OA18 Population based end of life care - meeting the challenge of the ageing population.

abstract：OBJECTIVE:Caregivers to patients with primary malignant brain tumours neglect their own physical and emotional needs during the disease trajectory. The aim of the systematic review was to explore how informal caregivers of patients with primary malignant brain tumour (high-grade glioma (HGG)) experience and manage thei...

journal_title：BMJ supportive & palliative care

authors： Piil K,Nordentoft S,Larsen A,Jarden M

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:The role of the Community Matron was introduced in 2005 (DoH 2005a) to case-manage those patients deemed as very high intensity service users to prevent and reduce unscheduled admission to secondary care. Related studies on the effectiveness of managed care indicated the need to manage the demand of high ser...

journal_title：BMJ supportive & palliative care

authors： Barkham A

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Many scholars claim that recent changes to Chinese society since economic reform have challenged longstanding forms of informal social care, such as filial piety. For instance there is a societal tension at work in contemporary Chinese society today. On the one hand decreasing co-residence in multi-generatio...

journal_title：BMJ supportive & palliative care

authors： He L

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVES:This study aimed to identify gaps in palliative care (PC) provision across the National Cancer Grid (NCG) centres in India. METHODS:We performed a cross-sectional validated web-based survey on 102 NCG cancer centres (Nov '17 to April '18). The survey questionnaire had seven sections collecting data relating...

journal_title：BMJ supportive & palliative care

authors： Damani A,Salins N,Ghoshal A,Chowdhury J,Muckaden MA,Deodhar J,Pramesh CS

更新日期：2020-06-09 00:00:00

abstract：OBJECTIVES:People with dementia and their carers may experience poor end of life care, often having to navigate complex health and social care systems. The objectives of this study were to identify: (1) barriers for people with dementia and their carers in accessing good quality end of life care and (2) cost-effective ...

journal_title：BMJ supportive & palliative care

authors： Sampson E,Mandal U,Holman A,Greenish W,Dening KH,Jones L

更新日期：2012-06-01 00:00:00

abstract：CONTEXT:Patients with chronic cancer pain frequently suffer severe exacerbations of pain intensity which are difficult to control adequately via pharmaceutical management. Management of these episodes of breakthrough pain (BTP) presents a challenge both to the physician and the patient, and supplemental 'rescue' doses ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Johnson MI,Bennett MI

更新日期：2011-12-01 00:00:00

abstract：OBJECTIVES:The present study examined the impact of a patient-tailored complementary/integrative medicine (CIM) programme on sleep quality in patients undergoing chemotherapy for breast and gynaecological cancer. METHODS:Study participants received standard supportive care, with or without weekly CIM treatments. Distu...

journal_title：BMJ supportive & palliative care

authors： Kerner H,Samuels N,Ben Moshe S,Sharabi IS,Ben-Arye E

更新日期：2020-09-01 00:00:00

abstract：AIM:Junior doctors are frequently required to discuss resuscitation status with patients. They generally lack experience, confidence and skill in having these conversations. However, there is currently no formal postgraduate education requirement to improve or develop in this area. The aim of this educational intervent...

journal_title：BMJ supportive & palliative care

authors： Ferguson L,Clark H,de Beer W

更新日期：2020-08-21 00:00:00

abstract：BACKGROUND:Fibrotic interstitial lung disease is an incurable disease with poor prognosis. We aimed to understand factors affecting decisions regarding referrals to specialist palliative care services and to address barriers and facilitators to referrals from healthcare professionals' perspectives. METHODS:A survey st...

journal_title：BMJ supportive & palliative care

authors： Kim JW,Olive S,Jones S,Thillai M,Russell AM,Johnson MJ,Wilson A

更新日期：2020-06-19 00:00:00

abstract：OBJECTIVE:Patient and public involvement (PPI) has become an established theme within the UK health research policy and is recognised as an essential force in the drive to improve the quality of services and research. These developments have been particularly rapid in the cancer field. METHODS:This paper outlines a mo...

journal_title：BMJ supportive & palliative care

authors： Collins K,Boote J,Ardron D,Gath J,Green T,Ahmedzai SH,North Trent Cancer Research Network Consumer Research Panel (NTCRN CRP).

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:End-of-life care practices in long-term care facilities (LTCFs) are the focus of growing attention in Europe, due to rapidly increasing number of older persons living in LTCFs. The knowledge about end-of-life discussions or existence of written advance directives in the European LTCFs is scarce. This study's...

journal_title：BMJ supportive & palliative care

authors： Andreasen P,Finne-Soveri UH,Deliens L,Van den Block L,Payne S,Gambassi G,Onwuteaka-Philipsen BD,Smets T,Lilja E,Kijowska V,Szczerbińska K,PACE consortium.

更新日期：2019-05-21 00:00:00

abstract：OBJECTIVES:Prognostication is an essential ability to clinicians. Nevertheless, it has been shown to be quite variable in acutely ill patients, potentially leading to inappropriate care. We aimed to assess the accuracy of physician's prediction of hospital mortality in acutely deteriorating patients referred for urgent...

journal_title：BMJ supportive & palliative care

authors： Ramos JGR,Dias RD,Passos RDH,Batista PBP,Forte DN

更新日期：2020-03-01 00:00:00

abstract：INTRODUCTION:The incidence of some fatal diseases, including HIV/AIDS, accompanied by depression has become a significant concern in developed, developing and underdeveloped countries. A great deal of time and money are spent on controlling and reducing the complications of this infection across the world. Accordingly,...

journal_title：BMJ supportive & palliative care

authors： Rezaei S,Ahmadi S,Rahmati J,Hosseinifard H,Dehnad A,Aryankhesal A,Shabaninejad H,Ghasemyani S,Alihosseini S,Bragazzi NL,Raoofi S,Kiaee ZM,Ghashghaee A

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:In healthcare, many service evaluation questionnaires use free-text boxes without formal mechanisms for analysis. Patients and carers spend time documenting concerns that are often ignored or managed locally in an ad hoc manner. Currently, palliative care experiences of patients and carers in Wales are measu...

journal_title：BMJ supportive & palliative care

authors： Bowyer AV,Finlay I,Baillie J,Byrne A,McCarthy J,Sampson C,Snow V,Nelson A

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVES:This study explores the narrative accounts of chronic obstructive pulmonary disease (COPD) to identify events that potentially could act as triggers for provision of supportive and palliative care. Trigger events must have meaning for the patient/carer, be visible to professionals, and have value in provokin...

journal_title：BMJ supportive & palliative care

authors： Cawley D,Billings J,Oliver D,Kendall M,Pinnock H

更新日期：2014-06-01 00:00:00

abstract：OBJECTIVE:Patients with advanced diseases and frail older adults often face decisions regarding life-prolonging treatment. Our aim was to provide an overview of the feasibility and effectiveness of tools that support communication between healthcare professionals and patients regarding decisions on life-prolonging trea...

journal_title：BMJ supportive & palliative care

authors： Thodé M,Pasman HRW,van Vliet LM,Damman OC,Ket JCF,Francke AL,Jongerden IP

更新日期：2020-10-05 00:00:00

abstract：:The aim of this article is to use data from Belgium to analyse distinctions between palliative sedation and euthanasia. There is a need to reduce confusion and improve communication related to patient management at the end of life specifically regarding the rapidly expanding area of patient care that incorporates a sp...

journal_title：BMJ supportive & palliative care

authors： Cohen-Almagor R,Ely EW

更新日期：2018-09-01 00:00:00

abstract：OBJECTIVES:As a rose geranium in sesame oil spray product has been anecdotally noted to improve nasal vestibulitis symptoms, this study was designed to assess whether patients with nasal vestibulitis associated with cancer-directed therapy experienced symptomatic improvements from it. METHODS:Patients with breast canc...

journal_title：BMJ supportive & palliative care

authors： Cathcart-Rake EJ,Smith D,Zahrieh D,Loprinzi CL

更新日期：2020-12-01 00:00:00

abstract：OBJECTIVES:Patients with advanced cancer do not report all symptoms, so assessment is best done systematically. However, for such patients, completion rates of some symptom instruments are <50%. Symptoms can be quantified by various scales including the Categorical Response Scale (CRS), Numerical Rating Scale (NRS) and...

journal_title：BMJ supportive & palliative care

authors： Jeter K,Blackwell S,Burke L,Joyce D,Moran C,Conway EV,Cremen I,O'Connor B,Ui Dhuibhir P,Walsh D

更新日期：2018-06-01 00:00:00

abstract：BACKGROUND:The legalisation of medical assistance in dying in numerous countries over the last 20 years represents a significant shift in practice and scope for many clinicians who have had little-to-no training to prepare them to sensitively respond to patient requests for hastened death. AIMS:Our objective was to re...

journal_title：BMJ supportive & palliative care

authors： Patel T,Christy K,Grierson L,Shadd J,Farag A,O'Toole D,Lawson J,Vanstone M

更新日期：2020-06-29 00:00:00

abstract：BACKGROUND:Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2 to 4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, thoughts about hastening death are not uncommon. OBJECTIVES:Our aim was to examine the scope of literat...

journal_title：BMJ supportive & palliative care

authors： Erdmann A,Spoden C,Hirschberg I,Neitzke G

更新日期：2021-01-04 00:00:00

abstract：BACKGROUND:There has been a dramatic increase in liver disease over recent decades, with morbidity and mortality rates predicted to rise significantly. In order to effectively support this growing patient population we need to understand the experiences, key issues and priorities of people living and dying with advance...

journal_title：BMJ supportive & palliative care

authors： Kimbell B,Murray SA

更新日期：2015-12-01 00:00:00

abstract：OBJECTIVES:This paper reports on qualitative data exploring the experiences and coping mechanisms of medical specialists from the specialties of intensive care, surgery, oncology and palliative care, when dealing with death and dying and their emotional connection with dying patients in the context of a life-threatenin...

journal_title：BMJ supportive & palliative care

authors： Zambrano SC,Chur-Hansen A,Crawford GB

更新日期：2012-09-01 00:00:00

abstract：BACKGROUND:Non-invasive ventilation (NIV) is beneficial for respiratory failure in motor neurone disease (MND) but some patients may wish to stop the intervention. Guidance from the National Institute for Health and Care Excellence recommends that research is needed on NIV withdrawal. There is little in the literature ...

journal_title：BMJ supportive & palliative care

authors： Faull C,Rowe Haynes C,Oliver D

更新日期：2014-03-01 00:00:00

abstract：OBJECTIVE:To examine the association of the use of hospice care on patient experience and outcomes of care. Promoting high-value, safe and effective care is an international healthcare imperative. However, the extent to which hospice care may improve the value of care is not well characterised. METHODS:A secondary ana...

journal_title：BMJ supportive & palliative care

authors： Kleinpell R,Vasilevskis EE,Fogg L,Ely EW

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:Cancer-related pain is a significant and debilitating problem. Non-pharmacological treatments such as acupuncture may have an adjunctive role in controlling pain without the undesirable side effects of drug regimens and yet the evidence base remains limited. OBJECTIVES:The main objective of this systematic ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Tashani OA,Bagnall AM,Johnson MI

更新日期：2011-06-01 00:00:00

abstract：BACKGROUND:General practitioners (GPs) and general practice nurses (GPNs) face increasing demands to provide end-of-life care (EoLC) as the population ages. To enhance primary palliative care (PC), the care they provide needs to be understood to inform best practice models of care. OBJECTIVE:To provide a comprehensive...

journal_title：BMJ supportive & palliative care

authors： Senior H,Grant M,Rhee JJ,Aubin M,McVey P,Johnson C,Monterosso L,Nwachukwu H,Fallon-Ferguson J,Yates P,Williams B,Mitchell G

更新日期：2019-08-29 00:00:00

abstract：BACKGROUND:Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM:...

journal_title：BMJ supportive & palliative care

authors： Bowers AP,Bradford N,Chan RJ,Herbert A,Yates P

更新日期：2020-10-13 00:00:00

abstract：OBJECTIVE:This study explored how built space plays out in palliative care, focusing on spatial aspects that could support or hamper patients', relatives' and caregivers' well-being. METHODS:This study was conducted in a freestanding small-scale hospice combining a residential part for eight guests with a day-care par...

journal_title：BMJ supportive & palliative care

authors： Annemans M,Coomans K,Heylighen A

更新日期：2020-05-14 00:00:00

abstract：BACKGROUND:Managing Cancer And Living Meaningfully (CALM) is a brief individual psychotherapy for patients with advanced cancer. In an intervention-only phase 2a trial, CALM showed promising results, leading to the present 2b pilot, which introduces procedures for randomisation and improved rigour in preparation for a ...

journal_title：BMJ supportive & palliative care

authors： Lo C,Hales S,Chiu A,Panday T,Malfitano C,Jung J,Rydall A,Li M,Nissim R,Zimmermann C,Rodin G

更新日期：2019-06-01 00:00:00