Patient values informing medical treatment: a pilot community and advance care planning survey.

abstract：:Malignant spinal cord compression (MSCC) in patients with short life expectancy is most frequently treated with radiotherapy and/or corticosteroids. Hypofractionation has been proven to be efficient in metastatic bone pain, but the level of evidence for hypofractionation in MSCC is limited. Searches were performed in ...

journal_title：BMJ supportive & palliative care

authors： Løhre ET,Lund JÅ,Kaasa S

更新日期：2012-03-01 00:00:00

abstract：OBJECTIVES:Loss of appetite is prevalent in palliative care and distressing for patients and families. Therapies include corticosteroids or progestogens. This study explores the net effect of dexamethasone on anorexia. METHODS:Prospective data were collected when dexamethasone was started for anorexia as part of routi...

journal_title：BMJ supportive & palliative care

authors： Hatano Y,Moroni M,Wilcock A,Quinn S,Csikós Á,Allan SG,Agar M,Clark K,Clayton JM,Currow DC

更新日期：2016-09-01 00:00:00

abstract：CONTEXT:Patients with chronic cancer pain frequently suffer severe exacerbations of pain intensity which are difficult to control adequately via pharmaceutical management. Management of these episodes of breakthrough pain (BTP) presents a challenge both to the physician and the patient, and supplemental 'rescue' doses ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Johnson MI,Bennett MI

更新日期：2011-12-01 00:00:00

abstract：OBJECTIVE:To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN:Systematic review. SETTING:Child and adult services and interface between healthcare providers. PATIENTS:Young people aged 13-24 years with palliative care conditions in the p...

journal_title：BMJ supportive & palliative care

authors： Doug M,Adi Y,Williams J,Paul M,Kelly D,Petchey R,Carter YH

更新日期：2011-09-01 00:00:00

abstract：BACKGROUND:Pain control is an essential component of high-quality palliative care. Unfortunately, many low-income and middle-income countries lack an appropriate infrastructure to provide palliative care and suffer from a severe lack of access to opioid analgesics to alleviate pain from various conditions such as cance...

journal_title：BMJ supportive & palliative care

authors： Lincoln SB,Soto-Perez-de-Celis E,Chavarri-Guerra Y,Covarrubias-Gomez A,Navarro M,Goss PE

更新日期：2019-10-30 00:00:00

abstract：OBJECTIVE:To determine the feasibility of conducting creative writing workshops (CWW) for patients with cancer to promote improvement in mood. METHOD:We piloted a prospective study to determine the feasibility of conducting CWW over a 4-week period. Patients were randomised 2:1 to either an intervention arm (IA) or to...

journal_title：BMJ supportive & palliative care

authors： Zhu J,Hussain M,Joshi A,Truica CI,Nesterova D,Collins J,Saunders EFH,Hayes M,Drabick JJ,Joshi M

更新日期：2020-03-01 00:00:00

abstract：OBJECTIVES:To investigate the body composition and dietary intake in the patients with head and neck cancer (HNC) during radiotherapy (RT), and explore the relationship between them. METHODS:This was a prospective, longitudinal observational study. Adult patients with HNC undergoing RT between March 2017 and August 20...

journal_title：BMJ supportive & palliative care

authors： Zhuang B,Zhang L,Wang Y,Cao Y,Shih Y,Jin S,Li H,Gong L,Wang Y,Jin S,Lu Q

更新日期：2020-09-11 00:00:00

abstract：:The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have...

journal_title：BMJ supportive & palliative care

authors： Hunt KJ,Richardson A,Darlington AE,Addington-Hall JM

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:A diagnosis of cancer and anticipated death of a loved one has a significant impact on the whole family. Research has mainly focused on carers, with little emphasis on the wider, long-term implications. AIM:To explore the cancer beliefs of patients with advanced cancer and their relatives. The focus was on ...

journal_title：BMJ supportive & palliative care

authors： Baker N,Armour K,Meystre C,Redwood S,Dawson A

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVE:This study investigated the preferences of patients, family and staff for single or shared rooms in a UK hospice. METHOD:Semistructured interviews were conducted with patients, informal carers and staff at a hospice, focusing on room type preference. RESULTS:14 current and former hospice inpatients, 15 pati...

journal_title：BMJ supportive & palliative care

authors： Williams C,Gardiner C

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVES:Palliative sedation is a highly debated medical practice, particularly regarding its proper use in end-of-life care. Worldwide, guidelines are used to standardise care and regulate this practice. In this review, we identify and compare national/regional clinical practice guidelines on palliative sedation aga...

journal_title：BMJ supportive & palliative care

authors： Abarshi E,Rietjens J,Robijn L,Caraceni A,Payne S,Deliens L,Van den Block L,EURO IMPACT.

更新日期：2017-09-01 00:00:00

abstract：BACKGROUND:Undergraduate teaching currently fails to adequately prepare doctors to deliver 'end-of-life' care. Despite much evidence supporting simulation-based teaching, its use in medical undergraduate palliative and 'end-of-life' care curricula remain low. AIM:This study assesses whether simulation can improve the ...

journal_title：BMJ supportive & palliative care

authors： Wells G,Montgomery J,Hiersche A

更新日期：2019-08-28 00:00:00

abstract：BACKGROUND:In Switzerland, helping with assisted suicide under certain conditions is not prosecuted. With approximately 300 cases annually, this leaves behind a large group of bereaved people where its consequences are mostly unknown. The study aimed to explore family involvement in decision making prior to assisted su...

journal_title：BMJ supportive & palliative care

authors： Gamondi C,Pott M,Forbes K,Payne S

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVES:Referral to, and usage of, specialist palliative care (SPC) services are not equitable and social deprivation may be a contributory factor in this. Deprivation may also affect the place of death of patients with cancer. No study, however, has investigated whether inequalities persist following referral to SP...

journal_title：BMJ supportive & palliative care

authors： Macfarlane M,Carduff E

更新日期：2018-12-01 00:00:00

abstract：OBJECTIVES:Palliative care needs rounds are triage meetings that have been introduced in residential care for older adults to help identify and prioritise care for people most at risk for unplanned dying with inadequately controlled symptoms. This study sought to generate an evidence-based checklist in order to support...

journal_title：BMJ supportive & palliative care

authors： Forbat L,Chapman M,Lovell C,Liu WM,Johnston N

更新日期：2018-09-01 00:00:00

abstract：:The aim of this article is to use data from Belgium to analyse distinctions between palliative sedation and euthanasia. There is a need to reduce confusion and improve communication related to patient management at the end of life specifically regarding the rapidly expanding area of patient care that incorporates a sp...

journal_title：BMJ supportive & palliative care

authors： Cohen-Almagor R,Ely EW

更新日期：2018-09-01 00:00:00

abstract：BACKGROUND:The legalisation of medical assistance in dying in numerous countries over the last 20 years represents a significant shift in practice and scope for many clinicians who have had little-to-no training to prepare them to sensitively respond to patient requests for hastened death. AIMS:Our objective was to re...

journal_title：BMJ supportive & palliative care

authors： Patel T,Christy K,Grierson L,Shadd J,Farag A,O'Toole D,Lawson J,Vanstone M

更新日期：2020-06-29 00:00:00

abstract：BACKGROUND:End-of-life care practices in long-term care facilities (LTCFs) are the focus of growing attention in Europe, due to rapidly increasing number of older persons living in LTCFs. The knowledge about end-of-life discussions or existence of written advance directives in the European LTCFs is scarce. This study's...

journal_title：BMJ supportive & palliative care

authors： Andreasen P,Finne-Soveri UH,Deliens L,Van den Block L,Payne S,Gambassi G,Onwuteaka-Philipsen BD,Smets T,Lilja E,Kijowska V,Szczerbińska K,PACE consortium.

更新日期：2019-05-21 00:00:00

abstract：OBJECTIVE:Evidence is mixed regarding the impact of advance care planning (ACP) on place of death. This cohort study investigated the effect of ACP programmes on place of death and utilisation of life-sustaining treatments for patients during end-of-life (EOL) care. METHODS:This prospective cohort study identified dec...

journal_title：BMJ supportive & palliative care

authors： Yen YF,Lee YL,Hu HY,Sun WJ,Ko MC,Chang SS,Chen CC,Huang SJ,Chu D

更新日期：2020-10-28 00:00:00

abstract：OBJECTIVES:This paper examined the potential of a new classification framework, The Spectrum of Children's Palliative Care Needs, to facilitate identification of children with palliative care needs for the purposes of minimum data set collection and population needs assessment. METHODS:Health and social care professio...

journal_title：BMJ supportive & palliative care

authors： Shaw KL,Brook L,Mpundu-Kaambwa C,Harris N,Lapwood S,Randall D

更新日期：2015-09-01 00:00:00

abstract：BACKGROUND:In healthcare, many service evaluation questionnaires use free-text boxes without formal mechanisms for analysis. Patients and carers spend time documenting concerns that are often ignored or managed locally in an ad hoc manner. Currently, palliative care experiences of patients and carers in Wales are measu...

journal_title：BMJ supportive & palliative care

authors： Bowyer AV,Finlay I,Baillie J,Byrne A,McCarthy J,Sampson C,Snow V,Nelson A

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:A developing body of evidence has provided valuable insight into the experiences of caregivers of people with motor neuron disease; however, understandings of how best to support caregivers remain limited. AIM:This study sought to understand concepts related to the motor neuron disease caregiver experience ...

journal_title：BMJ supportive & palliative care

authors： Anderson NH,Gluyas C,Mathers S,Hudson P,Ugalde A

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:Malignant pleural effusion (MPE) results in breathlessness and impairment of health-related quality of life (HRQOL). This study reviews the existing literature on HRQOL following invasive interventions in MPE. METHODS:Five electronic databases were systematically searched and assessed three times during the...

journal_title：BMJ supportive & palliative care

authors： Sivakumar P,Saigal A,Ahmed L

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:In Ireland, weekend and night medical cover for community based patients is largely provided by general practice co-operatives. Doctors working in this service do not have direct access to patients' medical records which challenges continuity of care. OBJECTIVES:This study investigates the opinion of genera...

journal_title：BMJ supportive & palliative care

authors： Kiely F,Murphy M,O'Brien T

更新日期：2013-12-01 00:00:00

abstract：OBJECTIVE:Terminal haemorrhage is a rare and distressing emergency in palliative oncology. We present an algorithm for the management of terminal haemorrhage in patients likely to receive end-of-life care at home, based on a literature review of the management of terminal haemorrhage for patients with advanced cancer, ...

journal_title：BMJ supportive & palliative care

authors： Ubogagu E,Harris DG

更新日期：2012-12-01 00:00:00

abstract：INTRODUCTION:Of the 40 million people globally in need of palliative care (PC), just 14% receive it, predominantly in high-income countries. Within fragile health systems that lack PC, incurable illness is often marked by pain and suffering, as well as burdensome costs. In high-income settings, PC decreases healthcare ...

journal_title：BMJ supportive & palliative care

authors： Reid EA,Kovalerchik O,Jubanyik K,Brown S,Hersey D,Grant L

更新日期：2019-06-01 00:00:00

abstract：CONTEXT:Patients living with cystic fibrosis (CF) report impaired quality of life. Little is known about unmet supportive care needs among adults living with CF and how they are associated with demographic characteristics. OBJECTIVES:The primary objective of this study was to identify associations between demographic ...

journal_title：BMJ supportive & palliative care

authors： Obregon LL,Jeong K,Hoydich ZP,Yabes J,Pilewski J,Richless C,Moreines LT,Dellon EP,Goss CH,Arnold RM,Kavalieratos D

更新日期：2019-08-31 00:00:00

abstract：PURPOSE:Advanced pancreatic cancer has a universally poor survival rate. Patients frequently develop malabsorption that requires pancreatic enzyme replacement therapy (PERT). This study explores the experience of patient engagement with PERT and how the medication is taken and tolerated. METHODS:Participants with adva...

journal_title：BMJ supportive & palliative care

authors： Landers A,McKenzie C,Pitama SG,Brown H

更新日期：2020-03-22 00:00:00

abstract：BACKGROUND:Communication about the end of life is especially important in the family context, as patients and their families are considered as the care unit in palliative care. Open end-of-life communication can positively affect medical, psychological and relational outcomes during the dying process for patient and fa...

journal_title：BMJ supportive & palliative care

authors： Nagelschmidt K,Leppin N,Seifart C,Rief W,von Blanckenburg P

更新日期：2020-08-27 00:00:00

abstract：BACKGROUND:Values used in economic evaluation are typically obtained from the general public, which is problematic when measures are to be used with people experiencing a life-course stage such as the end of life. OBJECTIVE:To assess the feasibility of obtaining values for the ICECAP-Supportive Care Measure (SCM) from...

journal_title：BMJ supportive & palliative care

authors： Bailey C,Kinghorn P,Hewison A,Radcliffe C,Flynn TN,Huynh E,Coast J

更新日期：2019-12-01 00:00:00