Enzyme replacement in advanced pancreatic cancer: patient perceptions.

abstract：OBJECTIVES:An increasing number of patients with motor neuron disease (MND) in the UK and Ireland use assisted ventilation, and a small proportion of these use long-term tracheostomy ventilation (TV).1 2 NICE guidelines recommend that patients with MND should routinely receive specialist palliative care input.3 The aim...

journal_title：BMJ supportive & palliative care

authors： Gleeson A,Johnson F

更新日期：2020-09-01 00:00:00

abstract：BACKGROUND:Communication about the end of life is especially important in the family context, as patients and their families are considered as the care unit in palliative care. Open end-of-life communication can positively affect medical, psychological and relational outcomes during the dying process for patient and fa...

journal_title：BMJ supportive & palliative care

authors： Nagelschmidt K,Leppin N,Seifart C,Rief W,von Blanckenburg P

更新日期：2020-08-27 00:00:00

abstract：OBJECTIVE:Caregivers to patients with primary malignant brain tumours neglect their own physical and emotional needs during the disease trajectory. The aim of the systematic review was to explore how informal caregivers of patients with primary malignant brain tumour (high-grade glioma (HGG)) experience and manage thei...

journal_title：BMJ supportive & palliative care

authors： Piil K,Nordentoft S,Larsen A,Jarden M

更新日期：2019-03-01 00:00:00

abstract：CONTEXT:Patients with chronic cancer pain frequently suffer severe exacerbations of pain intensity which are difficult to control adequately via pharmaceutical management. Management of these episodes of breakthrough pain (BTP) presents a challenge both to the physician and the patient, and supplemental 'rescue' doses ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Johnson MI,Bennett MI

更新日期：2011-12-01 00:00:00

abstract：BACKGROUND:In October 2014 a detailed mapping study of volunteers in palliative care services in NSW was undertaken for the first time. This presentation will provide a thematic analysis of the initial findings. AIMS:The aim of this study was to provide a thematic analysis of the occupational terrain of palliative car...

journal_title：BMJ supportive & palliative care

authors： Hansen L,Huntir A

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:According to a small pilot study on palliative cancer patients at our ward, vitamin D supplementation had beneficial effects on pain (measured as opioid consumption), infections and quality of life (QoL) without having any significant side effects. OBJECTIVE:The primary objective of the 'Palliative-D' study...

journal_title：BMJ supportive & palliative care

authors： Helde-Frankling M,Bergqvist J,Klasson C,Nordström M,Höijer J,Bergman P,Björkhem-Bergman L

更新日期：2017-12-01 00:00:00

abstract：OBJECTIVES:MicroRNAs (miRNAs) have recently been reported as useful diagnostic markers in cancer; however, relationships of miRNAs with adverse events during chemotherapy have yet to be fully described. In this study, we examined the relationship between serum miRNA and the risk of peripheral neuropathy (PN), a common ...

journal_title：BMJ supportive & palliative care

authors： Noda-Narita S,Shimomura A,Tanabe Y,Kawauchi J,Matsuzaki J,Takizawa S,Aoki Y,Shimizu C,Tamura K,Ochiya T

更新日期：2020-01-14 00:00:00

abstract：OBJECTIVES:This study aimed to identify gaps in palliative care (PC) provision across the National Cancer Grid (NCG) centres in India. METHODS:We performed a cross-sectional validated web-based survey on 102 NCG cancer centres (Nov '17 to April '18). The survey questionnaire had seven sections collecting data relating...

journal_title：BMJ supportive & palliative care

authors： Damani A,Salins N,Ghoshal A,Chowdhury J,Muckaden MA,Deodhar J,Pramesh CS

更新日期：2020-06-09 00:00:00

abstract：BACKGROUND:There has been a dramatic increase in liver disease over recent decades, with morbidity and mortality rates predicted to rise significantly. In order to effectively support this growing patient population we need to understand the experiences, key issues and priorities of people living and dying with advance...

journal_title：BMJ supportive & palliative care

authors： Kimbell B,Murray SA

更新日期：2015-12-01 00:00:00

abstract：OBJECTIVES:Referral to, and usage of, specialist palliative care (SPC) services are not equitable and social deprivation may be a contributory factor in this. Deprivation may also affect the place of death of patients with cancer. No study, however, has investigated whether inequalities persist following referral to SP...

journal_title：BMJ supportive & palliative care

authors： Macfarlane M,Carduff E

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:Values used in economic evaluation are typically obtained from the general public, which is problematic when measures are to be used with people experiencing a life-course stage such as the end of life. OBJECTIVE:To assess the feasibility of obtaining values for the ICECAP-Supportive Care Measure (SCM) from...

journal_title：BMJ supportive & palliative care

authors： Bailey C,Kinghorn P,Hewison A,Radcliffe C,Flynn TN,Huynh E,Coast J

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVE:Evidence is mixed regarding the impact of advance care planning (ACP) on place of death. This cohort study investigated the effect of ACP programmes on place of death and utilisation of life-sustaining treatments for patients during end-of-life (EOL) care. METHODS:This prospective cohort study identified dec...

journal_title：BMJ supportive & palliative care

authors： Yen YF,Lee YL,Hu HY,Sun WJ,Ko MC,Chang SS,Chen CC,Huang SJ,Chu D

更新日期：2020-10-28 00:00:00

abstract：BACKGROUND:The legalisation of medical assistance in dying in numerous countries over the last 20 years represents a significant shift in practice and scope for many clinicians who have had little-to-no training to prepare them to sensitively respond to patient requests for hastened death. AIMS:Our objective was to re...

journal_title：BMJ supportive & palliative care

authors： Patel T,Christy K,Grierson L,Shadd J,Farag A,O'Toole D,Lawson J,Vanstone M

更新日期：2020-06-29 00:00:00

abstract：:Nightmares can be a distressing symptom in patients living with serious illness. Prazosin, a selective alpha-1 adrenergic antagonist, has been suggested to treat nightmares, with most data supporting its use in post-traumatic stress disorder (PTSD). We present the case of a 60-year-old woman with metastatic breast can...

journal_title：BMJ supportive & palliative care

authors： Santivasi W,Taylor E,Christensen A,Strand J

更新日期：2021-01-27 00:00:00

abstract：OBJECTIVES:This paper examined the potential of a new classification framework, The Spectrum of Children's Palliative Care Needs, to facilitate identification of children with palliative care needs for the purposes of minimum data set collection and population needs assessment. METHODS:Health and social care professio...

journal_title：BMJ supportive & palliative care

authors： Shaw KL,Brook L,Mpundu-Kaambwa C,Harris N,Lapwood S,Randall D

更新日期：2015-09-01 00:00:00

abstract：OBJECTIVES:Report the use of an objective tool, UK Gold Standards Framework (GSF) criteria, to describe the prevalence, recognition and outcomes of patients with palliative care needs in an Australian acute health setting. The rationale for this is to enable hospital doctors to identify patients who should have a patie...

journal_title：BMJ supportive & palliative care

authors： Milnes S,Orford NR,Berkeley L,Lambert N,Simpson N,Elderkin T,Corke C,Bailey M

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVE:This study explored how built space plays out in palliative care, focusing on spatial aspects that could support or hamper patients', relatives' and caregivers' well-being. METHODS:This study was conducted in a freestanding small-scale hospice combining a residential part for eight guests with a day-care par...

journal_title：BMJ supportive & palliative care

authors： Annemans M,Coomans K,Heylighen A

更新日期：2020-05-14 00:00:00

abstract：OBJECTIVES:To investigate the body composition and dietary intake in the patients with head and neck cancer (HNC) during radiotherapy (RT), and explore the relationship between them. METHODS:This was a prospective, longitudinal observational study. Adult patients with HNC undergoing RT between March 2017 and August 20...

journal_title：BMJ supportive & palliative care

authors： Zhuang B,Zhang L,Wang Y,Cao Y,Shih Y,Jin S,Li H,Gong L,Wang Y,Jin S,Lu Q

更新日期：2020-09-11 00:00:00

abstract：BACKGROUND:The financial impact of family caregiving in a palliative care context has been identified as an issue which requires further research. However, little is known about how research should be conducted in this area. OBJECTIVE:The aim of this study was to explore the opinions of family caregivers in New Zealan...

journal_title：BMJ supportive & palliative care

authors： Gardiner C,Allen R,Moeke-Maxwell T,Robinson J,Gott M

更新日期：2016-12-01 00:00:00

abstract：OBJECTIVES:Mechanical ventilation (MV) has been shown to improve survival and quality of life in motor neuron disease (MND). However, during the progression of MND, there may come a point when MV is no longer felt appropriate. Association of Palliative Medicine Guidelines have been recently published to help clinicians...

journal_title：BMJ supportive & palliative care

authors： Messer B,Armstrong A,Doris T,Williams T

更新日期：2020-03-01 00:00:00

abstract：:The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have...

journal_title：BMJ supportive & palliative care

authors： Hunt KJ,Richardson A,Darlington AE,Addington-Hall JM

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVE:To assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people. METHOD:Cross-sectional survey using a web-based questionnaire. SETTING:UK specialist paediatric palliative care services. PARTICIPANTS:Volunteer managers/coordinators fro...

journal_title：BMJ supportive & palliative care

authors： Burbeck R,Low J,Sampson EL,Scott R,Bravery R,Candy B

更新日期：2015-09-01 00:00:00

abstract：BACKGROUND:End-of-life care practices in long-term care facilities (LTCFs) are the focus of growing attention in Europe, due to rapidly increasing number of older persons living in LTCFs. The knowledge about end-of-life discussions or existence of written advance directives in the European LTCFs is scarce. This study's...

journal_title：BMJ supportive & palliative care

authors： Andreasen P,Finne-Soveri UH,Deliens L,Van den Block L,Payne S,Gambassi G,Onwuteaka-Philipsen BD,Smets T,Lilja E,Kijowska V,Szczerbińska K,PACE consortium.

更新日期：2019-05-21 00:00:00

abstract：OBJECTIVES:Education and training are seen as 'absolutely essential parts of providing palliative care'. As part of a larger study to explore the extent of palliative care need in two acute hospital settings, we report the perceptions of healthcare professionals regarding their training and educational needs. METHODS:...

journal_title：BMJ supportive & palliative care

authors： Ingleton C,Gardiner C,Seymour JE,Richards N,Gott M

更新日期：2013-06-01 00:00:00

abstract：BACKGROUND:General practitioners (GPs) and general practice nurses (GPNs) face increasing demands to provide end-of-life care (EoLC) as the population ages. To enhance primary palliative care (PC), the care they provide needs to be understood to inform best practice models of care. OBJECTIVE:To provide a comprehensive...

journal_title：BMJ supportive & palliative care

authors： Senior H,Grant M,Rhee JJ,Aubin M,McVey P,Johnson C,Monterosso L,Nwachukwu H,Fallon-Ferguson J,Yates P,Williams B,Mitchell G

更新日期：2019-08-29 00:00:00

abstract：:Medicine regards the prevention of death as an important priority. Yet patients may have a range of priorities of equal or greater importance. These other priorities are often not discussed or appreciated by treating doctors. OBJECTIVES:We sought to identify priorities of care for patients attending an advance care p...

journal_title：BMJ supportive & palliative care

authors： Milnes S,Corke C,Orford NR,Bailey M,Savulescu J,Wilkinson D

更新日期：2019-09-01 00:00:00

abstract：BACKGROUND AND OBJECTIVES:Meaning in life (MIL) represent a key topic in palliative care. The aims of this study were to explore (1) the differences in perceived MIL and in the meaning-relevant life areas between a representative sample of the Swiss population and palliative care patients, and (2) to what extent MIL ca...

journal_title：BMJ supportive & palliative care

authors： Bernard M,Berchtold A,Strasser F,Gamondi C,Borasio GD

更新日期：2020-07-06 00:00:00

abstract：BACKGROUND:Compared with the current inpatient consultation model, a novel corounding model of care whereby palliative specialists round with oncology teams, increases healthcare collaboration and may improve quality of care for inpatients. Whether this translates to better pain control for patients is unexplored. OBJ...

journal_title：BMJ supportive & palliative care

authors： Ng CZ,Cheung YB,Koh ARX,Teo HR,Mok NKM,Yang GM

更新日期：2020-12-18 00:00:00

abstract：OBJECTIVES:People with dementia and their carers may experience poor end of life care, often having to navigate complex health and social care systems. The objectives of this study were to identify: (1) barriers for people with dementia and their carers in accessing good quality end of life care and (2) cost-effective ...

journal_title：BMJ supportive & palliative care

authors： Sampson E,Mandal U,Holman A,Greenish W,Dening KH,Jones L

更新日期：2012-06-01 00:00:00

abstract：OBJECTIVES:Prognostication is an essential ability to clinicians. Nevertheless, it has been shown to be quite variable in acutely ill patients, potentially leading to inappropriate care. We aimed to assess the accuracy of physician's prediction of hospital mortality in acutely deteriorating patients referred for urgent...

journal_title：BMJ supportive & palliative care

authors： Ramos JGR,Dias RD,Passos RDH,Batista PBP,Forte DN

更新日期：2020-03-01 00:00:00