Home care of a child dying of a malignancy and parental awareness of a child's impending death.

abstract：OBJECTIVES:To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. DATA SOURCES:Seven electronic databases were searched for the period January 1994--November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metal...

journal_title：Palliative medicine

authors： Docherty A,Owens A,Asadi-Lari M,Petchey R,Williams J,Carter YH

更新日期：2008-03-01 00:00:00

abstract：BACKGROUND:Patients approaching death often have a decreasing oral intake, which can be distressing for relatives. Little is known about the relatives' experiences with and perceptions of oral intake at the end of life. AIM:This study aims to contribute to a more thorough understanding of relatives' concerns regarding...

journal_title：Palliative medicine

authors： Raijmakers NJ,Clark JB,van Zuylen L,Allan SG,van der Heide A

更新日期：2013-07-01 00:00:00

abstract：BACKGROUND:Chronic kidney disease palliative care guidelines would benefit from more diverse and objectively defined health status measures. AIM:The aim is to identify high-risk patients from administrative data and facilitate timely and uniform palliative care involvement. DESIGN:It is a retrospective cohort study. ...

journal_title：Palliative medicine

authors： Nenova Z,Hotchkiss J Jr

更新日期：2019-04-01 00:00:00

abstract：:We determined the relationship between symptom severity and distress for multiple cancer symptoms, and examined patient demographic influences on severity and distress in advanced cancer. A Cochran-Armitage trend test determined whether symptom distress increased with severity. Chi-square, Fisher's exact test and logi...

journal_title：Palliative medicine

authors： Kirkova J,Walsh D,Rybicki L,Davis MP,Aktas A,Tao Jin,Homsi J

更新日期：2010-04-01 00:00:00

abstract：PURPOSE:In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care. METHODS:We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that pres...

journal_title：Palliative medicine

authors： Albers G,Echteld MA,de Vet HC,Onwuteaka-Philipsen BD,van der Linden MH,Deliens L

更新日期：2010-01-01 00:00:00

abstract：INTRODUCTION:This research examines 2006 population-based data on persons who died in US nursing homes (NHs) and received hospice in the NH. METHODS:We compared dying persons characteristics and lengths of hospice stay in five US states between 1992 and 1996 and in 2006. We also compared characteristics of dying perso...

journal_title：Palliative medicine

authors： Sterns S,Miller SC

更新日期：2011-06-01 00:00:00

abstract：:In an increasingly secular age in which society no longer offers a code of behaviour for those who are bereaved as in Victorian times, the majority of people do not seek support from church-based rituals of remembrance. Most hospices provide religious Services of Remembrance and Thanksgiving or non-faith remembrance g...

journal_title：Palliative medicine

authors： Vale-Taylor P

更新日期：2009-09-01 00:00:00

abstract：:Separate accounts of care were recorded weekly from staff, patients and relatives in a randomised sample of patients with terminal cancer referred to a home care service with readily available beds. Various services were involved but nurses made most contacts, 3.0 visits and 2.4 phone calls weekly, rising sharply in t...

journal_title：Palliative medicine

authors： Hinton J

更新日期：1996-04-01 00:00:00

abstract：:The Research Network of the European Association for Palliative Care (EAPC) performed a survey of 3030 cancer patients from 143 palliative care centres in 21 European countries. The survey addressed pain intensity and the use of non-opioid analgesics, adjuvant analgesics and opioids. Patients were treated with analges...

journal_title：Palliative medicine

authors： Klepstad P,Kaasa S,Cherny N,Hanks G,de Conno F,Research Steering Committee of the EAPC.

更新日期：2005-09-01 00:00:00

abstract：:To be able to distinguish end-stage palliative sedation from euthanasia without having to refer to intentions that are difficult to verify, physicians must be able to manage palliative sedation appropriately (i.e., see that death is not hastened as a result of disproportionate medication). In the present study, we ass...

journal_title：Palliative medicine

authors： Reuzel RP,Hasselaar GJ,Vissers KC,van der Wilt GJ,Groenewoud JM,Crul BJ

更新日期：2008-07-01 00:00:00

abstract：BACKGROUND:Cytochrome P450 3A is the most relevant drug-metabolizing enzyme in humans as it is involved in the elimination of 50% of marketed drugs. Nothing is known about the activity of cytochrome P450 3A in palliative care patients who have complicated symptoms often associated with a terminal illness. AIM:In order...

journal_title：Palliative medicine

authors： Geist M,Bardenheuer H,Burhenne J,Mikus G

更新日期：2019-07-01 00:00:00

abstract：:Enabling patients to be cared for in their preferred location often involves journeys between care settings. The challenge of ensuring journeys are timely and safe emerged as an important issue in an evaluation of palliative care services, which informed a service redesign programme in three areas of the United Kingdo...

journal_title：Palliative medicine

authors： Ingleton C,Payne S,Sargeant A,Seymour J

更新日期：2009-12-01 00:00:00

abstract：BACKGROUND:Cancer-associated thrombosis is common. Recommended treatment is daily injected low-molecular-weight heparin for 6 months. Most studies focus on prophylaxis and treatment; few have explored the patients' experience. AIMS:To identify and synthesise the available literature concerning patients' experience of ...

journal_title：Palliative medicine

authors： Benelhaj NB,Hutchinson A,Maraveyas AM,Seymour JD,Ilyas MW,Johnson MJ

更新日期：2018-05-01 00:00:00

abstract：BACKGROUND:Family caregivers in palliative care often report feeling insufficiently prepared to handle the caregiver role. Preparedness has been confirmed as a variable that may actually protect family caregiver well-being. Preparedness refers to how ready family caregivers perceive they are for the tasks and demands i...

journal_title：Palliative medicine

authors： Henriksson A,Årestedt K

更新日期：2013-07-01 00:00:00

abstract：:Depression is the most common psychiatric illness in patients with terminal cancer. Depression not only lowers the quality of life for the patients and their families, but patients who are depressed may also have physical symptoms that are difficult to palliate and that improve as their depression is appropriately tre...

journal_title：Palliative medicine

authors： Lloyd Williams M,Payne S

更新日期：2003-06-01 00:00:00

abstract：BACKGROUND:While there have been some studies looking at the impact on quality of life of patients with idiopathic pulmonary fibrosis, to date no qualitative research looking at the specialist palliative needs of these patients has been conducted. AIM:This study aims to explore the specialist palliative care needs of ...

journal_title：Palliative medicine

authors： Bajwah S,Higginson IJ,Ross JR,Wells AU,Birring SS,Riley J,Koffman J

更新日期：2013-10-01 00:00:00

abstract：BACKGROUND:There is increasing demand for primary care practitioners to play a key role in palliative care delivery. Given this, it is important to understand their perceptions of the barriers and enablers to optimal palliative care, and how commonly these are experienced. AIM:To explore the type and prevalence of bar...

journal_title：Palliative medicine

authors： Carey ML,Zucca AC,Freund MA,Bryant J,Herrmann A,Roberts BJ

更新日期：2019-10-01 00:00:00

abstract：OBJECTIVE:To summarize available literature containing data on the treatment of depression in palliative care patients. METHODS:A systematic review was conducted using extensive electronic databases and hand searches. All randomized controlled trials (RCTs) of interventions for depression in patients with advanced dis...

journal_title：Palliative medicine

authors： Ly KL,Chidgey J,Addington-Hall J,Hotopf M

更新日期：2002-07-01 00:00:00

abstract：:Parenteral administration of mixtures of morphine with other drugs has become common practice in palliative care. Such mixtures are sometimes found to be incompatible but compatibility data are scarce. An attempt was made to develop a quick and simple investigation strategy to obtain complete information on the compat...

journal_title：Palliative medicine

authors： Vermeire A,Remon JP,Schrijvers D,Demeulenaere P

更新日期：2002-09-01 00:00:00

abstract：BACKGROUND:People with dementia requiring palliative care have multiple needs, which are amplified in long-term care settings. The European Association for Palliative Care White Paper offers recommendations for optimal palliative care in dementia integral for this population, providing useful guidance to inform interve...

journal_title：Palliative medicine

authors： Kochovska S,Garcia MV,Bunn F,Goodman C,Luckett T,Parker D,Phillips JL,Sampson EL,van der Steen JT,Agar MR

更新日期：2020-04-01 00:00:00

abstract：BACKGROUND:A normal vitamin D status is required for bones and muscles to maintain their function and structure, but it also contributes to the functional integrity of other multiple physiologic systems in the body. AIM:To assess the relationship of Vitamin D deficiency with health-related quality-of-life issues, fati...

journal_title：Palliative medicine

authors： Martínez-Alonso M,Dusso A,Ariza G,Nabal M

更新日期：2016-01-01 00:00:00

abstract：BACKGROUND:Although integrated care for existential suffering is an essential part of palliative care, little is known about its concept and efficacy as perceived by professionals. A questionnaire survey was carried out to 1) explore the underlying structure of psychosocial interventions recommended by specialists, 2) ...

journal_title：Palliative medicine

authors： Hirai K,Morita T,Kashiwagi T

更新日期：2003-12-01 00:00:00

abstract：BACKGROUND:Communities have limited understanding of palliative care, creating barriers to informed choice around consideration of a full range of care options in the event of serious illness. Few empirically tested interventions are available to educate community about palliative care, and ultimately improve timely ac...

journal_title：Palliative medicine

authors： Collins A,McLachlan SA,Hill M,Collins S,Philip J

更新日期：2020-09-01 00:00:00

abstract：:The word 'euthanasia' has been used with a variety of meanings, all of which refer to one precise action: the killing of a suffering person. A moral evaluation of such an act can lead us either to condemn it a priori, shutting the door upon any argument, or to allow further discussion. But the issue must be discussed,...

journal_title：Palliative medicine

authors： Di Mola G

更新日期：1993-01-01 00:00:00

abstract：BACKGROUND:Patients with advanced cancer often have to make difficult decisions, such as how much to spend on moderately life-extending treatments. This and other end-of-life decisions are also influenced by their informal caregivers. Understanding the relative value that patients and their caregivers place on various ...

journal_title：Palliative medicine

authors： Malhotra C,Farooqui MA,Kanesvaran R,Bilger M,Finkelstein E

更新日期：2015-10-01 00:00:00

abstract：:A study of 95 children referred for palliative care was carried out at Queen Elizabeth Central Hospital in southern Malawi, to determine the prevalence of different symptoms and signs. Seventy-seven percent of the children had HIV, 17% had cancer and 6% had a variety of other diagnoses. The commonest symptoms spontane...

journal_title：Palliative medicine

authors： Lavy V

更新日期：2007-06-01 00:00:00

abstract：:Prospective controlled clinical trials provide the highest level of evidence in palliative care. Both parallel and crossover studies have unique advantages and disadvantages. Excellent knowledge of the patient population, interventions and endpoints are useful in choosing the most appropriate trial. Open pilot studies...

journal_title：Palliative medicine

authors： Mazzocato C,Sweeney C,Bruera E

更新日期：2001-05-01 00:00:00

abstract：BACKGROUND:Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers ha...

journal_title：Palliative medicine

authors： Micklewright K,Farquhar M

更新日期：2020-12-01 00:00:00

abstract：:Medical training teaches physicians to sit when breaking bad news, though there have been no controlled studies to support this advice. We aimed to establish cancer patients' preference for physician posture when physicians break bad news using a randomized controlled crossover trial in a department of palliative care...

journal_title：Palliative medicine

authors： Bruera E,Palmer JL,Pace E,Zhang K,Willey J,Strasser F,Bennett MI

更新日期：2007-09-01 00:00:00

abstract：BACKGROUND:Informal caregivers of people with motor neurone disease (MND) take on an extensive role. Caregivers are at increased risk of experiencing psychological distress and burden, yet, there is a lack of intervention programmes to support them. AIM:The aim of this study was to investigate the feasibility and acce...

journal_title：Palliative medicine

authors： Ugalde A,Mathers S,Hennessy Anderson N,Hudson P,Orellana L,Gluyas C

更新日期：2018-04-01 00:00:00