Regaining equilibrium: Understanding the process of sibling adjustment to pediatric acquired brain injury.

Abstract:

OBJECTIVE:This study developed a comprehensive framework for understanding the process of sibling adjustment to pediatric acquired brain injury (ABI). PARTICIPANTS:Grounded theory methodology was employed to inductively explore the issues siblings perceived to be their main concerns and how they managed these concerns. Fifty-three interviews (N = 28) were conducted recursively with 20 child and adolescent siblings of individuals with an ABI, 4 adult siblings of individuals with an ABI, and 4 child and adolescent siblings of individuals with congenital disability. Observational and secondary data from hospital staff and parents were also analyzed. The framework was developed and verified through simultaneous data collection and analysis that continued to the point of data saturation. RESULTS:The main concern for siblings was the loss of equilibrium in their lives as defined by the concepts of vulnerability and emotional turmoil. Losing equilibrium was enduring and threatened siblings' sense of security, safety, predictability and control many years post injury. To manage these concerns, siblings employed a variety of interrelated strategies to regain equilibrium. These strategies were conceptualized by the concepts navigating and sacrificing to restore safety, predictability, and control. Like the nonfinite nature of losing equilibrium, regaining equilibrium was an ongoing cyclical process. CONCLUSIONS:Rather than focusing on adjustment outcomes only, this study extends previous research by offering a framework for understanding the process of sibling adjustment, and thus providing a set of integrated categories, concepts, hypotheses, and propositions to inform future research and practice. (PsycINFO Database Record

journal_name

Rehabil Psychol

authors

Bursnall S,Kendall E,Degeneffe CE

doi

10.1037/rep0000225

subject

Has Abstract

pub_date

2018-08-01 00:00:00

pages

447-459

issue

3

eissn

0090-5550

issn

1939-1544

pii

2018-40005-004

journal_volume

63

pub_type

杂志文章
  • Affect and psychiatric symptoms in a veteran polytrauma clinic.

    abstract::Although the relationship between negative affect and psychiatric symptoms has been well-demonstrated in research, less is known about positive affect relative to negative affect, and its relationship to psychiatric symptoms, especially among veterans. This study examined how levels of positive and negative affect are...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000017

    authors: Kraal AZ,Waldron-Perrine B,Pangilinan PH,Bieliauskas LA

    更新日期:2015-02-01 00:00:00

  • Who self-identifies as disabled? An examination of impairment and contextual predictors.

    abstract:PURPOSE/OBJECTIVE:According to Social Identity Theory, minority group members, like people with disabilities, manage stigma by either "passing" as majority group members or identifying with their minority group. Approximately 15% of the world's population has a disability, but only a fraction of those individuals ident...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000132

    authors: Bogart KR,Rottenstein A,Lund EM,Bouchard L

    更新日期:2017-11-01 00:00:00

  • Nih toolbox premorbid ability adjustments: Application in a traumatic brain injury sample.

    abstract:PURPOSE/OBJECTIVE:Metrics to estimate premorbid cognitive ability, such as word reading tests, are important for clinical determination of cognitive changes following brain injury. In the present study, reading adjusted scores for the National Institutes of Health Toolbox Cognition Battery (NIHTB-CB) fluid tests were d...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000198

    authors: Holdnack JA,Tulsky DS,Slotkin J,Tyner CE,Gershon R,Iverson GL,Heinemann AW

    更新日期:2017-11-01 00:00:00

  • Changes in cigarette smoking after traumatic spinal cord injury.

    abstract:OBJECTIVE:The objective of this study is to identify changes in the prevalence of cigarette smoking approximately 1 year after discharge from inpatient rehabilitation for spinal cord injury (SCI). METHOD:Self-report assessments were completed by 129 participants with SCI during initial inpatient rehabilitation and at ...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000046

    authors: Krause JS,Cao Y,Saunders LL

    更新日期:2015-11-01 00:00:00

  • Interdisciplinary rehabilitation approach for functional neurological symptom (conversion) disorder: A case study.

    abstract:OBJECTIVE:To describe a coordinated interdisciplinary approach to the treatment of functional neurological symptom (conversion) disorder (FNSD), mixed symptoms, including motor dysfunction, in a rehabilitation setting. DESIGN:Adult patient was admitted with worsening neurological symptoms in the absence of contributor...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000063

    authors: Yam A,Rickards T,Pawlowski CA,Harris O,Karandikar N,Yutsis MV

    更新日期:2016-02-01 00:00:00

  • Improvements in partner support predict sexual satisfaction among individuals with multiple sclerosis.

    abstract:PURPOSE:Sexual dysfunction and low sexual satisfaction are common among individuals with multiple sclerosis (MS); however, little is known about factors that influence sexual satisfaction within this population. As such, the purpose of this study was to investigate the extent to which changes in negative and positive p...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章,随机对照试验

    doi:10.1037/a0023362

    authors: Blackmore DE,Hart SL,Albiani JJ,Mohr DC

    更新日期:2011-05-01 00:00:00

  • The importance of exercise self-efficacy for clinical outcomes in pulmonary rehabilitation.

    abstract:OBJECTIVE:Pulmonary rehabilitation (PR) improves functional exercise capacity and health status in people with chronic obstructive pulmonary disease (COPD), although these outcomes are often not maintained following PR. Self-efficacy is a precursor to outcomes achievement, yet few studies have examined the importance o...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000106

    authors: Selzler AM,Rodgers WM,Berry TR,Stickland MK

    更新日期:2016-11-01 00:00:00

  • Diversity and social justice in disability: The heart and soul of rehabilitation psychology.

    abstract::Rehabilitation psychology uniquely incorporates a holistic, psychosocial perspective encompassing all aspects of disability, with a particular focus on the connection between disabled people and the social environment. This article introduces a special issue of Rehabilitation Psychology on diversity and social justice...

    journal_title:Rehabilitation psychology

    pub_type:

    doi:10.1037/rep0000278

    authors: Perrin PB

    更新日期:2019-05-01 00:00:00

  • A case-control study assessing parenting sense of competence in people with multiple sclerosis.

    abstract:OBJECTIVE:To assess the parenting sense of competence in mothers and fathers with MS compared to a matched group of healthy parents and to evaluate whether illness features, mood, coping and social support influence parenting sense of competence in mothers and fathers with MS. METHOD/DESIGN:Participants in both groups...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000211

    authors: Messmer Uccelli M,Ponzio M

    更新日期:2018-08-01 00:00:00

  • Factor structure, reliability, and validity of the Frontal Systems Behavior Scale (FrSBe) in an acute traumatic brain injury population.

    abstract:OBJECTIVE:This study investigated the psychometric properties of the Frontal Systems Behavior Scale (FrSBe) in an acute traumatic brain injury (TBI) population across indices of factor structure, reliability, and validity. METHOD:Data were collected from 101 individuals undergoing acute rehabilitation for moderate and...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0031612

    authors: Niemeier JP,Perrin PB,Holcomb MG,Nersessova KS,Rolston CD

    更新日期:2013-02-01 00:00:00

  • Evidentiary Pluralism as a Strategy for Research and Evidence-Based Practice in Rehabilitation Psychology.

    abstract::This paper examines the utility of evidentiary pluralism, a research strategy that selects methods in service of content questions, in the context of rehabilitation psychology. Hierarchical views that favor randomized controlled clinical trials (RCTs) over other evidence are discussed, and RCTs are considered as they ...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0012963

    authors: Tucker JA,Reed GM

    更新日期:2008-08-01 00:00:00

  • Patient perspectives of Internet-delivered cognitive behavior therapy for psychosocial issues post spinal cord injury.

    abstract:PURPOSE:Many individuals with a spinal cord injury (SCI) report significant symptoms of depression and/or anxiety post-SCI; however, access to mental health services can be limited. The purpose of this study was to evaluate patient perspectives on the acceptability of an 8-week guided Internet-delivered cognitive behav...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000276

    authors: Mehta S,Hadjistavropoulos HD,Earis D,Titov N,Dear BF

    更新日期:2019-08-01 00:00:00

  • The role of activity restriction in poststroke depressive symptoms.

    abstract:OBJECTIVE:Little is known about the determinants of poststroke depression. The Activity Restriction Model of Depressed Affect (ARMDA) may be helpful in understanding poststroke depression but has never been tested in that context. The goal of this study was to examine the relation between activity restriction and depre...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0016572

    authors: Landreville P,Desrosiers J,Vincent C,Verreault R,Boudreault V,BRAD Group.

    更新日期:2009-08-01 00:00:00

  • Maternal warm responsiveness and negativity following traumatic brain injury in young children.

    abstract:PURPOSE/OBJECTIVE:To understand how traumatic brain injury (TBI) affects maternal warm responsiveness and negativity over the first 12 months following injury. METHOD/DESIGN:We used a concurrent cohort research design to examine dyadic interactions in young children with a TBI (n = 78) and a comparison group of young ...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0033119

    authors: Fairbanks JM,Brown TM,Cassedy A,Taylor HG,Yeates KO,Wade SL

    更新日期:2013-08-01 00:00:00

  • Cognitive effects of modafinil in patients with multiple sclerosis: A clinical trial.

    abstract:PURPOSE/OBJECTIVE:To assess the efficacy of modafinil for the treatment of new learning and memory deficits and fatigue in multiple sclerosis. Only 1 previous study in the literature, to our knowledge, examined the effect of modafinil on cognition specifically in persons with multiple sclerosis. RESEARCH METHOD/DESIGN...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章,随机对照试验

    doi:10.1037/a0039919

    authors: Ford-Johnson L,DeLuca J,Zhang J,Elovic E,Lengenfelder J,Chiaravalloti ND

    更新日期:2016-02-01 00:00:00

  • Family caregivers: gender differences in adjustment to stroke survivors' mental changes.

    abstract:OBJECTIVES:This prospective longitudinal study investigated gender differences in caregiving spouses' adjustment to the challenges of a poststroke life situation based on the caregiving stress model of Yee and Schulz (2000), which we modified. METHOD:The sample consisted of 97 stroke-survivor and spouse dyads who were...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0019253

    authors: Alexander T,Wilz G

    更新日期:2010-05-01 00:00:00

  • Development of a safety awareness group intervention for women with diverse disabilities: a pilot study.

    abstract:OBJECTIVE:Describe the development and preliminary evaluation of a safety awareness program for women with disabilities. DESIGN:Baseline and postintervention questionnaires administered to a sample of women who completed a safety awareness program. PARTICIPANTS:Seven women with diverse disabilities. INTERVENTION:Eig...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0019916

    authors: Hughes RB,Robinson-Whelen S,Pepper AC,Gabrielli J,Lund EM,Legerski J,Schwartz MS

    更新日期:2010-08-01 00:00:00

  • Parenting and social functioning of children with and without cerebral palsy.

    abstract:OBJECTIVE:To examine the associations between parenting dimensions and the social functioning of children with and without cerebral palsy (CP). The primary hypothesis was that controlling for cognitive ability, specific parenting dimensions would be associated with higher social functioning, including larger social net...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0014748

    authors: Cunningham SD,Warschausky S,Thomas PD

    更新日期:2009-02-01 00:00:00

  • The role of psychological resilience and mTBI as predictors of postconcussional syndrome symptomatology.

    abstract:OBJECTIVE:Resilience is 1 of several factors that are thought to contribute to outcome following mild traumatic brain injury (mTBI). This study explored the predictors of the postconcussional syndrome (PCS) symptoms that can occur following mTBI. We hypothesized that a reported recent mTBI and lower psychological resil...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000037

    authors: Sullivan KA,Edmed SL,Allan AC,Smith SS,Karlsson LJE

    更新日期:2015-05-01 00:00:00

  • The intensive care unit experience: Psychological impact on family members of patients with and without traumatic brain injury.

    abstract:PURPOSE/OBJECTIVE:The intensive care unit (ICU) has been identified as a possible contributor to emotional distress. This study seeks to identify whether families of traumatic brain injury (TBI) patients in the ICU experience psychological differences as compared with non-TBI patients' family members. METHOD:Eighty-tw...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000080

    authors: Warren AM,Rainey EE,Weddle RJ,Bennett M,Roden-Foreman K,Foreman ML

    更新日期:2016-05-01 00:00:00

  • Comparing CESD-10, PHQ-9, and PROMIS depression instruments in individuals with multiple sclerosis.

    abstract:PURPOSE:This study evaluated psychometric properties of the Patient Health Questionnaire-9 (PHQ-9), the Center for Epidemiological Studies Depression Scale-10 (CESD-10), and the 8-item PROMIS Depression Short Form (PROMIS-D-8; 8b short form) in a sample of individuals living with multiple sclerosis (MS). RESEARCH METH...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0035919

    authors: Amtmann D,Kim J,Chung H,Bamer AM,Askew RL,Wu S,Cook KF,Johnson KL

    更新日期:2014-05-01 00:00:00

  • Development of the Multiple Sclerosis Resiliency Scale (MSRS).

    abstract:OBJECTIVES:While resilience has been an area of increasing research, there are no measures that are specific to the psychological, social, and physical factors associated with resilience in persons with multiple sclerosis (PwMS). This study aimed to develop the MS Resiliency Scale (MSRS), a multidimensional measure. It...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000219

    authors: Gromisch ES,Sloan J,Zemon V,Tyry T,Schairer LC,Snyder S,Foley FW

    更新日期:2018-08-01 00:00:00

  • Personal resource profiles of individuals with chronic pain: Sociodemographic and pain interference differences.

    abstract:PURPOSE/OBJECTIVE:Previous studies have demonstrated important associations between personal resources and pain interference. Using latent profile analysis, the present study (a) identified subgroups of individuals with chronic pain who have different personal resource profiles; (b) explored sociodemographic difference...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000261

    authors: Mun CJ,Davis MC,Molton IR,Karoly P,Suk HW,Ehde DM,Tennen H,Kerns RD,Jensen MP

    更新日期:2019-08-01 00:00:00

  • Relationship of medical comorbidities to psychological health at 2 and 5 years following traumatic brain injury (TBI).

    abstract:: Objective: To examine the relationship between medical comorbidities and psychological health outcomes at 2 and 5 years following traumatic brain injury (TBI). Method: Veterans Affairs (VA) TBI Model System participants who com...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000366

    authors: Noyes ET,Tang X,Sander AM,Silva MA,Walker WC,Finn JA,Cooper DB,Nakase-Richardson R

    更新日期:2020-10-29 00:00:00

  • Key dimensions of impairment, self-report, and environmental supports in persons with traumatic brain injury.

    abstract:PURPOSE/OBJECTIVES:To determine key dimensions relevant to recovery in the postacute period for persons with traumatic brain injury (TBI) and to determine the ability of scores on these dimensions to predict participation outcomes for persons with TBI. RESEARCH METHOD/DESIGN:This was a prospective cohort, observationa...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000030

    authors: Sherer M,Sander AM,Nick TG,Melguizo MS,Tulsky DS,Kisala P,Hanks R,Novack TA

    更新日期:2015-05-01 00:00:00

  • Attractiveness, diagnostic ambiguity, and disability cues impact perceptions of women with pain.

    abstract:PURPOSE/OBJECTIVE:This experimental study investigated how physical attractiveness, disability cue, and diagnostic ambiguity stereotypes impact perceptions of a patient's pain/disability and personality. RESEARCH METHOD/DESIGN:After viewing photographs of women pictured with or without a cane, accompanied by descripti...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0035894

    authors: LaChapelle DL,Lavoie S,Higgins NC,Hadjistavropoulos T

    更新日期:2014-05-01 00:00:00

  • Fear of negative evaluation, avoidance and mental distress among hearing-impaired employees.

    abstract:OBJECTIVE:This study examined the relationship between hearing impairment and mental distress. We hypothesized that fear of negative evaluation by others and avoidant communication strategies are associated with increased symptoms of depression. METHOD:Hearing-impaired adults (N = 105) who signed up for a stress manag...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000028

    authors: Williams KC,Falkum E,Martinsen EW

    更新日期:2015-02-01 00:00:00

  • Attributions of responsibility and recovery within a no-fault insurance compensation system.

    abstract:OBJECTIVE:Although a great deal of literature supports the negative relationship between postinjury health outcomes and compensation, it has not fully examined the relative influence of the diverse factors that underlie compensable status. In particular, this study sought to understand the relative influence that attri...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/a0036543

    authors: Thompson J,Berk M,O'Donnell M,Stafford L,Nordfjaern T

    更新日期:2014-08-01 00:00:00

  • Correlates of resilience in the first 5 years after traumatic brain injury.

    abstract:PURPOSE/OBJECTIVE:To examine resilience in the context of adjustment to traumatic brain injury (TBI), including the relative roles of demographic and theoretically related constructs such as coping, social support, and positive affectivity on resilience within the first 5 years postinjury. RESEARCH METHOD/DESIGN:This ...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章

    doi:10.1037/rep0000069

    authors: Hanks RA,Rapport LJ,Waldron Perrine B,Millis SR

    更新日期:2016-08-01 00:00:00

  • Influence of the social context on use of surgical-lengthening and group-empowering coping strategies among people with dwarfism.

    abstract:OBJECTIVE:To assess the role that social contextual factors exert on the way people with disproportionate short stature (dwarfism) cope with the negative consequences of discrimination. METHOD:Using multigroup structural equation modeling, we compare the coping process of people with dwarfism from Spain (N = 63) and t...

    journal_title:Rehabilitation psychology

    pub_type: 杂志文章,多中心研究

    doi:10.1037/a0029280

    authors: Fernández S,Branscombe NR,Gómez A,Morales JF

    更新日期:2012-08-01 00:00:00