-04-01 00:00:00
abstract::Socioeconomically disadvantaged elderly are less likely to participate in fecal occult blood testing (FOBT). A quasi-experimental design was used in this operational replication study to determine predictors at baseline of subsequent participation in FOBT. Sixty-five percent of the 211 participants in the replication ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(97)00088-8
更新日期:1998-06-01 00:00:00
abstract:OBJECTIVE:There is some evidence for biomarker feedback when combined with cessation counseling for reducing smoking in pregnancy. This randomized controlled pilot study evaluated feasibility and potential efficacy of a social-cognitive theory (SCT)-based biomarker feedback intervention among pregnant Alaska Native (AN...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2018.10.009
更新日期:2019-03-01 00:00:00
abstract:OBJECTIVE:To fill a gap in research by examining cancer patient-provider communication regarding tobacco use and patients' perspectives regarding their experiences with smoking cessation and relapse. METHODS:In-depth interviews were conducted with 20 lung and head and neck cancer patients and 11 health care providers....
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.09.024
更新日期:2009-12-01 00:00:00
abstract:OBJECTIVE:The purpose of this study was to describe older hospital patients' discharge experiences on participation in the discharge planning. METHODS:A sample of 254 patients aged 80+ was interviewed using a questionnaire developed by the research team. Data were collected by face-to-face interviewing during the firs...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2010.08.025
更新日期:2011-10-01 00:00:00
abstract::This study aims to find out how hospital patients in Finland perceive and evaluate the education they receive. It represents the first part of a patient education project at one university hospital in which the ultimate goal is to support patients' decision-making and self-care and in this way to facilitate the indepe...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00223-9
更新日期:2003-11-01 00:00:00
abstract::Tsunami is a fictionalized, based on the true story of a mother and baby patients who attended my rural clinic for 12 months and disappeared. (All personal identifiers have been removed.) It is a story of a family physician trying to establish trust relationship with a young mother, that her past history and living co...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.06.008
更新日期:2010-02-01 00:00:00
abstract::Using ethnoscience methods, interviews with 50 South Asian women living in Western Canada were conducted and analyzed to explore explanations and images of breast cancer. Embedded in the women's stories of breast cancer were distinctive, often vivid and fear-provoking images of abnormal growth. Explanations about the ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(98)00118-9
更新日期:1999-07-01 00:00:00
abstract:OBJECTIVE:Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.06.002
更新日期:2007-10-01 00:00:00
abstract:OBJECTIVE:To support families with a chronically ill child, a modular curriculum and new healthcare structures (trainer education, quality management) for a group self-management program (ModuS) were developed. ModuS focuses on common psychosocial aspects of chronic conditions and comprises generic and disease-specific...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2017.01.001
更新日期:2017-06-01 00:00:00
abstract:OBJECTIVES:The presentation of risks and benefits in clinical practice is common particularly in situations in which treatment recommendations involve trade-offs. The treatment of breast cancer risk with selective estrogen receptor modulators (SERMs) is such a decision. We investigated the influence of health care prov...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.06.033
更新日期:2017-12-01 00:00:00
abstract:OBJECTIVE:Probabilities of benefits and harms of treatment may help patients when making a treatment decision. This study aimed to examine (1) whether and how radiation oncologists convey probabilities to rectal cancer patients, and (2) patients' estimates of probabilities of major outcomes of rectal cancer treatment. ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.05.009
更新日期:2015-09-01 00:00:00