Palliative care research protocols: a special case for ethical review?

abstract：:Outpatient palliative care can provide significant benefits to seriously ill patients, but several barriers to appropriate referrals remain. No study has examined the physician factors associated with referral to outpatient palliative care. To determine physician factors, with a focus on physician beliefs, associated ...

journal_title：Palliative medicine

authors： Ahluwalia SC,Fried TR

更新日期：2009-10-01 00:00:00

abstract：:Little is known about the lived health-care experiences of persons living with palliative stage Parkinson's disease and the family members who care for them. An exploratory phenomenological investigation was adopted to understand participant's lived health-care experiences and the needs flowing from them. Three family...

journal_title：Palliative medicine

authors： Giles S,Miyasaki J

更新日期：2009-03-01 00:00:00

abstract：BACKGROUND:Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers ha...

journal_title：Palliative medicine

authors： Micklewright K,Farquhar M

更新日期：2020-12-01 00:00:00

abstract：BACKGROUND:It is necessary to develop palliative care to meet existing and future needs of patients and their families. It is important to include knowledge of patient preferences when developing high-quality palliative care services. Previous reviews have focused on patient preferences with regard to specific componen...

journal_title：Palliative medicine

authors： Sandsdalen T,Hov R,Høye S,Rystedt I,Wilde-Larsson B

更新日期：2015-05-01 00:00:00

abstract：BACKGROUND:People with dementia requiring palliative care have multiple needs, which are amplified in long-term care settings. The European Association for Palliative Care White Paper offers recommendations for optimal palliative care in dementia integral for this population, providing useful guidance to inform interve...

journal_title：Palliative medicine

authors： Kochovska S,Garcia MV,Bunn F,Goodman C,Luckett T,Parker D,Phillips JL,Sampson EL,van der Steen JT,Agar MR

更新日期：2020-04-01 00:00:00

abstract：:Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised co...

journal_title：Palliative medicine

authors： Agar M,Currow DC,Shelby-James TM,Plummer J,Sanderson C,Abernethy AP

更新日期：2008-10-01 00:00:00

abstract：:This study reports UK doctors' opinions about legalisation of medically assisted dying (euthanasia and physician-assisted suicide), comparing this with the UK general public. A postal survey of 3733 UK medical practitioners was done. The majority of UK doctors are opposed to legalisation, contrasting with the UK gener...

journal_title：Palliative medicine

authors： Seale C

更新日期：2009-04-01 00:00:00

abstract：:Parenteral administration of mixtures of morphine with other drugs has become common practice in palliative care. Such mixtures are sometimes found to be incompatible but compatibility data are scarce. An attempt was made to develop a quick and simple investigation strategy to obtain complete information on the compat...

journal_title：Palliative medicine

authors： Vermeire A,Remon JP,Schrijvers D,Demeulenaere P

更新日期：2002-09-01 00:00:00

abstract：BACKGROUND:As end-of-life (EoL) care expands across Europe and the world, service developments are increasingly studied. The sociocultural context in which such changes take place, however, is often neglected in research. AIM:To explore sociocultural factors in EoL care in Belgium as represented by the literature. DE...

journal_title：Palliative medicine

authors： Andrew EV,Cohen J,Evans N,Meñaca A,Harding R,Higginson I,Pool R,Gysels M,PRISMA.

更新日期：2013-02-01 00:00:00

abstract：:We investigated the impact of perception of socioeconomic burden on beliefs regarding a patient's autonomy in end-of-life (EOL) decision making. We also sought to identify the characteristics of individuals who advocate patient autonomy and their attitudes toward other EOL issues. A total of 1055 individuals from the ...

journal_title：Palliative medicine

authors： Kwon YC,Shin DW,Lee JH,Heo DS,Hong YS,Kim SY,Yun YH

更新日期：2009-01-01 00:00:00

abstract：BACKGROUND:It is often suggested that terminally ill patients favour end-of-life care at home. Yet, it is unclear how these preferences are formed, if the process is similar for patients and family caregivers, and if there are discrepancies between preferences for place of care and place of death. Understanding these n...

journal_title：Palliative medicine

authors： Gerber K,Hayes B,Bryant C

更新日期：2019-07-01 00:00:00

abstract：:This paper is a secondary observation of a larger pilot study. The Assessing Caregivers for Team Intervention via Video Encounters intervention project enabled caregiver participation in hospice interdisciplinary team meetings. This paper used the team observation scale to assess the impact of caregiver involvement on...

journal_title：Palliative medicine

authors： Wittenberg-Lyles E,Oliver DP,Demiris G,Burt S,Regehr K

更新日期：2010-03-01 00:00:00

abstract：:In this population-based study, we found that parents who are aware that their child will die from a malignancy are more likely to care for their child at home during the child's last month of life compared to parents who are not aware. End-of-life home care was comparable to hospital care for satisfactory pain relief...

journal_title：Palliative medicine

authors： Surkan PJ,Dickman PW,Steineck G,Onelöv E,Kreicbergs U

更新日期：2006-04-01 00:00:00

abstract：:In an era of ever increasing emphasis on cost-effectiveness of health care, and with the introduction of the internal market, there is now an urgent need for information on the costs and quality of palliative care. This paper highlights the complexities involved in acquiring and measuring such information and discusse...

journal_title：Palliative medicine

authors： Tierney AJ,Sladden S,Anderson J,King M,Lapsley I,Llewellyn S

更新日期：1994-10-01 00:00:00

abstract：:The history and development of an extra care sheltered housing complex, specifically designed and built for frail, ambulant, cancer patients is reviewed. Consideration is given to diagnosis, length of stay, place of death, family and social background. Problems are highlighted and the need for future research is discu...

journal_title：Palliative medicine

authors： Sherry KL

更新日期：1995-07-01 00:00:00

abstract：:The word 'euthanasia' has been used with a variety of meanings, all of which refer to one precise action: the killing of a suffering person. A moral evaluation of such an act can lead us either to condemn it a priori, shutting the door upon any argument, or to allow further discussion. But the issue must be discussed,...

journal_title：Palliative medicine

authors： Di Mola G

更新日期：1993-01-01 00:00:00

abstract：:Health-related quality of life (HRQL) is difficult to define and measure. It is a generic term that includes concepts such as physical health, life satisfaction, psychological well-being and self-integrity. Realizing and appreciating the importance of HRQL is crucial for physicians if they are to be in a position to o...

journal_title：Palliative medicine

authors： Mystakidou K,Tsilika E,Befon S,Kululias V,Vlahos L

更新日期：1999-09-01 00:00:00

abstract：BACKGROUND:A universal consensus regarding standardized pain outcomes does not exist. The personalized pain goal has been suggested as a clinically relevant outcome measure. AIM:To assess the feasibility of obtaining a personalized pain goal and to compare a clinically based personalized pain goal definition versus a ...

journal_title：Palliative medicine

authors： Fainsinger R,Nekolaichuk C,Fainsinger L,Muller V,Fainsinger L,Amigo P,Brisebois A,Burton-Macleod S,Ghosh S,Gilbert R,Tarumi Y,Thai V,Wolch G

更新日期：2017-12-01 00:00:00

abstract：:The purpose of this study was to compare patient and proxy (physician and nurse) assessments of symptoms in advanced cancer patients. The sample consisted of 49 patients with advanced cancer admitted to an acute palliative care unit. Three independent assessments were completed for each patient on two occasions within...

journal_title：Palliative medicine

authors： Nekolaichuk CL,Bruera E,Spachynski K,MacEachern T,Hanson J,Maguire TO

更新日期：1999-07-01 00:00:00

abstract：:The question of whether a coherent tradition in research and research methods (or paradigm) exists in palliative care is explored in this paper through an examination of the discussion and debate surrounding palliative care; attempts at achieving consensus for research through priority setting exercises; and a critica...

journal_title：Palliative medicine

authors： Corner J

更新日期：1996-07-01 00:00:00

abstract：BACKGROUND:The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM:To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life car...

journal_title：Palliative medicine

authors： Ross L,Neergaard MA,Petersen MA,Groenvold M

更新日期：2018-04-01 00:00:00

abstract：:Cyclizine is an antihistamine, which is frequently used to manage nausea and vomiting in cancer patients. Antihistamines can be drugs of misuse/abuse, and the article describes four cancer patients who developed such problems after receiving parenteral cyclizine within the inpatient unit of a cancer centre. The articl...

journal_title：Palliative medicine

authors： Bailey F,Davies A

更新日期：2008-10-01 00:00:00

abstract：BACKGROUND:Constipation affects many patients receiving long-term opioid therapy for cancer pain. Little is known about the nature of psychological distress and the burden associated with this problem. This information may inform the development of effective treatment strategies and ameliorate distress. AIM:The object...

journal_title：Palliative medicine

authors： Dhingra L,Shuk E,Grossman B,Strada A,Wald E,Portenoy A,Knotkova H,Portenoy R

更新日期：2013-05-01 00:00:00

abstract：BACKGROUND:We developed a new single point of access to integrated palliative care, respiratory medicine and physiotherapy: the breathlessness support service for patients with advanced disease and refractory breathlessness. This study aimed to describe patients' experiences of the service and identify the aspects valu...

journal_title：Palliative medicine

authors： Reilly CC,Bausewein C,Pannell C,Moxham J,Jolley CJ,Higginson IJ

更新日期：2016-03-01 00:00:00

abstract：BACKGROUND AND AIMS:Palliative medicine is not recognized as a medical specialty in any of the five Nordic countries, but there is a great need for physicians with specialty qualifications to serve on an increasing number of palliative care services. The Associations for Palliative Medicine in the five countries agreed...

journal_title：Palliative medicine

authors： Haugen DF,Vejlgaard T

更新日期：2008-04-01 00:00:00

abstract：:Homeless persons tend to die younger than the housed population and have complex, often unmet, end-of-life care needs. High levels of illicit drug use among this population are a particular challenge for health and social services professionals involved in end-of-life care services delivery. This article explores the ...

journal_title：Palliative medicine

authors： McNeil R,Guirguis-Younger M

更新日期：2012-06-01 00:00:00

abstract：BACKGROUND:Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving. AIM:This study aimed to translate, ...

journal_title：Palliative medicine

authors： Henriksson A,Andershed B,Benzein E,Arestedt K

更新日期：2012-10-01 00:00:00

abstract：:This study reports the process and results of a psychometric evaluation of a clinical audit tool, the Support Team Assessment Schedule (STAS), used to measure outcomes of palliative care. The STAS was developed in London, UK to audit community palliative care services provided by a support team. The purpose of this st...

journal_title：Palliative medicine

authors： Carson MG,Fitch MI,Vachon ML

更新日期：2000-01-01 00:00:00

abstract：BACKGROUND:A normal vitamin D status is required for bones and muscles to maintain their function and structure, but it also contributes to the functional integrity of other multiple physiologic systems in the body. AIM:To assess the relationship of Vitamin D deficiency with health-related quality-of-life issues, fati...

journal_title：Palliative medicine

authors： Martínez-Alonso M,Dusso A,Ariza G,Nabal M

更新日期：2016-01-01 00:00:00

abstract：BACKGROUND:End-of-life implantable cardioverter defibrillator deactivation discussions should commence before device implantation and be ongoing, yet many implantable cardioverter defibrillators remain active in patients' last days. AIM:To examine associations among implantable cardioverter defibrillator knowledge, pa...

journal_title：Palliative medicine

authors： McEvedy SM,Cameron J,Lugg E,Miller J,Haedtke C,Hammash M,Biddle MJ,Lee KS,Mariani JA,Ski CF,Thompson DR,Chung ML,Moser DK

更新日期：2018-01-01 00:00:00