Abstract：
OBJECTIVE:Examine the uncertainty management process of individuals with Lynch syndrome (LS). METHODS:19 phone interviews were conducted with individuals with LS. The interview guide included questions on family communication, risk perceptions, and uncertainty management. Data were analyzed using the constant comparison method to code for emergent themes. RESULTS:Qualitative analysis found individuals with LS tried to manage their uncertainty through preventive care, but were often confounded by healthcare barriers. Healthcare barriers included cost and insurance issues, absence of coordinated care, insufficient provider knowledge, and lack of patient-centered communication. Participants reported increased uncertainty and anxiety due to these barriers and used alternative uncertainty management strategies such as advocating for themselves with providers, seeking information online, and communicating with family for emotional support. CONCLUSION:Healthcare barriers identified in this study exacerbated uncertainty and anxiety for individuals with LS and challenged their ability to engage in preventive care. In response, participants used alternative uncertainty management strategies to reduce their uncertainty, which may have unintended negative consequences. PRACTICE IMPLICATIONS:Findings support the need for providers to partner with specialists in genetics and/or LS to better care for individuals with LS. Findings highlight opportunities for interventions in healthcare to better support individuals with LS.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Campbell-Salome G,Buchanan AH,Hallquist MLG,Rahm AK,Rocha H,Sturm ACdoi
10.1016/j.pec.2020.07.017subject
Has Abstractpub_date
2021-02-01 00:00:00pages
403-412issue
2eissn
0738-3991issn
1873-5134pii
S0738-3991(20)30390-6journal_volume
104pub_type
杂志文章abstract：OBJECTIVE:To conduct a scoping literature review to understand the conceptualization and nature of the research on patient-provider language concordance (LC) in health care. METHODS:We searched PubMed, EMBASE, CINAHL, PsycINFO, and Scopus to identify peer-reviewed articles between January 1961 and August 2018. We extr...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2020.05.025
更新日期：2020-10-01 00:00:00
abstract：BACKGROUND:In facilitating informed decision making about PSA screening, men are often asked to consider the potential consequences of the test, including a diagnosis of prostate cancer and how they would want to be treated. However, there is no empirical evidence thus far demonstrating that men are able to consider th...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2005.02.002
更新日期：2006-04-01 00:00:00
abstract：OBJECTIVE:To determine whether women know their own cervical cancer screening recommendations after hysterectomy, and to evaluate patients' understanding of hysterectomy terminology and cervical cancer screening. METHODS:A 19-item questionnaire was developed and administered to 413 women who had undergone minimally in...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.08.017
更新日期：2017-01-01 00:00:00
abstract：OBJECTIVE:Shared decision making (SDM) is recommended when offering lung cancer screening (LCS)-which presents challenges with tobacco-related cancer survivors because they were excluded from clinical trials. Our objective was to characterize head and neck cancer (HNC) survivors' knowledge, attitudes, and beliefs towar...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.04.012
更新日期：2018-10-01 00:00:00
abstract：OBJECTIVE:Community pharmacists are highly accessible healthcare professionals, whose regular contact with patients provides ongoing opportunities to improve medication safety and promote medication adherence. This study investigates whether patients who experience low service quality in community pharmacies are less a...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.07.009
更新日期：2021-02-01 00:00:00
abstract：OBJECTIVE:Smokers who are not ready to quit are a very difficult group to treat. Physicians, nurses, and nurse practitioners are in a unique position to encourage patients to quit smoking. However, the best approach to do so is not clear. METHODS:A two-group randomized controlled trial with 218 pack-a-day precontempla...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2010.04.024
更新日期：2011-04-01 00:00:00
abstract：:This prospective study evaluated the effect of an individualized, comprehensive, home-based cardiac rehabilitation program combining exercise training with risk factor modification and psychosocial counseling on risk factors, psychological well-being, functional capacity, and work resumption in 99 post-percutaneous co...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/s0738-3991(00)00164-6
更新日期：2001-06-01 00:00:00
abstract：OBJECTIVE:This study aimed to investigate how healthcare personnel self-evaluate their ability to relate to patients in day-to-day practice from a patient-centered perspective, and to test the psychometric properties of a questionnaire developed to assess it. METHODS:A sample of 600 healthcare personnel, recruited amo...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.01.015
更新日期：2016-06-01 00:00:00
abstract：OBJECTIVE:We assessed the information needs of persons with any of three immune-mediated inflammatory diseases (multiple sclerosis [MS], inflammatory bowel disease [IBD] and rheumatoid arthritis [RA]) regarding depression, as a first step toward developing patient-relevant information resources, ultimately to facilitat...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.04.007
更新日期：2019-09-01 00:00:00
abstract：OBJECTIVES:This study explored healthcare professionals' accounts of patient participation, focusing particularly on aspects related to patients' contributions to the planning and design of healthcare services and products. It aimed to determine (1) how healthcare professionals experience patient participation, (2) wha...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.03.011
更新日期：2018-08-01 00:00:00
abstract：:The present prospective study aimed at (1) investigating the frequency of high levels of psychological distress in women with early-stage breast cancer almost two years after diagnosis and (2) identifying characteristics associated with long-term distress. One hundred and seventy women participated on two occasions. T...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(99)00085-3
更新日期：2000-06-01 00:00:00
abstract：OBJECTIVE:To explore whether negative emotions expressed by adolescent cancer survivors during follow-up consultations were associated with potential late effects (persisting disease or treatment-related health problems). METHODS:We video-recorded 66 follow-up consultations between 10 pediatricians and 66 adolescent s...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.06.008
更新日期：2017-11-01 00:00:00
abstract：OBJECTIVE:Examine the psychometric properties of the Appraisal of Caregiving Scale (ACS). METHODS:Data were collected as part of the FOCUS Program trial in Michigan (N = 484 caregivers). RESULTS:Exploratory factor analysis found the ACS measured Threat, General Stress, and Benefit appraisals. Cronbach's alphas for al...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.01.009
更新日期：2015-05-01 00:00:00
abstract：OBJECTIVE:We describe and compare the perceptions of professional and family member interpreters concerning their roles and tasks as interpreters in primary care clinical encounters. METHODS:Encounters between physicians (19) and patients (24) accompanied by a professional (6) or a family (9) interpreter were videotap...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.09.015
更新日期：2008-01-01 00:00:00
abstract：OBJECTIVE:A clinician's ability to infer patients' thoughts and feelings is a critical component of high quality care. The goal of this article is to present a new test to measure this ability in clinicians, called the Test of Accurate Perception of Patients' Affect (TAPPA). METHODS:Audiovisual clips were taken from p...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.10.004
更新日期：2014-02-01 00:00:00
abstract：:In this qualitative study stroke patients rehabilitating in nursing homes experienced an increase in their autonomy (particularly in self-determination, independence and self-care) in the last weeks before discharge. The change in autonomy was found to be related to regained abilities and self-confidence, and to patie...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(99)00113-5
更新日期：2000-10-01 00:00:00
abstract：OBJECTIVE:Despite numerous benefits of consuming a healthy diet and receiving regular physical activity, engagement in these behaviors is suboptimal. Since primary care visits are influential in promoting healthy behaviors, we sought to describe whether and how diet and physical activity are discussed during older adul...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.03.020
更新日期：2014-06-01 00:00:00
abstract：OBJECTIVE:To assess the effectiveness of including a social support intervention ('buddy system') in a group treatment programme to aid smoking cessation. METHODS:Five hundred and sixty-three smokers attended groups at a smokers' clinic. These groups were randomized either to be (a) groups in which smokers were paired...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2006.02.008
更新日期：2006-12-01 00:00:00
abstract：:Patients with diabetes are ultimately responsible for their disease management, but many patients with diabetes do not have the necessary knowledge or skill. Recently developed National Standards for diabetes care include patient education. A nonprobability, convenience sample of 50 patients and 50 staff nurses was se...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(90)90074-u
更新日期：1990-12-01 00:00:00
abstract：OBJECTIVE:To assess the associated obstetric and sociodemographic risk of vulnerability to postnatal depression in a population-based study. METHODS:All women presenting for postpartum care (n=1656) were surveyed at pregnancy care units of southern-eastern Hungary between January 2004 and May 2006 with an anonymously ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.02.004
更新日期：2007-07-01 00:00:00
abstract：OBJECTIVE:To assess general practitioners' (GPs) provision of patient education with respect to patients with depression or anxiety. METHODS:The study relied on the prospective self-recording of patient consultations by GPs. The participating GPs (n = 78) completed 385 registration forms. For each performance indicato...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.07.026
更新日期：2008-11-01 00:00:00
abstract：OBJECTIVES:To investigate the gender preference of Muslim Israeli-Arab women regarding obstetricians/gynecologists, and identify other features that affect their choice. METHODS:The study included 167 responders to an anonymous questionnaire. RESULTS:Around one-half of the responders had no gender preference regardin...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2011.05.016
更新日期：2012-02-01 00:00:00
abstract：OBJECTIVE:Identifying patient characteristics predicting categories of patient adherence to Chronic Obstructive Pulmonary Disease (COPD) exacerbation action plans. METHODS:Data were obtained from self-treatment intervention groups of two COPD self-management trials. Patients with ≥1 exacerbation and/or ≥1 self-initiat...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.06.015
更新日期：2021-01-01 00:00:00
abstract：:A three-day residential Body Awareness Program (BAP) was developed to teach people with Chronic A-specific Psychosomatic Symptoms (CAPS) to react adequately to disturbances of the balance between a daily workload and the capacity to deal with it. The short-term effects of the program for people with CAPS are presented...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.02.014
更新日期：2004-11-01 00:00:00
abstract：:The effect of an intervention programme to improve health education leaflet uptake in community pharmacies was conducted with a small convenience sample of 12 community pharmacies in North Staffordshire, UK. The intervention consisted of four different modes of leaflet provision. Modes 1 and 2 (without and with overt ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(02)00034-4
更新日期：2003-01-01 00:00:00
abstract：OBJECTIVE:To examine the changes in performance on heart failure knowledge assessments administered before and after discharge education. METHODS:We conducted a randomized controlled trial comparing the effects of a 1-h, one-on-one teaching session with a nurse educator to the standard discharge process in patients wi...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2011.05.019
更新日期：2012-02-01 00:00:00
abstract：OBJECTIVE:To examine knowledge displays (KDs), a practice by which Therapeutic Community (TC) professionals exhibit previous knowledge about their clients' circumstances and experiences. METHODS:Conversation analysis is used to examine 12 staff-led meetings recorded in Italy (8 in a drug addiction TC; 4 in a mental he...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.10.006
更新日期：2016-06-01 00:00:00
abstract：OBJECTIVE:to get insight into healthcare professionals' current experience with, and views on consultation audio-recordings made on patients' initiative. METHOD:215 Dutch healthcare professionals (123 physicians and 92 nurses) working in oncology care completed a survey inquiring their experiences and views. RESULTS:...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.03.001
更新日期：2017-08-01 00:00:00
abstract：:In the Netherlands considerable attention has been given to dementia, but hardly any is paid to normal forgetfulness. Two information meetings about the differences between normal forgetfulness and dementia were organized in order to meet current information needs. Evaluation of those meetings gave more insight into t...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(94)90004-3
更新日期：1994-10-01 00:00:00
abstract：OBJECTIVE:To examine the information seeking behavior and health literacy of caregivers of individuals living with spinal cord injury in Switzerland and their impact on the caregiving experience. METHODS:Nationwide survey of family caregivers of people with spinal cord injury (N = 717). Caregivers aged 18+ who assiste...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.02.024
更新日期：2020-08-01 00:00:00
