Abstract：
OBJECTIVE:To examine the information seeking behavior and health literacy of caregivers of individuals living with spinal cord injury in Switzerland and their impact on the caregiving experience. METHODS:Nationwide survey of family caregivers of people with spinal cord injury (N = 717). Caregivers aged 18+ who assisted with activities of daily living were included. Self-reported information seeking behavior, including topics, preferred sources, and health literacy were assessed and analyzed. RESULTS:Health professionals were the most trusted source of information. Among information-seekers, higher health literacy levels were shown to be associated with lower subjective caregiver burden and, in turn, with higher caregivers' satisfaction with own health. CONCLUSION:Caregivers use information on different topics and coming from different sources. In order for information to improve the caregiving experience, however, caregivers need health literacy skills to make sense of it. PRACTICE IMPLICATIONS:Building health literacy is a promising approach to support caregivers in their activities, reduce their subjective burden, and even to improve their health. Interventions should consider involving health professionals, as the most trusted source of information, and address both health-related and more practical issues.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Diviani N,Zanini C,Jaks R,Brach M,Gemperli A,Rubinelli Sdoi
10.1016/j.pec.2020.02.024subject
Has Abstractpub_date
2020-08-01 00:00:00pages
1531-1537issue
8eissn
0738-3991issn
1873-5134pii
S0738-3991(20)30095-1journal_volume
103pub_type
杂志文章abstract：:Females, especially older women, historically have been excluded from coronary heart disease (CHD) studies. The PrimeTime program was a randomized clinical trial designed to study the effects of a comprehensive lifestyle management program (very low-fat vegetarian diet, smoking cessation, stress-management training, m...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/s0738-3991(98)00074-3
更新日期：1998-11-01 00:00:00
abstract：OBJECTIVE:To evaluate studies that examined the impact of interactive, computer-based education (ICBE) programs on patient education. METHODS:The Medline and CINAHL databases were searched to identify randomized controlled studies that evaluated the impact of ICBE programs. RESULTS:The 25 studies that met the selecti...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2009.02.011
更新日期：2009-10-01 00:00:00
abstract：:This study aimed to identify factors which predict participation of drug users in HIV-1 antibody testing. The study was part of a randomized controlled trial of three small group AIDS educational programs, in a 21-day in-patient drug detoxification and rehabilitation program. Subjects (n = 497) were clients admitted t...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/0738-3991(94)90070-1
更新日期：1994-12-01 00:00:00
abstract：OBJECTIVE:To investigate 1) younger (< 65) and older (> 65) adults' preference for and understanding of graph formats presenting risk information, and 2) the contribution of age, health literacy, numeracy and graph literacy in understanding information. MATERIALS AND METHODS:To assess preferences, participants (n = 21...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.06.031
更新日期：2021-01-01 00:00:00
abstract：:An explanatory framework, referred to as the attitude/social influence/self-efficacy-model (ASE-model), was utilised to explain future self-reported adherence of adolescents to daily inhaled prophylactic asthma medication. The objective was to investigate the long-term influence of these earlier reported cognitive var...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(01)00195-1
更新日期：2002-06-01 00:00:00
abstract：OBJECTIVE:Our aim was to develop a measurement which enables research into the interdependent nature of clinical encounters. The prime objective was to develop an instrument capable of assessing the extent to which patients have been involved in (shared) decision making from two viewpoints-that of the patient and the c...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.07.009
更新日期：2010-02-01 00:00:00
abstract：OBJECTIVE:To describe ethnic disparities in parental confidence managing child weight-related behaviors. METHODS:This was a cross-sectional survey of 59 parents of children with obesity between 4 and 7 years of age presenting to a tertiary care pediatric weight management clinic. Parents completed a validated measure ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.10.016
更新日期：2015-01-01 00:00:00
abstract：:Chronic obstructive pulmonary disease (COPD) is a systemic disease with major impact worldwide. In the treatment of COPD a holistic approach should be taken. In order to reach this, an individual treatment plan should be made which includes at least elements of smoking cessation, optimisation of pulmonary status by ph...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/S0738-3991(03)00095-8
更新日期：2004-03-01 00:00:00
abstract：:This study aims to find out how hospital patients in Finland perceive and evaluate the education they receive. It represents the first part of a patient education project at one university hospital in which the ultimate goal is to support patients' decision-making and self-care and in this way to facilitate the indepe...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(02)00223-9
更新日期：2003-11-01 00:00:00
abstract：OBJECTIVE:Our objective was to evaluate the utility of an educational program consisting of a workshop based on the Take the HEAT communication strategy, designed specifically for addressing patients who are angry, using a novel tool to evaluate residents' skills in employing this method. METHODS:33 first-year pediatr...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.12.012
更新日期：2017-06-01 00:00:00
abstract：OBJECTIVE:To examine patients' use of medication management strategies (e.g., reminders, pill boxes), and to determine how their use influences the relationship between patient characteristics and medication adherence. METHODS:Retrospective and cross-sectional study of 434 patients with coronary heart disease, examini...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.04.030
更新日期：2010-11-01 00:00:00
abstract：OBJECTIVE:It was hypothesized that parents exposed to a communication skills intervention would participate (e.g., ask questions, express concerns) in a pre-surgical consultation more than parents in the control group. METHODS:Sixty-five parents of prospective pediatric surgery patients were randomly assigned to eithe...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2013.03.015
更新日期：2013-10-01 00:00:00
abstract：:Despite believing end-of-life (EOL) discussions with patients are important, doctors often do not have them. Multiple factors contribute to this shortfall, which interventions including reimbursement changes and communication skills training have not significantly improved to date. One commonly cited but under-researc...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.12.008
更新日期：2018-05-01 00:00:00
abstract：OBJECTIVE:To investigate parents' experiences and views of clinician communication during primary care consultations for respiratory tract infections (RTIs) in children under 12. METHODS:Semi-structured interviews with 30 parents who had recently consulted for RTI in their child. Purposive sampling was used to intervi...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.01.010
更新日期：2014-05-01 00:00:00
abstract：OBJECTIVE:To explore whether reversibility, decision timing, and uncertainty are relevant to men deciding on treatment for localized prostate cancer (LPC). DESIGN:Secondary qualitative data analysis of unstructured interviews. METHODS:Content analysis of previously collected qualitative data (31 individual interviews...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.03.017
更新日期：2009-11-01 00:00:00
abstract：OBJECTIVE:To investigate the effectiveness of a TTM-based motivational counselling approach by trained practice nurses to promote physical activity of low back pain patients in a German primary care setting. METHODS:Data were collected in a cluster-randomized controlled trial with three study arms via questionnaires a...
journal_title：Patient education and counseling
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1016/j.pec.2007.09.018
更新日期：2008-01-01 00:00:00
abstract：PURPOSE:This study examined whether higher levels of self-reported cultural competency training were associated with less anti-gay bias among a cancer healthcare provider sample (n = 404) recruited in January 2017. METHODS:A factorial analysis of variance (ANOVA) was performed to examine anti-gay bias across professio...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.12.022
更新日期：2020-12-25 00:00:00
abstract：:General practitioners' (GPs') anti-smoking advice promotes patients' smoking cessation but little is known about how GPs use their short consultations to give advice. We used semi-structured interviews with 27 UK GPs to investigate how GPs believe they should advise smokers to stop and the reasons underpinning these b...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(03)00020-x
更新日期：2004-02-01 00:00:00
abstract：:There are several instruments to assess how patients evaluate their medical treatment choice. These are used to evaluate decision aids. Our objective is to investigate which psychological factors play a role when patients evaluate their medical treatment choices. A pool of 36 items was constructed, covering concepts s...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.07.010
更新日期：2005-06-01 00:00:00
abstract：OBJECTIVES:To examine how medical students notice issues in a vignette and construct their meaning, and how this construction influences their plan to communicate with the patient. METHODS:Following a breaking bad news course for 112 senior medical students, we qualitatively analyzed the participants' written descript...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.04.004
更新日期：2018-09-01 00:00:00
abstract：OBJECTIVE:The objectives of this study were to identify nutrition communication styles of Dutch GPs, their strategies regarding nutrition communication and nutrition information seeking behaviours. Another aim is to provide a hypothetical model for nutrition communication style, including psycho-social and socio-demogr...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2005.09.001
更新日期：2006-10-01 00:00:00
abstract：:Upper gastrointestinal symptoms are a common complaint among the general population but only a small proportion of sufferers seek medical advice. The aim of this study was to examine what kind of perceptions persons using self medication have about the causes of their gastrointestinal symptoms, whether they have made ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(98)00103-7
更新日期：1999-05-01 00:00:00
abstract：OBJECTIVE:To develop an observational coding instrument for evaluating the fidelity and quality of brief behavioral change interventions based on the behavioral theories of the 5 A's, Stages of Change and Motivational Interviewing. METHODS:Content and face validity were assessed prior to an intervention where psychome...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.04.012
更新日期：2011-04-01 00:00:00
abstract：OBJECTIVE:Recent studies have recognised that the communication skills learned in the training environment are not always transferred back into the clinical setting. This paper reports a study which investigated the potential of clinical supervision in enhancing the transfer process. METHODS:A randomised controlled tr...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2005.08.008
更新日期：2006-03-01 00:00:00
abstract：:Patient delay is the interval between the day someone first becomes aware of an unexplained symptom and the day they seek medical consultation. This pre-diagnostic period is comprised of several stages which may involve delay on the part of the individual. This study investigated factors influencing the process of det...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(00)00104-x
更新日期：2001-02-01 00:00:00
abstract：:Deregulation of emergency contraceptive pills (ECP) has led to pharmacy staff becoming a new provider group of ECP, together with nurse-midwives, who are already experienced in prescribing contraceptives. This postal questionnaire survey aimed to assess practices and attitudes towards ECP and the over-the-counter (OTC...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2003.08.008
更新日期：2004-10-01 00:00:00
abstract：OBJECTIVE:Patient-provider communication is critical in primary care. Canada's unique health system, population distribution, and cultural context suggest there is value in addressing the topic in the Canadian context. We conducted a scoping review to synthesize recent Canadian literature to inform practice in primary ...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2017.11.008
更新日期：2018-05-01 00:00:00
abstract：:Twelve physicians, 33 nurses, and 30 patients completed questionnaires to elicit similarities and differences in perceptions of educational needs of post-myocardial infarction (MI) patients. Results, using chi-square analysis, indicated that the three groups generally agreed upon which areas should be included in educ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(84)90038-7
更新日期：1984-01-01 00:00:00
abstract：:A randomised controlled trial, involving 112 adolescents with asthma, and a 2-year follow-up was conducted to assess the impact of an intervention programme aimed at enhancing adherence to asthma medication. This programme had a duration of 1 year and consisted of an experimental group which received usual care from a...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,多中心研究,随机对照试验
doi：10.1016/s0738-3991(00)00195-6
更新日期：2001-09-01 00:00:00
abstract：:This paper describes a paper and pencil questionnaire that measures heart disease risk knowledge in people with diabetes. The Heart Disease Fact Questionnaire (HDFQ) is a 25-item questionnaire that was developed to tap into respondents' knowledge of major risk factors for the development of CHD. Approximately half of ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.07.004
更新日期：2005-07-01 00:00:00
