Abstract：
AIMS:To describe the hospitalisation history in the first five years of life for all children born in Western Australia (WA) between 1983 and 1992 and diagnosed with intellectual disability (ID). METHODS:Unit record linkage of the WA Midwives Collection, WA Intellectual Disability Database, and the WA Hospital Morbidity Dataset provided the population database of WA born children with and without ID. Affected children were divided into those co-affected with autism spectrum disorders (ASD), and those whose ID had or had no known biomedical cause. Those without a biomedical cause were further subdivided into mild-moderate and severe categories. RESULTS:On average, ID affected children were more likely than non-affected children to be admitted to hospital (RR: 1.64; 95% CI 1.6 to 1.7), on more occasions (5.3 versus 2.2 admissions), for longer (29.6 versus 8.3 days), and for a larger range of clinical diagnoses. The only exception was the group of children co-diagnosed with ASD whose hospitalisation profile resembled more that of non-affected children. CONCLUSIONS:This total population study is unique because of the availability of the system of linkable population registers and administrative health databases in WA. The results indicated that this vulnerable population of children with ID has substantial medical needs. This paper points to the need for authorities to develop supportive programmes for this population especially in the current climate of de-medicalisation of ID. More research is not only needed on the welfare of the affected children but also on the impact of the substantial medical and other needs of affected children on the rest of their immediate and extended families.
journal_name
Arch Dis Childjournal_title
Archives of disease in childhoodauthors
Williams K,Leonard H,Tursan d'Espaignet E,Colvin L,Slack-Smith L,Stanley Fdoi
10.1136/adc.2004.062422subject
Has Abstractpub_date
2005-12-01 00:00:00pages
1243-8issue
12eissn
0003-9888issn
1468-2044pii
90/12/1243journal_volume
90pub_type
杂志文章,多中心研究abstract：OBJECTIVE:Despite growing interest in children and young people's (CYP) perspectives on healthcare, they continue to be excluded from many patient experience surveys. This study investigated the feasibility of, and additional information gained by, measuring CYP experiences of a recent hospital admission. DESIGN:Cross...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/archdischild-2017-313801
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abstract：:The role of budesonide in controlling chest symptoms in infants was assessed. It was administered from a metered dose inhaler into a large volume spacer (Nebuhaler) with attached Laerdal mask. Twenty nine infants were recruited into a double blind crossover trial. Five defaulted. The remaining 24 (mean age 11 months) ...
journal_title：Archives of disease in childhood
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1136/adc.67.3.285
更新日期：1992-03-01 00:00:00
abstract：:The relationship between the insulin-breakfast interval, postprandial increase in blood glucose, and glycaemic control was studied in 58 children with diabetes. Patients recorded insulin-breakfast intervals in a home diary over a seven day period, and during a 24 hour period at the weekend provided eight serial capill...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.71.3.248
更新日期：1994-09-01 00:00:00
abstract：:Retrospective analysis of glycosylated haemoglobin concentrations in a diabetic outpatient clinic over three and a half years showed a small seasonal variation in the mean value with a peak in mid February and a nadir in mid August. ...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.62.9.959
更新日期：1987-09-01 00:00:00
abstract：OBJECTIVE:To determine which antenatal and early-life factors were associated with infant postnatal growth in a resource-poor setting in Vietnam. STUDY DESIGN:Prospective longitudinal study following infants (n=1046) born to women who had previously participated in a cluster randomised trial of micronutrient supplemen...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/archdischild-2014-306328
更新日期：2015-02-01 00:00:00
abstract：OBJECTIVES:To assess the efficacy and safety of polyethylene glycol 3350 plus electrolytes (PEG+E) for the treatment of chronic constipation in children. DESIGN:Randomised, double blind, placebo controlled crossover trial, with two 2-week treatment periods separated by a 2-week placebo washout. SETTING:Six UK paediat...
journal_title：Archives of disease in childhood
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1136/adc.2006.115493
更新日期：2007-11-01 00:00:00
abstract：:In 100 patients with cystic fibrosis the severity of steatorrhoea was assessed by three separate methods. Using chemical faecal fat assay as the gold standard, two other rapid and inexpensive methods were compared with it. The steatocrit method proved unreliable in our hands and gave little indication of the presence ...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.65.1.99
更新日期：1990-01-01 00:00:00
abstract：OBJECTIVE:This study aimed to determine the glycaemic profile of patients with cystic fibrosis using a continuous glucose monitoring system (CGMS), and to evaluate the associations of glycaemic abnormalities with sex, age, pubertal stage, CFTR gene mutations, nutritional status, lung function, oral glucose tolerance te...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/archdischild-2017-314250
更新日期：2018-06-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.75.4.327
更新日期：1996-10-01 00:00:00
abstract：OBJECTIVE:To study the epidemiology of pyridoxine dependent seizures and other forms of pyridoxine responsive seizures. DESIGN:Monthly notifications to the British Paediatric Surveillance Unit over two years. Questionnaire follow up. SETTING:UK and the Republic of Ireland. PATIENTS:Children aged 15 years or younger ...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.81.5.431
更新日期：1999-11-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.76.4.349
更新日期：1997-04-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.2005.084996
更新日期：2006-04-01 00:00:00
abstract：:New charts for height, weight, height velocity, and weight velocity are presented for clinical (as opposed to population survey) use. They are based on longitudinal-type growth curves, using the same data as in the British 1965 growth standards. In the velocity standards centiles are given for children who are early- ...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.51.3.170
更新日期：1976-03-01 00:00:00
abstract：:Forty three infants were assigned randomly to a ready-to-feed infant formula or a standard formula that required reconstitution from powder. Despite similar nutrient composition of the two formulas those fed the powdered formula had significantly increased body weight and skinfold thickness gains, and became significa...
journal_title：Archives of disease in childhood
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1136/adc.67.7.935
更新日期：1992-07-01 00:00:00
abstract：:The revised BSPGHAN guidelines for the diagnosis and management of coeliac disease represent an important shift in diagnostic strategy, aimed at simplifying and shortening the diagnostic process in selected cases. Guidance is given concerning the indications for testing for coeliac disease, which is still significantl...
journal_title：Archives of disease in childhood
pub_type： 杂志文章,实务指引
doi：10.1136/archdischild-2013-303996
更新日期：2013-10-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.2008.156158
更新日期：2009-11-01 00:00:00
abstract：:Monthly increments of length, weight gain, and head circumference were recorded from birth to 4 years of age in 52 children with cystic fibrosis. At birth the children showed stunting. Standard deviation (SD) scores at birth for height, weight, and head circumference were -1.24, -0.72, and -1.82 respectively. Over the...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.72.2.150
更新日期：1995-02-01 00:00:00
abstract：:Popliteal artery entrapment syndrome (PAES) is a rare but potentially limb threatening anatomical anomaly occurring predominantly in young adults. We report a case of a 14 year old boy who presented with limb threatening ischaemia requiring urgent surgery. The pathology, presentation, and management are discussed. ...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.83.4.362
更新日期：2000-10-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.85.5.421
更新日期：2001-11-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.58.1.66
更新日期：1983-01-01 00:00:00
abstract：:Twenty two babies under 1 year old were referred for evaluation of suspected epileptic seizures. Nine were found to have epilepsy. In the other 13--all developing normally, aged up to 10 months--the spells were non-epileptic paroxysmal events (NEPE). They consisted of five patterns of movement: (1) eye blinking; (2) '...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.73.4.342
更新日期：1995-10-01 00:00:00
abstract：:The allergic response is distinct from other immune reactions in its reliance on IgE, its high affinity receptor, Fc epsilon RI, and the primary effector cell--the tissue mast cell. Positive skin tests or raised concentrations of specific immunoglobulin E (IgE) in the serum define IgE sensitisation or "atopy". IgE par...
journal_title：Archives of disease in childhood
pub_type： 杂志文章,评审
doi：10.1136/adc.88.1.71
更新日期：2003-01-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.2009.177618
更新日期：2011-03-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章,评审
doi：10.1136/archdischild-2016-311050
更新日期：2017-10-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/archdischild-2016-311142
更新日期：2017-05-01 00:00:00
abstract：:Chest physiotherapy still remains one of the most important aspects in the treatment of chest complications of cystic fibrosis. A mechanical device that allows the patient with cystic fibrosis to do his own chest physiotherapy will be of great benefit if it is as effective as manual percussion. 14 patients with cystic...
journal_title：Archives of disease in childhood
pub_type： 临床试验,杂志文章
doi：10.1136/adc.54.7.542
更新日期：1979-07-01 00:00:00
abstract：:Susceptibility to infections is a well known feature of Down's syndrome. The possible relation between this predisposition and the serum concentrations of the IgG subclasses was studied in 38 children with Down's syndrome aged 1-12 years. An age matched group of 50 healthy children served as controls. The serum concen...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.67.5.628
更新日期：1992-05-01 00:00:00
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journal_title：Archives of disease in childhood
pub_type： 杂志文章,多中心研究
doi：10.1136/archdischild-2015-308255
更新日期：2016-01-01 00:00:00
abstract：:A 9 year old girl with symptoms of the Sjögren syndrome showed interstitial lymphocytic infiltrate on renal biopsy. Two years later she had clinical and biological evidence of systemic lupus erythematosus, associated with a typical glomerulonephritis. ...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.59.2.175
更新日期：1984-02-01 00:00:00
abstract：:To determine the natural history and psychological impact of the growth pattern in boys with constitutional delay in growth and puberty (CDGP), 43 boys presenting with short stature due to CDGP were followed up to final height. At presentation mean (SD) chronological age was 14.0 (1.9) years, bone age delay 2.7 (1.0) ...
journal_title：Archives of disease in childhood
pub_type： 杂志文章
doi：10.1136/adc.65.10.1109
更新日期：1990-10-01 00:00:00
