Abstract:
OBJECTIVE:We assessed the information needs of persons with any of three immune-mediated inflammatory diseases (multiple sclerosis [MS], inflammatory bowel disease [IBD] and rheumatoid arthritis [RA]) regarding depression, as a first step toward developing patient-relevant information resources, ultimately to facilitate self-management and appropriate care. We also compared information needs across genders. METHODS:We surveyed participants with MS, IBD and RA regarding depression-related information needs including types of treatments, effectiveness, risks, benefits, and perceived helpfulness of treatments. We compared responses between groups using multivariate regression. RESULTS:328 participants provided complete responses (MS: 141, IBD: 114, RA: 73). Most of the topics queried were perceived as very important, and similarly important for all groups. Women placed higher importance than men on most topics. The most popular formats for receiving information were discussion with a counselor (very preferred: 67.4%) and written information (very preferred: 65.5%); this did not differ between groups. CONCLUSIONS:Persons affected by MS, IBD and RA are interested in receiving information about multiple topics related to depression treatment, from multiple sources. Women desire more information than men. PRACTICE IMPLICATIONS:These findings can be used to design information resources to meet information needs regarding depression in MS, IBD and RA.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Marrie RA,Walker JR,Graff LA,Patten SB,Bolton JM,Marriott JJ,Fisk JD,Hitchon C,Peschken C,Bernstein CN,CIHR Team in Defining the Burden and Managing the Effects of Immune-mediated Inflammatory Disease.doi
10.1016/j.pec.2019.04.007subject
Has Abstractpub_date
2019-09-01 00:00:00pages
1722-1729issue
9eissn
0738-3991issn
1873-5134pii
S0738-3991(19)30132-6journal_volume
102pub_type
杂志文章abstract::This prospective study evaluated the effect of an individualized, comprehensive, home-based cardiac rehabilitation program combining exercise training with risk factor modification and psychosocial counseling on risk factors, psychological well-being, functional capacity, and work resumption in 99 post-percutaneous co...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(00)00164-6
更新日期:2001-06-01 00:00:00
abstract::Previous studies reported inconsistent relationship between the preference for information and that for decisional autonomy in medical encounters. We hypothesized that the relationship may be dependent on people's attribution beliefs on health. To test the hypothesis, demographically representative sample of Japanese ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2003.09.010
更新日期:2004-11-01 00:00:00
abstract:OBJECTIVE:A systematic review and qualitative synthesis was undertaken to deduce the knowledge, attitudes, skills and training of mental health professionals regarding complicated grief (CG). METHODS:PsychInfo, Embase, Medline, CINAHL, PBSC, Web of Science and ERIC databases were used to identify relevant literature. ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2017.03.010
更新日期:2017-08-01 00:00:00
abstract:OBJECTIVE:This paper describes a translational project that explored the feasibility and effect of introducing a coordinated approach to emotional care. METHODS:The project was undertaken using Action Research on one ward at St John of God Hospital Subiaco, Western Australia. A senior Registered Nurse was appointed to...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.04.011
更新日期:2008-10-01 00:00:00
abstract::This study examined interactions between doctors and their chronic pain patients in the context of investigations for medically unexplained pain. Doctor-patient interactions were explored through the analysis of the accounts of the communication process in the chronic pain consultation of 20 chronic pain patients with...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/S0738-3991(03)00105-8
更新日期:2004-03-01 00:00:00
abstract:OBJECTIVE:To validate electronic prescriptions (e-prescriptions) as a method for measuring treatment adherence in patients with hypertension. METHODS:This prospective study initially included 120 patients treated for hypertension in primary care centers. Adherence was measured using the gold standard, the medication e...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.04.009
更新日期:2018-09-01 00:00:00
abstract:OBJECTIVE:The implementation of patient-centered care (PCC) innovations continues to be poorly understood. We used the implementation effectiveness framework to pilot a method for measuring the impact of a PCC innovation in primary care practices. METHODS:We analyzed data from a prior study that assessed the implement...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.09.009
更新日期:2014-12-01 00:00:00
abstract:OBJECTIVE:To explore the association between frailty and medication adherence by modeling medication beliefs (i.e., necessity and concerns) as mediators among community-dwelling older patients. METHODS:This cross-sectional study was conducted among 780 Chinese older patients. Frailty, medication adherence and medicati...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.05.013
更新日期:2020-05-15 00:00:00
abstract:OBJECTIVE:The purpose of this study was to gain a greater understanding of the potential mechanisms of life coaching in relation to young people with Type 1 diabetes (T1DM); including how it influences their motivation and their ability to see opportunities and overcome barriers. METHODS:Within the theoretical framewo...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.10.010
更新日期:2020-03-01 00:00:00
abstract::Attention to providers' communication skills is likely to increase, given the confluence of forces that have highlighted the importance of communication in healthcare. In the United States, interpersonal and communication skills have been explicitly identified as a priority throughout the continuum of medical educatio...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(03)00085-5
更新日期:2003-05-01 00:00:00
abstract::In the Netherlands considerable attention has been given to dementia, but hardly any is paid to normal forgetfulness. Two information meetings about the differences between normal forgetfulness and dementia were organized in order to meet current information needs. Evaluation of those meetings gave more insight into t...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(94)90004-3
更新日期:1994-10-01 00:00:00
abstract:OBJECTIVES:As communication is a central part of every interpersonal meeting within healthcare and research reveals several benefits of effective communication, we need to teach students and practitioners how to communicate with patients and with colleagues. This paper reflects on what and how to teach. METHODS:In the...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.08.011
更新日期:2015-10-01 00:00:00
abstract:OBJECTIVE:The use of the diabetes online community (DOC) is growing across all age groups. The aim of this exploratory study was to describe why older adults participated in the DOC, and how DOC users interacted with their healthcare providers. METHODS:Telephone interviews (N=20) were conducted with older adult DOC us...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.08.023
更新日期:2018-03-01 00:00:00
abstract:OBJECTIVE:Children living with parental cancer are vulnerable to distress and developmental disruption. This review aims to identify current interventions to support cancer patients' children and summarise how effective these are based on children's reports. METHODS:Between 25 May 2015 and 6 August 2018, a broad searc...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.05.001
更新日期:2019-10-01 00:00:00
abstract::Determinants of compliance with a 6-month diet and exercise program were studied among 118 healthy middle-aged men with risk factors for coronary heart disease (CHD). Data were gathered via medical examinations, interviews and questionnaires. Smoking, high levels of hostility, perception of barriers to diet change and...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(96)00917-2
更新日期:1996-12-01 00:00:00
abstract:OBJECTIVE:General practitioner (GP) registrars often express the need for more expertise of non-pharmacological treatments for patients with mental health problems. Problem-solving treatment (PST) could be an attractive option. We aimed to explore GP registrars' views on PST-training during residency and on the actual ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.07.045
更新日期:2011-10-01 00:00:00
abstract:OBJECTIVE:This article delineates theory-based determinants of the low use of behavioral stop-smoking support with a view to inform interventions to address the low use. METHODS:Study 1 comprised interviews with 27 smokers recruited from a primary care centre in England. Study 2 used a nationwide sample of 212 smokers...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.10.007
更新日期:2010-05-01 00:00:00
abstract:OBJECTIVE:This study describes the development of the Health Coaching Index (HCI), an observational tool for assessing fidelity to implementing health coaching practical skills. METHODS:Initial HCI items were developed, adapted following cognitive interviews, and refined during coding training. Participants (n = 42) w...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.08.040
更新日期:2020-09-09 00:00:00
abstract::Art That Heals developed five programs at the UCLA Medical Center/Cancer Center which used arts interventions to reduce stress and facilitate coping with hospitalization. These experiences were well received by patients and nursing staff. Educational modules were developed so that others may learn from these program m...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(93)90064-4
更新日期:1993-06-01 00:00:00
abstract:OBJECTIVES:This study aimed to investigate patients' willingness to initiate a preventive treatment and compared two established effect measures to the newly developed Delay of Events (DoE) measure that expresses treatment effect as a gain in event-free time. METHODS:In this cross-sectional, randomized survey experime...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2016.07.028
更新日期:2016-12-01 00:00:00
abstract:OBJECTIVE:In an effort to examine the decreasing oral health trend of Australian dental patients, the Health Belief Model (HBM) was utilised to understand the beliefs underlying brushing and flossing self-care. The HBM states that perception of severity and susceptibility to inaction and an estimate of the barriers and...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.06.014
更新日期:2010-02-01 00:00:00
abstract::This study aims to find out how hospital patients in Finland perceive and evaluate the education they receive. It represents the first part of a patient education project at one university hospital in which the ultimate goal is to support patients' decision-making and self-care and in this way to facilitate the indepe...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00223-9
更新日期:2003-11-01 00:00:00
abstract::Self-instruction is one means of providing patient education, allowing the health professional to teach a larger number of persons than with one-to-one or group instruction and at a lower cost. The purpose of this study was to examine the effects of self-instruction on learning, satisfaction with the teaching approach...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
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更新日期:1986-09-01 00:00:00
abstract:OBJECTIVE:Lower health literacy is associated with poorer health outcomes. Few interventions poised to mitigate the impact of health literacy in hypertensive patients have been published. We tested if a multi-level quality improvement intervention could differentially improve Systolic Blood Pressure (SBP) more so in pa...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.10.015
更新日期:2017-03-01 00:00:00
abstract:OBJECTIVE:The objective of this study was to examine the perceptions of men, practice nurses (PNs) and general practitioners (GPs) on patient decision coaching for prostate cancer screening. METHODS:Seven focus groups were conducted with 47 participants, representing three stakeholder groups - men, GPs and PNs. All fo...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.01.003
更新日期:2018-05-01 00:00:00
abstract:OBJECTIVE:The research findings reported here describe the importance and various functions of physician listening according to patients. METHODS:Fifty-eight patients of the McGill University Health Centre were interviewed using a qualitative, interpretive design approach. RESULTS:Patients explained why listening was...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.01.028
更新日期:2011-12-01 00:00:00
abstract::In order to understand the problems of unwanted infertility in a country--the Gambia--where the desire for children and the fertility is very high, a population-based survey was undertaken. All infertile women in 24 randomly selected enumeration areas were assessed. The study included a review of the problems faced an...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(97)01006-9
更新日期:1997-05-01 00:00:00
abstract:OBJECTIVE:The VR-CoDES has been previously applied in the dental context. However, we know little about how dental patients with intellectual disabilities (ID) and complex communication needs express their emotional distress during dental visits. This is the first study explored the applicability of the VR-CoDES to a d...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.07.023
更新日期:2014-11-01 00:00:00
abstract:UNLABELLED:In this study we examine which factors are related to compliance with medication in patients suffering from rheumatoid arthritis (RA). PATIENTS:persons suffering recently developed, active RA, who cooperated in a randomized study on the effect of patient education. We analyzed the relation between adherence...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
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更新日期:1999-01-01 00:00:00
abstract:OBJECTIVE:To identify the communication skills medical trainees perceive themselves to avoid or use during initial clinical encounters and the areas of communication learning need they identify. METHODS:446 2nd year undergraduate medical students were invited to take part in the study. Details of four encounters with ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.01.026
更新日期:2011-11-01 00:00:00