Interstitial lung disease and specialist palliative care access: a healthcare professionals survey.

abstract：BACKGROUND:Malignant pleural effusion (MPE) results in breathlessness and impairment of health-related quality of life (HRQOL). This study reviews the existing literature on HRQOL following invasive interventions in MPE. METHODS:Five electronic databases were systematically searched and assessed three times during the...

journal_title：BMJ supportive & palliative care

authors： Sivakumar P,Saigal A,Ahmed L

更新日期：2020-03-01 00:00:00

abstract：OBJECTIVES:This study explores the narrative accounts of chronic obstructive pulmonary disease (COPD) to identify events that potentially could act as triggers for provision of supportive and palliative care. Trigger events must have meaning for the patient/carer, be visible to professionals, and have value in provokin...

journal_title：BMJ supportive & palliative care

authors： Cawley D,Billings J,Oliver D,Kendall M,Pinnock H

更新日期：2014-06-01 00:00:00

abstract：BACKGROUND:Many scholars claim that recent changes to Chinese society since economic reform have challenged longstanding forms of informal social care, such as filial piety. For instance there is a societal tension at work in contemporary Chinese society today. On the one hand decreasing co-residence in multi-generatio...

journal_title：BMJ supportive & palliative care

authors： He L

更新日期：2015-04-01 00:00:00

abstract：:Medicine regards the prevention of death as an important priority. Yet patients may have a range of priorities of equal or greater importance. These other priorities are often not discussed or appreciated by treating doctors. OBJECTIVES:We sought to identify priorities of care for patients attending an advance care p...

journal_title：BMJ supportive & palliative care

authors： Milnes S,Corke C,Orford NR,Bailey M,Savulescu J,Wilkinson D

更新日期：2019-09-01 00:00:00

abstract：INTRODUCTION:The incidence of some fatal diseases, including HIV/AIDS, accompanied by depression has become a significant concern in developed, developing and underdeveloped countries. A great deal of time and money are spent on controlling and reducing the complications of this infection across the world. Accordingly,...

journal_title：BMJ supportive & palliative care

authors： Rezaei S,Ahmadi S,Rahmati J,Hosseinifard H,Dehnad A,Aryankhesal A,Shabaninejad H,Ghasemyani S,Alihosseini S,Bragazzi NL,Raoofi S,Kiaee ZM,Ghashghaee A

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVES:Evidence-based communication skills training for health and social care professionals is essential to improve the care of seriously ill patients and their families. We aimed to evaluate the self-reported impact of 'Difficult Conversations', a multidisciplinary half-day interactive workshop, and gain feedback...

journal_title：BMJ supportive & palliative care

authors： Brighton LJ,Selman LE,Gough N,Nadicksbernd JJ,Bristowe K,Millington-Sanders C,Koffman J

更新日期：2018-03-01 00:00:00

abstract：BACKGROUND:Family caregivers suffer physically, mentally, and spiritually. Community volunteers play an important role in supporting patients at the end of life or former caregivers in bereavement. However, there are no research reports of volunteer services focused on maintaining the wellbeing of end-of-life caregiver...

journal_title：BMJ supportive & palliative care

authors： Cohen SR,Keats S,Cherba M,Allen D,MacKinnon CJ,Bitzas V,Kogan N,Penner JL,Calislar MP,Feindel A,Lapointe B,Baxter S,O'Brien S,Stajduhar K

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVES:The present study examined the impact of a patient-tailored complementary/integrative medicine (CIM) programme on sleep quality in patients undergoing chemotherapy for breast and gynaecological cancer. METHODS:Study participants received standard supportive care, with or without weekly CIM treatments. Distu...

journal_title：BMJ supportive & palliative care

authors： Kerner H,Samuels N,Ben Moshe S,Sharabi IS,Ben-Arye E

更新日期：2020-09-01 00:00:00

abstract：:The COVID-19 pandemic is expected to surpass the healthcare system's capacity to provide intensive care to all patients who deteriorate as a result of the disease. This poses a unique challenge to healthcare teams of rationing care during pandemic when resources are scarce. Healthcare providers will need to acquire ne...

journal_title：BMJ supportive & palliative care

authors： Fadul N,Elsayem AF,Bruera E

更新日期：2020-06-11 00:00:00

abstract：BACKGROUND:General practitioners (GPs) and general practice nurses (GPNs) face increasing demands to provide end-of-life care (EoLC) as the population ages. To enhance primary palliative care (PC), the care they provide needs to be understood to inform best practice models of care. OBJECTIVE:To provide a comprehensive...

journal_title：BMJ supportive & palliative care

authors： Senior H,Grant M,Rhee JJ,Aubin M,McVey P,Johnson C,Monterosso L,Nwachukwu H,Fallon-Ferguson J,Yates P,Williams B,Mitchell G

更新日期：2019-08-29 00:00:00

abstract：OBJECTIVE:To assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people. METHOD:Cross-sectional survey using a web-based questionnaire. SETTING:UK specialist paediatric palliative care services. PARTICIPANTS:Volunteer managers/coordinators fro...

journal_title：BMJ supportive & palliative care

authors： Burbeck R,Low J,Sampson EL,Scott R,Bravery R,Candy B

更新日期：2015-09-01 00:00:00

abstract：OBJECTIVES:To report the results of a combined case series analysis of subcutaneous levetiracetam (Keppra) for the management of seizures in palliative care patients. METHODS:A comprehensive literature review on the use of subcutaneous levetiracetam was performed, and these data were combined with a prospective observ...

journal_title：BMJ supportive & palliative care

authors： Sutherland AE,Curtin J,Bradley V,Bush O,Presswood M,Hedges V,Naessens K

更新日期：2018-06-01 00:00:00

abstract：BACKGROUND:In Switzerland, helping with assisted suicide under certain conditions is not prosecuted. With approximately 300 cases annually, this leaves behind a large group of bereaved people where its consequences are mostly unknown. The study aimed to explore family involvement in decision making prior to assisted su...

journal_title：BMJ supportive & palliative care

authors： Gamondi C,Pott M,Forbes K,Payne S

更新日期：2015-06-01 00:00:00

abstract：:This case report discusses the problems encountered with dystonia in a teenage boy with end-stage calcifying leucodystrophy. It records the successful use of prolonged continuous subcutaneous clonidine and the change to thrice weekly transdermal clonidine. ...

journal_title：BMJ supportive & palliative care

authors： McCluggage HL

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:Recruitment and training of Companion Volunteers has developed out of a Companion Sitter Training Programme begun in 2010. (Scottish Journal of Healthcare Chaplaincy Vol 15. No 1, 2012). This programme was established to support patients emotionally and spiritually. While other services were available to off...

journal_title：BMJ supportive & palliative care

authors： Murphy K

更新日期：2015-04-01 00:00:00

abstract：:The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have...

journal_title：BMJ supportive & palliative care

authors： Hunt KJ,Richardson A,Darlington AE,Addington-Hall JM

更新日期：2019-03-01 00:00:00

abstract：:There has been rapid progress in palliative care in Africa since the World Health Assembly in 2005 which identified palliative care as an urgent humanitarian need. Palliative care is now recognised as a basic human right, and momentum has gathered to translate this into action. From being significantly present in only...

journal_title：BMJ supportive & palliative care

authors： Grant L,Downing J,Namukwaya E,Leng M,Murray SA

更新日期：2011-09-01 00:00:00

abstract：OBJECTIVES:To identify those factors which adversely affected recruitment to a large multicentre palliative care study. METHODS:Patient accrual to a multicentre, observational, palliative care study was monitored at three critical junctures in the research process. (1) Eligibility-did the patient fulfil the study entr...

journal_title：BMJ supportive & palliative care

authors： Stone PC,Gwilliam B,Keeley V,Todd C,Kelly LC,Barclay S

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Non-invasive ventilation (NIV) is beneficial for respiratory failure in motor neurone disease (MND) but some patients may wish to stop the intervention. Guidance from the National Institute for Health and Care Excellence recommends that research is needed on NIV withdrawal. There is little in the literature ...

journal_title：BMJ supportive & palliative care

authors： Faull C,Rowe Haynes C,Oliver D

更新日期：2014-03-01 00:00:00

abstract：OBJECTIVES:Patients with advanced cancer do not report all symptoms, so assessment is best done systematically. However, for such patients, completion rates of some symptom instruments are <50%. Symptoms can be quantified by various scales including the Categorical Response Scale (CRS), Numerical Rating Scale (NRS) and...

journal_title：BMJ supportive & palliative care

authors： Jeter K,Blackwell S,Burke L,Joyce D,Moran C,Conway EV,Cremen I,O'Connor B,Ui Dhuibhir P,Walsh D

更新日期：2018-06-01 00:00:00

abstract：OBJECTIVE:This study investigated the preferences of patients, family and staff for single or shared rooms in a UK hospice. METHOD:Semistructured interviews were conducted with patients, informal carers and staff at a hospice, focusing on room type preference. RESULTS:14 current and former hospice inpatients, 15 pati...

journal_title：BMJ supportive & palliative care

authors： Williams C,Gardiner C

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:Randomised controlled trials (RCTs) of palliative care interventions are challenging to conduct and evaluate. Tools used to judge the quality of RCTs do not account for the complexities of conducting research in seriously ill populations and may artificially downgrade confidence in palliative care research. ...

journal_title：BMJ supportive & palliative care

authors： Isenberg SR,Kavalieratos D,Chow R,Le L,Wegier P,Zimmermann C

更新日期：2020-11-18 00:00:00

abstract：OBJECTIVES:Report the use of an objective tool, UK Gold Standards Framework (GSF) criteria, to describe the prevalence, recognition and outcomes of patients with palliative care needs in an Australian acute health setting. The rationale for this is to enable hospital doctors to identify patients who should have a patie...

journal_title：BMJ supportive & palliative care

authors： Milnes S,Orford NR,Berkeley L,Lambert N,Simpson N,Elderkin T,Corke C,Bailey M

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVES:Education and training are seen as 'absolutely essential parts of providing palliative care'. As part of a larger study to explore the extent of palliative care need in two acute hospital settings, we report the perceptions of healthcare professionals regarding their training and educational needs. METHODS:...

journal_title：BMJ supportive & palliative care

authors： Ingleton C,Gardiner C,Seymour JE,Richards N,Gott M

更新日期：2013-06-01 00:00:00

abstract：BACKGROUND:In October 2014 a detailed mapping study of volunteers in palliative care services in NSW was undertaken for the first time. This presentation will provide a thematic analysis of the initial findings. AIMS:The aim of this study was to provide a thematic analysis of the occupational terrain of palliative car...

journal_title：BMJ supportive & palliative care

authors： Hansen L,Huntir A

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:According to a small pilot study on palliative cancer patients at our ward, vitamin D supplementation had beneficial effects on pain (measured as opioid consumption), infections and quality of life (QoL) without having any significant side effects. OBJECTIVE:The primary objective of the 'Palliative-D' study...

journal_title：BMJ supportive & palliative care

authors： Helde-Frankling M,Bergqvist J,Klasson C,Nordström M,Höijer J,Bergman P,Björkhem-Bergman L

更新日期：2017-12-01 00:00:00

abstract：OBJECTIVES:The decision to refer a patient to palliative care is complex and often highly variable between medical specialists. In this paper, we examine medical specialists' motivations and triggers underpinning decision-making around referral to palliative care in order to facilitate improvements in referral practice...

journal_title：BMJ supportive & palliative care

authors： Kirby E,Broom A,Good P,Wootton J,Adams J

更新日期：2014-09-01 00:00:00

abstract：BACKGROUND:Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2 to 4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, thoughts about hastening death are not uncommon. OBJECTIVES:Our aim was to examine the scope of literat...

journal_title：BMJ supportive & palliative care

authors： Erdmann A,Spoden C,Hirschberg I,Neitzke G

更新日期：2021-01-04 00:00:00

abstract：OBJECTIVE:Patient and public involvement (PPI) has become an established theme within the UK health research policy and is recognised as an essential force in the drive to improve the quality of services and research. These developments have been particularly rapid in the cancer field. METHODS:This paper outlines a mo...

journal_title：BMJ supportive & palliative care

authors： Collins K,Boote J,Ardron D,Gath J,Green T,Ahmedzai SH,North Trent Cancer Research Network Consumer Research Panel (NTCRN CRP).

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVES:This study aimed to identify gaps in palliative care (PC) provision across the National Cancer Grid (NCG) centres in India. METHODS:We performed a cross-sectional validated web-based survey on 102 NCG cancer centres (Nov '17 to April '18). The survey questionnaire had seven sections collecting data relating...

journal_title：BMJ supportive & palliative care

authors： Damani A,Salins N,Ghoshal A,Chowdhury J,Muckaden MA,Deodhar J,Pramesh CS

更新日期：2020-06-09 00:00:00