Making patient and public involvement in cancer and palliative research a reality: academic support is vital for success.

abstract：BACKGROUND:In healthcare, many service evaluation questionnaires use free-text boxes without formal mechanisms for analysis. Patients and carers spend time documenting concerns that are often ignored or managed locally in an ad hoc manner. Currently, palliative care experiences of patients and carers in Wales are measu...

journal_title：BMJ supportive & palliative care

authors： Bowyer AV,Finlay I,Baillie J,Byrne A,McCarthy J,Sampson C,Snow V,Nelson A

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVES:This paper reports on qualitative data exploring the experiences and coping mechanisms of medical specialists from the specialties of intensive care, surgery, oncology and palliative care, when dealing with death and dying and their emotional connection with dying patients in the context of a life-threatenin...

journal_title：BMJ supportive & palliative care

authors： Zambrano SC,Chur-Hansen A,Crawford GB

更新日期：2012-09-01 00:00:00

abstract：INTRODUCTION:The incidence of some fatal diseases, including HIV/AIDS, accompanied by depression has become a significant concern in developed, developing and underdeveloped countries. A great deal of time and money are spent on controlling and reducing the complications of this infection across the world. Accordingly,...

journal_title：BMJ supportive & palliative care

authors： Rezaei S,Ahmadi S,Rahmati J,Hosseinifard H,Dehnad A,Aryankhesal A,Shabaninejad H,Ghasemyani S,Alihosseini S,Bragazzi NL,Raoofi S,Kiaee ZM,Ghashghaee A

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:In Switzerland, helping with assisted suicide under certain conditions is not prosecuted. With approximately 300 cases annually, this leaves behind a large group of bereaved people where its consequences are mostly unknown. The study aimed to explore family involvement in decision making prior to assisted su...

journal_title：BMJ supportive & palliative care

authors： Gamondi C,Pott M,Forbes K,Payne S

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVES:As a rose geranium in sesame oil spray product has been anecdotally noted to improve nasal vestibulitis symptoms, this study was designed to assess whether patients with nasal vestibulitis associated with cancer-directed therapy experienced symptomatic improvements from it. METHODS:Patients with breast canc...

journal_title：BMJ supportive & palliative care

authors： Cathcart-Rake EJ,Smith D,Zahrieh D,Loprinzi CL

更新日期：2020-12-01 00:00:00

abstract：OBJECTIVES:Loss of appetite is prevalent in palliative care and distressing for patients and families. Therapies include corticosteroids or progestogens. This study explores the net effect of dexamethasone on anorexia. METHODS:Prospective data were collected when dexamethasone was started for anorexia as part of routi...

journal_title：BMJ supportive & palliative care

authors： Hatano Y,Moroni M,Wilcock A,Quinn S,Csikós Á,Allan SG,Agar M,Clark K,Clayton JM,Currow DC

更新日期：2016-09-01 00:00:00

abstract：OBJECTIVES:To review literature regarding online educational initiatives in palliative care which are targeted to update health professionals and prepare distance courses suitable for a Brazilian context. METHODS:7 databases (PubMed, Cochrane Library, LILACS, SCIELO, CINAHL, Science Direct and Scopus) were reviewed fo...

journal_title：BMJ supportive & palliative care

authors： Taroco ALC Jr,Valente TCO,Carbogim CS

更新日期：2017-06-01 00:00:00

abstract：OBJECTIVES:The decision to refer a patient to palliative care is complex and often highly variable between medical specialists. In this paper, we examine medical specialists' motivations and triggers underpinning decision-making around referral to palliative care in order to facilitate improvements in referral practice...

journal_title：BMJ supportive & palliative care

authors： Kirby E,Broom A,Good P,Wootton J,Adams J

更新日期：2014-09-01 00:00:00

abstract：BACKGROUND:Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM:...

journal_title：BMJ supportive & palliative care

authors： Bowers AP,Bradford N,Chan RJ,Herbert A,Yates P

更新日期：2020-10-13 00:00:00

abstract：OBJECTIVE:This study examined whether the choice of pain-related outcome to represent opioid efficacy influenced findings in a genetic association study. Data from the European Pharmacogenetic Opioid Study, which used opioid dose as the outcome, were analysed in respect of six alternative outcomes: average pain intensi...

journal_title：BMJ supportive & palliative care

authors： Fladvad T,Fayers P,Skorpen F,Kaasa S,Klepstad P

更新日期：2012-12-01 00:00:00

abstract：:Palliative sedation is the intentional use of sedatives to manage refractory symptom(s), such as pain and/or terminal restlessness. This case report describes the successful use of propofol, an ultra-fast-acting anaesthetic agent commonly used for anaesthesia induction and maintenance to manage refractory agitated del...

journal_title：BMJ supportive & palliative care

authors： Sulistio M,Wojnar R,Michael NG

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:In October 2014 a detailed mapping study of volunteers in palliative care services in NSW was undertaken for the first time. This presentation will provide a thematic analysis of the initial findings. AIMS:The aim of this study was to provide a thematic analysis of the occupational terrain of palliative car...

journal_title：BMJ supportive & palliative care

authors： Hansen L,Huntir A

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVE:To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN:Systematic review. SETTING:Child and adult services and interface between healthcare providers. PATIENTS:Young people aged 13-24 years with palliative care conditions in the p...

journal_title：BMJ supportive & palliative care

authors： Doug M,Adi Y,Williams J,Paul M,Kelly D,Petchey R,Carter YH

更新日期：2011-09-01 00:00:00

abstract：OBJECTIVES:Patients with advanced cancer do not report all symptoms, so assessment is best done systematically. However, for such patients, completion rates of some symptom instruments are <50%. Symptoms can be quantified by various scales including the Categorical Response Scale (CRS), Numerical Rating Scale (NRS) and...

journal_title：BMJ supportive & palliative care

authors： Jeter K,Blackwell S,Burke L,Joyce D,Moran C,Conway EV,Cremen I,O'Connor B,Ui Dhuibhir P,Walsh D

更新日期：2018-06-01 00:00:00

abstract：OBJECTIVE:This study investigated the preferences of patients, family and staff for single or shared rooms in a UK hospice. METHOD:Semistructured interviews were conducted with patients, informal carers and staff at a hospice, focusing on room type preference. RESULTS:14 current and former hospice inpatients, 15 pati...

journal_title：BMJ supportive & palliative care

authors： Williams C,Gardiner C

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVE:Evidence is mixed regarding the impact of advance care planning (ACP) on place of death. This cohort study investigated the effect of ACP programmes on place of death and utilisation of life-sustaining treatments for patients during end-of-life (EOL) care. METHODS:This prospective cohort study identified dec...

journal_title：BMJ supportive & palliative care

authors： Yen YF,Lee YL,Hu HY,Sun WJ,Ko MC,Chang SS,Chen CC,Huang SJ,Chu D

更新日期：2020-10-28 00:00:00

abstract：OBJECTIVES:To report the results of a combined case series analysis of subcutaneous levetiracetam (Keppra) for the management of seizures in palliative care patients. METHODS:A comprehensive literature review on the use of subcutaneous levetiracetam was performed, and these data were combined with a prospective observ...

journal_title：BMJ supportive & palliative care

authors： Sutherland AE,Curtin J,Bradley V,Bush O,Presswood M,Hedges V,Naessens K

更新日期：2018-06-01 00:00:00

abstract：:Fentanyl has a low molecular weight and is lipophilic making it suitable for transdermal administration. However, multiple factors appear to lead to interindividual variation in absorption via this route. Here we describe an unusual case where a patient was found to have twelve 100 μg/hour fentanyl patches in situ whi...

journal_title：BMJ supportive & palliative care

authors： Lam D,Kay S,Pickard J,Harrison S

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVES:Referral to, and usage of, specialist palliative care (SPC) services are not equitable and social deprivation may be a contributory factor in this. Deprivation may also affect the place of death of patients with cancer. No study, however, has investigated whether inequalities persist following referral to SP...

journal_title：BMJ supportive & palliative care

authors： Macfarlane M,Carduff E

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2 to 4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, thoughts about hastening death are not uncommon. OBJECTIVES:Our aim was to examine the scope of literat...

journal_title：BMJ supportive & palliative care

authors： Erdmann A,Spoden C,Hirschberg I,Neitzke G

更新日期：2021-01-04 00:00:00

abstract：BACKGROUND:The financial impact of family caregiving in a palliative care context has been identified as an issue which requires further research. However, little is known about how research should be conducted in this area. OBJECTIVE:The aim of this study was to explore the opinions of family caregivers in New Zealan...

journal_title：BMJ supportive & palliative care

authors： Gardiner C,Allen R,Moeke-Maxwell T,Robinson J,Gott M

更新日期：2016-12-01 00:00:00

abstract：INTRODUCTION:Of the 40 million people globally in need of palliative care (PC), just 14% receive it, predominantly in high-income countries. Within fragile health systems that lack PC, incurable illness is often marked by pain and suffering, as well as burdensome costs. In high-income settings, PC decreases healthcare ...

journal_title：BMJ supportive & palliative care

authors： Reid EA,Kovalerchik O,Jubanyik K,Brown S,Hersey D,Grant L

更新日期：2019-06-01 00:00:00

abstract：:The aim of this article is to use data from Belgium to analyse distinctions between palliative sedation and euthanasia. There is a need to reduce confusion and improve communication related to patient management at the end of life specifically regarding the rapidly expanding area of patient care that incorporates a sp...

journal_title：BMJ supportive & palliative care

authors： Cohen-Almagor R,Ely EW

更新日期：2018-09-01 00:00:00

abstract：OBJECTIVES:To identify those factors which adversely affected recruitment to a large multicentre palliative care study. METHODS:Patient accrual to a multicentre, observational, palliative care study was monitored at three critical junctures in the research process. (1) Eligibility-did the patient fulfil the study entr...

journal_title：BMJ supportive & palliative care

authors： Stone PC,Gwilliam B,Keeley V,Todd C,Kelly LC,Barclay S

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Cancer-related pain is a significant and debilitating problem. Non-pharmacological treatments such as acupuncture may have an adjunctive role in controlling pain without the undesirable side effects of drug regimens and yet the evidence base remains limited. OBJECTIVES:The main objective of this systematic ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Tashani OA,Bagnall AM,Johnson MI

更新日期：2011-06-01 00:00:00

abstract：INTRODUCTION:The collaboration between palliative care and neurology has developed over the last 25 years and this study aimed to ascertain the collaboration between the specialties across Europe. METHODS:This online survey aimed to look at collaboration across Europe, using the links of the European Association for P...

journal_title：BMJ supportive & palliative care

authors： Oliver D,Borasio GD,Veronese S,Voltz R,Lorenzl S,Hepgul N

更新日期：2020-07-10 00:00:00

abstract：OBJECTIVE:To identify the position of formal service providers in the networks of those providing end-of-life care in the home from the perspective of the informal network. METHODS:Using third-generation social network analysis, this study examined the nature and strength of relationships of informal caring networks w...

journal_title：BMJ supportive & palliative care

authors： Leonard R,Horsfall D,Rosenberg J,Noonan K

更新日期：2020-06-01 00:00:00

abstract：BACKGROUND:In Ireland, weekend and night medical cover for community based patients is largely provided by general practice co-operatives. Doctors working in this service do not have direct access to patients' medical records which challenges continuity of care. OBJECTIVES:This study investigates the opinion of genera...

journal_title：BMJ supportive & palliative care

authors： Kiely F,Murphy M,O'Brien T

更新日期：2013-12-01 00:00:00

abstract：BACKGROUND:According to a small pilot study on palliative cancer patients at our ward, vitamin D supplementation had beneficial effects on pain (measured as opioid consumption), infections and quality of life (QoL) without having any significant side effects. OBJECTIVE:The primary objective of the 'Palliative-D' study...

journal_title：BMJ supportive & palliative care

authors： Helde-Frankling M,Bergqvist J,Klasson C,Nordström M,Höijer J,Bergman P,Björkhem-Bergman L

更新日期：2017-12-01 00:00:00

abstract：BACKGROUND:Many scholars claim that recent changes to Chinese society since economic reform have challenged longstanding forms of informal social care, such as filial piety. For instance there is a societal tension at work in contemporary Chinese society today. On the one hand decreasing co-residence in multi-generatio...

journal_title：BMJ supportive & palliative care

authors： He L

更新日期：2015-04-01 00:00:00