What is the patient experience in advanced liver disease? A scoping review of the literature.

abstract：OBJECTIVE:Patient and public involvement (PPI) has become an established theme within the UK health research policy and is recognised as an essential force in the drive to improve the quality of services and research. These developments have been particularly rapid in the cancer field. METHODS:This paper outlines a mo...

journal_title：BMJ supportive & palliative care

authors： Collins K,Boote J,Ardron D,Gath J,Green T,Ahmedzai SH,North Trent Cancer Research Network Consumer Research Panel (NTCRN CRP).

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVES:People with dementia and their carers may experience poor end of life care, often having to navigate complex health and social care systems. The objectives of this study were to identify: (1) barriers for people with dementia and their carers in accessing good quality end of life care and (2) cost-effective ...

journal_title：BMJ supportive & palliative care

authors： Sampson E,Mandal U,Holman A,Greenish W,Dening KH,Jones L

更新日期：2012-06-01 00:00:00

abstract：OBJECTIVES:Palliative sedation is a highly debated medical practice, particularly regarding its proper use in end-of-life care. Worldwide, guidelines are used to standardise care and regulate this practice. In this review, we identify and compare national/regional clinical practice guidelines on palliative sedation aga...

journal_title：BMJ supportive & palliative care

authors： Abarshi E,Rietjens J,Robijn L,Caraceni A,Payne S,Deliens L,Van den Block L,EURO IMPACT.

更新日期：2017-09-01 00:00:00

abstract：OBJECTIVES:Evidence-based communication skills training for health and social care professionals is essential to improve the care of seriously ill patients and their families. We aimed to evaluate the self-reported impact of 'Difficult Conversations', a multidisciplinary half-day interactive workshop, and gain feedback...

journal_title：BMJ supportive & palliative care

authors： Brighton LJ,Selman LE,Gough N,Nadicksbernd JJ,Bristowe K,Millington-Sanders C,Koffman J

更新日期：2018-03-01 00:00:00

abstract：OBJECTIVE:P-cadherin can act both as a tumour suppressor and an oncogene. The clinical prognostic value of P-cadherin overexpression in breast cancer (BC) remains unclear. We conducted a study-level meta-analysis to determine whether P-cadherin expression can help predict prognosis in BC. METHODS:A systematic literatu...

journal_title：BMJ supportive & palliative care

authors： Qi R,Lin J,Chen S,Jiang J,Zhang X,Yao B,Zheng H,Jin Z,Yuan Y,Hou W,Hua B,Guo Q

更新日期：2020-09-17 00:00:00

abstract：OBJECTIVES:To investigate the body composition and dietary intake in the patients with head and neck cancer (HNC) during radiotherapy (RT), and explore the relationship between them. METHODS:This was a prospective, longitudinal observational study. Adult patients with HNC undergoing RT between March 2017 and August 20...

journal_title：BMJ supportive & palliative care

authors： Zhuang B,Zhang L,Wang Y,Cao Y,Shih Y,Jin S,Li H,Gong L,Wang Y,Jin S,Lu Q

更新日期：2020-09-11 00:00:00

abstract：BACKGROUND:A developing body of evidence has provided valuable insight into the experiences of caregivers of people with motor neuron disease; however, understandings of how best to support caregivers remain limited. AIM:This study sought to understand concepts related to the motor neuron disease caregiver experience ...

journal_title：BMJ supportive & palliative care

authors： Anderson NH,Gluyas C,Mathers S,Hudson P,Ugalde A

更新日期：2019-12-01 00:00:00

abstract：INTRODUCTION:The incidence of some fatal diseases, including HIV/AIDS, accompanied by depression has become a significant concern in developed, developing and underdeveloped countries. A great deal of time and money are spent on controlling and reducing the complications of this infection across the world. Accordingly,...

journal_title：BMJ supportive & palliative care

authors： Rezaei S,Ahmadi S,Rahmati J,Hosseinifard H,Dehnad A,Aryankhesal A,Shabaninejad H,Ghasemyani S,Alihosseini S,Bragazzi NL,Raoofi S,Kiaee ZM,Ghashghaee A

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVE:Patients with advanced diseases and frail older adults often face decisions regarding life-prolonging treatment. Our aim was to provide an overview of the feasibility and effectiveness of tools that support communication between healthcare professionals and patients regarding decisions on life-prolonging trea...

journal_title：BMJ supportive & palliative care

authors： Thodé M,Pasman HRW,van Vliet LM,Damman OC,Ket JCF,Francke AL,Jongerden IP

更新日期：2020-10-05 00:00:00

abstract：:Conscience objection is a proposed way of ensuring that medical practitioners who object to physician-assisted suicide may avoid having to be involved in such a procedure if this is legalised. This right on the part of healthcare professionals already exists in certain circumstances. This paper examines the ethical an...

journal_title：BMJ supportive & palliative care

authors： Willis D,George R

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:Communication about the end of life is especially important in the family context, as patients and their families are considered as the care unit in palliative care. Open end-of-life communication can positively affect medical, psychological and relational outcomes during the dying process for patient and fa...

journal_title：BMJ supportive & palliative care

authors： Nagelschmidt K,Leppin N,Seifart C,Rief W,von Blanckenburg P

更新日期：2020-08-27 00:00:00

abstract：OBJECTIVES:MicroRNAs (miRNAs) have recently been reported as useful diagnostic markers in cancer; however, relationships of miRNAs with adverse events during chemotherapy have yet to be fully described. In this study, we examined the relationship between serum miRNA and the risk of peripheral neuropathy (PN), a common ...

journal_title：BMJ supportive & palliative care

authors： Noda-Narita S,Shimomura A,Tanabe Y,Kawauchi J,Matsuzaki J,Takizawa S,Aoki Y,Shimizu C,Tamura K,Ochiya T

更新日期：2020-01-14 00:00:00

abstract：AIM:Junior doctors are frequently required to discuss resuscitation status with patients. They generally lack experience, confidence and skill in having these conversations. However, there is currently no formal postgraduate education requirement to improve or develop in this area. The aim of this educational intervent...

journal_title：BMJ supportive & palliative care

authors： Ferguson L,Clark H,de Beer W

更新日期：2020-08-21 00:00:00

abstract：OBJECTIVE:Evaluate the internal consistency and temporal stability of advance directives (ADs) generated by an interactive, online computer program. METHODS:33 participants completed the program at three visits, 2 weeks apart. Agreement rates were calculated for the General Wishes component of the AD. The test-retest ...

journal_title：BMJ supportive & palliative care

authors： Schubart JR,Camacho F,Green MJ,Rush KA,Levi BH

更新日期：2017-03-01 00:00:00

abstract：:Nightmares can be a distressing symptom in patients living with serious illness. Prazosin, a selective alpha-1 adrenergic antagonist, has been suggested to treat nightmares, with most data supporting its use in post-traumatic stress disorder (PTSD). We present the case of a 60-year-old woman with metastatic breast can...

journal_title：BMJ supportive & palliative care

authors： Santivasi W,Taylor E,Christensen A,Strand J

更新日期：2021-01-27 00:00:00

abstract：:The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have...

journal_title：BMJ supportive & palliative care

authors： Hunt KJ,Richardson A,Darlington AE,Addington-Hall JM

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVE:To examine the association of the use of hospice care on patient experience and outcomes of care. Promoting high-value, safe and effective care is an international healthcare imperative. However, the extent to which hospice care may improve the value of care is not well characterised. METHODS:A secondary ana...

journal_title：BMJ supportive & palliative care

authors： Kleinpell R,Vasilevskis EE,Fogg L,Ely EW

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:Patient held records need to be evaluated in palliative care settings. OBJECTIVES:To evaluate how patients, families and professionals in a specialist palliative setting use a patient held record created through close consultation with patients and carers. METHODS:A mixed methods prospective longitudinal c...

journal_title：BMJ supportive & palliative care

authors： White C,Sproule J,Brogan P,Watson M

更新日期：2018-08-18 00:00:00

abstract：BACKGROUND:The key challenge for most developed countries is meeting the needs of our ageing population, in particular, those nearing the end of their lives - population-based end-of-life care. Building on a public health approach to meet needs of an area-wide population, and a practical approach of enabling generalist...

journal_title：BMJ supportive & palliative care

authors： Thomas K

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Family caregivers suffer physically, mentally, and spiritually. Community volunteers play an important role in supporting patients at the end of life or former caregivers in bereavement. However, there are no research reports of volunteer services focused on maintaining the wellbeing of end-of-life caregiver...

journal_title：BMJ supportive & palliative care

authors： Cohen SR,Keats S,Cherba M,Allen D,MacKinnon CJ,Bitzas V,Kogan N,Penner JL,Calislar MP,Feindel A,Lapointe B,Baxter S,O'Brien S,Stajduhar K

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Recruitment and training of Companion Volunteers has developed out of a Companion Sitter Training Programme begun in 2010. (Scottish Journal of Healthcare Chaplaincy Vol 15. No 1, 2012). This programme was established to support patients emotionally and spiritually. While other services were available to off...

journal_title：BMJ supportive & palliative care

authors： Murphy K

更新日期：2015-04-01 00:00:00

abstract：:Fentanyl has a low molecular weight and is lipophilic making it suitable for transdermal administration. However, multiple factors appear to lead to interindividual variation in absorption via this route. Here we describe an unusual case where a patient was found to have twelve 100 μg/hour fentanyl patches in situ whi...

journal_title：BMJ supportive & palliative care

authors： Lam D,Kay S,Pickard J,Harrison S

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVES:To estimate past trends and future projection of adult palliative care needs in Malaysia. METHODS:This is a population-based secondary data analysis using the national mortality registry from 2004 to 2014. Past trend estimation was conducted using Murtagh's minimum and maximum methods and Gómez-Batiste's me...

journal_title：BMJ supportive & palliative care

authors： Yang SL,Woon YL,Teoh CCO,Leong CT,Lim RBL

更新日期：2020-08-21 00:00:00

abstract：BACKGROUND:Randomised controlled trials (RCTs) of palliative care interventions are challenging to conduct and evaluate. Tools used to judge the quality of RCTs do not account for the complexities of conducting research in seriously ill populations and may artificially downgrade confidence in palliative care research. ...

journal_title：BMJ supportive & palliative care

authors： Isenberg SR,Kavalieratos D,Chow R,Le L,Wegier P,Zimmermann C

更新日期：2020-11-18 00:00:00

abstract：OBJECTIVE:This study investigated the preferences of patients, family and staff for single or shared rooms in a UK hospice. METHOD:Semistructured interviews were conducted with patients, informal carers and staff at a hospice, focusing on room type preference. RESULTS:14 current and former hospice inpatients, 15 pati...

journal_title：BMJ supportive & palliative care

authors： Williams C,Gardiner C

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:In October 2014 a detailed mapping study of volunteers in palliative care services in NSW was undertaken for the first time. This presentation will provide a thematic analysis of the initial findings. AIMS:The aim of this study was to provide a thematic analysis of the occupational terrain of palliative car...

journal_title：BMJ supportive & palliative care

authors： Hansen L,Huntir A

更新日期：2015-04-01 00:00:00

abstract：:Medicine regards the prevention of death as an important priority. Yet patients may have a range of priorities of equal or greater importance. These other priorities are often not discussed or appreciated by treating doctors. OBJECTIVES:We sought to identify priorities of care for patients attending an advance care p...

journal_title：BMJ supportive & palliative care

authors： Milnes S,Corke C,Orford NR,Bailey M,Savulescu J,Wilkinson D

更新日期：2019-09-01 00:00:00

abstract：BACKGROUND:According to a small pilot study on palliative cancer patients at our ward, vitamin D supplementation had beneficial effects on pain (measured as opioid consumption), infections and quality of life (QoL) without having any significant side effects. OBJECTIVE:The primary objective of the 'Palliative-D' study...

journal_title：BMJ supportive & palliative care

authors： Helde-Frankling M,Bergqvist J,Klasson C,Nordström M,Höijer J,Bergman P,Björkhem-Bergman L

更新日期：2017-12-01 00:00:00

abstract：OBJECTIVES:Dyspnoea in patients with chronic obstructive pulmonary disease (COPD) is frequent and often persists despite conventional treatment. This study aimed to evaluate the efficacy and safety of oral morphine for dyspnoea in Japanese COPD patients. METHODS:We conducted a multi-institutional, prospective, before-...

journal_title：BMJ supportive & palliative care

authors： Matsuda Y,Morita T,Matsumoto H,Hosoi K,Kusama K,Kohashi Y,Morishita H,Kaku S,Ariyoshi K,Oyamada S,Inoue Y,Iwase S,Yamaguchi T,Nishikawa M

更新日期：2019-11-15 00:00:00

abstract：BACKGROUND:Patients with heart failure often receive little supportive or palliative care. 'Better Together' was a 2-year pilot study of a palliative care service for patients with advanced congestive heart failure (CHF). OBJECTIVE:To determine if the intervention made it more likely that patients would be cared for a...

journal_title：BMJ supportive & palliative care

authors： Pattenden JF,Mason AR,Lewin RJ

更新日期：2013-03-01 00:00:00