Assessing the internal consistency and temporal stability of advance directives generated by an interactive, online computer program.

Abstract:

OBJECTIVE:Evaluate the internal consistency and temporal stability of advance directives (ADs) generated by an interactive, online computer program. METHODS:33 participants completed the program at three visits, 2 weeks apart. Agreement rates were calculated for the General Wishes component of the AD. The test-retest method was used to examine the temporal stability of the Specific Wish for Treatment component which contains five clinical scenarios. RESULTS:General Wishes remained stable with 94% selecting the identical response at each visit. For the Specific Wish for Treatment scale, significant variations in test-retest correlations existed (ie, ρ=0.32-0.78, between time points 1 and 2); however within scenario, correlations did not significantly vary between time points. Temporal stability was lower in the Specific Wish for Treatment scale compared with General Wishes (average ρ=0.59, between time points 1 and 2; and ρ=0.75, between time points 2 and 3). CONCLUSIONS:ADs generated by an online decision aid demonstrate good temporal stability, with highest stability for General Wishes and moderate stability for Specific Wish for Treatment regarding medical treatments in specific clinical scenarios. Internal consistency for wish for treatment across all time points and scenarios was high (Cronbach α>0.90).

authors

Schubart JR,Camacho F,Green MJ,Rush KA,Levi BH

doi

10.1136/bmjspcare-2014-000814

subject

Has Abstract

pub_date

2017-03-01 00:00:00

pages

67-72

issue

1

eissn

2045-435X

issn

2045-4368

pii

bmjspcare-2014-000814

journal_volume

7

pub_type

杂志文章
  • Simulation to improve medical student confidence and preparedness to care for the dying: a feasibility study.

    abstract:BACKGROUND:Undergraduate teaching currently fails to adequately prepare doctors to deliver 'end-of-life' care. Despite much evidence supporting simulation-based teaching, its use in medical undergraduate palliative and 'end-of-life' care curricula remain low. AIM:This study assesses whether simulation can improve the ...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2019-001853

    authors: Wells G,Montgomery J,Hiersche A

    更新日期:2019-08-28 00:00:00

  • OA28 At the clinical shores - palliative care volunteers and population health in new south wales (NSW).

    abstract:BACKGROUND:In October 2014 a detailed mapping study of volunteers in palliative care services in NSW was undertaken for the first time. This presentation will provide a thematic analysis of the initial findings. AIMS:The aim of this study was to provide a thematic analysis of the occupational terrain of palliative car...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2015-000906.28

    authors: Hansen L,Huntir A

    更新日期:2015-04-01 00:00:00

  • On the emotional connection of medical specialists dealing with death and dying: a qualitative study of oncologists, surgeons, intensive care specialists and palliative medicine specialists.

    abstract:OBJECTIVES:This paper reports on qualitative data exploring the experiences and coping mechanisms of medical specialists from the specialties of intensive care, surgery, oncology and palliative care, when dealing with death and dying and their emotional connection with dying patients in the context of a life-threatenin...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2012-000208

    authors: Zambrano SC,Chur-Hansen A,Crawford GB

    更新日期:2012-09-01 00:00:00

  • Improving specialist palliative care in residential care for older people: a checklist to guide practice.

    abstract:OBJECTIVES:Palliative care needs rounds are triage meetings that have been introduced in residential care for older adults to help identify and prioritise care for people most at risk for unplanned dying with inadequately controlled symptoms. This study sought to generate an evidence-based checklist in order to support...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2017-001332

    authors: Forbat L,Chapman M,Lovell C,Liu WM,Johnston N

    更新日期:2018-09-01 00:00:00

  • Adult palliative care 2004-2030 population study: estimates and projections in Malaysia.

    abstract:OBJECTIVES:To estimate past trends and future projection of adult palliative care needs in Malaysia. METHODS:This is a population-based secondary data analysis using the national mortality registry from 2004 to 2014. Past trend estimation was conducted using Murtagh's minimum and maximum methods and Gómez-Batiste's me...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2020-002283

    authors: Yang SL,Woon YL,Teoh CCO,Leong CT,Lim RBL

    更新日期:2020-08-21 00:00:00

  • Quality versus risk of bias assessment of palliative care trials: comparison of two tools.

    abstract:BACKGROUND:Randomised controlled trials (RCTs) of palliative care interventions are challenging to conduct and evaluate. Tools used to judge the quality of RCTs do not account for the complexities of conducting research in seriously ill populations and may artificially downgrade confidence in palliative care research. ...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2020-002539

    authors: Isenberg SR,Kavalieratos D,Chow R,Le L,Wegier P,Zimmermann C

    更新日期:2020-11-18 00:00:00

  • Unusual case of transdermal fentanyl in cachexia.

    abstract::Fentanyl has a low molecular weight and is lipophilic making it suitable for transdermal administration. However, multiple factors appear to lead to interindividual variation in absorption via this route. Here we describe an unusual case where a patient was found to have twelve 100 μg/hour fentanyl patches in situ whi...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2018-001652

    authors: Lam D,Kay S,Pickard J,Harrison S

    更新日期:2019-12-01 00:00:00

  • Enzyme replacement in advanced pancreatic cancer: patient perceptions.

    abstract:PURPOSE:Advanced pancreatic cancer has a universally poor survival rate. Patients frequently develop malabsorption that requires pancreatic enzyme replacement therapy (PERT). This study explores the experience of patient engagement with PERT and how the medication is taken and tolerated. METHODS:Participants with adva...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2019-002153

    authors: Landers A,McKenzie C,Pitama SG,Brown H

    更新日期:2020-03-22 00:00:00

  • Requested withdrawal of mechanical ventilation in six patients with motor neuron disease.

    abstract:OBJECTIVES:Mechanical ventilation (MV) has been shown to improve survival and quality of life in motor neuron disease (MND). However, during the progression of MND, there may come a point when MV is no longer felt appropriate. Association of Palliative Medicine Guidelines have been recently published to help clinicians...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2017-001464

    authors: Messer B,Armstrong A,Doris T,Williams T

    更新日期:2020-03-01 00:00:00

  • Volunteer activity in specialist paediatric palliative care: a national survey.

    abstract:OBJECTIVE:To assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people. METHOD:Cross-sectional survey using a web-based questionnaire. SETTING:UK specialist paediatric palliative care services. PARTICIPANTS:Volunteer managers/coordinators fro...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2012-000355

    authors: Burbeck R,Low J,Sampson EL,Scott R,Bravery R,Candy B

    更新日期:2015-09-01 00:00:00

  • Distance learning for updating health professionals in palliative care: a systematic review.

    abstract:OBJECTIVES:To review literature regarding online educational initiatives in palliative care which are targeted to update health professionals and prepare distance courses suitable for a Brazilian context. METHODS:7 databases (PubMed, Cochrane Library, LILACS, SCIELO, CINAHL, Science Direct and Scopus) were reviewed fo...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章,评审

    doi:10.1136/bmjspcare-2015-001042

    authors: Taroco ALC Jr,Valente TCO,Carbogim CS

    更新日期:2017-06-01 00:00:00

  • Changing from continuous SC to transdermal clonidine to treat dystonia in a teenage boy with end-stage leucodystrophy.

    abstract::This case report discusses the problems encountered with dystonia in a teenage boy with end-stage calcifying leucodystrophy. It records the successful use of prolonged continuous subcutaneous clonidine and the change to thrice weekly transdermal clonidine. ...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2015-001010

    authors: McCluggage HL

    更新日期:2018-12-01 00:00:00

  • Assisted ventilation in motor neurone disease during inpatient palliative care: barriers and utilisation.

    abstract:OBJECTIVES:An increasing number of patients with motor neuron disease (MND) in the UK and Ireland use assisted ventilation, and a small proportion of these use long-term tracheostomy ventilation (TV).1 2 NICE guidelines recommend that patients with MND should routinely receive specialist palliative care input.3 The aim...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2018-001672

    authors: Gleeson A,Johnson F

    更新日期:2020-09-01 00:00:00

  • Carer experience of end-of-life service provision: a social network analysis.

    abstract:OBJECTIVE:To identify the position of formal service providers in the networks of those providing end-of-life care in the home from the perspective of the informal network. METHODS:Using third-generation social network analysis, this study examined the nature and strength of relationships of informal caring networks w...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2017-001344

    authors: Leonard R,Horsfall D,Rosenberg J,Noonan K

    更新日期:2020-06-01 00:00:00

  • Psychological concerns of Indian women with breast cancer in different national contexts: a systematic review and mixed-methods synthesis.

    abstract:BACKGROUND:Breast cancer is becoming the most common cancer among women of Indian origin. However, little is known about the psychological impact of the disease and its treatment among this population. AIM:To improve understanding of psychological symptoms among Indian women with breast cancer. DESIGN:This is a syste...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章,评审

    doi:10.1136/bmjspcare-2019-002076

    authors: Daniel S,Clark J,Gnanapragasam S,Venkateswaran C,Johnson MJ

    更新日期:2020-05-11 00:00:00

  • Impact of a patient-tailored complementary/integrative medicine programme on disturbed sleep quality among patients undergoing chemotherapy.

    abstract:OBJECTIVES:The present study examined the impact of a patient-tailored complementary/integrative medicine (CIM) programme on sleep quality in patients undergoing chemotherapy for breast and gynaecological cancer. METHODS:Study participants received standard supportive care, with or without weekly CIM treatments. Distu...

    journal_title:BMJ supportive & palliative care

    pub_type: 临床试验,杂志文章

    doi:10.1136/bmjspcare-2017-001351

    authors: Kerner H,Samuels N,Ben Moshe S,Sharabi IS,Ben-Arye E

    更新日期:2020-09-01 00:00:00

  • OA48 Engaging communities: the impact of a decade of health promoting palliative care policy in victoria.

    abstract:BACKGROUND:Health promoting palliative care began in Victoria, Australia and has been included in Victorian palliative care policy for over a decade. AIM:To review the way Victorian palliative care services have responded to government policies and strategic directions that are based upon health promoting palliative c...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2015-000906.48

    authors: Rumbold B,Grindrod A

    更新日期:2015-04-01 00:00:00

  • Issues for palliative medicine doctors surrounding the withdrawal of non-invasive ventilation at the request of a patient with motor neurone disease: a scoping study.

    abstract:BACKGROUND:Non-invasive ventilation (NIV) is beneficial for respiratory failure in motor neurone disease (MND) but some patients may wish to stop the intervention. Guidance from the National Institute for Health and Care Excellence recommends that research is needed on NIV withdrawal. There is little in the literature ...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2013-000470

    authors: Faull C,Rowe Haynes C,Oliver D

    更新日期:2014-03-01 00:00:00

  • What is the patient experience in advanced liver disease? A scoping review of the literature.

    abstract:BACKGROUND:There has been a dramatic increase in liver disease over recent decades, with morbidity and mortality rates predicted to rise significantly. In order to effectively support this growing patient population we need to understand the experiences, key issues and priorities of people living and dying with advance...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章,评审

    doi:10.1136/bmjspcare-2012-000435

    authors: Kimbell B,Murray SA

    更新日期:2015-12-01 00:00:00

  • Systematic mixed-method review of barriers to end-of-life communication in the family context.

    abstract:BACKGROUND:Communication about the end of life is especially important in the family context, as patients and their families are considered as the care unit in palliative care. Open end-of-life communication can positively affect medical, psychological and relational outcomes during the dying process for patient and fa...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章,评审

    doi:10.1136/bmjspcare-2020-002219

    authors: Nagelschmidt K,Leppin N,Seifart C,Rief W,von Blanckenburg P

    更新日期:2020-08-27 00:00:00

  • Prognostication in urgent intensive care unit referrals: a cohort study.

    abstract:OBJECTIVES:Prognostication is an essential ability to clinicians. Nevertheless, it has been shown to be quite variable in acutely ill patients, potentially leading to inappropriate care. We aimed to assess the accuracy of physician's prediction of hospital mortality in acutely deteriorating patients referred for urgent...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2018-001567

    authors: Ramos JGR,Dias RD,Passos RDH,Batista PBP,Forte DN

    更新日期:2020-03-01 00:00:00

  • Resuscitation status conversations: a short education session improves junior doctors' confidence.

    abstract:AIM:Junior doctors are frequently required to discuss resuscitation status with patients. They generally lack experience, confidence and skill in having these conversations. However, there is currently no formal postgraduate education requirement to improve or develop in this area. The aim of this educational intervent...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2020-002479

    authors: Ferguson L,Clark H,de Beer W

    更新日期:2020-08-21 00:00:00

  • Exploring education and training needs among the palliative care workforce.

    abstract:OBJECTIVES:Education and training are seen as 'absolutely essential parts of providing palliative care'. As part of a larger study to explore the extent of palliative care need in two acute hospital settings, we report the perceptions of healthcare professionals regarding their training and educational needs. METHODS:...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2012-000233

    authors: Ingleton C,Gardiner C,Seymour JE,Richards N,Gott M

    更新日期:2013-06-01 00:00:00

  • OA58 Community capacity development for enhanced hospice palliative care: exploring the value of community engagement.

    abstract:BACKGROUND:Over time, palliative care has become "professionalised", placing a burden on health care systems to manage the suffering of individuals and families with advancing, life-limiting illness. The need to develop resources, infrastructure and policy to enhance the capacity for communities to facilitate and suppo...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2015-000906.58

    authors: Whitfield K,LaBrie M

    更新日期:2015-04-01 00:00:00

  • Educational needs of nursing home staff: does a needs-based palliative care course make a difference?

    abstract:OBJECTIVE:In Singapore, more elderly are living in nursing homes (NHs), with a resultant increase in deaths occurring in NHs. However, palliative care training is limited in Singapore's core nursing curriculum, and many NHs rely on foreign-trained staff who may not have previous palliative care training. Our study aime...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2020-002690

    authors: Phua GLG,Toh HJ,Tan L,Low JAYH

    更新日期:2020-11-09 00:00:00

  • Does place of death vary by deprivation for patients known to specialist palliative care services?

    abstract:OBJECTIVES:Referral to, and usage of, specialist palliative care (SPC) services are not equitable and social deprivation may be a contributory factor in this. Deprivation may also affect the place of death of patients with cancer. No study, however, has investigated whether inequalities persist following referral to SP...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2016-001099

    authors: Macfarlane M,Carduff E

    更新日期:2018-12-01 00:00:00

  • Associations between demographic characteristics and unmet supportive care needs in adults with cystic fibrosis.

    abstract:CONTEXT:Patients living with cystic fibrosis (CF) report impaired quality of life. Little is known about unmet supportive care needs among adults living with CF and how they are associated with demographic characteristics. OBJECTIVES:The primary objective of this study was to identify associations between demographic ...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2019-001819

    authors: Obregon LL,Jeong K,Hoydich ZP,Yabes J,Pilewski J,Richless C,Moreines LT,Dellon EP,Goss CH,Arnold RM,Kavalieratos D

    更新日期:2019-08-31 00:00:00

  • Provision of palliative care in National Cancer Grid treatment centres in India: a cross-sectional gap analysis survey.

    abstract:OBJECTIVES:This study aimed to identify gaps in palliative care (PC) provision across the National Cancer Grid (NCG) centres in India. METHODS:We performed a cross-sectional validated web-based survey on 102 NCG cancer centres (Nov '17 to April '18). The survey questionnaire had seven sections collecting data relating...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2019-002152

    authors: Damani A,Salins N,Ghoshal A,Chowdhury J,Muckaden MA,Deodhar J,Pramesh CS

    更新日期:2020-06-09 00:00:00

  • Mechanical ventilation withdrawal in motor neuron disease: an evaluation of practice.

    abstract:OBJECTIVES:Clinicians report that withdrawal of mechanical ventilation in motor neuron disease is challenging. We report on the evaluation of the process and outcomes called for by the Association for Palliative Medicine of Great Britain and Ireland (APM) guidance. METHODS:Excel analysis of a core data set, defined in...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2019-002170

    authors: Faull C,Wenzel D

    更新日期:2020-05-21 00:00:00

  • A prospective observational study of prevalence and outcomes of patients with Gold Standard Framework criteria in a tertiary regional Australian Hospital.

    abstract:OBJECTIVES:Report the use of an objective tool, UK Gold Standards Framework (GSF) criteria, to describe the prevalence, recognition and outcomes of patients with palliative care needs in an Australian acute health setting. The rationale for this is to enable hospital doctors to identify patients who should have a patie...

    journal_title:BMJ supportive & palliative care

    pub_type: 杂志文章

    doi:10.1136/bmjspcare-2015-000864

    authors: Milnes S,Orford NR,Berkeley L,Lambert N,Simpson N,Elderkin T,Corke C,Bailey M

    更新日期:2019-03-01 00:00:00