Preferences for disclosing adverse childhood experiences for children and adults with cystic fibrosis.

Abstract:

INTRODUCTION:The 2017-2018 National Survey of Children's Health estimates that 30 million (42%) US children have experienced at least one adverse childhood experience (ACE), including abuse, neglect, and household dysfunction. ACEs negatively impact long-term health, and there has been no study of ACEs in cystic fibrosis (CF). We assessed willingness to disclose ACEs experienced by children with CF by surveying their parents and adults with CF. METHODS:We anonymously surveyed parents of children with CF and adults with CF at the Northwestern University/Lurie Children's CF Center to determine their willingness to disclose ACEs. RESULTS:The survey was completed by 46/157 (29%) parents and 36/105 (34%) adults with CF. Few parents (22%) and adults (17%) were willing to discuss most or all specific ACEs, more were willing to disclose the number of ACEs experienced in a category (57% parents, 47% adults), and the majority were willing to participate in anonymous research about ACEs (76% parents, 67% adults). Most parents (63%) and adults (50%) would prefer to have ACEs screened separately from their CF appointment, and most parents (63%) and adults (56%) wanted to learn more about ACEs from a member of their care team. CONCLUSIONS:Participants preferred to disclose the number of categorical ACEs rather than specific ACEs and most were open to participating in anonymous ACEs research. More research is needed before implementing screening. Educating patients, parents, and providers about ACEs and appropriate interventions when ACES are identified is needed for both research and clinical applications of ACEs screening.

journal_name

Pediatr Pulmonol

journal_title

Pediatric pulmonology

authors

Williams WA 2nd,Jain M,Laguna TA,McColley SA

doi

10.1002/ppul.25243

subject

Has Abstract

pub_date

2020-12-26 00:00:00

eissn

8755-6863

issn

1099-0496

pub_type

杂志文章
  • FGR in the setting of preterm sterile intra-uterine milieu is associated with a decrease in RDS.

    abstract:OBJECTIVE:To determine if fetal growth restriction (FGR) in the setting of sterile intra-uterine milieu would be associated with a decrease in respiratory distress syndrome (RDS) of preterm-neonates. METHODS:The relationship between FGR and neonatal RDS was examined in 92 singleton preterm-neonates (gestational age [G...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.23369

    authors: Park CW,Park JS,Jun JK,Yoon BH

    更新日期:2016-08-01 00:00:00

  • Pneumococcal serogroups and serotypes in severe pneumococcal pneumonia in Belgian children: theoretical coverage of the 7-valent and 9-valent pneumococcal conjugate vaccines.

    abstract:BACKGROUND:Although the causative pneumococcal serotypes of invasive diseases are already extensively studied, few data are available about the pneumococcal serotypes additionally isolated from broncho-alveolar lavage samples in childhood pneumonia. STUDY AIM:To identify the causative pneumococcal serotypes in culture...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.20437

    authors: De Schutter I,Malfroot A,Piérard D,Lauwers S

    更新日期:2006-08-01 00:00:00

  • Treatment of pediatric pulmonary arterial hypertension: A focus on the NO-sGC-cGMP pathway.

    abstract:OBJECTIVE:While pulmonary arterial hypertension (PAH) is rare in infants and children, it results in substantial morbidity and mortality. In recent years, prognosis has improved, coinciding with the introduction of new PAH-targeted therapies, although much of their use in children is off-label. Evidence to guide the tr...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章,评审

    doi:10.1002/ppul.24442

    authors: Beghetti M,Gorenflo M,Ivy DD,Moledina S,Bonnet D

    更新日期:2019-10-01 00:00:00

  • Conservative management of pediatric tracheal rupture.

    abstract::Traumatic injuries to the pediatric trachea are uncommon events that require prompt diagnosis and management. When they do occur, tracheal injuries often arise in the setting of high impact trauma and are accompanied by major injuries to other organ systems. In this report, we present the diagnosis and conservative ma...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.23507

    authors: Sidell DR,Wood RE,Hart CK

    更新日期:2017-01-01 00:00:00

  • Aerosol delivery to wheezy infants: a comparison between a nebulizer and two small volume spacers.

    abstract::Inhalation therapy for wheezy infants with either a nebulizer or a pressurized metered-dose inhaler (pMDI) through a spacer is common practice. The aim of our study was to compare aerosol delivery to wheezy infants from a nebulizer and from a pMDI via two small volume spacers. Twenty wheezy infants (aged 4-12 months) ...

    journal_title:Pediatric pulmonology

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1002/(sici)1099-0496(199703)23:3<212::aid-ppul7

    authors: Wildhaber JH,Devadason SG,Hayden MJ,Eber E,Summers QA,LeSouëf PN

    更新日期:1997-03-01 00:00:00

  • Lung function among infants born preterm, with or without bronchopulmonary dysplasia.

    abstract:OBJECTIVE:Both healthy preterm infants and those with bronchopulmonary dysplasia (BPD) have poor lung function during childhood and adolescence, although there is no evidence whether prematurity alone explains the reduction in lung function found in BPD infants. Our study seeks to know if lung function, measured in inf...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.21609

    authors: Sanchez-Solis M,Garcia-Marcos L,Bosch-Gimenez V,Pérez-Fernandez V,Pastor-Vivero MD,Mondéjar-Lopez P

    更新日期:2012-07-01 00:00:00

  • New indicators for optimal lung recruitment during high frequency oscillator ventilation.

    abstract::Previous research has demonstrated the potential benefit derived from the combination of high frequency oscillatory ventilation and volume guarantee mode (HFOV-VG), a procedure that allows us to explore and control very low tidal volumes. We hypothesized that secondary spontaneous change in oscillation pressure amplit...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.25084

    authors: Rodríguez Sánchez de la Blanca A,Sánchez Luna M,González Pacheco N,Ramos Navarro C,Santos González M,Tendillo Cortijo F

    更新日期:2020-12-01 00:00:00

  • An infant with a hyperlucent chest mass: An unexpected diagnosis.

    abstract:INTRODUCTION:We report an unusual finding of pneumatocele in an infant. CASE REPORT:A previously well four month old presented with worsening respiratory distress over 6 weeks. He had no antecedent signs or symptoms of respiratory infection. Chest radiograph demonstrated a lucent hemithorax concerning for tension pneu...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.23257

    authors: Ehsan Z,Nathan JD,Kercsmar CM

    更新日期:2015-12-01 00:00:00

  • Predictive value of pulmonary function testing during pulmonary exacerbations in cystic fibrosis.

    abstract::The optimal duration of therapy for acute exacerbations of cystic fibrosis (CF) has not been defined, and the utility of serial pulmonary function testing in predicting the duration of therapy has yet to be established. In a review of 90 pulmonary exacerbations of 39 patients with CF requiring hospitalization, we foun...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.1950160404

    authors: Rosenberg SM,Schramm CM

    更新日期:1993-10-01 00:00:00

  • Validation of the pediatric sleep questionnaire in children with asthma.

    abstract:OBJECTIVE:The prevalence of obstructive sleep apnea (OSA) is higher in children with poorly controlled asthma. We aimed to determine the validity of the Pediatric Sleep Questionnaire (PSQ) to screen for OSA in children with asthma. METHODS:This retrospective review encompassed sleep studies and medical records of asth...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.23568

    authors: Ehsan Z,Kercsmar CM,Collins J,Simakajornboon N

    更新日期:2017-03-01 00:00:00

  • Occlusion of an aberrant artery to an intralobar pulmonary sequestration using an Amplatzer Vascular Plug.

    abstract::Pulmonary sequestration is a rare anomaly and is conventionally treated with surgical excision. This report describes the successful occlusion of a large aberrant artery to an intralobar pulmonary sequestration using an Amplatzer Vascular Plug. ...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.20882

    authors: Hwang HK,Tsai YS,Lin SM,Chen MR

    更新日期:2008-09-01 00:00:00

  • Treatment effect of idebenone on inspiratory function in patients with Duchenne muscular dystrophy.

    abstract::Assessment of dynamic inspiratory function may provide valuable information about the degree and progression of pulmonary involvement in patients with Duchenne muscular dystrophy (DMD). The aims of this study were to characterize inspiratory function and to assess the efficacy of idebenone on this pulmonary function o...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1002/ppul.23547

    authors: Buyse GM,Voit T,Schara U,Straathof CS,D'Angelo MG,Bernert G,Cuisset JM,Finkel RS,Goemans N,Rummey C,Leinonen M,Mayer OH,Spagnolo P,Meier T,McDonald CM,DELOS Study Group.

    更新日期:2017-04-01 00:00:00

  • Flexible bronchoscopy in pediatric intensive care.

    abstract:OBJECTIVE:To define the benefits of a flexible bronchoscopy (FB) service in a Paediatric Intensive Care Unit (PICU). DESIGN:Review of the first 200 FBs undertaken in a large PICU. SETTING:Large cardiac and medical PICU in the United Kingdom, also providing extra-corporeal life support. PATIENTS:129 patients (78 male...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.20910

    authors: Davidson MG,Coutts J,Bell G

    更新日期:2008-12-01 00:00:00

  • The ontogeny of human pulmonary angiotensin-converting enzyme and its aberrant expression may contribute to the pathobiology of bronchopulmonary dysplasia (BPD).

    abstract:INTRODUCTION:The mammalian lung possesses the highest level of angiotensin converting enzyme (ACE) amongst all the organs. ACE is known to generate angiotensin (AT)-II from AT-I and to regulate serum bradykinin level, thereby controlling blood pressure. Recent data, however, indicate a role for ACE derived AT-II in ang...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.22911

    authors: Castro EC,Parks WT,Galambos C

    更新日期:2014-10-01 00:00:00

  • Effect of night symptoms and disease severity on subjective sleep quality in children with non-cystic-fibrosis bronchiectasis.

    abstract:BACKGROUND:Night-time symptoms and hypoxemia during sleep may affect sleep quality in children with chronic lung disease such as bronchiectasis. Poor sleep quality may impair growth, learning, and emotional development of children. Our aim was to assess the sleep quality and associated factors in children with non-cyst...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.21454

    authors: Erdem E,Ersu R,Karadag B,Karakoc F,Gokdemir Y,Ay P,Akpinar IN,Dagli E

    更新日期:2011-09-01 00:00:00

  • Relief of central airways obstruction following spinal release in a patient with idiopathic scoliosis.

    abstract::SUMMARY. Patients with idiopathic scoliosis are reported to have a restrictive pattern on pulmonary function tests. A case is presented of a teenage girl with juvenile idiopathic scoliosis who had evidence of airways obstruction in addition to restriction on pulmonary function tests (PFT). Examination of flow-volume l...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/1099-0496(200101)31:1<86::aid-ppul1012>3.0

    authors: Borowitz D,Armstrong D,Cerny F

    更新日期:2001-01-01 00:00:00

  • Modifiable lifestyle factors impact airway health in non-asthmatic prepubescent boys but not girls.

    abstract:INTRODUCTION:The prevalence of both childhood obesity and childhood asthma has increased dramatically over the past few decades. Little is known concerning the role of body composition and lifestyle influences on airway health in children. PURPOSE:To determine whether body composition, fruit and vegetable intake (FV) ...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.21393

    authors: Rosenkranz SK,Swain KE,Rosenkranz RR,Beckman B,Harms CA

    更新日期:2011-05-01 00:00:00

  • Efficacy of corticosteroids in acute bronchiolitis: short-term and long-term follow-up.

    abstract::Corticosteroids continue to be used by many physicians to treat infants with bronchiolitis. The aim of this study was to examine the short-term and long-term efficacy of oral corticosteroid therapy when added to beta2-agonists in infants with mild to moderate bronchiolitis (defined as the first episode of wheezing ass...

    journal_title:Pediatric pulmonology

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1002/(sici)1099-0496(199809)26:3<162::aid-ppul2

    authors: Berger I,Argaman Z,Schwartz SB,Segal E,Kiderman A,Branski D,Kerem E

    更新日期:1998-09-01 00:00:00

  • Asthma-like symptoms as a presentation of antiphospholipid syndrome.

    abstract::We herein report a case of antiphospholipid syndrome (APS) primarily presenting with asthma-like symptoms that had been misdiagnosed as severe asthma. Patients presenting with severe asthma symptoms along with systemic thrombosis should be systematically evaluated for APS. ...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.23079

    authors: Veskitkul J,Ruangchira-urai R,Charuvanij S,Pongtanakul B,Udomittipong K,Vichyanond P

    更新日期:2015-02-01 00:00:00

  • Cystic fibrosis database (CFDB): a new web-based tool for cystic fibrosis specialists.

    abstract::In order to help specialists involved in CF care and clinical research to know the current best evidence about clinical effectiveness of interventions in CF, we designed and developed a web-based, free access tool called "CFDB"--Cystic Fibrosis DataBase (www.inetflow.it/CFDB). The database was built by searching in Me...

    journal_title:Pediatric pulmonology

    pub_type: 信件

    doi:10.1002/ppul.22954

    authors: Buzzetti R,Cirilli N,Minicucci L,Raia V,Salvatore D,Maffeis P

    更新日期:2014-09-01 00:00:00

  • Dalhousie dyspnea scales: Pictorial scales to measure dyspnea during induced bronchoconstriction.

    abstract::The aim of this study was to validate our Dalhousie Dyspnea Scales in children referred for histamine bronchoprovocation challenge. Seventy-four children rated their dyspnea after each FEV(1) measurement following inhalation of doubling histamine concentrations from 0.125 to 8.0 mg/ml by the standard tidal breathing m...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.20512

    authors: Pianosi P,Smith CP,Almudevar A,McGrath PJ

    更新日期:2006-12-01 00:00:00

  • Inadvertent removal of foreign body via a flexible fiberoptic bronchoscope in a 4-year-old boy.

    abstract::We report the case of a 4-year-old child with an atypical presentation of an aspirated unwitnessed foreign body in the airway. During an attempt to obtain a biopsy of what appeared to be a mucosal growth, the foreign body was removed. This may be the first report of foreign body removal in a child this young, using a ...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.1950180113

    authors: Akhter J,Gaspar M,Bassuk A,Roberts J

    更新日期:1994-07-01 00:00:00

  • Pediatric pulmonology year in review 2016: Part 2.

    abstract::Pediatric Pulmonology continues to publish research and clinical topics related to the entire range of children's respiratory disorders. As we have done annually in recent years, we here summarize some of the past year's publications in our major topic areas, as well as selected literature in these areas from other co...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章,评审

    doi:10.1002/ppul.23719

    authors: Auten R,Ren C,Yilmaz O,Noah TL

    更新日期:2017-09-01 00:00:00

  • Interrupter technique in infancy: Higher airway resistance and lower short-term variability in preterm versus term infants.

    abstract:BACKGROUND:In preschool children, measurement of airway resistance using interrupter technique (Rint) is feasible to assess the degree of bronchial obstruction. Although some studies measured Rint in infancy, values of Rint and its variability in preterm infants are unknown. In this study, Rint and its variability was ...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.23771

    authors: Usemann J,Demann D,Anagnostopoulou P,Korten I,Gorlanova O,Schulzke S,Frey U,Latzin P

    更新日期:2017-10-01 00:00:00

  • Differential effects of chronic intermittent and chronic constant hypoxia on postnatal growth and development.

    abstract::Exposure to chronic constant or intermittent hypoxia (CCH or CIH) may have different effects on growth and development in early life. In this work, we exposed postnatal day 2 (P2) CD1 mice to CCH or CIH (11% O2) for 4 weeks and examined the effect of hypoxia on body and organ growth until P30. Regression analysis show...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.20729

    authors: Farahani R,Kanaan A,Gavrialov O,Brunnert S,Douglas RM,Morcillo P,Haddad GG

    更新日期:2008-01-01 00:00:00

  • US pediatric pulmonology workforce.

    abstract:AIM:Children with respiratory conditions benefit from care provided by pediatric pulmonologists. As these physicians are a small portion of the overall pediatric workforce, it is necessary to understand the practices and career plans of these specialists. METHODS:An internet survey was developed by the American Academ...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.24253

    authors: Harris C,Katkin J,Cataletto M,Dorkin H,Laskosz L,Ruch-Ross H

    更新日期:2019-04-01 00:00:00

  • Pediatrician intervention impacts parental smoking in cystic fibrosis, diabetes and bronchiolitis.

    abstract:BACKGROUND:Child exposure to cigarette smoke is harmful. It should be reduced through parental smoking cessation interventions. The aim of our study was to determine the impact of simple advice provided by the pediatrician on the smoking habits of parents of children with cystic fibrosis (CF), diabetes mellitus (DM) an...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.25277

    authors: Lafont M,Morin C,Arrouy A,Rabeau A,Labouret G,Roditis L,Michelet M,Mittaine M

    更新日期:2021-01-22 00:00:00

  • Early factors related to mortality in children treated with bi-level noninvasive ventilation and CPAP.

    abstract:OBJECTIVE:To describe and analyze the characteristics and the early risk factors for mortality of noninvasive ventilation (NIV) in critically ill children. STUDY DESIGN:A multicenter, prospective, observational 2-year study carried out with critically ill patients (1 month - 18 years of age) who needed NIV. Clinical d...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.25246

    authors: López J,Pons-Òdena M,Medina A,Molinos-Norniella C,Palanca-Arias D,Demirkol D,León-González JS,López-Fernández YM,Perez-Baena L,López-Herce J,NIV Research Group.

    更新日期:2020-12-31 00:00:00

  • Spontaneous hemopneumothorax simulating acute abdominal affections.

    abstract::Spontaneous hemopneumothorax (SHP) is a rare potentially life-threatening condition that occurs in predominantly young adolescents. The resultant massive hemorrhage leading to hypovolemic shock can be a surgical emergency. It constitutes 1-12% of all spontaneous pneumothoraces and presents with two cardinal features, ...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.22712

    authors: Chen TH,Tseng YH,Tseng CM,Chiang HH,Lin TJ

    更新日期:2014-01-01 00:00:00

  • Nonbronchoscopic approach to bronchoalveolar lavage in children with artificial airways.

    abstract::Bronchoalveolar lavage (BAL) performed with a fiberoptic bronchoscope (FOB) is a useful method for sampling alveolar contents. Since the smallest FOB with a channel has a diameter of 3.6 mm, BAL is difficult to accomplish through artificial airways (AA) less than 5.0 mm I.D. We used a 4F balloon wedge pressure cathete...

    journal_title:Pediatric pulmonology

    pub_type: 杂志文章

    doi:10.1002/ppul.1950130110

    authors: Alpert BE,O'Sullivan BP,Panitch HB

    更新日期:1992-05-01 00:00:00