Abstract：
:Little ethical recommendations on returning children's individual research findings are available for researchers in behavioral sciences, especially when compared to genetic research. Anecdotic evidence suggests that since parents are often interested in their child's individual research findings, researchers tend to offer this information as a form of compensation for research participation. Despite good intentions, these practices are not without potential harmful consequences for children. We were confronted with these difficulties and with the paucity of available guidance on this topic, being involved in a longitudinal, infant development study, i.e. tracking infants at risk for autism (TIARA). First, we review current ethical recommendations and discuss their limitations in the light of the TIARA study. Second, we will suggest to revise these recommendations, by identifying and applying the relevant bioethical principles and concepts at hand. Third, as an example of practical implementation, the adopted 'return of research findings'-policy for the TIARA-study is presented. The principles and concepts we engage with are the ancillary care responsibilities of the researcher, non-maleficence and beneficence, the right to an open future of the child, and the avoidance of therapeutic misconception. Ultimately, we present the concrete return of research findings policy implemented in the TIARA-study. Here, we suggest restricting the systematic return of children's individual research findings to cases where findings are considered clinically significant and actionable for the child. We discuss the broader implications for designing and conducting research in behavioral sciences with children.
journal_name
Eur Child Adolesc Psychiatryjournal_title
European child & adolescent psychiatryauthors
Vanaken GJ,Noens I,Roeyers H,van Esch L,Warreyn P,Steyaert J,Hens Kdoi
10.1007/s00787-020-01606-4subject
Has Abstractpub_date
2020-07-26 00:00:00eissn
1018-8827issn
1435-165Xpii
10.1007/s00787-020-01606-4pub_type
杂志文章abstract：:It is a relatively uncommon event that children find themselves in a situation with a parent who undergoes a transition from one sex to another. Unlike situations of divorce or a parent with a medical or major psychiatric disorder, it is unlikely that the children will know of other children who encounter similar situ...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-006-0591-y
更新日期：2007-06-01 00:00:00
abstract：:Secular trends in the criminal activity of conduct disordered adolescents admitted as psychiatric in-patients in Norway were examined. A nationwide sample of 650 adolescents hospitalised with DSM-IV Conduct Disorder during the years 1963-1990 was followed up 12-33 years after index hospitalisation by register linkage ...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-005-0444-0
更新日期：2005-07-01 00:00:00
abstract：:Neurofeedback (NF) could help to improve attentional and self-management capabilities in children with attention-deficit/hyperactivity disorder (ADHD). In a randomised controlled trial, NF training was found to be superior to a computerised attention skills training (AST) (Gevensleben et al. in J Child Psychol Psychia...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章,随机对照试验
doi：10.1007/s00787-010-0109-5
更新日期：2010-09-01 00:00:00
abstract：:The impact of premorbid social and intellectual functioning in childhood and early adolescence on the developmental course of schizophrenia is not sufficiently understood. In a retrospective case study (93 consecutive in-patients, 43 males and 50 females) of first-episode psychosis occurring in adolescence, the relati...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/BF00539928
更新日期：1997-12-01 00:00:00
abstract：:Within the International Collaborative Outcome Study of Eating Disorders in Adolescence (ICOSEDA) we studied the clinical features, treatment, and outcome in consecutive cohorts of adolescent patients at five sites in former West Berlin and East Berlin, Zurich, Sofia and Bucharest. A total of N = 242 patients were fol...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章,多中心研究
doi：10.1007/s00787-003-1112-x
更新日期：2003-01-01 00:00:00
abstract：OBJECTIVE:The aim of the study was to investigate capacity, demographic composition, and patterns of practice of Dutch child and adolescent psychiatrists, and to compare these findings with the results of a similar investigation in 1996. METHOD:A postal survey was sent out to all Dutch child and adolescent psychiatris...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-005-0480-9
更新日期：2005-09-01 00:00:00
abstract：:Somatic disorders occur more often in adult psychiatric patients than in the general adult population. However, in child and adolescent psychiatry this association is unclear, mainly due to a lack of integration of existing data. To address this issue, we here present a systematic review on medical comorbidity in the ...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章,评审
doi：10.1007/s00787-017-1020-0
更新日期：2017-09-01 00:00:00
abstract：:We reviewed the literature of medication trials in ADHD to evaluate the scope of the available non-stimulant treatments. A variety of compounds with a common noradrenergic/ dopaminergic activity have shown documented anti-ADHD activity. There is a substantial body of literature documenting the efficacy of tricyclic an...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章,评审
doi：10.1007/s007870070019
更新日期：2000-01-01 00:00:00
abstract：:This study used longitudinal data from the 1970 British Cohort Study (BCS70) to examine the role of mother's child-rearing attitudes assessed when cohort members were aged 5 in children's psychological well-being (psychological functioning, psychological distress, life satisfaction and self-efficacy) at age 30. Althou...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-004-0355-5
更新日期：2004-02-01 00:00:00
abstract：:Children meeting the Child Behavior Checklist Dysregulation Profile (CBCL-DP) suffer from high levels of co-occurring internalizing and externalizing problems. Little is known about the cognitive abilities of these children with CBCL-DP. We examined the relationship between CBCL-DP and nonverbal intelligence. Parents ...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-014-0551-x
更新日期：2014-11-01 00:00:00
abstract：:The purpose was to examine the long-term stability of a diagnosis of psychotic disorder in adolescence and to focus on diagnostic change over time. A total of 88 patients with a first episode of early onset psychosis (before 19 years) were followed up an average of 10.5 years (range 5.1-18.2) after admission. This rep...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-003-0300-z
更新日期：2003-01-01 00:00:00
abstract：:Genetic epidemiological studies of Autism Spectrum Disorders (ASDs) based on twin pairs ascertained from the population and thoroughly assessed to obtain a high degree of diagnostic validity are few. All twin pairs aged 3-14 years in the nationwide Danish Twin Registry were approached. A three-step procedure was used....
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-013-0419-5
更新日期：2014-01-01 00:00:00
abstract：:Identifying early-onset schizophrenia spectrum disorders (SSD) at a very early stage remains challenging. To assess the diagnostic predictive value of multiple types of data at the emergence of early-onset first-episode psychosis (FEP), various support vector machine (SVM) classifiers were developed. The data were fro...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章,多中心研究
doi：10.1007/s00787-014-0593-0
更新日期：2015-04-01 00:00:00
abstract：:Physiological stress is thought to be one way that early adversity may impact children's health. How this occurs may be related to parental factors such as mothers' own stress and parenting behaviour. Hair cortisol offers a novel method for examining long-term physiological stress in mother-child dyads. The current st...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-020-01537-0
更新日期：2020-04-22 00:00:00
abstract：:From a cognitive point of view the way children process the social stimuli from their current environment plays a part in the generation of aggressive behaviour. Initially, studies of social cognition in children with aggressive behaviour were Piagetian in orientation. Some recent models, notably one by Dodge, are bas...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/BF02091903
更新日期：1992-07-01 00:00:00
abstract：:Fear has been assigned a central role in models of obsessive-compulsive disorder (OCD), but empirical investigations into the emotions that underpin OCD symptoms are few, especially in pediatric samples. Using validated, clinician-led structured interviews, 124 youth with OCD reported on the presence and severity of s...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-020-01514-7
更新日期：2020-03-24 00:00:00
abstract：:Despite sizeable short-term effects of neurofeedback (NF) therapy on attention-deficit and hyperactivity disorder (ADHD), longer-term clinical, comorbidity and self-regulation outcomes are less systematically studied. The aim of this largest NF follow-up to date was to evaluate these outcomes 6 months after NF compare...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1007/s00787-018-01271-8
更新日期：2019-08-01 00:00:00
abstract：:Oppositional defiant disorder, conduct disorder (ODD/CD), and autism spectrum disorder (ASD) share poor empathic functioning and have been associated with impaired emotional processing. However, no previous studies directly compared similarities and differences in these processes for the two disorders. A two-choice em...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-019-01282-z
更新日期：2019-07-01 00:00:00
abstract：:Seven children and young adults with definite signs of Asperger syndrome were administered a battery of tests designed to test: intelligence; left and right cerebral hemisphere functioning; ability to discriminate eye gaze; and social judgment. The subjects revealed a non significant tendency to have a higher verbal I...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/BF01978114
更新日期：1994-10-01 00:00:00
abstract：:Despite the fact that juvenile fire involvement is associated with significant injuries and is highly correlated with diverse maladjustment characteristics, firesetting has never been empirically evaluated in Italy. Participants included 567 youth between 11 and 18 years of age. This investigation attempted to address...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-007-0664-6
更新日期：2008-06-01 00:00:00
abstract：:The aim was to study the association between preschool behavioural problems and emotional symptoms in 10- to 12-year-old children. The study was based on the Aarhus Birth cohort, Denmark, and included 1,336 children. Based on the parent-administered preschool behaviour questionnaire (PBQ), we identified three not mutu...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-010-0128-2
更新日期：2010-10-01 00:00:00
abstract：:This study aimed at analysing the association between socioeconomic status (SES) and psychosocial problems in preterm- and term-born children. Scores of mothers and teachers on the Strengths and Difficulties Questionnaire (SDQ) regarding 217 preterm-born children (<37 weeks' gestation, mean 34 weeks) were compared wit...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-015-0791-4
更新日期：2016-07-01 00:00:00
abstract：:It has been suggested that neurotrophins are involved in the etiopathogenesis of attention-deficit/hyperactivity disorder (ADHD). This study aimed to investigate whether there are differences in serum brain-derived neurotrophic factor (BDNF), glial-derived neurotrophic factor (GDNF), nerve growth factor (NGF), and neu...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-016-0898-2
更新日期：2017-03-01 00:00:00
abstract：:This study compared the neuropsychological test profiles of non-mentally retarded girls and boys consecutively referred to a neuropsychiatric clinic and those of contrast cases of girls from mainstream classrooms of one Göteborg school district. To avoid overreliance on the male prototype with regard to diagnostic cri...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s007870070041
更新日期：2000-09-01 00:00:00
abstract：OBJECTIVE:To investigate the current situation of Child and Adolescent Psychiatry (CAP) training in European countries. In addition, current agenda of different organizations in order to harmonize the training across Europe are reported. METHOD:In order to collect data for this descriptive documentation on CAP trainin...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-006-0599-3
更新日期：2006-12-01 00:00:00
abstract：:We assessed the psychopathology of children and adolescents with Recurrent Abdominal Pain (RAP) and tension-type headaches (TTH), the psychopathology and Expressed Emotion (EE) of their mothers and family functioning. Additionally, we assessed the relationship of negative Life Events (LE) to RAP and headaches. Sixty-n...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-002-0276-0
更新日期：2002-06-01 00:00:00
abstract：:It was examined how juvenile psychiatric disorders and adult schizotypal symptoms are associated. 731 patients of the Department of Child and Adolescent Psychiatry of the University Medical Centre Utrecht, the Netherlands, with mean age of 12.1 years (SD = 4.0) were reassessed at the mean age of 27.9 years (SD = 5.7) ...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-013-0409-7
更新日期：2013-11-01 00:00:00
abstract：:Suicide is one of the leading causes of death in adolescents and help-seeking behaviour for suicidal behaviour is low. School-based screenings can identify adolescents at risk for suicidal behaviour and might have the potential to facilitate service use and reduce suicidal behaviour. The aim of this study was to asses...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-020-01681-7
更新日期：2020-12-15 00:00:00
abstract：BACKGROUND:The objective of this study was to assess psychiatric disorders in, and the psychosocial adaptation and academic performance of, children of immigrant families of Greek origin from countries of the former Soviet Union. METHOD:At a preliminary stage, all immigrant children (276) aged 8-12 years attending 22 ...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-003-0310-x
更新日期：2003-04-01 00:00:00
abstract：:This study investigates the prevalence and subtypes of conduct disorder (CD) and behavioral problems among youth in two communities characterized by prolonged parent-child separation upon immigration. CD and problem behaviors were assessed in 252 Caribbean-Canadian and Filipino-Canadian adolescents (12-19-year-old) us...
journal_title：European child & adolescent psychiatry
pub_type： 杂志文章
doi：10.1007/s00787-007-0640-1
更新日期：2008-08-01 00:00:00
